MIDDLE-AGED WOMEN 40-60ish

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Hi JustmeJanis - Welcome to the group but sorry you have to be here with us.  Like Sherry said, the waiting is the hardest part and we all know what you are going through.  I did not have the Oncotype test done nor did I have chemo so I can't imagine what you are feeling when it comes to that.  We are all here to lean support whenever you need it.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited August 2011

    Thank you all for the warm welcome.  I just love that I can come here and vent to a courageous group of women who totally understand!  Right now is just the waiting.  Sherry, I understand that insomnia thing.  Who ordered you the Ambien?  I was just wondering if I could get some, but like you, it might not help.

    Jo so nice to hear from you and thanks for the encouragement! 

    Barbe...same to you.  I hope to get to know all of you much better.  This seems like a great group.  Where ever we are in our treatment/recovery, we are all here together. 

    Jo enjoy that trip!  I used to live in Houston but visited San Antonio.  I loved the river walk.  Enjoy!

  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Hi justmejanis.  The gals around here are a good bunch.  I enjoy them so.  They will do what they can to help you along the way.  The waiting is always the worst part.  Hang in there.  I got my ambien from my Onc.  I dont know when your next appt is.  Maybe your primary could help you. 

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Hi Janis - I am done with active treatment and not due to see my MO until Dec.  All my testing is done until next year and just taking my Tamoxifen everyday.  Getting on with life - it has been a tough year and I was able to get this far with the love and support of these lovely ladies.  Just remember we are all here for you too.

  • justmejanis
    justmejanis Member Posts: 1,847
    edited August 2011

    Hi Paula!  Right now I am officially "on hold" until the Oncotype test is back.  To the best of my knowledge, they have not approved it yet.  So I wait.  I talked to my Breast Cancer Navigator Tuesday and she assured me she will follow up on it.  She said as soon as the score comes back, she will schedule my appointment with my MO.  So for now, just a long wait.

    Jo I am thrilled to hear treatment is behind you and now you just have to take the Tamoxifen.  How are you doing on that?  I believe I will be taking Arimidex.  I have been reading about potential side effects but so far nothing terribly scary.  I did have a bone density scan Tuesday.  They also drew blood for Vitamin D level.  Guess I will get all the answers when my Oncotype test results are finally in. 

    I can tell this is a great, loving group and I will enjoy my stay here!  I do not feel alone at all!

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Janis - Been on Tamoxifen since Jan 5th and so far so good.  I had tried Armidex and Femara - both did not work out for me. With Arimidex I was way too nauseated and with Femara - had stomach issues and it left me feeling like I was in a fog and was not able to function at my job.

    I will keep my fingers crossed that Arimidex works for you. 

  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Jo have a fun filled trip.  Take lots of pics for us!!!!

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Paula - Will do!

  • Valjean
    Valjean Member Posts: 1,898
    edited August 2011

    Jo, enjoy your time away. We'll miss ya!

    Janis ~ My OncoType DX took 3 weeks but it was sent the Monday of Thanksgiving week, so I lost a week really. In looking at my records, the test was sent Nov 24, rec'd Nov 25, Date Reported: Dec 3, but I didn't see my onc to get the results until Dec 17.  Waiting sucks - I hope you receive yours soon so you can proceed with your course of tx.

    I am so thankful for all of you.....you keep me grounded & away from the edge.......

  • justmejanis
    justmejanis Member Posts: 1,847
    edited August 2011

    Valjean, thank you for sharing that.  It was a long three weeks for you, I know.  I think my frustration stems from the fact I was told I would have it in two weeks.  Then after two weeks to find out they have not even run it.  That is is still awaiting approval.  It felt like a sucker punch for some reason.  I am doing everything I can to be patient.  I bet you were on pin and needles.  Thanks so much for the encouraging words.  That is why I love coming here.  I can vent away and everyone is so supportive. 

    Jo, have a fantasitic time and just enjoy!!!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Valjean,  if you're not on the edge, you're taking up too much space!!!

    Hey, I'm just sayin'....you know?

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Good Morning Middies - DH and I are packed and ready to go.  We leave in about an hour.  Don't want to get there too early and not be able to check into our room.  Gonna miss everyone.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    justmejanis my PCP gave me the ambien. 

    Jo have a great time

  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited August 2011
    I hope you have a great time Jo!
  • YaYa5
    YaYa5 Member Posts: 667
    edited August 2011
    have fun, jo!  relax and take care of yourself.  
  • lynniea
    lynniea Member Posts: 611
    edited August 2011

    Hi Ladies I also know the worst part is the waiting.  I also want to say welcome Janis.  I spoke with my Oncologist and she ordered ambian for me. After you get started you feel like at least you are doing something.  I will be praying for you.  I hope jo that you have a lot of fun and take it easy.

  • walker2222
    walker2222 Member Posts: 558
    edited August 2011

    Boy I have been off the boards for over a week now, so have a lot of catching up to do.

    Welcome to the newbies, looks like we have several.  This is a great bunch of gals that I look to for support when the outside world doesn't understand.  Hated my port but dealt with it as best I could.  Felt myself unconsciously touching for some reason.  After a while the sensation faded to where I could bearly tell it was there.  Had mine taken out last December and I still unconsciously touch my scar.

    Lynniea - good luck with the rads.  Keep lthe lotion on as best as you can.  My skin changed drastically from the 4th to the 5th week.  So heads up on that.

    My dad's memorial was great, the funeral home put together a video tribute from the pictures we had.  The grave site was family only as he was cremated, mom was cremated to and dad could not part with the ashes, so we laid them to rest together.  Had a great time with the sibs. Here is the link.

    http://www.hassfuneralhome.com/fh/obituaries/obituary.cfm?o_id=1220143&fh_id=13089

    My DH told me after that he was sorry he did not get to know him really well and that he was a great guy.  Dad had a stroke 30 years ago that left him unable to talk well, but could do work.

    Finally got my CT scan results, all clear. So all clear for both bone and internal.  Was bit by a bug though, a genealogy bug.  Found some historical documentation in dad's things and that got me going.  Have a cuz who has worked a lot on my dad's (Newton) side. So made contact with him again.  Have been on the ancestry.com 14 day trial and have found loads of info.  I have spent the past few days working on the tree and think I have both mom and dad's traced at least 7 generations.  Once you know where to start it helps.

    Sorry for the long post.

  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Wow I am speechless today.  I never ever thought that anything good would come from breast cancer, but it has.  I was asked to be the ISO manager at our plant today.  It was really nice that someone had the confidence in me to consider me.  This came from the register himself, wow.  I also have the backing from my new superviser, double wow.  This week has been a rollar coaster and  there have been many downs to it.  Im so happy that it ended with a high.  Im still on the fence about taking it because Im still learning my new job and I still have tons to learn there. 

  • justmejanis
    justmejanis Member Posts: 1,847
    edited August 2011

    Paula that is great news about the offer for a promotion.  It is certainly a testament to your hard work and knowlege.  That is wonderful.

    I finally have a date for receiving my Oncotype test.  My navigator called today and scheduled an appointment with my MO.  Next Friday at 1:00.  So I will finally get my score then and hopefully get a treatment plan outlined.  I will get the results of my bone density scan at the same time.  One week....at least now I have a date.  I hope this next week goes quickly.

    Hello to everyone, and have a wonderful evening one and all.  As always, sending cyber hugs.

    Janis

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    We are on a roll of good news here. 

    mbjmiller, happy to hear you checked out all clear with your scans.  I never joined any of the geneological sites, but found some info. online for my dad's side of the family.  Not too indepth, but it traced back to Europe.  You will have to let me know how you like your free trial period.  It is something that will be interesting, and it's always good to get your mind onto other things besides all of the B/C info. stored in there.  Glad it was a nice service for your dad.  I think it is nice when everyone gathers for rememberance.

    Paula66, That is so flattering, and nice to know your hard work has been noticed all along.  Guess you have a big decision to make, but you will figure out which will be best for you.  Congrats either way.

    justmejanis,  We will be waiting right along with you, and hoping you have a score low enough to bypass the chemo.  Good to have gotten a bone scan.  It just something to watch when doing the five years of the hormonal drugs. 

    Hope all will enjoy the weekend.  Been busy here with a lot of non-cancer-y stuff, with two returning to school in another week.  Helping to some supplies together and giving haircuts, etc.  I was glad to get my B/C follow-ups out of the way last month.  I don't think I have any B/C appts. now until Nov.  Feels good!!!

  • janinnj
    janinnj Member Posts: 89
    edited August 2011

    Paula 66- congrat on the offer. 

    MBJMiller- Geneology can be alot of fun.  My grandmother was really into it and has traced her brank of the familt back to SAcotland and England in the 1500's.  One of my grats was with Washington at Valley Forge.

    I have finished 19 /33 rad treatments and thank goodness I'm still feeling pretty good because I have major housework this week-end.  I have just done the minimum for so long, since working full time through chemo.  My mother is coming to visit and I haven't seen her in over a year.  I usually try to get back home to Arizona at least once a year but didn't do it this year and this will be the first time she has come to visit since we moved to our "empty nest" house.  My DH doesn't take the iniative but he'll do what I ask him and we'll have the place back in shape in no time.

    Justmejanis- My name is also Janice but spelled different.  I am also 57 years old.  Where in Wy did you live?  I lived in Rock Springs for a breif time back in the 70's and the Tetons and Jackson Hole are about one of my favorite places in the country.

  • ginnybee
    ginnybee Member Posts: 2
    edited August 2011

    Hello, am new to the group.  I am 57, will be 58 in Oct.  Have 2 more chemos to go (one next week, one the first week of Sept.).  Just went for my radiation consult today, and for some reason this bummed me out.  I don't know, guess I was looking forward to the "end" of chemo (though I will be on herceptin till may of '12).  This may sound stupid, but I am just sort of tired of all this, just having one of those days, I guess.  I have to have more surgery to clear the margins after my last chemo, and then have to wait after the surgery to start the radiation.  I know, whine, whine,...enough, already.  Really, have been managing pretty well thus far, just would like to have my old life back, you know?

  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    Hey everyone glad we're having a good week. Just thought I'd let everyone local to me know that Chrissyb from Australia is going to be in NJ in early Sept. She asked me to put together a BCO lunch or dinner on Tues 9/6 or Wed 9/7 so if you're up to it check out my thread on the Stage IV board.



    I'm leaning toward dinner becausu I have to work but majority will rule.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Welcome ginny, bitch away, that's what we're hear for!!

    I was chatting to the dental tech today, her mom had bc. So tech got tested and was BRCA negative. She was told she will NEVER, ever get breast cancer. I told her to do some Googling and re-check with the doctor. She is still vulnerable for other breast cancers....isn't she?????

  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    Welcome Ginny, didn't see you there. We all have those days -whine away.



    Barbe, you're right. A lot of women on these boards are BRCA - and they have breast cancer. Basically it means she didn't inherit that gene abnormality but it doesn't mean she can't get breast cancer.

  • ginnybee
    ginnybee Member Posts: 2
    edited August 2011

    Thanks, all.  I am doing some yoga now for attitude adjustment (with the computer by my side).

  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Welcome ginnybee.  Grip away, we all understand.  Trust me when I say that we all can relate in one way or another.  The gals here are a good bunch.

    Reesie is right Barbe.  It just makes me sick to think people who are in the medical profession say things like that.  A young gal friend, her mom passed away from breast cancer and someone told her that BC skips a generation so she is ok. Why in the heck would they tell her that.  Well if that the case, then why have 4 women in my family all have had breast cancer.  I am the first to be tested and I am positive,  My other sister has been tested and she is negative.  Im glad she understands that this just means she doesnt have the gene and yes she still can get BC.  We all have a chance to get this cancer just by having breasts.  

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    welcome newbies this is a great group of ladies.

    ginny whine all you want we all have at one time or another

    mjbmiller my maiden name is Newton and I am on ancestry.com  I have a huge tree as I am a geneology freak.  I'll pm you with more info.

    So Elimar I have been on Ancestry for years and I do think it is worth it.  I don't do the world stuff though I have not gotten to a point that I feel it is worth it.  Maybe one of these days, but I always find enough to search on my family and DH family.

  • Hauntie
    Hauntie Member Posts: 483
    edited August 2011

    Ginny - feel free to whine, bitch and moan. This is a long journey. You're almost through the first part, try and celebrate that. Plan something special for yourself for finishing that phase of chemo. I had a MX, chemo, radiation, chemo.. When I would get discouraged one of my brother's  would say to me "keep your eye on the prize." When I got to the second chemo protocol, I had had enough. My hair was coming back. I was starting to feel better and I just wanted to be done. That's when he told me to "go to the whip." It's a horse racing term. You dig down deep and give it all you've got to cross that finish line.  For some reason those 2 phrases really helped me get through. I've been NED for 17 years.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Hauntie, have you ever told your DB that? It would probably make him feel really good to know he gave you words to live by!!

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