6 years later, lung mets

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MJL
MJL Member Posts: 5
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

I was diagnosed, lupectomy, chemo and rads 6 years ago and just rediagnosed with lung mets. ER/PR neg and waiting for the her2nu results. Original bc was 3Xneg. Just started Xeloda and have finished one cycle of 2 weeks of daily and then one week off. I start up again next week. Anyone else in the same situation? I am having mostly gut side effects...but oh my!!! also very tired by the afternoon and not so much strength. Misery loves company so if there is any....

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  • PJB
    PJB Member Posts: 2,615
    edited August 2011

    MJL, so sorry you have to join us Stage 4 girls. I really, really wish it was a club that would close for lack of members... Lots of good Xeloda info on the Stage 4 forum, if you choose to head over there. 

    Hope the Xeloda lightens up on you and whacks the lung mets,

    Paula 

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  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    Sorry you had to join us MJL. PJB is right - join us on the Stage IV forum. Check out the current thread All About Xeloda you'll probably get tons of info there.



    Somehow I feel like there are too many letters in my username lol.

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  • K-Lo
    K-Lo Member Posts: 2,743
    edited August 2011

    Hi mj

    I hear ya. I was stage I in 97, 03, then local node recurrence 08, then BOOM, in August, all over my chest. But not a peep anywhere else.



    On xeloda too. Seems like the hot thing right now. But then, when I first got "mets", maybe it felt safer to be going in for treatments. Do you feel isolatedvtaking home chemo? Sounds like home school. Oh, I home-chemo. I home-church.

    But seriously, I might have felt alone and unsafe not going in every week until I got used to the idea. Going in, getting into the chemo chair, seeing how routine and undramatic it all was plus seeing lots of others in the same situation- that may take the edge off. Plus, friends and family fuss over you more if you have to take IV chemo, especially if you lose your hair. I'm farther into mets now than last fall, but I look great and I take pills so they don't fuss so much. If I were you, I might need that support right now.



    I recall, too, thinking, I'm gonna go home and cough up blood and have trouble breathing. Then in January, I had a chest cold. Nothing showed up on regular chest Xray- not one spot!



    Of course, I'm thrilled now to stay at home.

    What is your support situation? Have you found any groups? They have counseling at our Palliative/Supportive Care center. It's for any stage of cancer or even in remission. Then that got us into a couples study. Every time we talk it helps.

    Keep talking,
    Kathy

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  • MJL
    MJL Member Posts: 5
    edited August 2011

    Well thanks for the welcome. I really appreciate it.

    K-Lo, love the 'home chemo' . We home chemo where the saltines are better and the lounge chairs less bulky. it is understood that we are snobs.

    Reesie - you could always change your moniker to "Re-C"         or not.

    I am fortunate that I have a loving partner of 28 years and two very loving cats. I sometimes think they let me know that something was going on before anyone else knew. They both kept sniffing my breath which they had never done before.

    I am going to check out the stage 4 forum as well as the xeloda link.

    be well

    Marie-Jeanne

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  • skigrl
    skigrl Member Posts: 53
    edited August 2011

    MJL so sorry to hear it's back.:(. I really hope this latest chemotherapy works for you.

    If you don't mind I have a question for you. Did you have any pain before being diagnosed with lung mets? In your back or side? Ever feel like you can't get a good enough deep breath?

    Thanks for any reply.

    Skigrl

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  • Deep81
    Deep81 Member Posts: 51
    edited September 2011

    Hi there,

    I was recently diagnosed with Metastic Breast Cancer in the lung. I'm 30 years old, have had 6 rounds of chemo, radiation, bilateral mastectomy and reconstruction with tissue expanders. Was expected to be all clear but 6 months after completion of FEC-T (this year) i am back with the chemo folks!  I started chemo 2 days ago (Gemcitabine)  and its so overwhelming. The doctors wont tell me the survival rate for this which is pretty annpying but I am considering alternative therapies to help as there must be a way out of this hell hole!  I am working full time and am trying to maintain some level of normality. Anyone have any tips on how to lead a normal life and not have this black cloud follow me all the time?

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  • apple
    apple Member Posts: 7,799
    edited September 2011

    i am a xeloda girl and it is working.. so sorry about your lung mets.  ,My new chemo center (which I've yet to use except for port flushes) has heated, vibrating chairs.   I need one of those for my house.

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