APBI, Brachytherapy - anyone?

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  • judyfams
    judyfams Member Posts: 148
    edited July 2011

    Blackgamma,

    Congratulations for taking back control of your cancer treatment!

    I had 35 rounds of external IMRT in the prone position.  It was very comfortable - I did have the usual skin redness and irritation, skin did not break open but was very irritated - all healed nicely since I finished that in Dec. 2010.

    Good luck to you!

    Judy 

  • ktab96
    ktab96 Member Posts: 126
    edited July 2011

    I had the Savi catheters placed last wednesday.  Except for the bulkyness under my arm from the gause I don't feel any other discomfort.  I start my rads on Monday.  I also have to take an antibiotic 3x a day to prevent infection.  So far so good.  I hope this continues. 

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    ktab96,

    I had that procedure last year. It was a long week, but so worth it. Good luck.

  • ktab96
    ktab96 Member Posts: 126
    edited July 2011

    Has anyone experienced nausea after treatment?

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011
    Hi Ladies,  Thought I'd join in since on Aug 19 I am having the balloon catheter placed for Brachytherapy to start the week after.  I've been reading lots and just wanted to check with you on SE's and any problems I should be aware of before I begin.  Thanks for letting me inCool!  Kitty 
  • ktab96
    ktab96 Member Posts: 126
    edited August 2011

    I had no side effects.  I was able to go to the movies, spend time at a state park and go out to dinner.  Its not a walk in the park but it is definitely doable.  Keep in mind 5 days and you are done!  You may have drainage.  Mine was minimal but another woman that was having the same treatment had a lot of dranage.  Also if you have trouble sleeping, build a cocoon of pillows all around you and sleep slightly inclined.  It definitely helped me.  The bad part is that you can't shower.  I don't want to see or smell another baby wipe again!

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Thanks Ktab96!  You really cracked me up about the baby wipes!  I know the smell from using them for my grandson.  All I can see in my mind about those is doo-doo diapers!  I got a body pillow that I used after surgery so I hope that will help along with others.  What did you do for the drainage?  Gauze pads?  (Hugs)  Kitty

  • ktab96
    ktab96 Member Posts: 126
    edited August 2011

    Yes.  I was not allowed to touch my dressing.  I brought a clean bra with me each morning.  The techs took off my bra, cleaned the site, changed the gauze and dressed me in my clean bra.  I was told if the drainage seeps through, I should place another gauze on top of the others.  I also bought sport bras that was bigger in the band.  I am normally a size 38 so I bought 2 sport bra's size 42 to allow for swelling and gauze.  I am glad I did because with everything, I defintely used the extra band width.  I also brought my baby wipes with me so I could clean my cleavage and under my breasts.  Let me know how you make out.

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Thanks!  I have the sport bras but will go out and get two more in a bigger size.  I sure appreciate the help!  I still waiting for my ONCO score.   Kitty

  • GoddessP
    GoddessP Member Posts: 4
    edited August 2011

    I just completed interstitial multi-catheter brachytherapy.  It was no walk in the park but I would do it over again if I had to.  The position of my tumors (I had three in the same area) and my heart made it almost impossible for external beam radiation to miss my heart.  I went to Arizona and the guy who originated the procedure in Lousianna, then took it to Wisconsin.  He is now in Scottsdale and the whole process felt more like a medical spa than a medical treatment.  Everything was arranged for the comfort of the patient.  But make no mistake, this is a serious procedure best done by an expert.  If you are considering this treatment find out how many procedures have been done by the radiologist before committing.  If you can afford ten days away from home, RUN to Arizona.  Your surgeon can consult and send info prior to your travelling to make sure you fit the protocols.  My own docs were not in favor initially but were very enthusiastic when I returned and they observed the results.

  • AnneWisc
    AnneWisc Member Posts: 476
    edited August 2011

    Thanks for sharing and congratulations on being done, Goddess!

  • azlady
    azlady Member Posts: 17
    edited September 2011

    I was diagnosed mid-july, had surgery august 3rd and am due to start brachytherapy on the 19th.  Am having interstitial catheters placed on the 15th,  

    I live in AZ and am fortunate enough to be going to the same place that GoddessP went to..... just hope I have the same good fotrune and get this over with.  Glad to hear you speak so highly of them!!

    Will probably meet with a MO the week I have my radiation treatments since his office is just around the corner from where I'm having the radiation.

  • treeskier
    treeskier Member Posts: 52
    edited September 2011

    I had brachytherapy at the end of July at Red Rocks Radiation Oncology at the edge of Denver. Like the place discussed above, it's a very specialized, experienced place where I felt like I got top-notch care. They have been doing one to three of these a week for 6 or 8 years (can't remember). I am glad I went to people who really knew their stuff. If you do have to travel for the procedure, I would recommend them.

    I did not enjoy the Monday AT ALL, from my surgeon implanting the Contoura balloon catheter, through the simulation and the first treatments. Everyone was very kind and gentle, but it's so unknown and stressful, it felt about a month long. The rest of the week was a breeze except that I hated the feeling of having an "arrow in my chest." The nurse took extremely good care of my incision site and it stayed perfectly infection-free but I did worry about that. They had me on antibiotic for 10 days. I was a bit fatigued by the end of the 5 days and for a couple days afterwards. Nothing compared to the 6 or 7 week regimen, from what I hear, and no sunburn!

    I'm now about 2 weeks after removal. The incision has healed up and I'm just a little sore in the area.  I am using a special vitamin E lotion they sell for my whole poor little breast and I guess it's very good. If I had it to do again, I would absolutely choose brachytherapy over external radiation. 

    Hope this helps someone!

    Ellen

  • azlady
    azlady Member Posts: 17
    edited November 2011

    Had the interstital APBI towards the end of september... chatted with Kuske the while he was placing them and felt absolutely no pain at all.  During the week of treatments, a few of the sites started bothering me basically when the attached and disconnected the guides from the after-loader but on a scale of 10, I would say the pain was a 3 and tylenol was all I needed.

    Due to the radiation, just about all of the scarring from my surgery is gone!  Kinda wished they could have hit the SN scar a few times while I was there.  Laughing

    No antiobiotics needed and the care from the nurses in cleaning 2x day and putting some extra gauze around a few of the more sensative the sites kept the redness down between treatments.

    Am now 2 1/2 mos since radiation and almost 3 weeks on arimidex (generic) and doing great!!

    Would be more than happy to "speak" with anyone that wants info about brachytherapy and APBI and the Az Breast Cancer group.  Kuske was the doctor who trains most of the doctors around the US as well as from outside the US on these type of treatments and was the guy who invented the SAVI.

  • Vicks1960
    Vicks1960 Member Posts: 473
    edited November 2011

    AnneWisc.

    I just started the brachytherapy rads today.  Had surgery last Thurs. to implant the balloon, saw the RO Friday to be sure it was placed correctly.  Had first treatment this a.m. with 2nd treatment about 3:00 this p.m.  So far no problem other that carry over from the MX, hematoma.  

    Meet with the MO tomorrow.  Think he probably will give me the results of the OconoT test they have done on the tumor, and start me on the hormone blocking pills. Understand those will be needed for 5 years.  Will know more tomorrow afternoon (I hope)

    Good luck with your treatments... we will have to keep in touch...

  • ktab96
    ktab96 Member Posts: 126
    edited July 2012

    I am now a year out after recieving my SAVI brachytherapy radiation treatment.  I am happy to report today breast looks pretty normal with the exception of light scar where my lumpectomy occured.  I had some breast pain for the first 9 months after treatment.  My Radiologist said it was all part of the healing process.  I now graduated to seeing him once a year. 

    I am also a year into taking Femara.  I will continue taking Femara for another 4 years.  My side effects have been minimal.  I visit my Onc every three months.  So far so good. 

  • Shayne
    Shayne Member Posts: 1,500
    edited July 2012

    I had Brachy almost 6 weeks ago.  Im in AZ and went to the same doc as AZlady as well.  Amazing techs and docs.  Im so happy that I went with this procedure as it was over so quickly. There is a website - savisisters.com - with stories and a link to find docs in your area that do brachy.  Wondering if the OP had brachy afterall?

  • kira1234
    kira1234 Member Posts: 3,091
    edited January 2013

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