What is it like to get a "chunk" taken out?

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  • kira1234
    kira1234 Member Posts: 3,091
    edited August 2011

    Buzzie, Are you are a BC center? With something so rare I would want someone connected with a cancer center and not just a general surgeon.

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    He is a general surgeon, but it's a large hospital with a breast cancer center and tumor board and the whole nine yards.  I am going to ask about this when I go on Monday - how much of this does he do, how much phyllodes has he seen, etc.

  • kira1234
    kira1234 Member Posts: 3,091
    edited August 2011

    I know it's a personal decision, but I decided to go to a major cancer center rather than the local hospital. My cancer is no where as unusual as your's, but even ILC is distinctly different from the most common cancer, and I for one wanted the best care I could get.

  • DocBabs
    DocBabs Member Posts: 775
    edited August 2011

    Buzziecat, I've been following your posts and was going to respond to you first one but then I see you've already had the surgery. Interesting diagnosis. Quite rare from what I read but what I also read was that a mastectomy rather than a lumpectomy was the better choice for a cure. Have you discussed this option with your surgeon. Not to make you crazy but my mantra has always been , when in doubt , cut it out. Good luck to you.

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    I will be discussing everything with him on Monday.  I have a boatload of questions for him.  One of those will be how much to take off/out.  I guess it will be more than a "chunk" this time.  Ugh.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    Buzziecat so sorry for your cancer diag.  glad you will be meeting with the BS on Monday for your questions and good luck with your surgery.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    I had a very rare cancer too!! Papillary Carcinoma...less than 2% of all breast cancers. NOTHING was on the internet about it 3 years ago except ONE case of an 83 yo woman!!!! They had no idea what to do with me, so treated it like IDC. Yep, I know what you mean...takes me and you to get the weird ones!!! I didn't have clear margins on diagnosis after lumpectomy, so I told them to go to mastectomies. My surgeon was VERY happy with that and the tumour board stood behind me.

    I remember the first time I mentioned tumour board on here and one of my Canadian sisters who thought she knew it all questioned me on the tumour board issue. Doi!!! All hospitals have them!!!

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    Thanks for all the support everyone.  I will be here posting my travails.  Will post about what he says on Monday.  To think I was worried about getting a chunk taken out.  My health is the most important thing obviously, but I can't help but be a little vain and wonder how lopsided I am going to end up!  I want him to take whatever he needs to take, but I'm just sort of blindsided by this whole thing.  I guess that's a common feeling.  A couple of months ago, none of this was on my mind, then suddenly I notice a lump and wham, bam, here I am!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011
    Ain't life grand! Wink
  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    Well, had my pre-surgery appointment, scheduled for surgery #2 on Friday.  He says it is a very indolent, very slow-growing phyllodes and that his aim is to get a 1-cm clean margin.  He says I will have a dent.

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    Got my surgery done yesterday.  It is quite sore, more than it was from the original chunk removal.  But I am not having the weird all-over soreness that I had the first time around.  I told them about it beforehand and they said they would use different medications, which I guess they did because it worked.  Now I wait to see if we got good margins.  Sigh.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2011

    Buzzie .. glad to hear you didn't have the same all over soreness you had the first time.  I'm sorry you have more waiting .. the waiting is so hard.  Hoping for big margins for you!

    Bren

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011
    Thank you, BinVA!  I seem to do a lot of waiting lately, and it is HARD.  Yell
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Buzzie, what happened!!! This thread didn't pop up until today!! I missed your surgery date, I am SO sorry. I am so glad that you mentioned your previous post-surger pain issue and they were able to alleviate it. Good for you for speaking up!!

    How goes the dent?

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    So far it doesn't look too dented, just a little bit, but I think right now it is filled in by some swelling.  It definitely has a different shape now than the non-operated one.  It looks okay, though, not hot or oozing or anything.  I am sort of afraid to look at it!  Funny I never much cared about them or how they looked until docs started wanting to take chunks out of one!

  • Buzziecat
    Buzziecat Member Posts: 50
    edited August 2011

    A little update.  Seems to be healing well.  It had a tiny bit of bleeding a few days afterwards, but it has not done that again.  Still tender.  Still swollen.  Can't see the dent yet!  Will update after I go to my followup appt on Friday.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Remember, it may just fill in with gravity. I never noticed my `dents`after a time....

  • Buzziecat
    Buzziecat Member Posts: 50
    edited September 2011

    I hope it does fill in.  I've seen other posts with patients saying that their dents filled in pretty well.  My doc just said you will have a dent now.  What does he know?  LOL.  :)

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited September 2011

    Hi Buzzie .. I hope your dent fills in nicely.  I was lucky and didn't have a dent ... just a lot of bruising after the lumpectomy.

    hugs,

    Bren

  • Sherryc
    Sherryc Member Posts: 5,938
    edited September 2011

    My first lumpectomy my dent filled in quiet nicely.  Now this one 14 years later on same breast and rads not so much.

  • Buzziecat
    Buzziecat Member Posts: 50
    edited September 2011

    They got a good margin!  So no more surgery, at least for now unless something ever comes up again.  Of all things - my surgeon had his retirement party yesterday and is now outta there!  I did not know this ahead of time.  (He apparently wanted to "go out" while he is still sharp and active.)  So I saw his nurse practitioner today and would be referred to another surgeon if I needed more, well, surgery.  I asked the NP some questions about followup and she set me up for the high risk breast clinic.  I have my first appointment there in just a few days.  I do feel like I will be followed well.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011
    Oh Buzzie!!! You done good!! Laughing Congrats on a job well done! Here's to dents filling in.....
  • SarahsMom
    SarahsMom Member Posts: 1,779
    edited September 2011

    Yay, buzzie!! I am so happy for you! :-)

  • Buzziecat
    Buzziecat Member Posts: 50
    edited September 2011

    Thank you!  I am very relieved.  Now I need some celebratory pizza, hee hee.  I'm sure that pizza would help my dent fill in better.  Wink

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    Icecream and chocolate fill it in MUCH better than pizza!! Now you know....

  • Buzziecat
    Buzziecat Member Posts: 50
    edited September 2011

    You know, I think you are right.  I'm sure I read about that in a study somewhere!  :)

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited September 2011

    I speak from experience. 4 (FOUR) lumpectomies for me!!

  • Buzziecat
    Buzziecat Member Posts: 50
    edited September 2011

    The swelling seems to have gone down now and the dent is more evident.  You can see and feel it.  But I think I still look "normal" in clothes.  It is weird - it is like there is a big gap between my skin and the remaining breast tissue.  Kind of like a chair that is covered in cloth but has no filling underneath!  I was seen at the high risk breast clinic and will have a mammogram on the affected breast every 6 months and a mammogram on the unaffected one just every year.  They will see me every 6 months and do a breast exam and I will notify them sooner if I find any changes on my self-exams.  The doc did a very thorough breast exam on me, more than I have ever had before.  Every woman should get such a thorough exam.

    I'm sure I'm preaching to the choir here, but - do your self breast exams!  If I had been a regular self-examiner, maybe I would have noted the lump even sooner.  Who knows how long that thing had been there.  It was only by chance that I felt it.

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