Is anyone else an atheist with BC besides me?

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  • chumfry
    chumfry Member Posts: 642
    edited August 2011

    I think a lot of people find this thread by seeing it listed in the Active Topics box. That's where I found it during my second go-round with BC. So maybe we won't lose too many new people by not being in Just Diagnosed. Oddly enough, I don't think I ever looked in the Just Diagnosed category, in 2005 or in 2007. I think I went straight to the Chemo and Reconstruction categories.

    As an aside, a core group of the ladies I met on BC.org during my 2005 chemo has been meeting annually since 2007. We've had our reunions in Chicago, Las Vegas, Seattle, Nova Scotia and I just got back from our long weekend at Niagara Falls. We're thinking about renting a house in San Diego for a long weekend next summer!

    We're the Rocktober Girls because we all started chemo in October 2005. Our members include women from the U.S., Canada, Britain, Australia and Israel. Not everyone can come to each get-together (travel costs, etc.), but it's so good to see whoever can make it. <grin>

    --CindyMN

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2011

    Arghhh ... my screen keeps coming up on page 111 .. at least I can find us though!.

    So nice to see so many folks out this morning.

    Chumfry .. I have been so lucky to meet so many of the great women on this board.  It's so much fun to put names to faces and hug a real person!

    Hope everyone has a good day,

    Bren

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2011

    Cindy, it would be great to rent a house in San Diego..you will love it but don't come in May or June, too much gray weather..my son has a group of fantasy football fans who rent a house in Mission Beach, San Diego for a week..every year...

  • chumfry
    chumfry Member Posts: 642
    edited August 2011

    Good to know, Lisa. Thanks for the tip!

    --CindyMN

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Hi Everyone,  I just got back from the follow up visit with the surgeon and he is recommending to the RO that I have Brachytherapy (internal rads).  This sounds great to me.  Only 5 to 7 days of rad pellets in the tumor bed in a balloon catheter that the surgeon will place.  He said that I'm a good candidate for it.  I will also meet with the ONC on Tues for the rest of the plan.  I'm also going to check with him about the Oncotype DX test to verify if chemo is needed or not and my recurrence score. As I wrote Happy Libby recurrence is my biggest fear.  Other then that I feel good about the upcoming journey.  Thanks for listening to the freshmen here.  Speaking of freshmen, in three weeks they all come back to school!  Uffda, back to real work.  Kitty

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited August 2011

    Kitty, thats great news!  I have to say, I was really scared of zaps (can't quite recall why now but anyway...) and they went quite well for me. 

    So glad you are able to focus and have a better weekend!

  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited August 2011

    Oh, Kitty, thank you for your care and concern. It was a shock because my chances of recurrence were low -- good margins, small lesion, lots of rads and tamox. But the cancer switch is apparently on, so the boobs are coming off. The first year or 18 months after my first dx, I was really scared it would come back. Then gradually the fear receded. When it came back, I was shocked at first but then adjusted into "get it done" mode. I have a bad family hx, but am BRCA neg. As I tell people, I got a shitty deck of cards, but I got two good cards out of the crappy deck -- both times it was DCIS. And my "breast friends" are right here by my side, ready to talk me down out of that tree when I'm howling at the moon!



    And it will be OK. I will be OK. And I will be hanging out here with Ceiling Cat and FSM and my human, humane friends as we connect and make a community right here in this life, on this earth.



    (((((Kitty))))) we'll be here for you, too.



    L

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011
    Thanks L for the encouragement.  I've read so much about this micro-monster BC that it starts to eat away at me just thinking about the nasty directions it can take even when it has all been removed. I have no family hx so I'm the first.  Lucky me Undecided!  The emotional roller coaster is running fast so I'm still trying to slow it down and get down to business with the next step.  I'm okay today but who knows once I see the ONC.  Hey, maybe he will up my dose of anti-depressant (or send me to the funny farm!)  Either way its on to the next step.  Thanks, Kitty
  • Robyn_S
    Robyn_S Member Posts: 197
    edited August 2011

    Kitty - your tx sounds much easier than regular zappem rads! It would have less side effects too?

    Libby- I feel for you , you are living what many of us will face no matter what treatments we endure to prevent recurrence. At least you are stage 0 and non invasive which would still give a good chance of complete cure! It is difficult to look ahead when in midst of doctors appts and tx.

    I will finish active tx after rads in October and am planning the passive tx phase of my life where I will actively live a much healthier lifestyle than I have been. I really don't want to live like I am waiting for the axe to drop. Planning ahead helps me to focus on living life and stops it from completely being swallowed by the BC beast. Goals I have include making time for the next grandchild in February, going to Vietnam for a holiday in March and slogging along on my Phd which I plan to finish on time in 2013.

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    I'm still coming in on page 114 like yesterday.  What gives?  This is the only thread that is doing this that I'm on.  The others work fine.  Maybe moving us brought with it bad "karma"???????  Anyone else still having problems with this? Kitty 

  • AnneW
    AnneW Member Posts: 4,050
    edited August 2011

    Groundhog's Day! I keep coming back to page 111 or so...

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited August 2011

    It seems to happen with threads that are moved.  They get stuck .  It happened on the Bones, bones, bones thread that was moved to start the new bones forum.

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2011

    Perhaps we need to start a new Atheist forum.  We could cut and paste the original post by thedudess along with the words 're-start' and a link to this thread for those who want to keep our wonderful history.

  • ananda8
    ananda8 Member Posts: 2,755
    edited August 2011
  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2011

    Kitty -- I'm so happy to hear you're a good candidate for brachytherapy.  My cousin's wife had it done (in Wisconsin) about 5 years ago.  So much easier, and quicker.  She's doing well, by the way!

    I'm another one who opened to page 111.  No problem, I think; easy enough to skip to the last page. 

  • Wabbit
    Wabbit Member Posts: 1,592
    edited August 2011

    I sent a PM to the mods to let them know we are still stuck in our 'time warp' with the page problem.  Hopefully they will get their techs to fix it for us. 

    KittyGirl ... happy to hear you get to have the internal rads!  Done with much quicker that way.

    The emotional part of all this is tricky but time is your friend.  It took me about a year to silence that tape that seemed to be playing non stop in the back of my mind no matter what else I was doing.  It still jumps out at me every once in a while but it pretty much stays in a quiet corner in the far back now. 

    Welcome to Robyn!

    (((hugs))) to Libby

        

       

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2011

    Thanks for the heads-up, WhiteRabbit, and apologies for the glitch! We'll get the tech team to look at nudging the moved threads so they open to all of your REAL last-visited pages. We'll post a message when we get news that it's been fixed.

    Judith and the Mods

  • Wabbit
    Wabbit Member Posts: 1,592
    edited August 2011

    Thanks Judith!!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    thanks Judith - so strange it wold happen on this thread - noticed it on a few others, but don't go to them often.

  • flannelette
    flannelette Member Posts: 984
    edited August 2011

    Good morning and please excuse this off-topic request that hopefully will soon be done with. I'm 63 years old, lots of arthritis AND on arimidex, some people here are also on it and have mentioned things they take/do to get rid of awful muscle/joint pain - at least, mine's awful. I crawl up the stair at night. Started to plow through the big long se of arimidex thread but want to cut to the chase - what can I try? I remember reading gluten-free, vit D., exercise, omega 3, acupuncture. but there are more - notself mentioned some - bromelaine? I know there are others

    Many thanks and sorry for the intrusion. Have a good day, all. It's humid & yukky here in Ontario.

    I want to move to a desert! bet THAT would help fix the arthritis. 

    Arlene

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2012

    Flannel,

    Yup, sounds like you're a member of the A Team.  There's a LONG thread AI SE's started by Lowrider, and a hopefully shorter one I started AI SE Specifics.

    You've named the MAIN ones - if there are others, I'd loe to hear them.  Check out those threads, but I really think you have mentioned the main ones.  I also see a massage therapist once a month.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2011

    Geez .. my page is still coming up at 111. 

    Flannel .. I want to move to a desert too.  I miss the wide open spaces.  I wish I could help you with the Arimidex, but I quit taking it four years ago.  I hope you're feeling better and not in a lot of pain.

    Hope everyone is having a great day!

    Bren

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Hi Everyone,

    Yesterday my DH talked with his HR benefits guy about payment for the Oncotype testing. They were told by the insurance rep they never heard of that test!  Good grief what an incompetent customer service rep!  So when I saw the ONC today he said he will send the codes so they can recheck it.  Since its BCBS I just can't believe the story.  Sometimes I feel that these insurance people are dumber than a box of rocks!  The doc said they have never been denied the test before so he's confident it will go through. The clinic also has patient advocates so if this is still a problem they will get to action.  So I wait....wait....wait!  The RO is on vacation this week too so that means more waiting.  At least my surgeon is on the ball and has scheduled my balloon catheter to be placed on Aug 19 so I'm ready for the Brachytherapy when she returns.  I am ready to get this show on the road to recovery and feel very frustrated with this snail's pace of everything.  Plays havoc with the mind and emotions.  Kitty

  • River_Rat
    River_Rat Member Posts: 1,724
    edited August 2011

    Kitty, I hope that you're able to get the insurance business ironed out quickly and get things going.

    Hey, everyone - I clicked and popped in at the correct page!  Thanks Mods and computer techs! 

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Okay....the insurance company got back to me today and said yes to the Oncotype testing.  Whew!  Results will take 2 weeks....oh no more waiting.

    Aug 19 the surgeon will place the balloon catheter and Aug 22-26 will be the Brachytherapy.  Five days 2x's a day for the rad pellets.  This should be interesting but hopefully not painful. Undecided  I'll let you know how this goes.  Have a great day everyone!  Kitty

  • River_Rat
    River_Rat Member Posts: 1,724
    edited August 2011

    Kitty, I'm glad that you got a fast and favorable reply from the insurance company. Smile

    I don't know anything about brachytherapy but there are some threads about it over in the Radiation forum. 

    Sending my best wishes to all my friends here! 

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited August 2011

    Kitty .. great news from the insurance company.  More waiting is rough!  A friend of mine had that kind of radiation twice a day for five days.  I don't remember that she had any problems with it.  I think she had what is called mammosite radiation.  I wonder if it's the same thing.

    Hope everyone is having a good day!

    Bren

  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011
    Hi Bren,  Yes it is the same as your friend.  Mammosite is the catheter that they will insert on Aug 19 and then the rads are to be done that next week.  I only things I read that are difficult is the removal of the catheter when they are done (OUCH!) and chance of infection at the port site.  Since it's only one week, I'll be taking antibiotics and being very careful to avoid any contamination.  That means sponge baths only and LOTS of hand washing.  I'm not scared and am really glad it will only be a week.  I'm just anxious for my oncotype score.Frown  I really hate this long waiting..................Kitty
  • KittyGirl2011
    KittyGirl2011 Member Posts: 537
    edited August 2011

    Hey, were did everyone go?  Miss you Cry!

    Last month I was really in a very dark place with this BC diagnosis and then on top of that I lost my job to downsizing.  I applied around and got two interviews thankfully.  I finally heard today that I DID get the job I wanted!  YEAH!  Finally something good happens!  So now all I need is that darn Oncotype score to come in low and I'm ready to celebrate!  Drinks anyone?  Kitty

  • River_Rat
    River_Rat Member Posts: 1,724
    edited August 2011

    Hi Kitty, Congratulations!  I will join you in a drink to your new job. 

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