April 2011 chemo

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  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    I generally use coconut oil for a moisturizer. But for this I got some stuff called Xclair that the nurse suggested. She gave me an RX for it but It was $67 and my insurance would not cover it, but I think It is worth it.

  • geocachelinda
    geocachelinda Member Posts: 223
    edited August 2011

    Hi Ladies, I am sorry to read about so many of you having abdominal pain.  I know that I have a lot of constipation and gas after my Taxol but I think the constipation is from the pain meds.  I had the terrible lower body and some upper pain last round.  I have been feeling pretty good the last couple of days and have been more active.  Even got to the grocery store!  Kids were at camp all week which helped but today we have to drive down and pick them up.  I'm sure as soon as they get in the car the whining about "I'm hungry" will start.  We have a 14 year old who is insatiable.  Anyhow, hope everyone has a good weekend. 

    Merilee keep us up to date on your rads!  Glad they are going ok so far!

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    Geo- bring his favorite snack when you go to get him LOL

    #10 went uneventful today. Only15 more then 5 boosts, seems like a breeze so far compared to chemo.

  • scc218
    scc218 Member Posts: 163
    edited August 2011

    So happy for you breezing through the rads, Merilee!!  Keep it up!

    Onco recommended skipping chemo this week due to the severe abdominal pain.  Will try one more round of Taxotere next week and see what happens.  If same reaction, might have to switch protocols. But first I'm going to ask if there is something more effective than Bentyl to deal with the pain.  Meanwhile, 9 days out from Taxotere #4, I'm feeling pretty good, but not terrific as I would have expected with the little break.  Mainly just feeling really, really tired all the time and not quite "there," if you know what I mean.  Like, I want to feel great, but I'm just feeling so-so.  I'm not really complaining (sure sounds like I am!) because I know "great" is just around the corner somewhere.

    I hope everyone has a really good weekend.  Thinking of you all! 

  • determined3
    determined3 Member Posts: 128
    edited August 2011

    hey all. is there anyone here who completed taxol w/out experiencing any nail or neuropathy issues?

    thanks......
  • BernieEllen
    BernieEllen Member Posts: 2,445
    edited August 2011

    Hi everyone had A/C no 5 on thursday only one more to go.  Feeling very manic and sick this time.  Hope to be able to go on our bikeclubs charity run next weekend.

    Warm thoughts to you all.

  • sarahlou1967
    sarahlou1967 Member Posts: 153
    edited August 2011

    scc218 - I'm with you on the taxotere se issues, I finished my final 6th round last tuesday about 11 days ago and still feel like I'm wearing lead boots, my stomach area is extended and I suspect full of water, so I sort of waddle around looking like I've shit myself!!!! get very very tired and go to sleep at the drop of a hat. I'm hoping all this will go away now the chemo is finished.

     Determined3.. - Yes I would be also interested if anyone else has had nail and neuropathy issues, my hands and feet are numb most of the time so walking with lead boots on and on stumps is no fun, hands are not as bad as feet although my feet were always cold with bad circulation. It is mainly the fatigue and the feet with me. 

    Does anyone have any advice or take supplements for the neuropathy?? I've just started taking co enzyme 100mg a day as I understand this can help. Is there any other supplements for helping with the neuropathy issues????

    Going for an hours free crystal healing today and really looking forward to it, I love crystals and carry smoky quartz around with me all the time as it is good to get rid of electro smog and radiation treatments. Sorry I digress.

    Healing vibes to you all 

    xx 

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    Sarah

    The crystal healing sounds cool. Please tell us about it when you turn. I have several crystals as well.

    Amethyst is my fav.

  • artiecat
    artiecat Member Posts: 257
    edited August 2011

    I finished my #6 taxotere last week.  Nails:  the nail bed is dented - my daughter says I am like a tree - there's a circle for each  chemo.  As for the neuropathy, the tips of my fingers are tingly/slightly numb and toes are the same. 

    Last night I dropped a nearly full bottle of Floramix  - it just slipped out of my fingers!  I hadn't realized until then how much the fingers were affected.  The Floramix is for iron.  My red blood count was so low this week they were on the verge of sending me for a blood transfusion!

     

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    Yippy Artie! done with #6, it gets easier now

  • determined3
    determined3 Member Posts: 128
    edited August 2011

    sarahsweety...what chemo are you taking? are you done already? just wondering and also worried (for myself) about the pending numbness. wondering if i should return to work in the fall, as i teach. i can't imagine not being able to use my hands.

    anyways, my onc told me to take acetly-l-carnitine to prevent the numbness.

  • profbee
    profbee Member Posts: 858
    edited August 2011

    Hi, gang!

    Just wanted to send love to you all.  I've been running around with a million things to do before my August 23rd surgery.  Then, I'll have rads possibly and definitely another round of chemo (AC).  So, I'm not close to done, but SO glad to have a few weeks off before the surgery.  I almost feel normal--then, I catch my bald self in a mirror. LOL.

    Sorry so many of us can't do the fun things we wanted to--but hell, next year we'll all be healthy and able to make some really cool plans!   

  • YaYa5
    YaYa5 Member Posts: 667
    edited August 2011

    could someone please answer this for me? ... i know i've seen the answer on here, but i can't find it. is chemo cumulative?  i'm doing TCH.  is it out of my body by now?  will the next chemo tx's be similar to the first?  i need to know what to expect!

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    The chemicals leave your body in a few days. You can google each one for "Half life" and there will be info about how long it stays in you. What is cumulative is the damage it does and the side effects of that. Not to scare you, just explaining. And remember, the body has a remarkable ability to recover itself, but over time. Good luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

    Hi, gals - just checking in to say "hi." Things seem to have gotten a little quieter on here. Carla: I hope you at least got some of our info so we can stay in touch.

  • jackifp
    jackifp Member Posts: 185
    edited August 2011

    Determined 3 - we all have such different responses to chemo, it's not possible to anticipate what we'll get, just be prepared for if it hits. I teach, also, and worked through last semester, with Fridays off for chemo. I was lucky, and se's were manageable. Of course, summer off helped, but then again, I love my job, and so it's distracting, time forced off thinking and worrying about cancer. Mild neuropathy at tips of fingers and toes now isn't disabling for me, just odd, things don't quite feel right. As school starts up in 2 weeks, I'm looking forward to work and the distraction.

    I also took the carnitine throughout, so maybe that's helped keep the neuropathy at minimum.



    Yaya - as many on here will tell you, chemo is usually cumulative, but different chemos do different things on different people, and it's so hard to plan for. I had TCH, and the TC days were hardest, altho the first 3 were only a bit of heartburn. The 4th was harder, with nausea on the 3rd day, heartburn for a week, sore mouth, fatigue. The 5th and 6th were the hardest, with heartburn throughout, nausea and vomiting (but only once each time, easily managed with meds onc gave me) and fatigue. I counted my blessings, tho, as many women here had it far rougher. I'm a week out from the last TC and today woke up great! The Herceptin has been a cakewalk compared, with some flushing on my neck and face, and twice a weight across my chest that was scary but breathable and went away in a few hours. If you get Neulasta shots for your white blood cells (I did from rugby after the first TCH, which dropped me to 3), Many on here will recommend claritin to offset se's of joint pain. Altho my onc shrugged and said "no data" to support it, I did it, and had no Neulasta problems other than a fever the first time.

    Hope this isn't too overwhelming. Just keep in mind that we're all here to support you with info and, more importantly, virtual hugs.

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited August 2011

    hi all! i'm having some ankle swelling and like sheen splints pain.my eyes also feel swollen???what is this??i gained 5 pounds from tuesday to thursday then friday i had lost 2 of it!! what gives with all this swelling, water weight!!i had a little before but this last round it is bad!!will it go away in time? or do i need to take water pills??

  • CarlaB76
    CarlaB76 Member Posts: 74
    edited August 2011

    I've gotten 8 emails with contact info so far.  I just took a second to reply to the last three that I got.  So everyone who sent info should have gotten a note back from me.  I've not complile yet, so there's still time!

    The few strands of positivity I have left are coming your way, ladies!

  • artiecat
    artiecat Member Posts: 257
    edited August 2011

    Thanks, Carla - you are awesome!!!!  Sending all positive thoughts!

  • jackifp
    jackifp Member Posts: 185
    edited August 2011

    Carla, here's some positivity back at ya, in case you're short some! My first day of no heartburn or nausea since last week's last chemo. I've positivity to spare, I feel so good! And more to the rest of us.

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    I realized yesterday that I have not had to take any thing for pain for some time now.

    I am sore from Yoga class but that's different LOL

  • jackifp
    jackifp Member Posts: 185
    edited August 2011

    Merilee, what a great feeling that must be!



    Today was my first nausea free day since the last chemo, hurray!

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    Hooray to goodbye illness and side effects

  • scc218
    scc218 Member Posts: 163
    edited August 2011

    Carla -- I sent you my contact info on 8/2 but haven't gotten anything back from you.  I'm thinking perhaps you didn't get it?  Let me know and I'll resend it.  Thanks, Suzy

  • CarlaB76
    CarlaB76 Member Posts: 74
    edited August 2011

    Suzy, I combed through my spam and trash mail and I don't see a note from you.  Will you please try again?  My email: carlaarmorgan AT yahoo DOT com.  BCO Contact Info in the subject line.

  • seeay
    seeay Member Posts: 56
    edited August 2011

    I'm done! I'm done! I'm D-O-N-E...say it with me...DONE!!!!!!

    Finished round 6 of taxotere, cytaxan and herceptin - now just herceptin every three weeks until April. 

    Still tring to muddle through Round 6's SE, but know I just need to get through this week. I took off the next 2 weeks from work just to relax and recover. I was recommended to go on a "cleanse" to get as much as possible out of my body. Anyone else plan on cleansing?

  • profbee
    profbee Member Posts: 858
    edited August 2011

    Congrats!!!!  Yay!  Celebrate!!

  • KiwiMum
    KiwiMum Member Posts: 704
    edited August 2011

    Yay! Congrats Seejay. I love your profile pic by the way.

  • Merilee
    Merilee Member Posts: 3,047
    edited August 2011

    DONE! yippy Seejay

  • pawprintgirl24
    pawprintgirl24 Member Posts: 173
    edited August 2011

    YAY!! its great to hear!!!YAY!!

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