My mom, too

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jansgirl
jansgirl Member Posts: 4

I will be echoing many other family members who have posted in this topic.  My mom is in the last weeks (months maybe?) of Stage 4 BC with mets.  I love her beyond measure and I'm so sad, but also feel an anger that I find I can't share with my dad or siblings.  Mom realized that something was wrong with her right breast 9 years ago and she did...nothing.  Just before Christmas 2009 she was very ill and my dad insisted she go to the emergency room.  Within 24 hrs., they were sending her home on hospice with an open BC wound and no hope of treatment or recovery.  None of us, including my dad, had a blessed clue that this was going on. My mom hates going to the doctor and said she didn't want to be a "patient."  Well guess what?  Instead of of us helping her through treatments and at least having a ray of hope, we've watched her slowly succumb to this horrible disease while her breast wound has become surreal and the cancer has spread to liver, lungs and bones. She's a patient in spades now (the hospice nurses are angels.)  My mom is the love of my dad's life (they will have been married 57 years if she lives until their September anniversary), and he and all of us take loving care of her, all the while knowing that it didn't have to be like this.  She CHOSE this path and she chose it for all of us, too. Not the cancer, of course, but not going to the doctor to see what was wrong with her breast nine years ago, let alone  having regular mammos.  It's so painful to watch both she and my dad go through this, and she's not eating much and sleeping a great deal, so I fear we're nearing the end.  I'm scared senseless that my dad will just fade away soon after we lose mom, though I understand that if that's his path, that's what he'll need to do (we're doing all we can to let him know that he is loved and needed).  At least one of my siblings or myself are with them every day, cooking yummy things, cleaning, giving mom and dad foot massages  for relaxation.  I'm very lucky that as a family, we can do this for them, and thankful that they raised us to be this way.  Also lucky to have had my mom in my life this long--my heart breaks for those of you who are losing your moms while you are still young.  On top of this, one of my brothers died suddenly at only 40 in February 2011, so our family is growing smaller at an alarming rate. 

 As others have said, thank you for letting me rant.  I will stop myself from writing volumes, though it would be easy to do and it feels better to get it out.  I had an anxiety attack while driving yesterday and had to pull over for 20 minutes--that's never happened before (I'm usually pretty cool-headed), and I realized that I needed to "talk" to people who understand.  Love and strength to everyone going through this, and I've never meant anything so sincerely!   

Comments

  • steelrose
    steelrose Member Posts: 3,798
    edited August 2011

    jansgirl...

    Your post broke my heart. I can relate from more than one perspective, the first being the daughter of a cancer patient. I was my Dad's caregiver for five years when I was in my 30's. We were very close as you seem to be with your Mom and family. It is so, so difficult, but I am glad you have siblings to help you through this. It is very important that you take care of yourself too, and maintain your own life despite these stressful circumstances. I know it's hard when your Mom is so ill... I suffered anxiety attacks too with nervous behavior and simply being at a loss for what to do. Your presence alone must make your Mom feel so much better... I hope you know how much your love and support mean to her!

    I'm 47 now, and although I am NED at the moment, I was diagnosed at Stage IV like your Mom, with mets to bones and liver. I also should have gone to the doctor much, much sooner than I did but stayed away because of a combination of fear and denial. I'm admitting this for the first time... I knew something was wrong and I didn't act on it. I understand your anger but I know that your Mom didn't intend to hurt you or your family. It probably seemed as impossible to her as it did to me that it would be a cancer diagnosis. Naive? Probably. But I certainly never, ever wanted to hurt my loved ones! I certainly ended up hurting myself but even thinking that I brought pain to others is too much... 

    I am so sorry that your family is suffering so much. I send you and your Mom my love and best wishes... she is lucky to have such a wonderful, caring daughter. 

    Thinking of you...

    Rose.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2011

    My heart breaks for you. Your family is in my prayers.

  • Wendyspet
    Wendyspet Member Posts: 246
    edited August 2011

    Jansgirl--I can relate.  I told my 47 year old sister that the mole on her back didn't look right.  She just shrugged at me.  She ignored a pain under her arm for 3-4 months, finally having a biopsy at the beginning of 2010.  A short time later she had a melanoma tumor removed from under her arm that had grown around her lymph nodes.  The cancer came back within 3 weeks, and she was gone within 2 months. 

    I am angry that she ignored, ignored, ignored.  But I have to give her credit for doing it her way.  She was terrified of chemo, and the only thing that gives me peace is that she wasn't forced into something she was against.  It's been over a year, and my mind goes through the "what ifs" all the time.  She left a husband of 25 years and two grown boys.  I miss her every single day, and I wish she could see me take this chemo and not be miserable.  I wish I could be an example to her.  Sometimes people don't make the right choice (in our opinions), but it is their choice to make.  At least that's what is helping me get though this.

    I wish you peace.

  • jansgirl
    jansgirl Member Posts: 4
    edited August 2011

    Oh Rose and Wendyspet, you have no idea how much your words mean.  My mom did do it her way, didn't she?  And that's sooooo my mom!  Pigheaded comes to mind!  See, now you have me smiling...

     Rose, you are so brave to post how you feel about waiting to see the doctor.  I can only imagine how freaking scary that must be and how easy to keep putting it off.  Seriously, this is the first time I've looked at my mom's choices this way, and it's an eye-opener.  My dad and I get to talk in the kitchen while we cook (he had never made anything but pizza in his whole life, now he's the Chief Cook and Bottlewasher in that house!)  I can tell he's not ready to delve too deep into the emotions-that's coming soon.  But I'm going to pass along some of the words you sent and I know it will help.  One of my sisters has maintained all  along that this was just mom's choice; we almost got into an argument about this and realized we had to agree to disagree.   Thanks and love to you all (you, too, Barbara, for your kind thoughts!)

  • jansgirl
    jansgirl Member Posts: 4
    edited August 2011

    I forgot to mention that I think it's the very height of grace, class and beauty that those of you who actually have cancer yourselves will write in support of others.  I'm truly in awe and sending love and prayers to you all.  The Irish have a toast that I love, "Strength and Length of Days."  I'm lifting a glass of iced tea in your honors right now (not late enough in the day in California for wine!)

  • steelrose
    steelrose Member Posts: 3,798
    edited August 2011

    And here's to you, and your sweet father too! It's been awhile since I've heard the phrase "Chief Cook and Bottle Washer..." Smile My Dad used to say it. I can't imagine what your Dad must be feeling and again, I relate from a daughter's perspective in that my Dad lost my Mom far too early... he raised me from age 12. I always worried about him! The one thing I have learned from this horrific disease is how truly kind and compassionate people can be. I have learned so much from everyone here... without a doubt there is strength and dignity and love in even the most difficult circumstances. We're in this together! For that I am forever grateful.

    Please keep us updated. Your family is in my prayers. You have touched me!

  • jansgirl
    jansgirl Member Posts: 4
    edited August 2011

    You are so right, Rose.  The support and love that can blossom out of a terrible situation is astounding.  Just writing in and reading this forum today has made me feel so much stronger than I felt yesterday when anxiety got the best of me.  Now I can take the sense of peace that all of you brought me today and quietly share it with my parents, and what more could a daughter ask?  I'm so sorry that you lost your mom when you were just a girl; I have no doubt that you were the light of your dad's life.  I'm feeling so fortunate that I've had my mom and dad for such a long time when you and so vastly many others have had to watch this disease claim lives that should have gone on so much longer.  This life is so precious, but by being born into it we've already signed on the dotted line that someday we're going to go back out; no one's figured out a way around that bit.  While we're here if we can offer love, be supportive and remember (as you so wisely said!) that we're all in this together, we've done a good job. And all of you have done a VERY good job!  Thank you, thank you with all my heart--I was incredibly lucky to find this forum today.  Sending a hailstorm of healing thoughts your way!

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