DIEP 2011
Comments
-
Great to hear Susan!
-
Congrats Susan glad you are doing well
-
Congrats, Susan! Glad you came through so well!
-
Yay Susan!!!!
-
Susan, you did it!
-
Susan, So great that you are over this huge hurdle! I will be great to have you share your experience once you are up to it . . . .for now, REST REST REST and let everyone pamper you!! Wow - they have you getting out of bed already! That is amazing!
RE: movement restrictions . . . .there is a lot you can do by bending your head over to meet your hands instead of reaching your hands up to your head and so forth.
We set up our house so that I would really have to stop and think before I reached . . . We had small tables stationed in my main hang outs (couch, recliner, bathroom) that held what I needed well within reach without overextension. I had a shower chair with a hand held sprayer to use and had everything where I could reach it.
We can do ANYTHING for a limited amount of time, so you will be able to handle things . . . my neighbor loaned me one of those grabber things, although I never really used it. Once my husband went back to work, we moved things down onto the kitchen counters so I wouldn't have to reach or climb.
Although we really aren't super fragile, nothing is worth risking a mishap. It is good to move your shoulders so you don't get frozen shoulder, but you can do that with a gentle movement that keeps your arm within your guidelines. The hospital will provide therapy to teach you how to do everything you need to know to stay within your guidelines. . . practice getting dressed, using the toilet, going up and down stairs, grooming, etc.
Those first weeks go by fairly quickly and before you know it, you be able to do everything without worrying!
-
Go Susan Go!
-
Kathy... I find it really hard to reach for a bath towel that is on a high shelf with other towels on top, making it heavy... that is for sure beyond my abilities...reaching a plate or glass on the lower shelf is fine, but higher shelves, no way.
-
From the "what I wish I knew" list:
Just returned from the CT scan of the abdomen to map the blood vessels for the pre-DIEP assessment. Of course (but had not occurred to me), it required use of IV contrast. "This could give you an asthma attack, or kidney failure or even death. Which arm would you like?" "The left one; I had the nodes out on the right."
So now my husband is out of the country for the next 4 days and my daughter is off at camp, and even if the cat DID have opposable thumbs, I am deaf and don't have a phone in the house.
So since I do have a disposition to allergies, I'm lining up people to text me if they don't see me tweeting and posting on Google+ and check on me if I don't text back!
I was so anxious for this procedure, I think I will be beside myself for the actual surgery date.
Keep those happy outcome posts coming, ladies. (But also keep those wish-I-knew posts coming too.)
-
Betsy - funny all the things we took for granted that we have to think about after surgery - super good to have someone close by to call for help and really important not to push ourselves! My PS lost a flap when one of his patients reached to get a kleenex box out of the back seat of her car . . . her flap swelled up right away but she didn't call in for several days and by that point it was too late to save it. I can see how easy it would be to forget and just be in automatic mode! I imagine that is very unlikely but still . . . . .
I had my son draw on my hand as a reminder . . . it made me smile whenever I looked at it.
Goldlining: I felt like I had peed my pants . . . such an odd feeling! I was surprised how quick it was. I took someone with me but didn't really need them. I emphathize with the worry though . . .I am usually pretty freaked when I get those injections that I might have a reaction.
I would have to say that standing stark naked while being drawn on and having another doctor come right in was pretty bad for me . . . . when I have my stage 2 (in about a week and a half), I'm going to have my DH step outside and I may bring in something to drape around my hips or maybe a hat???
Gotta get all waxed up in plenty of time before stage 2. My hair is quite a bit higher after the diep than it was before . . . guess when the skin got stretched together, things shifted a bit!
I'll be SO glad when I can quit thinking about boobs!!!
-
Kathy... that is my fear that I will do something and lose the flap... I am sure there is a time frame, and at some point it should be ok to reach, but when is that... I am sure its not a 2 weeks, but would love to know when.... last night I got my towel and washcloth out and ready for todays shower so I wouldn't be all alone and needing a towel...
I feel funny asking my son to grab a garbage bag off a shelf I am almost looking eye level woth, but it is what it is.
-
YAY SUSAN!!! Im so happy you finally made it to the other side!
-
way to go susan!!! now take it easy on yourself & rest. lots.
-
Great to hear that you on the other side. Rest,well and heal quickly.
-
Thank you, Kathy! In going through this process, I seem to get "stuck" on peculiar little things like combing my hair or brushing my teeth or the drains. I found a good "mantra" to get past the restrictions ... "this is just temporary."
Sad about your friend who lost a flap! I will keep that in mind when my "superwoman" complex tries to kick in. All of my friends have been warning me what a terrible patient I am, so I guess I will have to be extra-on-guard. How is she doing now?
That brings up another question I forgot to ask -- when did everyone start to drive? How was getting in and out of the car?
Thanks, all, for your help. A little over two weeks and I'll be there too.
L -
I just got the mosr wonderfu news. no cancer in my left side. We made the right decision by going ahead and doing the mx as there was fibrocystic change,ductal hyperplasia and microcalcifications which are all precancerous conditions.
I feel pretty good this afternoon but they have only let me get up to go to the bathroom.
Susan
-
oh, susan. so glad at the wonderful news. take care of yourself--
-
Susan: That is sooooo wonderful!
-
Happylibby- I was driving the day after I was released from the hospital, so about 6 days post surgery- as long as you are not on any narcotics you should be okay to drive (I was only unilateral though might be different for Bilateral)
-
YAY Susan...you DID it...so happy for you :
-
I didn't know the woman who reached and tore her stitches . . . my PS told me about her.
In the moment, things can feel overwhelming but they pass so quickly and our memories really don't hang onto the specific experience of the really tough things. I HATED the heparin shots, but I mentally crossed each on off as one less till I was done . . my joke with the nurses was, "Oh yay! My heparin shot! I've been looking forward to it!"
Part of this whole bc journey feels like it has helped me learn to less indispensable to my family and more in tune with my own needs . . . we'll see how that goes from here on out. I'm working on it!
I had to have a friend come over and boss me around a bit in order to quit overdoing and I banned all visitors but a few . . . I'm too big of a show off, so rather than take it easy and sleep, I felt like I have to entertain. You might have to have a serious talk with yourself about putting your healing first no matter what.
-
Everyone have a Good Weekend...
-
Kathy... I have driven a little... To places that are very close... Otherise have had my son or friend's drive me... It is hard to drive... I put a pillow on my chest as a precaution and also can't really turn to look behind me, so probably best i avoid it...
My husband is driving me crazy... I had a trash bag hanging on the bathroom door for all my medical waste and he doesn't like the way it looks so got rid of it... Our trash can is super small... So tonight i just left it all on the counter... He does not get it. Ugh ugh. -
Hi Ladies, Don't look here much anymore but popping by to say I wish you all the best! My Doc does not reccomment the nip sparing...especially the ductal. I have lived now for a year without nips and finally decided to get the 3D Nipples tatooed by Vinnie Meyers....Looking forward to a couple ladies from BC.org joining me too!
-
Hey ther MRDRN,
PM me! I'm in MD and am planning on using Vinnie Myers too on the the recommendation of JH-Michelle Manahan! I've seen his Web-site and it is truly amazing! I still have the nipple recon ( had a very complex revison beginning of June) end of August, and then tattoo city! Want to get a "reward" tattoo at the same time but haven't figured out what or where yet..............
Take care,
Sharon
-
Thanks for the further info about driving. DH is taking 3 weeks off work to help me, and since he tends to be overprotective anyway, I am hoping that between us we can keep my Supewoman complex under control. It is a control thing, I know -- I can't control that this happened to me, but I can controk my surroundings to a certain exteng. I think my life lesson is to learn how to let go even more. I am so relaxed I am practically comatose compared to the way I used to be, and still I am intense. Gotta work on going with the flow instead of trying to control it.
Susan, congrats on your good pathology results. The waiting is torture, and I am so happy for you that it was a good outcome!
LadyM, thanks for your comment about driving, too. They expect me to be in the hospital for 3 days (1 in ICU and 2 in a regular room). The PT I met with said emphatically and repeatedly NO WEIGHT ON YOUR ARMS FOR 2 WEEKS... So literal-minded me thinks "oh... Pulling the car door closed is weight".... I guess I will just have to figure that one out on the fly!
Thanks again, all ...I will probably have more questions as 8/23 gets closer. Afterward, I will post a complete story like many here did so that our sisters who come after will know.
l -
I've been offline for a few days, but wanted to check in on Susan!
-
Thanks for checking on me. I don't feel my recovery is speeding along as quickly as it has for some of you. I haven't been able to eat much and taking pain meds on an empty stomach has produced some pretty nasty results. I still feel like I was beaten with a baseball bat.
My doctor and all of the nurses have said that my flaps look beautiful. I hope I feel better tomorrow!
Susan
-
Susan... My appetite has been very low since surgery... I look at it as a blessing... But now at two weeks it has picked up a bit... Thinking of you
-
Hey Ladies, Glad to hear you are through surgery and on the road to recovery. When my pain meds gave me nausea, the best thing I found was Benedryl. You can just buy it over the counter....it's worth a try.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team