August 2011 chemo, anyone w/ me?!

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  • michelleo13
    michelleo13 Member Posts: 342
    edited August 2011

    Day 2 of first A/C and I'm doing okay. Woke up this morning feeling good and went for my CT scan. Manged to keep the yucky stuff down. It was very cold in the room, but it has been so darn hot this summer that cold almost felt good. This afternoon, the home care nurse came and showed me how to self-inject the Neulasta. It actually went better than I thought.

    Grimbol, hope your CT scan went well.

    Summergirl, you will be fine! Together, we will all get through this!

    Kasi, so glad you're feeling better.

    Michaela, it does feel good to have the first one out of the way!

    Ipswichmom, plastic boobs - LOL! Kids really do say the funniest things. My eight-year old DD first told me that I'd look funny with no hair. Then, when I asked her if I should get a blonde wig, she said "well that would just look stupid". I wasn't sure what she thought of my new short do, but the other day she told me that when my hair grows back I should leave it short because it looks really good. She's pretty stingy with the compliments, so I was happy to hear that!

    Welcome, Eekwine! Ybrooker1 is right. Once the intiial shock wears off, a sense of determination kicks in. Everyone keeps telling me they can't believe how calm I am about everything. I have my moments, but I'm just trying to stay focused on getting through this and being well again.

    With all these Irish folk on here, we'll have to plan a St. Patrick's Day "Cyber-party" for March 17, 2012. By then, I pray we'll all be either at or nearing the finish line on this journey. A glass of Guinness always goes down well on St. Paddy's Day!

  • Damaris51270
    Damaris51270 Member Posts: 16
    edited August 2011

    LADIES THAT ARE HAVING CHEMO TOMORROW HUGS!

    EILEEN THANKS FOR THE ADVICE ON HEARTBURN WORKED WONDERS.

    DAMARIS

  • Chrys23
    Chrys23 Member Posts: 291
    edited August 2011

    Wow -- tomorrow is really "Chemo Day"....I wish everyone who is starting peace and minimal SE's.

    I've just had my good friends who were here since Saturday leave to travel back to NH. I miss them already. It's been a busy few days with a big party on Saturday and NYC yesterday. I guess I now have to settle in to reality that I start chemo at 9am tomorrow. Already took my first course of steroids this morning and the second tonight....

    I had therapy early this morning and my therapist thought I was "numb". I told her I've been busy since last week preparing for my party and my houseguests that I didn't even think about it. She thought maybe I was stuffing away the inevitable start of chemo emotionally. I really don't feel that way - I really was BUSY! LOL

    In any case, it's hitting me now and it's surreal. I hope I will be ok (and all of you too).

    Sealed

  • Doodlebug12
    Doodlebug12 Member Posts: 35
    edited August 2011

    Good luck tomorrow chrys23... I will be thinking of you xx michaela

  • edoyrest
    edoyrest Member Posts: 55
    edited August 2011

    Cool Thought of the Day,

    My shiatsu massage therapist told me today that there is a study with 3 groups of cancer patients receiving chemo and side effects. The first group received their chemo and had many side effects; the second group received their chemo but had someone bless it before they received it, they had fewer side effects; and the third group received their chemo and blessed it themselves and experienced even fewer side effects than the first 2 groups.  So instead of thinking of my chemo as poison they're putting in me (which I do think), I'm going to bless my chemo on the 24th and see if I get fewer side effects!  Can't hurt!!!

  • edoyrest
    edoyrest Member Posts: 55
    edited August 2011

    musicalmom,

    I'm all for the UGGS, and bring fav throw blanket from home, it was really cold in the chemo infusion room last week. 

    Check out my Cool Thought for the Day, blessings right back at you!

    Eileen

  • sandy115
    sandy115 Member Posts: 172
    edited August 2011

    Day 15 after treatment had a reiki session today made me relaxed but now i've been crying ever since I came home.My hair is falling out like crazy but I cant get the courage to have it cut off .Not having a very good day im feeling sorry for myself aches and pains everywhere.

    Sorry for the ranting I hope Everyone else is having a great day

  • Chrys23
    Chrys23 Member Posts: 291
    edited August 2011

    Sandy -- (((HUGS)))....You are not ranting at alll; let those feelings out girl! I hope you feel better soon hon. xoxo

  • Doodlebug12
    Doodlebug12 Member Posts: 35
    edited August 2011

    Oh sandy115. I wish I could give you a big hug. Sometimes when we have relaxing treatments done they unlease feeling that we have managed to hide through nervous energy. The only bit of comfort I hope I can give you is to tell you to let it all out... I'm in Ireland and my numbers are 0035316103876 (h) 00353868508553 if you feel like calling me tomorrow I will try and cheer you up. Hair loss as we all know is THE hardest thing to deal with but my mother and kids have a mantra that they repeat to me regularly... They want me with no hair for 6 months and with them healthily for the next 30yrs minimum



    Please don't ever think that you are ranting - Its a perquisite to join this group and at this stage we have enough people started, strarting and about to start to share a whole heap of hints a tips to make us feel better



    Love to all



    Michaela

  • Doodlebug12
    Doodlebug12 Member Posts: 35
    edited August 2011

    Michelle..... What a fantastic idea for a paddies day party... I'll come to new yyork or Atlanta if nobody wants to travel to the motherland - something to look forward to with all my girls



    Xxxm

  • Grimbol
    Grimbol Member Posts: 326
    edited August 2011

    Home again and no barium, yay!!  Mind you it could have been a mistake - my appointment wasn't on the schedule - the girl who made it 'forgot' to put it in the computer.  So we had to wait while they got some more of the drug, they 't keep it at this site.  Everthing else was fine, but I didn't mention the barium and neither did they. :)

     Welcome to Kim and Eekwine. I also had my port fitted on Friday and begin chemo tomorrow.  But I am getting different stuff, plus Herceptin.

     Hopefully we'll all be back on here again in a couple of days relieved the first one is over and we've survived.

    Thank you so much to all you wonderful girls who are so encouraging.

  • Chrys23
    Chrys23 Member Posts: 291
    edited August 2011

    For those who started treatment already -- did you pack anything to take with you? I've read some take a long a small "chemo bag" with their medicine, thermometer, etc.  Did any of you do this and what did you pack?  I'll definately bring my laptop.

    Also, did any of you drink water during chemo or that should really start after?

    I'm getting nervous (I think!)  Surprised

    Oh, if anyone is looking for a free wig; you can go to: http://crickettsanswerforcancer.com/

    They will purchase a new wig for you (up to $ 100 from wigs.com) in honor of a loved one they lost from cancer. You have to fill out a short 2 page application and you pick a first and 2nd choice wig. If they approve you, they order the wig free of charge! I was just approved and ordered a nice cury/funky wig (I'm african american).  So, I wanted to pass along this option if anyone is interested or has never heard of the website.  Wink

  • michelleo13
    michelleo13 Member Posts: 342
    edited August 2011

    Hi Chrys, I packed a bag with the following: light snacks, water, reading material, kleenex, my medicine (probably won't need them next time but I had a teaching session with the pharmacist before my first chemo). You could also take a blanket, although the volunteers at my hospital will bring warm blankets if you need them. Next time I'll probably take my iPad so I can read books or watch movies.



    I started drinking lots of water the day before chemo. I took a big reusable water bottle full of ice water and drank it while I was there.



    HUGS! You will be okay.

  • capinva
    capinva Member Posts: 138
    edited August 2011

    I will be having my first dense dose of AC on Thursday. My first treatment 4 weeks ago was TC. However, had an allergic reaction so this next treatment has me really nervous. Is AC that bad and that's why they call it the red devil. Also my doctor never mentioned the shot that I have seen mentioned here. Is that always given. I am very healthy, blood counts are great and weight is good. When I did the first treatment the SE hit on the 3rd day then the reaction started on the 7th day. I was able to go to work the day after the first treatment. Is that possible with AC? I really love my job and want to continue working as much as I can. Originally I was only have 4 treatments and now I have 7 to go. Little disappointed with that too. Hope I'm not whining too much I'm just nervous. Is anyone else working while taking AC?

  • michelleo13
    michelleo13 Member Posts: 342
    edited August 2011

    Capinva, I had my first dose of A/C yesterday and I'm feeling pretty good today. I felt pretty nauseous last night but took some anti-nausea meds before bed and was fine this morning. A bit of light nausea this afternoon, but I'm feeling fine now. I think the red devil name is strictly due to colour, and the fact that you pee red afterwards. I drank a ton of water the day before and the day of, and my pee was normal colour by this morning.



    The Neulasta shot is usually given if you are doing dose dense A/C (every two weeks instead of every three). It helps to build white bood cells as your body doesn't have the longer recovery period between chemo doses. I am also in good health but this is the regimen that my ONC recommended. You can ask your ONC about it.



    Good luck on Thursday!

  • vtellen
    vtellen Member Posts: 345
    edited August 2011
    Oh, that's why the neulasta shot. I was wondering. Capinva, sorry about your new schedule, I'm sure that is terribly disappointing to you. We get ourselves syc'd for what we think our regimen will be then oops! I wouldn't assume that you will react badly to the a/c. I'm sure you'll cruise through fine. ( says one who reacts to evrything!)
    Chrys- I drank a lot of water during my 31/2 hr treatment. At least wandering down to the bathroom gave me something to do....Do you have ativan? I was so nervous, that my bloodpress. was skyhigh. I think the nurse found it vaguely amusing- when I finially got the ativan on board, it really relaxed me...
  • vtellen
    vtellen Member Posts: 345
    edited August 2011

    Ok Now what is the deal w/ the adress wierdness in my post?!!! When I go to edit them out, they don't show up !! It looks like secret code or something!

  • Amelie_Rose
    Amelie_Rose Member Posts: 106
    edited August 2011

    Ladies,

    I don't post very often, but wanted to stop by and welcome the newest members of our August group.  We are sorry you have to join us, but happy you are here.

    To all those having chemo tomorrow and Thursday: Chrys24, Doodlebug, Capinva and Aimska (sorry if I've forgotten anyone else), may you all have an anxiety-free day and miminal SE's for the rest of the week.

    Sandy, I am so sorry about your hair.  Rant all you want... you have a safe place here.  Losing our hair adds a whole new dimension to breast cancer.  Sometimes, I think that I would have handled this diagnosis so differently if chemo and hair loss had not been in the picture!.  I still have my hair for now, but although I have the wig and the scarves ready, I know I'll really, really be sad when I look in the mirror and no longer see 'me'. 

    On a more positive note, I woke up this morning (day 9 after treatment) feeling like myself again! Yippee.....  For the first time, I started thinking that maybe I'll be able to do this and come out strong.  Here is hoping you all feel the same...

    Aimska and Musicalmom, I think the three of us are having the same treatment, TCH x6 followed by Herceptin for a year.  Anyone else one this board?  Aimska, please let us know how treatment #2 goes for you.

    Amelie 

  • peachy-pie
    peachy-pie Member Posts: 201
    edited August 2011

    I have an appointment on 8/16 for my game plan.   I had surgery July 5th,  and Brachytherapy radiation with the Savi catheter 7/18 thru 7/22,  now on to chemo.   I am more terrified about chemo then I was about anything else.  

  • vtellen
    vtellen Member Posts: 345
    edited August 2011

    Those starting treatment today, stay strong and positive. You can do it.It is day 7 for me, and other than yesterday's hangover from my venture into narcotic usage, I have been alright. I have walked the dogs ( 30-40 mins) every day( even yesterday!) and today I am having my big outing to get my labs done. It is an hour away, because I am having to make a rare trip to the main office! The Font is bold now. I've done it again, sorry. I don't actually know how to type, and i seem to cause a reaction when I hit 2 keys at the same time.......

  • vtellen
    vtellen Member Posts: 345
    edited August 2011

    Eileen, I like your "blessing " ritual. Anything that puts a positive spin on the chemo can't be a bad thing. This stuff could be, hopefully is, saving us all from a reoccurance! You reminded me of something my sister told me. When she went through her hodgkin's treatment- whenever she felt a SE, she sort of nodded to it and felt gratitude that the stuff was on board working it's magic!

  • michelleo13
    michelleo13 Member Posts: 342
    edited August 2011

    Good luck to all starting chemo today! Today is Day 3 post first A/C treatment. I'm feeling a bit nauseous this morning...popped an extra anti-nausea med and that has helped. I hardly slept at all last night, must be a S/E from the Neulasta shot yesterday! Anyone else have this?



    Off to the hospital this morning for a MUGA scan. Have a great day everyone!

  • cupcakies
    cupcakies Member Posts: 71
    edited August 2011

    Hello all, 

    I have my first AC treatment this afternoon.  Is anyone here doing neoadjuvant chemo? 

    Just curious b/c i actually CANT WAIT to start treatment and pray that it works!  

  • edoyrest
    edoyrest Member Posts: 55
    edited August 2011

    Chrys23 - I packed a ton of stuff that I didn't end up needing, however one never know what will really be needed.  That said what I actually used that day was a few heatlhy snacks, water bottles, and tissues.  If you want to listen to music, bring an ipod or whatever gadget you own.  My BFF and husband were there providing entertainment and the nurses were great and kept me laughing.  The nurses will provide anything you may need as well.  Oh yeah, it was cold in that room because they had just gotten the a/c fixed, I wore warm socks and used blankets they provided.  So next time I will bring my UGG slippers and fav blanket throw.  They will take good care of you.  Do you have someone to take you and stay with you?

    Eileen

  • edoyrest
    edoyrest Member Posts: 55
    edited August 2011

    TO EVERYONE STARTING CHEMO TODAY:  Pray over your chemo before you receive it, you will have fewer side effects.  Can't hurt!

    Eileen 

  • Grimbol
    Grimbol Member Posts: 326
    edited August 2011

    My first tx today!  My lovely daughter-in-law gave me some warm fuzzy socks yesterday, so they are in my bag. She also bought me a new water bottle to take with me. I am a Sudoku nut so that is in my bag too.  Right now I can't imagine wanting to eat but we'll see.

    My prayers are with you all for today.

  • summergirl1
    summergirl1 Member Posts: 182
    edited August 2011

    Sandy115. I hope you will feel better soon I cant imagine what it must be like but will go through this myself in a few weeks , and as everyone keeps telling me YOU will still be YOU even with no hair. and people love you for YOU. hang in there and we are all here for you. (hugs)

    Michaela: so glad you got through your first session and you sound like you are doing really well thats great, text me anytime day or night. xx

    TO EVERYONE ELSE: love to all who have started tx and those who are still waiting anxiously.

    I am feeling a lot more positive today, TG .I miss my daughter a lot she lives in Philadelphia but she is coming home in October to be with me , cant wait she is also expecting her first baby" My first Granchild "so exciting !!! this will keep me going on this journey. and my DH is taking me out tonight for our anniversary looking forward to that .

    Hugs to all and have a happy day !!!!!

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited August 2011

    Welcome peachy....im pretty sure I haven't welcomed you forrmally yet? Glad you found our wonderful group!!! :).



    Ladies starting chemo today.....may you all have s/e free days to come!!!! I hope everything goes smooth today and you are all in my thoughts today!!!!



    Sandy....nothing wrong with ranting and being upset about losing your hair, at ALL!!!! It stinks....it really does..... we are all going to get through this leg of our journeys and than our hair will be back before we know it, and more beautiful than ever!!!!!



    Hi cupcakies.... Welcome as well and good luck today. I'm post surgery but I think there might be one or two that is neoadjuvant?? And it WILL work.... :)



    We need a master list for all our dates, treatments, etc??? I feel like I've missed someone's day? Or should we all put it in our signature????



    I'm coming off Taylor Swift last night with my 8 year old.... My ears are ringing still and my port hurts in the tubing from singning....I hope it's not possible to screw up your port by singing too much??? That wouldn't be fair....



    Good luck today ladies!!!!!!!!!!!!!! You all are strong powerful women and you CAN get through this...



  • summergirl1
    summergirl1 Member Posts: 182
    edited August 2011

    also wanted to add if anyone out there is a facebook addict like me, look me up my FB  name is Carol Kitrell (same profile pic) we can chat .

  • Chrys23
    Chrys23 Member Posts: 291
    edited August 2011

    I'm waiting to get started here in Philly at the cancer center! My lovely sister drove

    me today!

    Just got my needlestick for blood counts, and am waiting to be taken back to my private

    Infusion room. Good luck to everyone today!

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