OMG-BRAIN????

sharalou
sharalou Member Posts: 223
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

 

Omg! Had an mri about a month ago, and mentioned some thickening of lateral rectus muscle. A couple weeks later, starting experincing some pullness and double vision when turning to the right (but left eye bothered me). Went to see eye doctor, and my oncologist ordered an mri of orbits. Eye doctor by exam an report was not impressed, gave me eye drops with steroids, but after a week didn't help. Had mri of orbits last Monday, and hey called me back (grant it, not until thurs.afteroon-okay), or add't  views. My onc. called and said they saw something in the right orbital lobe and since eye was not better, wanted me to to er. Long story short, they found a 6mm area in the oribital lobe, with still the thickening in the left orbit. I am in hosptial getting decradron every 6 hrs. iv. having a spinal tap tomorrow. Anyone else anything similar? Would love to hear from you!

 

Shari 

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  • apple
    apple Member Posts: 7,799
    edited July 2011

    try to take as few of the decadrons as they allow.. at least thoroughly discuss it with whatever professional you can...... it made so puffy and ugly. 

     I know it does wonders for reducing inflammation but I think it just shifts it to your face and tummy.... (kind of kidding there). 

    wishing you the best of luck. 

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  • sharalou
    sharalou Member Posts: 223
    edited August 2011

    I just don't like the way i feel on it. have been on it since july 26th. iv injection(4mg every 6 hrs) in hospital for 4 days, now on tablets 4mg every 6 hrs. nothing was mentioned about swelling.  i go see a specialist in Ann Ann Arbor, Mi. on Wed. regarding my eye. PLEASE PRAY FOR ME!!! 

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  • PJB
    PJB Member Posts: 2,615
    edited August 2011

    Sharalou, I hope your appt on Wednesday goes well and that you find relief soon! Paula

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  • steelrose
    steelrose Member Posts: 3,798
    edited August 2011

    Shari...

    Just want you to know that I'm thinking of you and I wish you good luck on Wednesday... I hope you will feel better soon!!!!

    xoxo

    Rose.

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  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    (((((shari)))))) - you're on the prayer list. lots of prayers.

    xo

    j

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  • Elizabeth1959
    Elizabeth1959 Member Posts: 346
    edited August 2011

    Shari

    I am thinking about you today. I hope you get encouraging news

    Elizabeth

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  • Claudie
    Claudie Member Posts: 1
    edited August 2011

    I had Her2+ BC September 2009. Did 6 months chemo, then double mastectomy; 7 weeks radiation & a year of herceptin. In June of 2011 I started having headaches oncologist had MRI done on July 14 and found I had a 4cm brain tumor from the BC. On 7/25 had brain surgery per Oncologist and MRI brain clear...I just completed 3 days of cyberknife for brain met from Her2+ BC. Today is day 2 after and I feel jittery and just out of it... Anyone else feel this way after Cyberknife?

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