What is it like to get a "chunk" taken out?
Comments
-
Buzzie, Are you are a BC center? With something so rare I would want someone connected with a cancer center and not just a general surgeon.
-
He is a general surgeon, but it's a large hospital with a breast cancer center and tumor board and the whole nine yards. I am going to ask about this when I go on Monday - how much of this does he do, how much phyllodes has he seen, etc.
-
I know it's a personal decision, but I decided to go to a major cancer center rather than the local hospital. My cancer is no where as unusual as your's, but even ILC is distinctly different from the most common cancer, and I for one wanted the best care I could get.
-
Buzziecat, I've been following your posts and was going to respond to you first one but then I see you've already had the surgery. Interesting diagnosis. Quite rare from what I read but what I also read was that a mastectomy rather than a lumpectomy was the better choice for a cure. Have you discussed this option with your surgeon. Not to make you crazy but my mantra has always been , when in doubt , cut it out. Good luck to you.
-
I will be discussing everything with him on Monday. I have a boatload of questions for him. One of those will be how much to take off/out. I guess it will be more than a "chunk" this time. Ugh.
-
Buzziecat so sorry for your cancer diag. glad you will be meeting with the BS on Monday for your questions and good luck with your surgery.
-
I had a very rare cancer too!! Papillary Carcinoma...less than 2% of all breast cancers. NOTHING was on the internet about it 3 years ago except ONE case of an 83 yo woman!!!! They had no idea what to do with me, so treated it like IDC. Yep, I know what you mean...takes me and you to get the weird ones!!! I didn't have clear margins on diagnosis after lumpectomy, so I told them to go to mastectomies. My surgeon was VERY happy with that and the tumour board stood behind me.
I remember the first time I mentioned tumour board on here and one of my Canadian sisters who thought she knew it all questioned me on the tumour board issue. Doi!!! All hospitals have them!!!
-
Thanks for all the support everyone. I will be here posting my travails. Will post about what he says on Monday. To think I was worried about getting a chunk taken out. My health is the most important thing obviously, but I can't help but be a little vain and wonder how lopsided I am going to end up! I want him to take whatever he needs to take, but I'm just sort of blindsided by this whole thing. I guess that's a common feeling. A couple of months ago, none of this was on my mind, then suddenly I notice a lump and wham, bam, here I am!
-
Ain't life grand!
-
Well, had my pre-surgery appointment, scheduled for surgery #2 on Friday. He says it is a very indolent, very slow-growing phyllodes and that his aim is to get a 1-cm clean margin. He says I will have a dent.
-
Got my surgery done yesterday. It is quite sore, more than it was from the original chunk removal. But I am not having the weird all-over soreness that I had the first time around. I told them about it beforehand and they said they would use different medications, which I guess they did because it worked. Now I wait to see if we got good margins. Sigh.
-
Buzzie .. glad to hear you didn't have the same all over soreness you had the first time. I'm sorry you have more waiting .. the waiting is so hard. Hoping for big margins for you!
Bren
-
Thank you, BinVA! I seem to do a lot of waiting lately, and it is HARD.
-
Buzzie, what happened!!! This thread didn't pop up until today!! I missed your surgery date, I am SO sorry. I am so glad that you mentioned your previous post-surger pain issue and they were able to alleviate it. Good for you for speaking up!!
How goes the dent?
-
So far it doesn't look too dented, just a little bit, but I think right now it is filled in by some swelling. It definitely has a different shape now than the non-operated one. It looks okay, though, not hot or oozing or anything. I am sort of afraid to look at it! Funny I never much cared about them or how they looked until docs started wanting to take chunks out of one!
-
A little update. Seems to be healing well. It had a tiny bit of bleeding a few days afterwards, but it has not done that again. Still tender. Still swollen. Can't see the dent yet! Will update after I go to my followup appt on Friday.
-
Remember, it may just fill in with gravity. I never noticed my `dents`after a time....
-
I hope it does fill in. I've seen other posts with patients saying that their dents filled in pretty well. My doc just said you will have a dent now. What does he know? LOL.
-
Hi Buzzie .. I hope your dent fills in nicely. I was lucky and didn't have a dent ... just a lot of bruising after the lumpectomy.
hugs,
Bren
-
My first lumpectomy my dent filled in quiet nicely. Now this one 14 years later on same breast and rads not so much.
-
They got a good margin! So no more surgery, at least for now unless something ever comes up again. Of all things - my surgeon had his retirement party yesterday and is now outta there! I did not know this ahead of time. (He apparently wanted to "go out" while he is still sharp and active.) So I saw his nurse practitioner today and would be referred to another surgeon if I needed more, well, surgery. I asked the NP some questions about followup and she set me up for the high risk breast clinic. I have my first appointment there in just a few days. I do feel like I will be followed well.
-
Oh Buzzie!!! You done good!!
Congrats on a job well done! Here's to dents filling in.....
-
Yay, buzzie!! I am so happy for you! :-)
-
Thank you! I am very relieved. Now I need some celebratory pizza, hee hee. I'm sure that pizza would help my dent fill in better.
-
Icecream and chocolate fill it in MUCH better than pizza!! Now you know....
-
You know, I think you are right. I'm sure I read about that in a study somewhere!
-
I speak from experience. 4 (FOUR) lumpectomies for me!!
-
The swelling seems to have gone down now and the dent is more evident. You can see and feel it. But I think I still look "normal" in clothes. It is weird - it is like there is a big gap between my skin and the remaining breast tissue. Kind of like a chair that is covered in cloth but has no filling underneath! I was seen at the high risk breast clinic and will have a mammogram on the affected breast every 6 months and a mammogram on the unaffected one just every year. They will see me every 6 months and do a breast exam and I will notify them sooner if I find any changes on my self-exams. The doc did a very thorough breast exam on me, more than I have ever had before. Every woman should get such a thorough exam.
I'm sure I'm preaching to the choir here, but - do your self breast exams! If I had been a regular self-examiner, maybe I would have noted the lump even sooner. Who knows how long that thing had been there. It was only by chance that I felt it.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team