SAVI breast brachytherapy - 5 day

ktab96
ktab96 Member Posts: 126

Has anyone had the SAVI breast brachytherapy approach to radiation.  Both the Oncologist and Radiologist Oncologist think I may be a candidate for this 5 day approach to radiation.  The final pathology report will determine this.  Has anyone here been through it?  I saw a youtube video that talks about the implant into the breast and how radiation is administered, but I would like hear from people who had this treatment and share their experience.  It sounds like this is the way to go instead of having the standard radiation treatment. 

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Comments

  • cycle-path
    cycle-path Member Posts: 1,502
    edited June 2011

    I almost had it but ended up with IORT instead. If you're a candidate for one you *should* be a candidate for the other.

    The reason I almost had it was that the IORT machine used by my doctor was not certified until the day after my lumpectomy. Therefore, I had the temporary balloon placed in my breast and was going to have SAVI but the doctor called and said the machine had been certified, so she removed the balloon and I had IORT instead.

    One of the biggest advantages to internal radiation, either IORT or SAVI/Mammosite/whatever is that you won't get burning on your skin. If you check out some of the threads here you'll find this was very bad for some women. Another big advantage is the reduced treatment time.

    I found the balloon very uncomfortable while it was in my breast, and I was unable to sleep much while it was in. However, I still would have chosen it over whole breast radiation. WBI scares me. 

    I urge you to check out IORT -- look at http://www.breastcanceriort.org/ and other sites -- and see what you think. IORT is not available in some states but if it's available near you, try to get it! You won't be sorry.

  • BeckySharp
    BeckySharp Member Posts: 935
    edited June 2011

    I had five days of mammosite in February.  It's the way to go if you qualify.  Let me know if you want more info.

  • klucyg
    klucyg Member Posts: 13
    edited June 2011

    I just finished this week partial breast radiation with the SAVI catheter.  Although the catheter was inconvenient and uncomfortable, I am glad I chose it.  If you would like more info, please feel free to contact me.

  • AprilValerie
    AprilValerie Member Posts: 1
    edited June 2011

    Hi Ktab96  May I suggest a wonderful resource for you as you walk this new walk trying to make the best decision.  Please go to SAVIsisters.com where there is a wealth of information.  Click on SAVI Sister Stories to hear from many others who have walked your walk.  If you count down seven in the first column you can read my own story and I am here for you to answer any questions you might have.  Just know you are not alone.  God bless.

  • IAN123
    IAN123 Member Posts: 1
    edited June 2011

    Like April I too am a Savi Sister, having been diagnosed with stage 1 invasive and receiving therapy in January.  I have a very low threshold of pain, but I found the cathetar only uncomfortable, and by the third night was sleeping well with a pillow at my side.  At three months my surgeon said I wouldn't believe how different I would have looked if I had had the traditional method.  I also do not have the time, owning a business, and living alone at this stage of my life,    except for my puppy.  I have never had surgery before other than tonsils.  From what I have   learned, this is definitely the treatment for me if I ever have to do it again.  And if you do not know by now, the support community is incredible.

  • Marlene_Summer
    Marlene_Summer Member Posts: 2
    edited June 2011

    Hi - also a SAVI Sister!  I had a tumor in the lower portion of my breast.  I have small breasts and this device is very adaptable and quite amazing.  It is painless to remove and almost painless to insert.  Daily cleaning of device was necessary but very manageable with a little assistance.  Recovery period was very fast - amazed that I was back to work in no time at all.  If you ave any questions at all, feel free to contact me via reply.  I'm also on the SAVI Sister website. 

  • billsgmama
    billsgmama Member Posts: 2
    edited June 2011

    HI ktab96

      I completed the Savi treatment in May of 2010  at age 72.  I was a little concerned when making my choice between chemo and radiation, but my doctor was very informative, showing me an actual mockup of the savi insert itself) as in the  video. Since I was in excellent health, (well you know what I mean, we decided to go with the savi.  I found it very easy and uncomplicated.  It took me longer to drive to the doctors office then the treatment itself.  It was slightly uncomfortable, but I had a positive attitude and it went well.  The doctor had tapes playing in the treatment room, so I could pick my music and that really took my mind off of the treatment. I know this is a very difficult choice, but get the facts, have a positive attitude and I'm sure you will make the right decision.   YOU ARE NOT ALONE.

  • MBusha
    MBusha Member Posts: 1
    edited June 2011

    I had savi brachytherapy.  If you are a candidate for this method of radiation I would highly reccommend it.  I had no side effects, the treatments were painless and the cath was not uncomfortable.  I was able to do most daily activities with no discomfort or fatigue.  Best of luck to you

  • ktab96
    ktab96 Member Posts: 126
    edited June 2011

    Thank you for the reply.  I am still waiting for a surgery date but I would like to prepare myself as much as possible.  What type of bra did you wear during your surgery recovery and what type of bra did you wear while you were recieving the SAVI treatments?  I am large breasted and I am sure I will need to wear something so that the SAVI device stays in place.  Does it tuck into your bra?

  • rzimme1
    rzimme1 Member Posts: 1
    edited June 2011

    On October 14,2010 I was diagnosed with Stage 1 Breast Cancer. After my first lumpectomy the pathology report came back stating that my margins weren't clear and I required a second surgery and a few days after that surgery I had the SAVI inserted and completed the 5 days of radiation treatment. My main concern with radiation was the side effects which were eliminated with the SAVI. I had minimal discomfort through the whole process and just a little bit of skin irritation, and was able to perform most of my daily activities during the treatment. The incision were the SAVI was inserted healed well and I am now back living my life, scuba diving and working out with no problems. I am so happy that this type of treatment is offered now for women and if you meet the criteria I would recommend it. I hope all goes well for you.

  • ktab96
    ktab96 Member Posts: 126
    edited June 2011

    My surgery is scheduled for June 28th and I will have the SAVI device inserted two weeks after surgery if my final paths show that I am good to go.  I believe this is the path for me and my surgeon  also believes this is the best course of treatment for me.  I am still struggling with the after treatment but one fight at a time.  I go for a PEM test on Monday.  If that test turns out good, then its a go!

  • chrisanddon
    chrisanddon Member Posts: 2
    edited July 2011

    Hi, I had  my surgery in December 2010 and less than 10 days later had the mammosite inserted. My surgeon said it should be put in sooner not later because the hole seals up. I had the lumpectomy first and then I went to the surgeons office and the area was numbed up and it was inserted. I was in there about a hour. No pain during or after. The worse part is you can't  shower because it can't get wet. I went to the hospital two times a day and first they took a xray and then I got connected to the machine and everyone left the room and it took about five minutes after it was started. There was also no pain during the radiation therapy. I highly recommend it as it only takes five days and its over. My last treatment the radiation Dr. took it out and put a bandaid on and I was good to go. My cancer was stage 1 and I just had my first  mammogram and ultrasound for my six month checkup. The surgeon said everything was ok and to come back in six months. I wish you all the luck and its not nearly as scary as what you think. You will do great.

  • chrisanddon
    chrisanddon Member Posts: 2
    edited July 2011

    Hi, they give you a elastic colored wrap that you are supposed to wear. I bought several soft and wirefree bras online that fasten in the front and I am still wearing them as they are so comfortable.. I bought mine out of the Carol Wright catalogue.  I actually wore the leisure bra on top of the  wrap they give you and then took it off before treatment. You keep the wrap on at all times except when they unwrap you for the treatment. You are laying down so the wrap is right under you and after they velcro it  back. I have large breasts and was not comfortable with just the wrap. Good luck

  • ktab96
    ktab96 Member Posts: 126
    edited July 2011

    I had my surgery on June 28th.  I recieved my final pathology report today and it looks like I will be able to have my radiation via SAVI.  My doctor wants me to heal for a couple of weeks.  I am scheduled to have the SAVI device inserted on June 21st.  I am wearing an Anita sports bra 24/7 and agreed this is was a good bra for me to wear because of the size of my breasts.  I am having trouble sleeping because I am force to sleep on my back in an inclined postion but I try to take a couple of cat naps during the day.  I know its going to be a little tougher duing the next phase (rads, no shower for 5 days) but I think its the way to go.

  • mommarch
    mommarch Member Posts: 584
    edited July 2011

    I had mamosite radiation from April 19 thru April 25th. It is the way to go if you are a candidate.  You may have fatigue, at least I did, it hit me about the 5th treatment.  My tumor was on the inside portion of my right breast next to my chest wall.  They said it was in a very unique place.  The removal of the devce was very easy.  I had a  little redness and some peeling.  I bought fasten down the front cotton sports bras and they feel great.  Actually I am still wearing them at night.  I seem to sleep better bound up.  I decided after I had the port put in for chemo I had better buy a couple more, as I can not wear my form fit bras with the port.  I am 62 and had never owned a sports bra.  Also not only did I wear the front close bras but also wore a button blouse so all I had to do was unbutton everything and did not have to get into a gown.  That was great.

    Good luck

  • nckathyb
    nckathyb Member Posts: 2
    edited July 2011

    I was very glad SAVI was offered to me when I discovered later the after affects of whole breast radiation.  I was the first one at my breast care facility to go through it and so I had the SAVI people guiding the doctor's every move. 

    The device was uncomfortable at times, but I slept well, and continued to work.  I sill had to wait to use the shower until the insertion site healed over which was inconvenient.  The radiation process was painless.  Being bound up during the day put pressure on the device and it sometimes pushed up against raw tissue, so having everything removed for the treatments felt great. 

    Now, a year and a half later, all of the scars have faded considerably and I continue to be cancer free.  I am on Tamoxifen for 5 years however, and the side affects that I experience from it are longer and more intense hot flashes than I had before.  I just have to keep a fan nearby, either electric or manual.

    Hope you are doing well!

  • peachy-pie
    peachy-pie Member Posts: 201
    edited July 2011

    I had the Savi catheter put in on 7/14 and I start treatments Mon. 7/18 and they end Fri 7/22 when the catheter will be removed.     I already can't wait to get it out as it is bulky under my arm and pulls when you move certain ways.   At times I feel nothing,  at other times I am very sore & uncomfortable.   Sleeping was difficult the first night,  but I found that having an extra pillow & keeping my arms in front of me while I am sleeping is more comfortable.   Not being able to bathe is horrible,  and sponge bathing is rough because when you move it pulls and gets sore.    The good thing is I felt nothing when it was being inserted,  and it's only there for a week.    And I was told this method is more accurate, effective and there are less side effects then other methods.   So regardless I am glad I was a candidate for this type of radiation.    

  • sweetcorn
    sweetcorn Member Posts: 188
    edited July 2011

    I had planned on this type of radiation, but testing indicated a need for chemo, so I did that first.  Now, almost four months after surgery, I see the RO again a week from today.  Does it matter that it is so long after surgery?  Or do I have to do the standard radiation?  I know I will find out soon enough, but I want to prepare myself beforehand!

    Thanks, jane

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Jane, I'm no authority, but I think the surgery site would be way to healed up to do it now. I think more than likely you're looking at standard radiation. thank goodness you Dr's realized before radiation you needed chemo. I wasn't so lucky and did the radiation first.

  • sweetcorn
    sweetcorn Member Posts: 188
    edited July 2011

    I'm sure you're right.  Due to chemo-brain, said I was almost four months post lumpectomy, but am really almost six months. 

    Jane

  • ktab96
    ktab96 Member Posts: 126
    edited July 2011

    I had the Savi baloon implanted yesterday.  Today I was scanned, measured, picture taken, marked etc. So far so good.  I have no pain, pressure or anything.  The only complaint I have is the bulkiness from the padding under my arm pit. I start radiation on Monday.

  • peachy-pie
    peachy-pie Member Posts: 201
    edited July 2011
    ktab96,  that was my only real complaint too,  the bulk under my arm.   Well,  that and not being able to get a shower,  LOL.      I had mine out a week ago tomorrow and I am still wating for the hole to heal over.   It has healed a lot,  but seems like it still has a way to go.     I didn't have any pain when the Savi came out,  just fell a lot of pressure and then a lot of fluid ran out which felt weird.   But it didn't hurt at all.    My doctor gave me a Hershey's Kiss before he took it out then put a handful on the counter for when it was over.   I loved my doctor,  he was so awesome and so was his staff.  Smile
  • ktab96
    ktab96 Member Posts: 126
    edited August 2011

    I had my final treatment on Friday.  I had a problem with the hole and still do.  It is very itchy and painful at the same time.  I think I am having a reaction to the sterri strip they put on it.  I see the doctor tomorrow to take a look at it.  I take my first shower tomorrow. Yippee!

  • cycle-path
    cycle-path Member Posts: 1,502
    edited August 2011

    Good for you, ktab!

  • peachy-pie
    peachy-pie Member Posts: 201
    edited August 2011

    ktab96,  how are you making out with your incision hole?   My doctor didn't put any steri strips on mine,  I had to keep peroxide and neosporin ointment on it.   I tried just using a band aid,  but it did not let air get to it so it could heal.   So I started to put a gauze pad over it.   That seemed to work well,    It's been 11 days today since I had mine removed and it's almost closed all the way.   I have a scab there now and it seems to be healing nicely.    Hope you're making out Ok.  Smile

  • ktab96
    ktab96 Member Posts: 126
    edited August 2011
    My incision hold is closed.  The steri strips are starting to fall off.  My radiologist gave me an antibiotic cream and it seems to be healing well.  I am starting to feel normal again!  I am able to sleep on my side (both sides).  My breast feels pretty good except the nipple area seems to get tender from time to time even though my surgery was no where near it.  I am so pleased the way things turned out.  I would say I am doing well.  Thanks for asking!  Laughing
  • peachy-pie
    peachy-pie Member Posts: 201
    edited August 2011

    Hi ktab96,   I am so glad to hear you're healing and doing well.  :)     You seem to be having the same issue I am having with the nipple area.   Mine is very sore & tender and hard and bumpy in places.   My doctor told me that is probably from the blue dye from the sentinel node injection.  But he also told me that may never go away.   I was not happy to hear that,  so I am going to wait a while to see if it subsides.   If not,  I am going to go for a second opinion.   

  • ktab96
    ktab96 Member Posts: 126
    edited August 2011

    I hope it is temporary.  Today I started Femara.  I am a little anxious about what is in store for me there.

  • vnorman
    vnorman Member Posts: 20
    edited August 2011

    ktab96,

    I had the savi treatment at the end of June.  I am also large breasted.  I went to walmart and bought 2 of their sports bras that open in the front.  I was able to using gauze to keep the catheter in place inside my bra.  Because i am large breasted, I also invest in a zip up robe from walmart.  I felt uncomfortable in the gowns provided by the radiation center.  I made sure that it unzipped uncompetely.  My experience was not as bad as i expected.  I would recommend that you take some pain meds on the last day for them to take the catheter out.  There is some pain that lasts for about 4 minutes while they are taking it out and the pain meds helped me.

  • peachy-pie
    peachy-pie Member Posts: 201
    edited August 2011

    ktab96:   Let me know how you feel while you're taking the Femara.   I see my oncologist on the 16th,  going to find out what is next for me that day.   

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