Fibrocystic Breasts

Lavender250
Lavender250 Member Posts: 187

Ok ladies. I'm having a hard time with what this actually means and was hoping for some help.

Most of the sites I read explain Fibrocystic Breasts as cysts or "fibrous tissue". What does that mean exactly? Some sites say rope-like or ridge-like tissue. What is that? Can a fibrocystic lump be irregular and complete unlike any other part of the breast? Is there such a thing as having a fibrocystic breast issue in only one breast? Can the pain be constant?

One more question for my increasingly worried mind. Since normal tissue can have texture to it, is it possible for a cyst to grow underneath that texture? Making it seem irregular and rough because it's under the tissue? Or am I grasping at straws? My lump feels almost exactly like a breast cancer lump is described...only it's painful to touch and seems moveable. I don't know if it's fixed to anything but it moves between my fingers. On my other breast, there is a similar texture in the tissue but no lump. So I was wondering if it was possible for a cyst to grow under that lumpy tissue? I don't know. I'm desperate, especially at 27, to believe that this could be nothing but it sounds like cancer. I even saw a picture of a removed piece of cancer and it "looked" how my lump "felt".

I'm being horribly pessimistic and I'm so sorry for that but I have nobody to talk to that understands. I'm drowning in my own fears.

XOXO

Comments

  • Rushell
    Rushell Member Posts: 81
    edited August 2011

    Lavender250;

    All your questions and concerns are completely justified questions and concerns.

    The long and short of it all is this: If you find a lump in your breast, get it checked. We do not have the expertise the Doctors have to distinguish what seems "like cancer" and what does not.Realistically, there is no way to know for sure what it is without a biopsy.

    Cysts can be anywhere in your breasts and they all can feel different.

    The fact that it moves around or not really matters none to your state of mind as it is a lump that wasn't there before.

    What for your appointment and go from there. try not to google any more as it only puts your mind in far more distress than is needed.

    Don't be afraid to ask questions to your Doctor. And if he/she says something you don't understand, tell them you didn't understand their answer and ask them to explain more clearly.

    You cannot compare how your lump 'feels' to how a cancer lump 'looks' on the internet. Every singal lump out there well be differently shaped, textured, etc....

    Tell you Doctor your concerns. Hope this helps hun.

    I know at 27, you are scared. but you are doing the right thing right now and that is seeing the Doctor about it and getting it checked. :)

  • HollyinMich
    HollyinMich Member Posts: 210
    edited August 2011

    Lavendar250 - Rushell above posted some very good suggestions.  I understand that you are scared and rightfully so.  I hate to add any additional fears to your concern but the notion that cancer isn't painful is completely incorrect.  I was diagnosed at 17 with fibrocystic breasts.  I had lumps that would come and go all the time and, yes, they were usually painful and appeared with menstrual changes.  When I was 32 I had a lump pop up with a menstrual cycle that was again painful.  I had just been laid off from work and had lost my insurance coverage.  So needless to say I brushed it off as just another fibroid.  It didn't go away unlike all the other fibroids I had in the past.  It was very painful as well.  I finally got it looked at a year later when I was able to obtain insurance and only after I had also developed other rather alarming symptoms (IBC-Inflammatory Breast Cancer).  I made the assumption because of my financial situation at the time and I think out of fear as well before I was diagnosed that it couldn't be cancer because I was too young, I had breastfed and most of all because it hurt.  Boy, was I ever wrong!  My experience dispelled a lot of myths for me.  You can get breast cancer at any age and just because a lump is painful doesn't mean it isn't cancer!

    You are doing the right thing by having it checked!  Be persistant, don't let doctors blow you off because of your age and if you notice any changes in the lump report them to your doctor immediately!  I wish you all the best of luck and truly hope that it IS nothing. 

  • Lavender250
    Lavender250 Member Posts: 187
    edited August 2011

    I hope you are doing okay now, Holly! That is such a scary thing and I'm in a similar situation without insurance. I can't even accept the possibility of cancer so accepting the reality would be impossible. I'm not a very strong person and I'm not too young for cancer apparently but I'm too young to feel like my life is over. I know it's reasonable to keep a good attitude but I think most women experiencing a breast lump go into panic mode. Some more severe than others. I wonder how many people on this board with a worrisome lump (i.e., irregular or suspicious) were able to keep calm through the process. My family keeps telling me to calm down and that I can't do this to myself. I agree for the most part but I also know that it's always different when it's happening to you. For me, reacting to the possibility is as bad as the reality. Unfortunately, I do have a pretty nasty family history and a lump that makes my heart stop when I touch it.

    I still appreciate all you lovely women for trying to help me. I want to be brave so bad!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited August 2011

    lavender250 - I had fibrocystic breasts for most of my adult life, numerous cysts in both breasts and very dense breast tissue.  My fibrocystics lumps were palpable, I always had more than one in each breast all the time, self exam was basically useless.  I had a baseline mammogram at 30 because of these lumps and because I was adopted and had no access to family medical history.  I have been closely watched for the last 20 years with mammography, ultrasound and fine needle aspiration of cysts and ultrasound-guided needle aspiration.  I know how concerning it is to feel these lumps and not know what they are.  I would encourage you to have this, and any other, lump checked.  If you do not have insurance seek help from any and all sources to get it checked.  There are resources for uninsured and underserved to have this done.  Find them.  I was always diligent with annual checks, and sometimes more frequently.  If I had not done this my lump, which felt like all the others, would not have been found. You don't have to be brave, you just have to do it.

  • HollyinMich
    HollyinMich Member Posts: 210
    edited August 2011

    Thank you Lavender, yes, I am ok now I guess, I am still here!!! lol Yes, it is very scary and I can relate to all that you are going through.  For me the scariest part was where you are at now; not knowing, playing the waiting game between tests and getting lost in my own thoughts about it!  Once I knew and had a treatment plan in place I calmed down a lot.  You move from the anxious flight or fight mode into the let's get this done fight mode!  Here I am a year later and almost done with treatment (I am Her2+ so I have to be on Herceptin for a year total).  I had a very aggressive cancer so they threw the book at it (chemo, bilateral mastectomy and radiation) and so far it's worked!  So keep in mind that regardless what the outcome is you can do it!

  • Lavender250
    Lavender250 Member Posts: 187
    edited August 2011

    So glad you are doing better! I know with benign or cancerous lumps, it really changes people. It touches my heart to see people handling the diagnosis with such strength. I've always been envious of that attitude!

    My mother also had IBC (apparently). My sources are unreliable at this point about the specifics. I was shocked to learn about her having that kind because it's supposed to be very rare. I'm so glad you are fighting the good fight and helping others. You seem like a wonderful person!!!

    Thank you for the encouragement. I don't plan on giving up without a fight but I do fear that my time might have run out. My negligence is something I'm very ashamed about given my known medical history.

  • amanda1116
    amanda1116 Member Posts: 127
    edited August 2011

    We are all drowning in our own fears at one time or another.  If it is not about breast cancer, it is about something else.  I mean that seriously. At other times, often miraculously, we are not.

    Your description of symptoms sound eerily familiar.  When I was 26 I had a fibro in one breast that was (or felt) enormous.  I had an open surgical biopsy to remove a small part of it for examination by the patholgists. The surgeon did not take more at that time because he did not want to leave me with an irregular looking breast.  I kept saying but what if it's cancer (my mother died of bc when I was a teenager) and he kept saying then we'll talk: right now this is what we are doing.  It was completely B9.  The huge fibro dissolved on its own over the next few years (it's barely there) but I remember being in a state of shock 1) because I was having breast surgery and was 30 years younger than my mom and 2) because I had NO IDEA really of what was going on.  I didn't even really understand a thing about the architectiure of the breast and this was stuff that happened to other people: at 26 I looked 15 and probably acted 13 about medical issues: either freaking or just like they didn't exist.  Hang in there, get it taken care of and I pray for your best results ever.  Sorry this isn't deeper or more meaningful but I think I know what you must be feeling and most of it is confusion that will be resolved

    Amanda 

  • HollyinMich
    HollyinMich Member Posts: 210
    edited August 2011

    Yes it is "supposed" to be very rare but what I am finding more and more is that I think it was just misdiagnosed for so many years that it got thrown into the rare category.  I don't think it's a rare as they say, I've meet many, many women with this same rare disease.

    Don't beat yourself up over negligence.  I found that pesky lump a full year and a half before I made it in to the doctor.  I didn't know I had a family history either until a few months ago. My dad died when I was 22 and we were never close with his side of the family so we rarely talked about them.  Turns out bc runs rampant on my paternal grandmothers side of the family.  Oh if I had only known that before!  I thought the worst too because I had let it go for so long.  I also had the IBC symptoms for 3 months before I was able to sort out insurance and get my butt in.  So you are not doomed by any means!! 

  • Claudia413
    Claudia413 Member Posts: 114
    edited August 2011

    Lavender520,

    I agree with Holly. I am a 4 yr IBC survivor, and I only had one symptom that was showing up when I got my diagnosis. I just kept pushing until I got IBC ruled out (or in, as this case was). It's important to know about what you might have (IBC). I am now a volunteer with the Inflammatory Breast Cancer Foundation (www.eraseibc.com) and invite you to look over our website, check out the videos, see what links we have that may be of assistance to you financially and otherwise, and know that there's help out there. Please let us know what happens. We all care. 

  • Springtime
    Springtime Member Posts: 5,355
    edited November 2011

    HELP! You can do this!

    The FDA hearing (Nov 4 2011) on dense breast tissue and mammograms was a huge success.  I received an email from JoAnn (Density advocate) tonight. 

    Please consider sending quick note to your congressperson (easy to do following the link) and ask for their support of Federal Bill HR3012 (The Breast Density and Mammography Reporting Act of 2011) https://writerep.house.gov/writerep/welcome.shtml
    Email from JoAnn:  
    UPDATE:Wonderful news! You were kind enough to voice your support of an amendment to federal requirements for the inclusion of breast density in the letter sent to women after their mammograms.    Last week  Are You Dense Advocacy testified before the  FDA’s Mammography Quality Standards Act Advisory Committee.  Testifying were  patients, researchers, practicing radiologists and national advocacy groups (Komen Advocacy Alliance, among them) who all voiced their strong support of inclusion of density in the patient letter.  The FDA official in charge of the meeting commented on “all those letters” received in favor from around the country. The result?  The FDA Advisory Panel concurred that density information SHOULD be included in letter sent to patient.  The FDA has asked Are You Dense Advocacy to submit suggested language as they contemplate a final recommendation.  We remain optimistic this will continue its forward movement. PLEASE KNOW THAT YOU WERE PART OF THE IMPETUS FOR THIS RECOMMENDATION. INDEED, IT PROVES THE POWER OF ONE. As a regulatory solution may yet take time, we will continue with legislative efforts on both the state and federal level.  So, one more favor to ask.  Can you please contact your congressperson: https://writerep.house.gov/writerep/welcome.shtml  

    and ask for their support of  Federal Bill HR3102 (The Breast Density and Mammography Reporting Act of 2011).   Congressional members have – literally – hundreds of bills sitting in their computers, sometimes all it takes is for ONE constituent to show interest in something, for them to support/cosponsor it. 

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