Great saying about depression

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  • moogie
    moogie Member Posts: 499
    edited August 2011

    Ladies: I am not on Tamoxifen due to a medical condition that makes it too risky for me---- but in that strange land of perimenopause where my period has been coming and going for the last year or so like a traveling salesman. My gyn said this could go on for decade!!!!! I am all for the bullet train thru this stage of life ,AAAAAAAAAAAA!!!!

    But this is the first time I have been having other symptoms and these constant hot flashes. I cannot get to sleep and feel agitated around 12am when I usually get a slew of flashes. 3 am has been my new bedtime and I look like hell. Two people asked me if I was sick. "No just menopausal: want a punch?" Pasty white with rings under my eyes. Cover-up looks funky in the sun of the South---so the miracles of maybelline are leaving me flat.

    KATE: thanks! I will ask my DR. if I can try the effexor or something else. I feel like a zombie--- and am definitely on the cranky side. Like constant PMS. Never been 'moody' before and feel like a teenager in the past 3 months! My sympathy to all young people in hormonal chaos as well as to all of us in the middle of the road! 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Moogie, don't use cover-up. Use a foundation or face powder that you would normally wear on the rest of your face. It is more naturally looking...even in the south!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    moogie- LMAO!!!  Yep, my poor sister's been doing the meno dance for a decade now.  I'm amazed she's as pleasant as she is.  I, on the other hand, have had episodes of raving bitchiness.  (I'm nominating my DH for sainthood.)  It doesn't help I have a teenager (DS) going through puberty right now.  Not sure who is more moody.  No, wait, it's me, definitely me.  I never had PMS so these mood swings are a new animal to me.  I feel like Regan in the Exorcist as times.  

    Having always suffered from insomnia (fibro related) my GP is great for trying different drugs off label to help.  One thing I found that helped was Promethazine.  It's actually prescribed for nausea but works great for insomnia and it's cheap!  It makes you kind of groggy in the morning at first but that gets better.  It really helps get me in a deep sleep.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    OK, missed this on Facebook yesterday but-

     HAPPY BIRTHDAY, STANZIE!!!!

    ¸,ø¤º°`°º¤ø,¸ Ħappч вiгƬĦαĐЧ ¸,ø¤º°`°º¤ø,¸
    ---------------()--()--()--()--()--()
    ---------------||--||--||--||--||--||
    -------------{*~*~*~*~*~*~*}

    --------{~*~*~*~*~*~*~*~*~*~}

    ---{~*~*~*~*~ HAPPY~*~*~*~*~*~}
    ---{~*~*~*~*~BIRTHDAY~*~*~*~*~}
    ---{~*~*~*~*~*~ *~*~*~*~*~*~*~}

    •*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•
    ::: (\_(\ ...*...*...*...*...*...*...*...*...*...*...*...*
    *: (=' :') ::::::::♫♪ Ħappч вiгƬĦαĐЧ ♪♫ :::::::::::
    •.. (,('')('')¤...*...*...*...*...*...*...*...*...*...*...*
    ¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸¸.•*´¨`*•.¸

     Hope you had a birthday that is as wonderful as you! 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Great cake Kate!!!! Did you make that all by yourself???

    Happy belated Stanzie!!!!!

  • DiDel
    DiDel Member Posts: 1,329
    edited August 2011

    OMG you ladies make me feel soooooo thankful I am not having the HF;s.. the warm flushes were bad enough. When I was going thru chemo my onc asked me if I was having hot flashes..and i said I dont know...he then said ...you;re not, you will know for sure you are having hot flashes no questions about it. LOL I feel for you though..I am not looking forward to it. I am sure being on Tamoxifen I will be pushed into menopause in no time. Plus my onc and my BS keep trying to take my ovaries.

    Stanzie Happy BIRTHDAY!!! Sorry I missed it too, I havent been on FB in a while, well actually on the computer.

    Diane

  • Stanzie
    Stanzie Member Posts: 1,971
    edited August 2011

    Oh my gosh!!!! You all are so wonderful!!! and Kate - Wow amazing cake don't begin to understand how you make it.

    Will write more tomorrow - But Thank you!!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Stanzie- Have to admit I copied and pasted it!  (It's like cyber take out!  LOL!)  Hope you had a wonderful birthday!!!

  • justagirl
    justagirl Member Posts: 730
    edited August 2011

    very clever Kate - cyber take-out!

    A belated Happy Birthday Stanzie!

  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    Stanzie--nice to meet you and very Happy Belated Birthday!!

    Diane-no hot flashes?? How lucky are you!!! How you deal with meno is genetic, but my mom never had HF's, doesn't even remember going thru it!! My oldest sister that is a 3yr BC survivor has never had one. but she is TN, so she got to skip the whole tamox TX. My other sister is just beginning her ordeal with meno and she hasn't had any either. Lucky me!!

    I have another question. Anyone on tamox feel anxiety or stress besides just being depressed? I feel like I am constantly grinding my teeth. I started wearing my night mouth gaurd again and almost wish I could wear it during the day. Work really stresses me so I will take an Ativan to get thru the day. I don't want to be dependent on that--just as I don't want to be dependent on the ambien. I started looking for a local acupuncturist--how do you know if they are any good? I don't know any one here that uses one. 

  • DiDel
    DiDel Member Posts: 1,329
    edited August 2011

    Claire I am not in menopause...only for a couple of months starting with my last chemo. I got my period back about three or four months after i completed chemo. Ive been irregular but my drs think it has more to due with having so many surgeries than heading towards meno. THANK GOD. I do not want to be in meno eventhough it would make my onc very happy.

    I only feel depressed on T. I stopped taking it for the last few weeks. I see my Onc on monday to discuss further but I feel great off of it and really dont want to go back. I HATE it!

    Ugh back to work...have a great day! It is absolutely gorgeous here today...almost like fall. LOVE IT!

    Diane

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Claire- Not on Tamox, either, but swear menopause amps up the anxiety levels, too, so could be a combo of things.  As far as an acupuncturist, does your insurance cover it?  I've never used one but ours does so they have a list of providers.  When I'm trying to find a physician I look on their list, google the names and then try to find reviews.  More and more websites have patient reviews that I've found to be pretty helpful.  

    DiDel- So jealous of your weather!  It's still miserably hot here.  Just dropped our DS off for his first day of high school (HOW THE HECK DID THAT HAPPEN ALREADY?!?) at 8:00 am and it was already 95*.  Ugh!   

  • MBJ
    MBJ Member Posts: 4,352
    edited August 2011

    cmblastic:  Know that during the chemo, mx, recon phase my DH and I had sex maybe 3 times and it was awful.  Now that I am near the end of recon and more comfortable with my body, our sex life has returned.  It took a really long time to get here so hang in there!  Hugs!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    MBJ- HOW ARE YOU?!?  A "little bird" told me you have a BOO-BOO!  Are you o.k.?  We've missed you!!!!!

  • justagirl
    justagirl Member Posts: 730
    edited August 2011

    MBJ - thanks for the hopeful future of once again having sex.  Wow, ever since I was diagnosed a 1 1/2 years ago and now with the DMX with recon it still hasn't happened.  Maybe it will get better once I have the revisiion and nipples made.  I sure don't make any moves toward my husband and he doesn't to me, but I think he doesn't because he thinks I don't want to.  And truthfully, right now I just don't care as I don't feel 100% about how I look.  \

    It totally  still freaks me out when I brush against one of my breasts and  feel a cold nothing.....like who do these things belong to?  I know I can wear a pretty bra or a camisole while having sex but I think the problem is in my head - probably largely thanks to Femara.

    Kate: I know how you feel about your DS starting his first day of high school.  Mine started his first day at university in February and I still have a difficult time realizing this strapping  6' 2"  hunky young man is my baby boy.  I sure couldn't of done this last 1 1/2 year without his love and support.

    We are just finishing up winter here in Australia so I could do with some of your sun and warmth for these old bones.

  • MBJ
    MBJ Member Posts: 4,352
    edited August 2011

    Everyone:  Sorry I have been out of the loop:  I was on vacation, had an accident, 30 stitches in my nose and I also broke my nose and had to have it reset.  Not the most relaxing vacation ever.  The good news?  Just had my check in with all of my dr's and all is well.

    Missed all of you!!!

  • DiDel
    DiDel Member Posts: 1,329
    edited August 2011

    MBJ YEAAAAAHHHHH Glad your appt went well. I was literally just sitting here stressing cause my onc appt is Monday I had my bloodwork done today. Frown

    We certainly missed you!! Hope you at least had some good days on your vacay

    Di

  • MBJ
    MBJ Member Posts: 4,352
    edited August 2011

    Thanks Kate and Diane--I look horrible but I am alive and kicking I guess. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    justagirl- Aaah, winter sounds heavenly right now.  Guess we always want what we can't have, huh?  I know what you mean about the cold foob thing.  They sure don't warn you about that!  The fat grafting has helped a lot with that.  I mean they're still numb, but now they're warm and numb.  A small improvement but an improvement none the less.  I can't remember if you said whether or not they do fat grafting down there?  But I think, like you, so much of this is in my head.  I feel sometimes like I'm trapped in some weird version of the movie "Invasion of the Body Snatchers".  Like someone took my body and stuck me in this one.  The feeling's gotten better but it's always there, you know?  I just try to keep sharing with my DH what I'm feeling so he knows it's not him, it's me.  All I can say is he's incredibly patient and understanding.  

    MBJ- Sorry about your nose but glad everything else checked out A-O-K!  We were worried when we hadn't heard from you in awhile.  Were you in a car accident?  I know it probably hurts like hell but glad it wasn't something even more serious.  Hope it heals quickly!!!   (((HUGS!!!!)))) 

  • Starak
    Starak Member Posts: 536
    edited August 2011

    cmblastic: "I just have lovely flat scars with those perky dog flaps..."   This is likely not the forum but....  I cannot find anything either pictures or descriptions of what has been left in the very center of my chest which I am suspicious might be "perky dog flaps"?  Too large and too close together to allow for anything with a center seam.  Good news was that I chose no recon and no prosthesis?!? because there is no way you could do either one without removing these things.  Is this what you are describing?  I was so mentally and emotionally prepared for lovely flat scars but not this.   I cannot even find a single photo that remotely shows what I have in the center of my chest.  Only option to this point has been to wear a totally flat sports bra with no center seam in order to strap them down OR Ace bandage them down every day.  That of course plays havoc with and exacerbates the nerve damage.  If this was what "skin sparing" was supposed to look like I am NOT impressed.   Is this what people call dog flaps or dog ears?

  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    Diane--Ooh I am so sorry! You are too young to be in menopause!! I was referring to the Tamox SE's--but you chosen to quit T? Frankly, I don't blame you, I can't stand the SE either. It's not for everyone, and I so believe there is QOL to be reckoned with. Good luck next week with your doc visit, mine is Tuesday. Never look forward to those.

    MBJ-sorry to hear about your accident, and on vacation too, that sucks!! Wish you speedy recovery!!  But a good MO visit can almost balance that out. . . 

    Kate and Debbie-- My 2 boys are starting their second year at HS and college. I was where you are last summer--I couldn't really enjoy it-I was 2months into chemo and my  BCDX. It was all a blur. I tried to make it about them, but I just wasn't the best mom back then. Now a whole year later, definitely in a better place but now its a routine for them--another day at school. We are driving my oldest up to Gainesville next week on my 50th no less. Good way to make that day disappear!!! 

    Also, what kind of recon did y'all have? My Mo won't let me consider recon till a year after the end of my last rads--NEXT April. Seems like forever. I gather there is no feeling after recon--not much different than now, 6 months out from BMX and still have little to no feeling on the surgery site.  I guess you have to take the good with the bad with recon. I am very tired of looking at most of the clothes in my closet and knowing how horrible they look on a deflated chest. I want to look better in my clothes and feel better about how my husband looks at me---guess that is balanced against the lack of feeling. Cross that bridge NEXT year.

    Starak--when was your surgery? I am 6 months out and its just recently that a lot of my swelling has subsided. Hence the dog flaps on the sides. My center was swollen kind of funky but it has gone down considerably. I didn't have skin sparing because of my tumor size so there is very little extra skin. If its only been a short time since your BMX, give it time for the tissue to go down. But I would still make an appt with my BS to see if your healing is normal.

    On  another note, yesterday, my FIL got a pacemaker installed, my dad had a stress test--in his words-- he failed so he has to go in for a cath procedure today or tomorrow(he's 78 and a PC survivor, no HX of heart problems). And then DH comes home and says it blood work yesterday came back to say his triglycerides and LDL and HDL were all messed up and he has got yelled at for not taking better care of himself. All last year during my TX he was working at a project and was putting in 80hrs  a week for most of the year. And then there was my BC. All the stress finally caught up with him. SO ANYWAY, yesterday was heart day with the men in my life. Not the kind of distraction I want to go thru. . . .

    Sorry for the blabbering. Putting off exercising. Got to get to it before it hits 100! 

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Starak, if you got 'skin sparing' then they left the extra skin for you to have recon surgery with!!! If you wanted a flat line, you did NOT want skin sparing!!!! I have a nice flat smooth line from the centre to under each arm. I had told my surgon I was not getting recon so DON'T leave extra skin.

    I watched my son get a haircut at my DDs yesterday. He is now 30. I REMEMBER 30!!! Yikes! It made me feel like my life was standing still and theirs was catching up to mine. I wonder if my Mom felt the same way???

    Good to see you back MJB, but you do look a little sore.. Wink

  • DiDel
    DiDel Member Posts: 1,329
    edited August 2011

    Hey Clarie I didnt choose to quit I am taking a break. I felt like I was getting so fat due to the T and my onc refused to believe me so I took a break to lose the weight..prove my point and get back in a fitness routine then back on T. I hate it though. I was running with my dog every day even in this heat and seemed to be gaining and gaining and gaining. I have the body type that I can usually control my weight by diet and little exercise when I don't have time to properly work out. I cut my calories, been eating right, running a couple miles a day...and was gaining weight. So I told my onc I was going off to lose the weight, prove a point, and look good for my 45th bday in September. In three weeks I feel like its noticable that I have dropped weight without trying. I havent had time to work out; just eating right and I feel slimmer. My muffin top has almost gone. I see my onc on Monday and we will discuss further. I just really really really don't want to be on it anymore but I know I have to. I am ER+ 95% and PR+ 90% Frown no other choic really. I am just hoping that when I slow down at work I hit the gym hard and the weight will stay off when I go back on...am I rambling?? I am so tired today AND its so beautiful out today I don't want to be in the office.

    OH AND Claire...my period was very irregular on T you are right, i think that contributed to my moodiness and depression. I got my period a week after stopping T. Bllaaaah Did I mention I hate it.

    Did you all see the treatment breakthrough with CLL?? A very good friend of mine has CLL B and this new treatment uses your own body to attack and kill the cancer cells!! Its an amazing breakthrough in cancer treatment. One day hopefully NO MORE CHEMO!!  My friend is part of a research study at NIH and had her first meeting there yesterday and I am so curious as to how things went. The new treatment was on NBC news last night. Really amazing.

    Have a great day all!!

    Diane

  • Starak
    Starak Member Posts: 536
    edited August 2011

    I am 15 mos BL MX post surgery, no radiation, no chemo.  Started on Aromasin but switched to Arimidex generic due to cost. I was exceedingly clear with the BS and her nurse. I told them there would be NO reconstruction and NO prosthesis.  I wanted flat and symmetrical.  The bulges under the arm with the hole in the middle have improved over time, do not look obnoxious under clothes and are survivable.  The mini Yorkie breasts that stand 1½" high on my breast bone and meet in middle are about to get on my very last nerve.  I wore 40M (that is NOT a typo) before surgery.  That was because they didn't make a 40 N or O.  They literally could not be forced onto the front of my body.  When they said I could skip the radiation with a mastectomy I jumped at it.  I know it is likely heresy in this forum but there has not been one minute ever that I have missed them.  I woke up to a softball sized hematoma under my arm on the non-cancer side which has left me with alot of unremitting nerve damage on that side.  The last thing I need to be doing is adding to the grief by strapping them down.  For me things that are missing are not nearly as disturbing as things that shouldn't be there.  I have absolutely no problem with the rest of the scar across my chest which is flat and fading.  It is the mutant things in the middle that make me crazy. I am a walking talking heart attack/stroke waiting to happen never mind the lupus so even contemplating a surgery is the very last thing I had wanted. Having said all that, for the last few days, I have basically said $*%# it and stopped strapping them down.  People will just have to get over it.  I can rock the flat look - this one not so much.  I have lost 50 lbs during this journey which has put me at ideal weight.  However it has made these things even more prominent.   

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Starak, it isn't heresay on this forum to LOVE being flat. There are many, many threads about it. Some of us just LOVE being flat and I'm one of them. You were the one that used the term 'skin sparing' mastectomy in your previous post. If that's what you had, that's what you get. They leave excess skin for a recon. The incision revision surgery isn't a biggy. I had to have one to get excess tissue off my left side. Get it done if you can. 15 months is too long to have to deal with it!!!!

  • Stanzie
    Stanzie Member Posts: 1,971
    edited August 2011

    MJB- Welcome Back!!! I'm so sorry about your Nose!!! Believe me after my nose break in 2009 I understand and it is just horrible. I hope your doctor does a much better job than mine. I'm still so miserable - he didn't fix it straight, the deviated septum reverted back to where it was so now I have a horrendous time breathing and the only dr I have found so far who is willing to fix it takes no insurance and can't afford to fix it now. So hope you have a much better experience. But so sorry you had to go through that and on vacation - so not fair! But we missed you, glad you are back.

    Diane - Wow, I'm so impressed you stood up for yourself and can prove to your onc how T. affects you. Oh I wish I had more energy to work out, never have been able to run but admire those who can. I'm glad you will look absolutly stunning for your reunion! And back to where you want to be I'm sure you will be able to work out taking the meds you need without messing up the rest of your life. 

    Claire - I had the lat. dorsi reconstruction and I would NOT choose that if I was making the choice now. I'd choose what Kate had done. She can tell you more about it. MY BS was so sure the Lat was the perfect surgery for me I only listened to him. The first PS refused to do Lat and in hindsight even though he has the worst bedside manner and still makes me tear up to even think about that horrible apt I do agree this surgery wasn't a good choice. Kate he wanted to do what you originally had done but said they wouldn't feel real that they would be harder and not feel real and may be able to feel the outline so that just freaked me out. Now with you going for the other surgery at least that is an easier transition. No matter if I have that done in the future, I will have always lost the lat muscle and have the horrible painful disfiguring scars on my back. Hopefully some day I can get rid of the terribly uncomfortable bulges under my arms but for now since he won't do it under insurance - again I'm stuck for now. And just don't have the energy to fight it all right now. So want to lose weight and feel as good about myself as I can then figure out what to do next. 

     starak - I agree with Barb in that it is not heresy to like being flat. I wish I was smaller. I wanted the exact same sizeI was but I swear all doctors just "know" you really want to be bigger! Well, sure I know lots of women that would and do want to be bigger but I also know lots who love being small and or flat. I think that above all is a totally personal decision and only you know what you want and what you are comfortable with. If they did leave skin that is that bothersome I hope you can get it taken care of and have a surgeon who is understanding of what your wants are. I hate that our wants are disreguarded after the basic surgery is done. 

  • Starak
    Starak Member Posts: 536
    edited August 2011

    barbe1958 - Thank you.  I have made an appt. with a PS for later this month.  I am gathering after the fact that this particular BS ALWAYS does skin sparing.  I did Google the term prior to the surgery.  I knew about and was prepared for the extra padding under the arms.  I never once saw a photo that even remotely looked like the center of my chest, not then nor since so I had no  reason to be alarmed. Little did I know.  At least 85-90% of the scar looks perfectly fine which considering many of the photos I did see I feel really fortunate.  It is only the middle that's the problem.  Thank you also for letting me know that there really are people out there who chose no reconstruction from the beginning.  Does that mean there are other no recon AND no prosthesis like me? The thought seems to shock alot of people but I have never once had anyone spin their head off in the grocery store.  I really don't think most people even notice.  I hope you are right that fixing it should be pretty minor.  Thank you!!

  • Stanzie
    Stanzie Member Posts: 1,971
    edited August 2011

    Starak,

      My sister's best friend chose to stay flat and actually is more concave actually as her MX was a long time ago when they did more drastic surgery. She looks wonderful and always has, even in a bathing suit. No she never chose a prosthesis either. I guess i grew up knowing this was her choice and it never seemed strange to me at all. She is a very feminine lovely woman and having breasts never took any of that way from her. I think having women on this site who chose all the options is wonderful cause that is the real thing - there are options to what is best for each of us and in having to make a horrible decision such as having cancer - we should all celebrate everyone's choice is whether to reconstruct or not. 

  • MBJ
    MBJ Member Posts: 4,352
    edited August 2011

    Stanzie:  Forgot to wish you a HAPPY BIRTHDAY!!!!!!!

    Kate:  I was on vacation and on the first day had a boating accident: my face hitting a dock edge full force-30 stitches and a broken nose so I spent a total of two days flying, 3 days in the hospital (back and forth) and only had 3 days of vacation time where I couldn't participate in any activities because of my nose.   Anyway, I am still healing and not coming on line much.  Feeling a bit blue and quite exhausted from this.  Time is the healer, right?

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    {{{{{{{{{{{ MBJ }}}}}}}}}}}}}}}} On holiday??? Are you KIDDING me??? You poor soul!!!

    Starak, why the hell would I EVER want to wear a bra again!!!! No foobs for me!!! Kate is the only one that has done a process I'd even consider. The fat grafting. But I just don't have the patience or the urge to get breasts again. My DD and I talked about it just yesterday as my therapist had flippantly said, go on STD, research a new career and get new boobs. Wow!

    But as I talked it out with my DD, I am still sure almost 3 years out that I don't want boobs! They only ever gave me trouble, nothing fit right and I even had a reduction down to 42D which is what I lost when I had my MX. Perky little 50 year old boobs. TaTa!!

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