ONJ due to Zometa injections

GMrngSunshine · August 2011

Hi, I am so excited to be talking w/ others who can actually relate, and respond and be real. Ive had ONJ for approx 5 or 6 years and the exposed jaw is now "wiggly" like a loose tooth... has ANYONE heard of any successful treatment or surgery for ONJ? My docs r stumped n said they'll have to figure out something when it fractures, well, it's fracturing...Im just looking for more experience than Ive been offered or a hopeful responce of knowledge. Thanks for the time!

luv_gardening · August 2011

Damn. That must be horrible. I can't answer your question but hopefully others can. Welcome to our forum where you'll find lots of support, friendship and advice.

I have seen a hospital reality program where they removed ONJ bone and replaced it with a bone graft and metal but the ONJ was caused by some other disease so I don't know if it would be practical for you. They need to attach the grafted bone to healthy jaw bone, that could be the limiting factor.

"Good morning Sunshine" says a lot about your spirit. I'm sending you lots of good thoughts and wishes.

luv_gardening · August 2011

I found this article about Forteo being used to reverse ONJ damage. Hopefully that could make the remaining jaw healthier to take the graft. I'll keep searching. I love googling and it's always an honour to help a sister in need.

Forteo May Help Treat Jaw Osteonecrosis From Fosamax: Study

Quote...

One article details the collected data on how Forteo has been seen to stimulate bone growth in patients suffering from bone problems and its potential in fighting ONJ. The other article details how Forteo was used specifically to reverse the effects of ONJ from Fosamax in an 88-year-old woman in a matter of weeks.

Moderators · August 2011

Hi GMrngSunshine

We're sorry you're going through this. There are some past threads here that have talked about ONJ and may have some other insights. They can be found by clicking the Search link in the top right of any page, and entering ONJ as the search term.

Moving your post to the Bone Health and Bone Loss forum too, where more members will find it.

Judith and the Mods

GMrngSunshine · August 2011

Thanks everyone, I was here like 10 years ago when first DX'd (on old timey WEBTV) so I finally caught up w/ the universe and got a laptop, Im so glad to be back, there is more informations here than any one Onc's brain could hold I believe. Thanks for the responces, and I will move my post as well. Best to everyone! Kiss