What is it like to get a "chunk" taken out?
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You made it! Now with the help of the breast care team and doctors you can make an informed decision about what to do next. thank you for your condolences about my sister Kara, she was wonderful. My avatar is a pic of my sis about a year before she moved on.
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Buzziecat glad you are home now and recupperating.
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I forgot to write, if your surgical site starts to look infected get antibiotics right away. The breast is unique tissue my biopsy inscision became infected really easy.
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Thatsvanity .. I am so sorry to hear about your sister. Sending you a big hug. I see you are from San Diego .. I was born and raised there .. my family is still living in the La Mesa area.
Buzzie .. glad you are home and resting. Just take it easy and let yourself heal up.
hugs,
Bren
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Just a little update. The day after surgery, I was SO SORE all over my body. Almost every muscle - my calves, my thighs, my upper arms, my back, my abdomen - felt as though I had strained it. What happened during surgery? I mean, this was the feeling of severe strain. I could barely move! My breast hardly hurt at all, but the rest of me was miserable! Thankfully I got a lot better the next day and today it's just my abdomen and calves that are a little sore. I never felt that way after surgery before, and I have had 4 other surgeries (unrelated to this one) in the past.
I'm a little frustrated because the BS told me I could probably get my results today, Friday, but when I called I was told it takes 5-7 days so call back Monday to see if they are ready. Ugh! I guess I should have known it might take longer.
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Buzzie .. I'm glad you're feeling better today. I can't believe you have to wait until Monday to call again for your results. Waiting is the worst part of the whole ordeal.
Thinking of you,
Bren
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You did great! I hope you're feeling better as each day goes on...
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Thank you - I do feel better each day. I'm not feeling as wiped out today, the all-over soreness is fading more and more, and my surgical area is more itchy than painful, really. It's sore if I press on it - natural stomach sleeper here - but other than that it's more of an itch than anything. Does not look swollen or infected so far, knock on wood. The procedure and healing process afterward really has not been as bad as I thought, just the waiting for biopsy results that is doing a number on my head.
I went to Dr. Google, ha ha, and found a thing called postoperative myalgia. I think that's what I had that caused the severe muscle soreness I experienced. If I ever have to have another procedure, I am going to tell the surgeon and anesthestist that I think I had postoperative myalgia.
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Buzzie .. glad you're doing better today. It's good that you have figured out what was causing you so much pain. I would defintely tell the anesthesiologist and surgeon if you have to have surgery again.
Thinking of you,
Bren
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Glad to hear your healing well. Can they do anything for the myalgia after surgery?
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I haven't asked a doc about the myalgia, but from reading on the Internet there's not a lot. I took the Vicodin they prescribed and it did nothing for it! I guess it wouldn't be a good idea to take any NSAIDs for a period of time after surgery, which I thought might be more helpful for the soreness but was too scared to take because it might cause bleeding. I should have called the doc in case they could have helped, but I didn't feel sick or like I was having a medical emergency and had a feeling it would go away, which it did. If it had gone on much longer, I would have called. It "only" hurt with movement. As long as I sat perfectly still, no pain. LOL.
My big takeaway is that if you've had or think you had postop myalgia and you're going to have another procedure with general anesthesia, tell the surgeon/anesthesiologist what you experienced so they can possibly try a different muscle relaxant the next time. I came across some studies where they tried giving steroids before surgery in case it was caused by inflammation, but it didn't work to prevent it. I am going to bring it up on my followup at the BS just to see if my suspicion is correct.
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Huh, I looked it up!! It is directly related to Fibromyalgia, which I have. I have to tell them before surgery so that they give me pain meds DURING surgery so I don't wake up in pain. Once in pain, it's almost impossible to get the pain level down. So in your case (and mine) we tell them about it so they'll drug us up while we're still asleep. I've been telling them for years, so I haven't reached your point, now you have to tell them too!
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Isn't it the craziest thing? I never had that before. Maybe if I had taken the Vicodin more regularly, it would have helped more. I just didn't want to feel all woozy and drugged up. My breast wasn't hurting that much and I didn't know I was about to be hit with the myalgia several hours after the surgery. Next time, if there has to be a next time, I will be ready! Still don't want to feel drugged up, though.
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When you're in a lot of pain, you don't feel drugged up with narcotics. I take HUGE amounts of narcotics every day and don't feel stoned or woozy. When your body needs the narcotics for pain, they don't go to your head.
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Gee, I am sorry you are in that much pain every day!
OK, now I am freaking out. I called to see if my results were ready, and she (a secretary, I guess?) said, "No they're not, oh wait, yes they are ready. Hang tight and I'll have the nurse call you." What is that supposed to mean? Why can't they just tell me - something bad? Why do I have to wait any longer than I already have?! Just venting here. Now my stomach is all in knots. Hang tight?
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Now, now, you know a non-medical person can't give results over the phone or they wouldn't be allowed to bill you for a phone consult....any results yet?
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I know. But what does she mean hang tight? I don't know if this woman SEES the results or just sees that they are available. When the front office transferred me over, I thought they WERE transferring me to the nurse, but I guess not since she said she'd get the nurse to call me. Still no results. They have about 1 to 1-1/2 more hours to call me before office hours are over. Why won't they just call so I know what I am dealing with?
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Maybe you can call back and ask to speak directly to the nurse. Hang tight is about the most frustrating thing to hear!
Is it possible to drive over to the doctor's office and just get a copy of the results yourself?
Bren
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I called my MO's office looking for my dexxa scan results and I asked for medical records and asked the girl if she had my test results which she did and I said can you tell me what they are and she said no only the nurse can. I then asked can you fax me my results and she said sure I can do that I just can tell you what they are. I said OK fax them and if I have questions I'll call the nurse back. gee protocal
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This is supremely frustrating. I don't know if they are just following their little protocol or if they are trying to keep me from finding out something unless/until I talk to the doctor. I called back at 4:30 because no one was calling me and I thought no way, I am not taking any more of this. I told the receptionist my spiel and she put me on hold to check. I waited quite a while and she came back and said the nurse was gone for the day and she could make me an appointment (to come in earlier than my followup) for Monday at 9. I said okay and hung up and then thought WTH? Nobody can do anything on Friday? No one can call me on Friday? Nothing? What are they doing and why are they trying to kill me?!
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Buzzie, drop in on Friday and ask for a printout. When they realize you're in the office, maybe they'll finally tell you!!
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I am going to do just that! My family thinks that's what I should do, too! I hate to have to get up that early because I work evening shift, but I guess them's the breaks.
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So....do you know yet????
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Still nothing! I went down there. Nurse was not there. Doc was not there. Receptionist called his secretary, who called him over at the ambulatory surgery center where he was about to start a case. He told her to tell me that he'd call me himself when he gets done with the surgery and gets back over to his office. Should I have pushed more? I don't know. I get so weak in the knees thinking about what it could be that I lose all my strength to push for them to just give me a copy. I know if I read it and it says something bad, I will wish I had just waited and had a few more days of ignorance. How's that for living on De Nile?
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Buzzie .. it sounds like you've pushed them about as far as you can. If they didn't give you a hard copy of your path results today, I guess you'll just have to wait for the doctor to call. Even after the doctor calls you, I would recommend getting a copy of the path results. It's good to have a copy of all your records at home with you.
I'm so sorry the wait continues. It really is the hardest part of the process.
Keeping you in my thoughts,
Bren
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Well, it's a low-grade cancer. Phylloides. I will have more surgery next Friday to have more tissue removed to make sure he got it all. Sigh.
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So sorry to hear
I hadn't heard of phylloides - looked it up and it is very rare - less than 1%. Low grade is good though - right? Will you need other treatment? Hugs, Valerie
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Buzzie .. I am so sorry to hear this. Once you have the lumpectomy and final path report you'll have a clear treatment plan.
Sending you big hugs,
Bren
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Buzzie, So sorry about the report. I had never heard of phylloides, so I looked it up. Boy is it rare, only 1% of the breast cancers are this kind. I'll be thinking about you when you have the additional surgery next Friday. be sure to keep us informed.
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Yes, it's quite rare - leave it to me to get something that rare! - and it's uncertain in the literature whether they should do adjuvant radiation. He has not said anything to me about radiation. I will go on Monday to discuss more with him and get ready for more surgery next Friday. I'm going to ask him what kind of a margin he is going for. Some things I've read say at least 1 cm and 2 or 3 is better but may be hard to get depending on breast size. I'm not sure how much of a margin he can get on me.
The low-grade is good and he thinks he can do surgery and have it be a cure. He told me it would not kill me. I hope he is right!
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