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  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2011

    My name is Elisabeth with an S not a Z...It is always an "issue"

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2011

        My visit today with the PA went well.  I am starting Xeloda tomorrow and next week herceptin.  That blood test Dr.Cody did on me which he said was a long shot showed that I am now receptive to herceptin after being negative all those years.  So this opens up a few more treatment options for me and I can put off the Ixempra.  I know herceptin has SEs also, but one of my chemo buddies at the office has been on it for 8 years and she said it saved her life and she hasnt had any problems with it at all.   So once again, hope springs eternal!! 

  • chrissyb
    chrissyb Member Posts: 16,818
    edited August 2011

    3jays what was the verdict from the new guy?   Anything good?  I've got my fngers crossed!!!

    Phyllis, you certainly did over do it!!  You really have to do nothing for the time recommended so you heal properly even when you feel 'fine'.  I know it can be boring but hey, it's not forever!  Take care of yourself and be a couch potato!

    Leah what a run around! I sure hope the PS really goes to bat for you and you finally the the yes nod at the end of all those appointments!

    Wow Marybe!   Who would have thought?   Hope the Herceptin does good things for you!  Missourri is getting closer and I can't wait to see everyone!!!

    Loven hugs.  Chrissy

  • Leah_S
    Leah_S Member Posts: 8,458
    edited August 2011

    Marybe, her2+ isn't always good news but in your case it certainly is! I'm glad more treatment options have opened up for you.

    It always amuses me to see how many ways the same name can be spelled. When I was in high school my sister and I belonged to a synagogue youth group. My sister is Randy and 2 of the other girls were Randi and Randye.

    Leah

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2011

    Oh, Marybe, that is great news for you! Here's hoping herceptin is the bullet for you!

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Marybe that is GREAT news!!! That has given you such a good shot at a less SE-ive drug!!!!

  • Dilly
    Dilly Member Posts: 655
    edited August 2011

    Yay Marybe! Herceptin!  Big best wishes!

    Kathryn with a y

  • walley
    walley Member Posts: 231
    edited August 2011

    Great news Marybe!!!!!!!

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    Marybe, so happy for you.  Hope this is a real turn-around. 

    I'm going today to get a perm--okay that's so 80's but my hair is long and when it's perned it doesn't look so thin.  I just wear a bun anyway so it's pretty low maintenance.

    Amyjo, it's true; people can think of a million ways to misspell a name.  You'd think Amy would be an easy one though.  My last name is Swedish (even though neither of us is a Swede--we're both Irish but there's a stepfather in there).  It's "Malm" just like the furniture at Ikea.  I've seen more spellings of that than you can count.  I guess it's really common in Sweden but Americans usually come up with Malin.

    I got in trouble with my PCP for taking too many NSAIDS so now the case manager is "reviewing my records."  What can it mean?  The insurance co. gave me a case manager as I was racking up too many bills.  I think she's there to make sure I don't get any services I don't need.  She doesn't have to worry about that--I'd do anything to avoid the doctor.  I also have to go in for a hip x-ray as hip pain is waking me up at night.  I think I have arthritis or something. 

    Oh well, enough kvetching.  This is the only place I can recite my medical woes.  I really have nothing to complain about but it's all a *^%@# anyway.  Phyllis, I hope you're on the couch today--watch some videos.  I got hooked on that show "Hoarders."  It's so bad it's good.

    Dragon 

  • marthah
    marthah Member Posts: 322
    edited August 2011

    Good afternoon, ladies!

    I'm climbing out of the hole from #4/6. Typically around day 4 or 5, I hit the wall and have to just go to bed for about 24-36 hrs. Blech. I took my steriods for an extra day on Monday so I could babysit 3 of my grandsons overnight. I made it through, and so did they (a six year old and 2 year old twins)! But boy was I pooped when I got home Tuesday night. 

    Fortunately I have a boat-load of sick time at work, so yesterday and today have been all about recovery. Will probably work 1/2 tomorrow. 

    Iowa seems to have finally broken its heatwave, too. Yay! A little rain would be nice. Love the garden photos...keep 'em coming!

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2011

    {{MARTHA}} Hugs, pal, you are almost there!

    OK, pals, I think I killed it today in the demo. They seemed to like it but we will know next week if we make the final cut. Whew, what an ordeal. Heading to bed, as 4AM comes early (well, it is really 7AM to me).

  • Elisimo
    Elisimo Member Posts: 1,601
    edited August 2011

    L_C - my youngest daughter is named Kathryn too. 

    Marybe - so glad more treatment options have opened up for you with the herceptin. What lives we live to be glad someone is HER2+!! Can hardly wait until Sept. to see you again. Take care dear friend.

    Martha - take care of yourself and get the rest you need. How ever do you manage a 6 yr old and 2 yr old twins!  I know that is way more than I could handle even on steroids! 

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited August 2011

    so, to answer your question, chrissy..yesterday off to the "miracle " endo .. he agreed with others. they all think i have Hashimotos' disease, probably goes to taking neulasta when i have MS.. no choice there, tho. they think my thyroid will flucuate, and that i'll be on some sort of synthyroid from now on. i will put in a call to the docs i like, but won't see until oct. I'm hoping that they'll add 25mcgs to this one. i felt better on the higher dose, but , its cumulitive, so i might just have to wait a while, and see.  so, add yet ANOTHER "comorbidity " to my file!!!jeesh..they'll do a biopsy in oct., but since noones heard of bc met. to the thyroid, its' all good...

       i just have to be patient, and thats my worst trait!!so, we'll see..........3jays

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2011

    Oh 3jays, I so hope the synthoid evens you out again. Hugs, pal. Up and getting ready to head to the airport. See you all later.

  • Elisimo
    Elisimo Member Posts: 1,601
    edited August 2011

    3jays -glad you have some answers and I hope the synthoid gets you back on an even keel again. I so want to see you at Mecca!

    Barb - hope you are home or almost home by now and getting some rest after a long flight.  We head out tomorrow evening (5:40 pm) to San Jose where SIL and DD will pick us up.  We will get there at 9:55 pm their time so it will be 12:55 am out time.  Tomorrow will be a loooooong day, but I am so anxious to see all of them.  Hopefully the baby will come soon.  DD said if she has not had the baby by Mon. they will induce her.  I'll try to post pictures at least to fb while I am gone. 

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2011

    AJ...keep us posted!!

    Here is another of my favorite spots..

  • SoCalLisa
    SoCalLisa Member Posts: 13,961
    edited August 2011

    You are back just in time Barbara, for the weekend and the green flash

  • chabba
    chabba Member Posts: 5,065
    edited August 2011

    That would be one of my favorite spots too!

  • mostlymom
    mostlymom Member Posts: 466
    edited August 2011

    SoCalLisa - what a fantastic picture!!!!  Is it one of your shots?  Where is it?

    Martha

  • 3jaysmom
    3jaysmom Member Posts: 4,266
    edited August 2011

    Lisa!!what a gorgeous pic..i love waterfalls...welcome home, Barbara: and AJ..safe trip; can't wait for the new Grand!!praying for you all......3jays

  • bengirl
    bengirl Member Posts: 8
    edited August 2011

    Love, love, love, this picture! I'm awaiting my results for yet another biopsy. I was diagnosed in 2008 with dcis and have had a lumpectomy and radiation. Since that time I have had several biopsies on the same breast. I was looking to put this behind me but can't seem to escape it. I have a family history of cancer - breast, and other "women's" cancers. My family was not open to discussing or even telling anyone what the cancers were. I only know that my mom had breast cancer (2x) because I was living with her. So I'm going thru this journey afraid. I do have a wonderful husband and friends but I find it so hard to just enjoy life without worry. I'm open to finding new things to have an interest in. Thank you for starting this thread.

  • Dilly
    Dilly Member Posts: 655
    edited August 2011

    Welcome bengirl - and of course sorry to meet you in these circumstances.  There are wonderful women on many threads who can help you find answers, and you won't be so alone. 

    AJ, wishing you a safe and wonderful trip. Anxiously awaiting your grand news, and pix if you can..

    Lisa, that's another great shot.

    BarbA, I hope you got some good sleep.

    Marybe, that you enjoyed your McCartney concert, and are getting along well

    Is it QCA on vacation? H&S are you melting in your temps? Isabella how are you getting on - that was some major surgery on your face, it sounded most traumatic.  To all, whether in or out of tx, dancing or toddling along, I send best wishes for a good day.  

    In a bit, I'm off to spend the day at our local summer fest, and if I'm lucky, will have Smokey Bear and a bunch of hunky firemen for companions.  At the least, the gal who mans the booth with me is a hoot with a wry and quick wit, so we enjoy our annual get-together.  Must get busy.

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    Lisa, is that a picture of Multnomah Falls in Portland?  Looks like it could be that or Yosemite.  Marybe, so glad you got to see Paul.  He is such a wonderful performer.  Lost Creek, did you say hunky firemen?  I love a man in uniform, unless it's scrubs!  Bengal, welcome.  I truly hope your biopsy is negative.  This is a disease that never seems to go away.  After you're diagnosed you always think anything at all is going to bring bad news. 

    I'm seeing the Dr. on the 18th and have to tell her about my hip pain at night.  I know it's sciatica and old-lady-hip-stuff but am dreading bringing it up anyway.  Today--I'm going to sew.  I quilt therefore I am!

    Dragon (Lynda) 

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    Okay, this is Ozzy my dog!  He just got groomed so he smells good too.

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    Here's my black dhalia (which is actually red.)

  • chabba
    chabba Member Posts: 5,065
    edited August 2011

    Dragon - Your little guy aooks sooooo much like my Poo.  He's been gone 11 years now but I still miss him.  We got him as an adult.  His registered name was Poo Ping Toy.

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    Chabba, was he a lhasa apso?  They look very much like shizues, almost the same.

  • chabba
    chabba Member Posts: 5,065
    edited August 2011

    He was a shizu but at the top of the size range, about 18 lbs.  The most laid back dog I've ever known.  When we got him at six he had never been around kids.  Shortly after we got him some young friends came to visit with their two year old.  He was sound asleep in the middle of the living room.  When I opened the door she yelled "goggy", ran over and threw herself on top of him with her arms around his neck.  Nearly gave me a heart attack.  He just turned his head up and gave her a kiss! 

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited August 2011

    Aww, chabba, we really miss them when they go to the rainbow bridge but they will be there waiting for us.

    Welcome bengirl, having to be here sucks but *here* is a pretty cool bunch of people.

    Marybe, how lucky to see Sir Paul. He still looks hot.

    Here is a pic from lunch today with some BCO pals. From left to right: specialK, me, sunnycoconut, leeh and kira. What fun. Then we went to the Dali Museum. Fun.

  • dragonflymary
    dragonflymary Member Posts: 356
    edited August 2011

    BarbA--you guys look so good!  Chabba, so sorry about your loss.  It is always sad, even years down the road.  I lost my Yorkie in 2009 and it was pretty awful to have to put her down.  When I got Ozzy I hoped I'd picked a breed that would outlive me, but you never know. 

    So frustrating--I sewed for a few hours, now my back is hurting.  I'm just going to keep on regardless.

    Dragon

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