Orbits???

Shari, I don't know anything helpful to add, but I noticed your posted a while ago and noone had answered. Things are often slower on the weekend around here. I have a friend who does have mets around her eye, but they are in the skull bone, not the muscle. Tuesday seems like forever away, doesn't it? Deep breaths, try to escape in something you enjoy (book, movie, HGTV). Perhaps someone will come along who knows more, but really, it sounds like you need to see the specialist to get enough information to know if you need to freak out!

Hope you can get away from your thoughts a bit over the next few days. 

Shari

I am an ophthalmologist.  I found an article in Survey of Ophthalmology Volume 44, Issue 3 pages 187-213, November 1999

"In our study, myositis (inflammation of eye muscles) was the most common nonthyroid myopathy representing 43% of cases.  (thyroid eye disease or graves disease is far and away the most common cause of swollen eye muscles.  Thyroid disease would usually be painless.)  Acute myositis is associated with pain, swelling...

Acquired dural or carotid cavernous sinus a-v shunts were the next most frequent cause of muscle enlargement 22% (in other words a vascular process)

Neoplastic processes, whether locally infiltrative or metastatic were a cause of enlargement in 18% of cases."

In other words, a benign inflammatory process is statistically more likely to be the cause of your problem. 

Whatever you have is uncommon.  Ideally,you should see an oculoplastic specialist preferable someone at a major medical center.

I will keep my fingers crossed for B9 process.

Elizabeth