MIDDLE-AGED WOMEN 40-60ish
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Hi guys! wish you all a very good evening from India. I went to see my doctor on six month,s follow up check up. My mammogram report says NAD. My doctor noted NAD. It is six years and 3 months from the date of my operation, followed by radiotherapy (33 cycles) with booster and chemo ( six cycles). I took tamoxifan for 1 and 1/2 years follwed by Arimidex till Feb,2011. Instead of six months check up I have been advised to report in August,2012. I pray to God everyday to get rid of cancer from my body but how long.. no idea... still my mind got stuck with the same...life is still confused...
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Re: oncotype testing...REMEMBER it is ASSUMING you are going to take Tamoxifen when they give you the result. If you aren't going to take Tamoxifen there is NO point in getting the testing!! The number you get is based on having Tamoxifen in the mix. Do not get fooled by a low number.
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Yeah Barbe! that is exactly what I am confusing. I keep on wondering everytime why the doses given by my doctor is very different from your doctors. I am still not sure myself. Moreover, I am not that much expert to tackle with my doctor, I just listen to what the board says. Last time when I said I better complete the arimidex doses for five years but they combine five years duration taking into account of the period of tamoxifan. I should better change the doctor to get second opinion.
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raj, that is right though!! They would count the time of Tamoxifen AND the AI here up to five years as well. I think your doctors are doing the right thing. My comment was for a couple newbies that have joined our thread.
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If it is right then I feel better now Barbe. By the way I was concerning only on my part but dont have the courtesy to ask you about your health, but everytime you are in my mind as a very strong lady. I can feel how you manage with BC. thanx a lot for sharing with me. And thanx to all the members for sharing valuable ideas, knowledge through this thread.
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Barbe1958, Your information about Oncotype Dx is not correct. The TransATAC study on Arimidex (as representative of the AI's) showed the recurrent score is similar to Tamox. users and distant recurrence percentage is even better than Tamox. users. Also, I believe that now the docs can enter the Onco Dx into the Adjuvant Online equation, for a more personalized result on that as well.
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elimar, I didn't mean JUST Tamoxifen, but ANY AI. Sorry for the confusion. Is that the part I had wrong? Only mentioning Tamox and not the AI????
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Well.....my Oncotype DX results are in, but I can't see the oncologist until Monday. I am not very patient when it comes to test results! Oh well, what can I do! Have a great day ladies!
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Yeah. I was responding to:
"If you aren't going to take Tamoxifen there is NO point in getting the testing!!"
I did think you meant if an AI would be used instead. But I think we were both commenting to SAB, who is ER+/PR+, so she's most likely going to be taking one or the other.
You are right in the event that IF a woman has no plan to have hormonal therapy at all, having the Onco Dx score would not amount to much, because it does assume some kind of hormonal will be taken.
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I see no picture(s) in the header E.
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I don't see a picture either.
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Neither do I.
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Crap, I will find another one to put up there and see if that works. As an experiment, let me know if you can see the picture in this post. It is the one no one can see but me. Maybe I am special.

NEVERMIND...it is not showing up here for me either. Getting a blank square in edit box now too.
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I see it on my cell phone but not on my computer at work. But I don't see a lot of pics at work.
E I think I fell off this week
Edited to add: but I caught the rope and am climbing back up

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reesie, you are seeing the replacement now at the top The other was in my post above for a minute, but then it disappeared on me.
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Guess I checked my phone too late then.
But this one sure fits how I've felt for the past two weeks.
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Elimar now I see the pic at the top
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OK-I think we all have been engaging in the picture activity. I know I have!
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Elimar - I see the picture at the top now.
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Koalakid39 The waiting is always the hardest. For me it seemed like no matter what I did to get my mind off the waiting it never helpped. But in the end like you said, what can we do?
Leisa Im so sorry for your loss.
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Yep e, that's what I meant. No point in counting on an Oncotype score unless you are going to take a HORMONAL (not Tamoxifen specific).
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I didn't see the pic earlier today, but now I do. Is she wearing heels??
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Leisa my condolences and prayers to your family.
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Wow. I just came home and checked the thread and want to tell all of you how much I appreciate the amazing response to my question. I have already learned so much from this site, and from these discussion boards. I feel much more ready to discuss my options. Thank you all for being there.
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@cmblastic: I had a lumpectomy on July 12th, or as one of the gals on this site called it a "slabectomy." Surgeon removed 9 cm x 7.5 cm x (I think) 3 cm for a 1.6 cm tumor and I don't know how to feel about that. Clear margins thought, so I guess I should drink champagne out of that big old dent that's going to be there when the swelling finally goes down. Their plan for me is radiation and then Tamoxifen, since I am perimenopausal. Oncotype dx came in at 15, so no chemo. I am very concerned about all of the side effects I have been reading about. Also, trying to learn about absolute risk and the math involved in order to make better decisions. Yes, it's overwhelming.
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Leisa-I am so sorry about the loss of your dad. Big hugs((((((Leisa))))))!!!!!
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Leisaparis--I am so sorry to hear about your dad. So sad, so hard.
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SAB- Well, hopefully with margins like that they got out all the extra nasties floating around. The rads side effects short term are very doable. Long term effects you have to weigh the good with the bad. Same with the hormonal treatment. Everyone is different. As someone here once said, some of us go guns blazing, get it out, and give me every weapon to make sure it doesn't come back. Others are more conservative and go for the less is more option. We all have made the best choice that fits our own unique challenge. Good luck on your finding your path. . .
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Yes Elimar, I will be taking Tamoxifen. My Onc did tell me that Tamoxifin was included in the Oncotype score (15 for me,) and he also said that AIs were considered more effective (and that some women request that menopause be induced in order to use them.) But inducing menopause has other serious side effects including the short term overproduction of estrogen, which is counterproductive to the goal. It's all so complicated...I feel like I'm in medical training.
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Thank you cmblastic. The funny thing is that even with a wire, and the generous slab they took out the deep margin was only 1mm. The tumor board agreed on no chemo though. I hate letting a "board" control my outcome! That's the hardest part for me...feeling like I can never have enough information to choose my path with confidence. Wish I had gone to medical school instead of liberal arts!
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