WHAT IS WRONG WITH ME!!!!!!!!!!!!
Ok Ladie's,
I know there is a forum thats probebly more fitting for this subject, but I feel the most comfort here! ! Sooooooooooo this is my question, I am in this wierd phase when it comes to the intamacy/ SEX with hubby!!!! I feel like I push him away, with the mood swings, no ovarie's will do that, and by the end of the day with the kids and all that needs to get done our sex life seems to fall into the catagory of least importance. OHHH not to mention I havent felt very sexy in quite some time. Now thats the really bizzare part because I feel like I look better then I have in years, other then the fact that I still have unfinished breasts, a nipple thats totally flat on one side and the other side nice and perky. Radiation did a number on the reco/bc side. Anyway, my husband and I have always had a great sex life, I feel like I have allowed bc to take that part of us away. I want that part of my life back, my husband and I call ourselves the weekend warrior's, thats the only time
we seem to make it happen, so to speak!! However, there are bad weekends to!! I so admire my dear friends here and how beautifully you are all moving forward in your lives.. Sherri G , Diana50,
pure, jennyboog , kerrymac, Elmcity, pupfoster, barb, sharo nect... the list could go on forever. I need advice on how to get my MO JO back!!! Stop pushing my huppy away!! Maybe it's my fear that I won't be here for years to come and I AM SECRETLY fading away, How sad that sounds, YUK!!!!!!! I want that part of the old me back! ! Our minds can really mess with us you know what I mean? help!!!!!!!!! DH is such a great guy, I want to live our life to the fullest, I know the kids make it hard for alone time, but I am sick of that excuse.
Any advice would be great!! Sorry if this is wierd for you guys!!!!
Do you think it's because I am post meno, or just screwed up in the head????????????? ?Fear sucks!!!!!!!
Thanks girls,
XOXO
steph
Comments
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You're not screwed up in the head, so rule that out. Chemo/chemopause totally f#%cks with your sex drive, I.e. Pretty much brings it down a million notches. Then you have the body issues(speaking for myself anyway). Yes, people tell me I look great, but to me, I look totally different. Bodacious ta-ts's are gone forever and I was all about the rack (talk about a kick in the pants, diagnosed with stage 3 bc)! It takes more work to get me going and a little more attention to detail if you catch my drift. . Not much advice to offer, just know you are certainly not riding that ride (so to speak), alone:)
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I could have wrote this myself. In our world of no boobs, no ER, no ovaries and post chemo its no wonder we have no sex drive left....I so don't feel sexy anymore. But I do feel some what robbed, me and DH had had some problems in the past and then things were finally going good for a few years and then BAM!....bc at 34. We're suppose to be in the prime of our life but not so much, lucky for me my DH is my best friend so even when the sex aint there, we're good. My mind is my biggest sex organ, if it aint there, than I aint and it's been hard since dx. I've heard of some using a testerone cream, just a small amt. downstairs to help things along. I assume since it's not ER then it's safe for us. I personally haven't tried it but have thought about it, you might want to check into it, not sure if you need a pres. or not. I wish I could have helped more. Good luck sweetie and let me know if you find something that works.
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I understand! I have no advice as I have been having the same problem for awhile. I also want my mojo back, my hubby is patient and I start wondering if he is just not interested either anymore or he has just given up. We kinda live like roommates, and that is so not fair for him. I seem to be ok with the situation but worry that he will eventually look elsewhere. I am perfectly happy not having sex and that is just not right! I love my husband and he is very cute:) How do I resist him?
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this is the one part of this cancer business that really gets tweeked....sex drive and intimacy. it is a combination of the stress, the aggressive chemo...rads...hormone changes with the drugs...and also just the body changes.
there is recovery'; however....i think it is something to really talk about with hubby and also your doctor (s).
i don't have any advice; except you need to talk and face the changes with hubby and really understand that all of these chemicals really do change your body.
i would say just don';t give up. there are many ways to create intimacy in relationships. so now, maybe breast cancer survivors become more creative?? i think the more you talk about it the better. and maybe some time off...no pressure might be important for you. remember; there is more to you then sex drive.....and after all you have been through....that is where the intimacy can return.
hang in there*
diana50
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Thanks to all my girls, glad to know you get it. bak94, I know what you mean, we don't want them to look else where. My DH is my best friend too!! I met him when I was 19, love of my life!! So cute, I feel guilty, and sometimes just down right defective. He has never made me feel bad, he always tells me I am beautiful, even when I was bald. Diana your so right it is so chemical, and psycological. I think I will talk to the Dr. about it, I'm just angry about it, I used to really enjoy that part of our relationship, and I know it will be forever different, because I'm 43 with no est. Yeah!!!! What a pity party I'm having!!!Geezzzzzzzzzzz
Thanks littletower, true words from the heart, jenny when I was where you are, right after treatment forget it!!! ! I guess what bothers me is it's been a year since I finished all my treatment, I guess I thought I would be further along emotional, or maybe be able to turn off my mind for a while. Long enough to get in the mood, if you know what I mean!!!!!!!!!!! I'm not saying I never have sex with my husband, I just want to feel more human when it happens!!!!!!!!!!!!!!!!!!! Thanks for listening. I am sure in time it will all get better!!!! For all of us, I pray.....................
Hugssssssssssssss
Steph
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Reading these sections may also be helpful to understanding that what you are going through is very normal. Probably best to begin here:
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I am a giving, dutiful, wife who takes her conjugal obligations seriously. I have never enjoyed sex unless I was totally toasted (and that's not part of my lifestyle). my husband knows this, knew this before we married. It's just not part of my personality. I have always been that way, and am frankly surprised that I am married. We manage to get along just fine on a one day on, one day off schedule.
My husband is a real dear and i love him.
if i had some dope, I'd smoke it for my sake.
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Steph, I do totally get what you're saying about sex and intimacy with DH. I've brought this subject up a few times on our stage III forum. BC brings so many issues about lack of libido and lubrication. Sex just takes the back burner after treatment and hormonal therapy. I really hate this fact and I've fought it for so long. I have grieved about losing hot sex with DH. I missed that so much. The worst was when I was on Arimedex. It made sex almost impossible. The vaginal atrophy it caused even with the lubes and Vagifem suppositories, just weren't working enough. My Onc then switched me to Tomoxifen. The vaginal atrophy disappered, which helped a lot. But with the Tomoxifen also the sex libido gone. So hot sex is something I wish for. But DH is still as normally turned on to me as he always was
So we do have our intimate times with sex. I jokingly tell him I wish they'd come up with a "viagra" or something for women, although he's never needed something like that because he's always horney and ready anyway. But I just wish I could feel horney once inawhile. I miss that...
Barb
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I just do the deed....I have to drink first though...lol It's going to be a while b-4 we get that back but baby steps is I expect...I think I am Team Apple on this one.
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Exactly what I'm trying to say barb! ! Except I think you said it better!!! Apple I like the dope Idea!! Hmmmmmmmmmmmm??? I know this is a sensitive subject and most people are not comfotable talking about there sex lives. So for all the couragous, un-horney women that have responded, I love Ya for it!!!!!!!!!!!!!!!!
I have to say, Last night was pretty good with the Hubby, Maybe I gave it a little more effort and it turned in my favor, Who knows!!!!!!!!!!!!!!!!!
Hugsss
steph
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My husband and I had a awesome sex drive. Then once I broke my arm, shoulder and was dx with cancer it all went down hill. I lost it! I feel for my husband yet I do turn him on with all my scars and baldness. I just cannot imagine what he sees. I truly know that it goes beyond that. I can take it or leave it it is really no big deal to me. Which I think I need to care about it more. He is so understanding about it and never gets upset or pushes it in anyway. I know when my Dr. told me no hormones I was surprised cause everything stopped. I am also a TN going through chemo for the 3rd time for my 3rd dx. It is like the chemo messes with your nerve endings. I cannot achieve an orgasm like I did before. My gyn put me on cialas and that did help some. It is like Vigara and is for men but women are known to take it. We went to go to Mexico to get it cause my insurance would not cover it. I do remember the sex life we had and how much intimacy we had then as far as exploring our bodies go. We are much closer now than what we were before really. He is my very best friend. 75% of marriages end in divorce cause of chronic disease. Which is truly sad. We have kept our relationship strong. I think it is important you let your partner know how you feel. Your open with your Dr.'s as well. I even went to a sex counselor to see if it was just in my head and I need to rethink my way of thinking. She felt it was not in my head that it is more of what the chemicals have done to me along with the surgeries that have taken place to make my body feel numb. So that was encouraging to know. We are not crazy. Unfortunately we have been dealt some crappy cards. I just pray that it will change and my husband is able to bring me more pleasure. Which is the hardest thing for him cause that is his goal. I reassure him it is not his fault and he knows just this. I just feel I have to let him know. I know there is a thread on here I want my mojo back. It has a lot of ideas available as well. Keep a good mind and know that we will get through this hurdle as well. I have hope and am going to continue to hold on to it. I pray that my orgasm came back with all this chemo in my body. I just have to figure out something to trigger it. You know what I mean. I would drink but cannot drink anymore cause I have liver mets too.
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Barb...well said....your words describe my situation well...its a good think my DH is so patient, caring and loving...and sex deprived......intercourse is near impossible!!!! lucky to have him...next month we celebrate 34 years of marriage...gee am I that old!!!
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ebann, your honesty is amazing!!!! I feel the same way about my pleasure aspect, AKA the big O!!!!! That just seems to be a tough thing to achieve after all we have been through, and to be truthful I think if that part was easier for us, our mind set would be so much better, don't you think? Well having not alot of est, I truley believe is most of the problem with achieving orgasim, However, it's a process psychologically as well. You are right ebann, most relationships suffer and end when a major disease hits!. Lets be thankful that it seems we are all in very understanding, loving relationships!!!!!! I think this is really important to talk about, thanks for your openess ladie's, we are still sexy women, and we need to feel that way!!!!!! can I get an amen!!!!!!!!!! lol
XOXOXO
S
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Hey hey hey, saucy topic!
I didn't hear anything about estrogen cream. My brilliant oncologist says it is fine for BC patients, not absorbed.
And listen here: ask your doctor about Scream Cream! You need a prescription and they make it at these "Compunding Pharmacies". I'm telling you, it is fun! Close the windows. I'm not kidding.
http://www.ijpc.com/_pdf/Scream_Cream.pdf -
K-LO,
I love that name!!!!!!!!!!! See now were talking solutions!!!!!!!!!!! Scream Cream, now that is some useful information!!!!!!!!!!!!!!!!!!!!!!!!!!! I also did not think we could use est cream, great info thanks
SISTAH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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High five, Faithful!
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(((Steph))),
I haven't been here for a few days and just saw your post. I am having a tough time in that area myself and have been avoiding the subject w/hubby myself. He's always been a boob man and I truly think he's disappointed in how this is turning out. I know he didn't mean to hurt my feelings, but at my last revision the PS decided not to do the nipples yet as she wanted to wait till things settled down for the best result, and he mentioned a couple times--"no nips?" with a glum look on his face. Men.....I am scheduled for nipples later this month, then the tatooing, so hopefully I'll feel better about how I look. I actually am very happy with the size and scarring at this point.
NOW, Scream Cream---THAT I may have to check out too!
Sharon
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Not to stray too far off topic but can ANYONE that is ER/PR positive tell me if your doctor said it was okay to use the estrogen hormonal cream to alleviate hot flashes? Would love to know how many docs out there give it thumbs up. Mine won't say it's okay, since my cancer was hormone positive. I'm also supposed to stay away from using Estroven.
Shelly
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Scream cream...that's funny, love the name. I've never been one of those "gotta have it women" either. I could take it or leave it but this post-bc sex-drive is ridiculus, even for me. I can honestly say since dx we had one good night but the other's have been ok and out of obiligation on my part (I feel sorry for him
) When I was switched to Aromasin it did help, I had the worst vaginal dryness with Arimidex. Great topic.
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(((((((steph)))))))))
you are not crazy. as the other women have posted, all of these treatments wreak total f#*(ing havoc on every system. my libido is nothing compared to what it was before i was thrown into menopause with the ooph. it's funny - it's more in my head now, not down below. i always thought women got a bad rap regarding sexual drive - i mean, many of us do (did?) want sex as often as men, etc etc.
maybe try these creams - I'm going to look up the Scream Cream! Maybe a jaunt through a sex toy shop? that might lighten the mood - and there are always fun little goodies.
in the end, maybe just being easy on yourself is the most important ;piece. you've been to Hell and back, and it changes everything. take it slowly.
xoxo
j
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Ok , J
Did you look up the SCREAM CREAM??????????????
Maybe we can get a group rate if we buy it in bulk!!!!
Love you Sistah's!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! your the best!!!
Steph
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