Can ANYONE Explain PCIP and/or Obama's Affordable Care Act?

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From all the work I have done these past years making sure a relative with a pre-existing disease gets to stay insured, one thing I learned.  She "had" to prove she was not without insurance coverage for so many DAYS in order for COBRA or any other company to cover her.  SO......if one adheres to the need to be without coverage for SIX MONTHS to be covered by the ridiculous PCIP insurance, doesn't this blow your ability to get "other" health coverage if you do not find that the PCIP is the best coverage or most affordable for you? 

I am aware that in 2014 (unless it is changed!) Obama has it set that ALL companies are supposed to accept people with Pre-Existing Disease.  That is over 2 years away!  In the meantime, does anyone know what the reality is for those who need health coverage now.  Are they "still" under the "they have to prove continuous coverage etc. as above" or has this been discontinued due to the PCIP being available?  I have written to Sebilius, Obama, McConnell and others to get an explanation of what is the reality here but have received no answers to my concerns.  Either they passed a healthcare bill they do not understand themselves or they prefere to keep us ignorant (as usual) of the facts of what they have done.

If anyone here can answer my questions, it will truly be appreciated.  Seems to me that once you go for the PCIP and do without insurance for 6 months, it blocks you until 2014 from getting any other healthcare plan since you will have voided the "continuous" coverage rule which is in effect from what I know.  Any information and/or advice will be greatly appreciated.  Thank you for you help.

Comments

  • 208sandy
    208sandy Member Posts: 2,610
    edited August 2011

    Medigal:

    I know this won't be helpful right now but there was an editorial in the St. Louis Post Dispatch, reprinted by the Kansas City paper (the Star?) this week that showed up on Google News and it says that "single payer" is what America needs not only to cover everyone but to get the deficit under control - as for the details of the mess that is U.S. Healthcare good luck with getting anyone to respond to your written requests - try calling their offices instead.

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited August 2011

    The Pre-existing "law" will be dismantled before 2014, unfortunately.   I wouldn't hinge any hopes on that.  

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    Medigal, here's a web page with further info and a number to call to get additional specifics. 

    I only partly agree with Fearless_One. The law won't be "dismantled," per se, because that would be political suicide for either party. But it's possible the funding sources for many aspects of the Affordable Care Act will be eliminated.

    I'm not sure whether there's any governmental cost associated with requiring companies to accept people with pre-existing conditions. If there's no cost to it, it will almost certainly happen.  

  • Medigal
    Medigal Member Posts: 1,412
    edited August 2011

    Ladies:  Thank you so much for the additional information.  Cycle-path, I really appreciate your sharing the webpage you included.  I read as much as I could on it but still could not find any info on the "6 month clause".   I just finished sending an email to Kathleen Sebelius with HHS who is very involved in the PCIP and Affordable Care Act and hope she will take the time to reply.

    No matter whether we are pro or against Pres. Obama, I, personally think the PCIP and Affordable Care Act can be a tremendous help to us "if" it is allowed to get implemented and not stopped by the other party or next president who gets elected.  

     Thank you again for your help and the additional information.  "When in doubt, call our Ladies Out", is my motto! 

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    Medigal, one thing to remember is that part of the job of your member of Congress is to help you with governmental issues. Each member has a Constituent Services group that performs this function.

    That being said, some members have excellent Constituent Services and some are more like Constituent Service Prevention departments, so your ability to get help will depend on how good your member's staff is and how much they want to help their constituents.

    You might want to call your Congress member and ask to speak to someone who works in Constituent Services. Call the local, district office -- not the Washington DC office.

    If you don't know how to locate a phone number for your Member of Congress, send me a PM and I'll help. 

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited August 2011

    The individual mandate requirement will never go through, and without that, the pre-existing one will never go into effect.   

    It's a Republican controlled House, now.   You can kiss health care reform goodbye.

  • Mountains1day
    Mountains1day Member Posts: 102
    edited August 2011

    Thank God we can kiss this health care reform goodbye, it's not worth a rats *ss.

  • Medigal
    Medigal Member Posts: 1,412
    edited August 2011

    Mountains1day:  Have you bothered to read the "entire" healthcare reform bill?  There is a lot in it we will lose, imo, if the Republicans get to can it.  What irritates me the most is that they (the "Rs") constantly tell us how terrible the Dems Bill is but they don't show us any thing better!  At this point, it is very obvious that all both parties want is to make the other look bad and no one really cares that out no-healthcare system is in the dumps!

  • Wabbit
    Wabbit Member Posts: 1,592
    edited August 2011

    The requirement that companies cover those of us with pre-existing conditions will cost insurers much money.  The mandatory coverage for all is what made up for that cost.   Bigger group would spread the costs out.

    Unfortunately if the mandatory coverage is done away with I fully expect that the folks with pre-existing conditions who do not have employer sponsored group coverage will be thrown back under the bus.  They will be back where they are now ... unable to get coverage at all or only available at a cost that is wildly unaffordable, i.e., up the creek without a paddle.

    Medigal ... I think you are unable to find acceptable solutions right now simply because there are none.  It sucks.   

  • AmyIsStrong
    AmyIsStrong Member Posts: 1,755
    edited August 2011

    I live in MD. We have a state-run program administered by Blue Cross that is available ONLY to those with pre-existing conditions who cannot get other coverage. It has several types of plans to choose from. We are on the high deductible plan (with HSA) because we like it best.  The premiums are not cheap, but I am just glad to have coverage. There is also a program for lower-income people who can qualify to pay a lower premium.

    The CCC (Certificate of Continuing Coverage) element is in effect - if you do not have one (i.e. if you have a lapse in coverage) then you pay a higher rate for the first 12 months.

    I don't know how many other states have this, but it seems to me to be a simple and comprehensive solution that each state could implement. I don't know why this concept is never discussed when they have the health-insurance-reform arguements in govt and/or the media.

    I don't know what state your relative lives in, but perhaps her state has a program like this. Might be worth checking into.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited August 2011

    To answer Medigal's question: If the person on whose behalf you are asking is not a dependent (26 or under, and under a parent's insurance plan), there is a high risk pool that provides coverage for those with pre-existing conditions. It is a subsidy and the coverage may not be that great, but it is there, al least by law, under the Affordable Care Act. For more information, and to check what there is in your state, go to: http://www.healthcare.gov/law/provisions/preexisting/index.html

  • Medigal
    Medigal Member Posts: 1,412
    edited August 2011

    1Athena1:  We're keeping her on COBRA for as long as possible even if the cost may be higher.  We are very concerned about what will happen to people who get on the high risk pool now and that trash the program after the next election.  At least with COBRA, she stands a chance of keeping the insurance for a set period of time.  After that, it will be chewing fingernails time again!  I am even concerned as to whether the State insurances will be available if another party takes over.  Not an easy position to manage when one has a chronic pre-existing condition.

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    Mountains1day: in what way do you think the Affordable Care Act is bad? Is it simply because the provisions that will help you haven't been implemented yet?

  • Mountains1day
    Mountains1day Member Posts: 102
    edited August 2011

    www.pciplan.com available now in 20 states.  This is being called a "transitional" health care plan under the affordable care act.  What is not helpful or affordable is some cancer drugs may not be covered.   

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    Mountains1day -- some points. 

    1. The fact that something is a certain way in a transitional plan doesn't mean it will be that way in the final implementation.

    2. Shortcomings in pciplan or the eventual implementation of the Affordable Care Act shouldn't mean that the Act is worthless. Would it be preferable for those with pre-existing condtions to have no healh insurance whatsoever? I don't believe it would.

    3. I'm no expert in the Affordable Care Act, but my impression is that it's not intended to be all things to all people. The low cost insurance plans that should become available under the Act will not be "Cadillac" plans, and one of the things you miss out on in a non-Cadillac insurance plan is coverage for the newest and most expensive drugs.

    4. Health costs have reached a crisis in America. Insurance prices and drug prices have skyrocketed and the compensation of executives at insurance and drug companies have also skyrocketed. (Hmm, do you think there could be a connection? I wonder!)

    People have become homeless due to medical expenses. Sixty-two percent of personal bankruptcies are due to medical expenses. Businesses are struggling to provide medical insurance coverage for their employees. The Affordable Care Act was designed by human beings, and like any human enterprise it is by definition imperfect.

    But Americans are finding the alternative to be untenable.

    I'm very sorry that your cancer care drugs are not covered under a transitional plan. But IMO to say that the lack of coverage for certain drugs means that the entire Act is worthless is not appropriate. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Medigal

    I was going to suggest what Cycle-path has already written.  I hope you will contact the LOCAL office of your member of Congress.  Most of them really are helpful with constituents who are having problems such as you are.  They are a good source of information too.  

  • Mountains1day
    Mountains1day Member Posts: 102
    edited August 2011

    cycle path - good points

    The idea of offering coverage to those with pre-existing conditions who otherwise would not be able to attain, is better than nothing.  However, this pcip plan so far, and is indicative of what will come (if not booted by 2014) may not help the average cancer patient if the basic drugs needed are denied and/or not covered. 

    I am curious to know if anyone has signed up for this plan at www.pcip.com yet and how it's working out as a cancer patient?

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    I'm not on the plan as I had private insurance prior to getting BC. 

    I didn't look at the whole formulary, but I decided to check out one area -- the osteoporosis drugs, just as a sample. I get the annual Reclast infusion, and I can see that they don't cover it or any other infused osteoporosis med.

    I can understand why, which is that the IV meds are much, much more expensive. I get the IV Reclast because I had significant gastric trouble with oral Fosamax.

    If I had a plan that didn't cover the infused drugs, I probably would have tried several other oral meds. I didn't do that because I was told it was unlikely I could tolerate the others if I couldn't tolerate one. I also might have worked with a gastroenterologist to try to find a way to keep the gastric problems from happening with the oral drugs. So maybe there would have been a workaround if I'd tried to find one.

    I'm not on chemo or any AI, but I looked in the formulary for those I've seen mentioned on the BCO boards, and it looked like they were all there. Femara, Tamoxifen, Arimidex, Herceptin, Taxotere, Evista, Faslodex, and others. What drugs were you looking for that weren't there? 

  • Soccermom4force
    Soccermom4force Member Posts: 631
    edited August 2011

    FYI,

      Florida( HRP) high risk pool has been closed to enrollment for years!

      Yes, they must offer you coverage BUT...for example, they offered me a plan for around 950.00 a month...but I have no job so although they offered it...I cant afford it (and yes I checked with many insurers after COBRA ran out. So much for afforable health care...sigh..

    Best,

    M

  • Medigal
    Medigal Member Posts: 1,412
    edited August 2011

    Ladies:  I just got an email from a man with the Huffington Post where I had posted a question about the 6 month clause in the PCIP plan.  He said it was because they did not want to make the insurance companies angry by stealing their customers!!!!   Can you believe that?? I feel like Dorothy in the Lizard of Oz and I have ended up in Crazy Land!  It's ok that we are desperate for decent medical insurance premiums and can't find them.  We just can't afford to make the companies ANGRY!  Oh, I hope we flood the polls in this next election and clean house of ALL these losers in Washington!

  • Helmie
    Helmie Member Posts: 407
    edited October 2011

    Soccermom, did you check if you qualify for Medicaid? At my previous employer I worked with a young women who could not afford the premium for the employer provided health insurance. She was paid $30,000 a year, and had 1 dependent (8 years old). She got approved for Medicaid. Somehow we have to muddle through until Jan 2014 when hopefully the pre-existing clause no longer applies. 

    Hugs, Helmie

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited October 2011

    Yes, medicaid is a good idea, Soccermom - but unless you are disabled or have kids, you won't get it.    I make 23K a year, but don't meet the Florida requirements, even though I meet the financial eligibility.    Just being unemployed won't get you medicaid, I don't think.

    For Florida must at least be one of the following:

    1) pregnant

    2) disabled

    3) caring for someone who is disabled

    4) have a child under 18

    5) meet financial criteria

  • Octobergirl
    Octobergirl Member Posts: 334
    edited October 2011

    I checked out the PCIP and the NC high risk pool. NC's pool has a 1 million dollar lifetime benefit cap. Once the new legislation required insurers to remove the lifetime caps, I called to ask why the cap wasn't removed from the NC plan. The rep said they were "grandfathered" and weren't required to follow the legislation. I was really angry....if you intend to live with cancer for years, a million dollars won't go very far. Moreover, I wonder how many people enroll without realizing or thinking what will happen when/if that cap is met.



    The PCIP is a catch-22 for people who really need to be in the pool. The

    Huffington reporter's explanation doesn't make any sense to me. Why in the world would private insurers want to retain high risk customers?



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