Susan G Komen

Options
12467

Comments

  • painterly
    painterly Member Posts: 602
    edited August 2011

    I googled Komen, it was faster than going to my files!

    I was wrong!!!!   It is not 25% according to their website it is 24% to research!!

  • painterly
    painterly Member Posts: 602
    edited August 2011
  • Lynn18
    Lynn18 Member Posts: 416
    edited August 2011

    Painterly:  Thanks for the link.  It looks like they spend 84 percent of their funds on program expenses, which include, in addition to research-- education, screening and treatment.  

  • painterly
    painterly Member Posts: 602
    edited August 2011

    34% on education!

    I think we can say that we are all "aware" of breastcancer, even those who don't have it.

  • Lynn18
    Lynn18 Member Posts: 416
    edited August 2011

    Yeah, I thought that education seemed high.  I would hope research would be higher.  Wonder what "education" means. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2011

    In our state Komen sponsers a program that gives free mammograms and pap smears for women who couldn't otherwise afford them. I certainly don't agree with all their corporate decisions, but I do know they have done some good things that wouldn't have gotten done otherwise.

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited August 2011

    I'd be happier with the amount spent on education if our doctors weren't telling women with soft thickenings and clear mammograms that it's nothing to worry about only to find they have ILC. And telling women with IBC that it's just a rash, or mastitis when a few weeks delay in diagnosis can be critical.  Who is educating the doctors?

    Women also need to know that there are other forms of BC, they aren't just to watch for a hard lump. 

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2011

    Absolutely.....and it drives me crazy that self-exams are no longer 'officially' recommended, because that is how I found mine!

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    Joy and Ruth, I agree. I feel like the primary care physicians need mountains more education about breast cancer (and possibly other cancers, not sure), since they are usually the first line of action. It's downright shameful - and scary.

    Anyone here run/walk the Komen Race? I was considering it this year as well - only with a defiant or provocative message written on my upper chest/collarbone area (am taking ideas - LOL!)

  • Lynn18
    Lynn18 Member Posts: 416
    edited August 2011

    ruthbru:  That drives me crazy too.  I know, I know, some studies could not prove self-exams were beneficial, but many of us believe otherwise.

    I can't believe what Wiki says about breast self-exams.  It suggests some organizations promote self exams as a way to promote fear of breast cancer.  What are we supposed to do, never touch our bodies?  

    Just for comparison, I looked up information about self-exam for men (testicular cancer) and boy do they get treated differently.  It says it is a leading cause of death among young men, and strongly urges them to do a monthly self-exam, even encouraging their partners to help.  I think that's sexist.

  • ruthbru
    ruthbru Member Posts: 57,235
    edited August 2011

    Well, health care plans pay for Viagra but have not paid for contraception in the past......so, sadly, that does not suprise me at all!

  • Leia
    Leia Member Posts: 265
    edited August 2011

    "digger wrote:

    Dear dear Leia, how do you ever expect to be taken seriously on these boards when you make such inflammatory comments such as these? I'm assuming you're enjoying posting garbage like that? Just so you can keep your little thread going, I guess it stokes your self-esteem."

    I quote Dr. Susan Love. DCIS is a Pre-Cancer.

    Cancer is cells spreading beyond their nucleus. DCIS is not that. With DCIS there are no spread of the cells. 

    digger, I'm not posting garbage, I'm posting truth. What DCIS is. It ts NOT cancer. To repeat, as Dr. Love says it's a Pre-Cancer.

    If a woman has cancer, as I did, it needs to be taken out. My 2cm IDC. But we do not need to go and find DCIS Pre-cancers to "treat." Most DCIS cancers never progress. So why are we treating them like Stage 4? The women that really need help?

    That is the problem with Susan G Komen.

     

  • Leia
    Leia Member Posts: 265
    edited August 2011

    elmcity69 wrote:"And at some level, I really don't give a shit how much my treatment cost. My onc recommended standard of care, and I'm worth it."

    Elmcity69, are you willing to pay for it, out of pocket? Or are you only "worth it" if someone else, pays. 

    I am sorry, ladies, but this "free lunch" view of healthcare is ending. The stock market, today, just dropped 516 points.

    There is no free lunch, for free healthcare, anymore. elmcity69, there are Billions of chinese women who are just like you. Yet, you are worth free health care, and they are not? Those chinese women?

    What makes you so special?

    Times are changing.

    And it is just happening.

    My response is to just get healthy. Again, I do smoke, but that is just ONE of the MANY carinogens we face. The people who don't smoke, IMO, are way more unhealty than me. My work colleague eats Sugar and Cokes, all day. And he is always calling in sick. I'm never sick.

    Ha, me, the Smoker.

    And I've also had no recurrence of my Leio cancer or my 2cm IDC breast cancer. In seven and six years, respecctively. With NO other "treatments."

    I'm just here telling what happened to me.  

  • Ang7
    Ang7 Member Posts: 1,261
    edited August 2011

    Oh Leia~

    I think it's great that you are never sick, but having smokers in my family I believe the smoking has to catch up with you one of these days...

  • Lynn18
    Lynn18 Member Posts: 416
    edited August 2011

    Leia: smoking is not just "one" carcinogen. Cigarettes contain many, many carcinogens.

  • digger
    digger Member Posts: 590
    edited August 2011

    I'm not posting garbage, I'm posting truth. What DCIS is. It ts NOT cancer. 

    Well, if Leia, our resident smoker who we all have to pay for because she pollutes the air around us, says DCIS is not cancer, then it must be so.  

    Don't know why I'm beating my head against the wall with you Leia, but your logic, particularly regarding your innocuous smoking, blows my mind.  You're driving all of our health care costs up with your smoking, you affect all those around you.  So my suggestion would be instead of looking around elsewhere with your CPA mind for who you can blame for driving up health care costs, start with yourself.    

    Edited to add: I don't particularly have anything against smokers, but I do have an issue with a smoker who claims her habit is harmless to those around her.   

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    @leia: (((((((((((((((crickets))))))))))))))))

    your post about my supposed motives and ideas on healthcare, feminism, and budget constraints is so laughable, that was my instinctual response.

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    although now i'll add: if you're so worried about world finances, then you will surely believe bloated military budgets --like the United States', which is equivalent to the next 14 countries'-- needs hard examining and change, do you not?

  • luv_gardening
    luv_gardening Member Posts: 1,393
    edited August 2011

    Leia, perhaps you could answer the question in the new thread  "Alternative" Charity? created by Kachme27 since you have a good understanding of NFP finances

  • Leia
    Leia Member Posts: 265
    edited August 2011


    "elmcity69 wrote:

    although now i'll add: if you're so worried about world finances, then you will surely believe bloated military budgets --like the United States', which is equivalent to the next 14 countries'-- needs hard examining and change, do you not?"


    I do believe that. You are so right, elmcity69.

    Did you ever see that movie, "Team America; World Police." So true. We need to drastically cut back on military spending. WWII ended 66 years ago. We don't need any bases in Germany. We don't need any bases, anywhere.

    We need a defense budget to protect the United States of America. And nothing else.

  • Leia
    Leia Member Posts: 265
    edited August 2011

    Digger, you wrote:

    " I don't particularly have anything against smokers, but I do have an issue with a smoker who claims her habit is harmless to those around her. "

    How do you know, digger? That my smoking is harmful, to others.

    For my part, I'm a smoker, as I've said. And both of my parents were smokers. So, I grew up, my formative years, surrounded by smoke until I was 18 and then, started smoking, myself. And I'm 56 today and I'm still here. And not only am I not dead, I'm thriving. In fact, I have never felt better. I had two Stage 1 Cancers and they were both cut out, successfully. With no further treatments. And then, I added the FOCC and the D3. My D3 level is 81. What is your D3 level?

    Most people's D3 level in this country is 10, or something. Totally deficient.  

    I don't disagree with you that smoking is bad. It is bad. I would even be better off, if I quit. Yet I enjoy it. Yet, I'm taking these other steps to mitigate it. And since I feel so great and have no more cancers, I am succeeding.  

    And I just reject your notion of "Second hand smoke, harming other people." What nonsense. That is just the MIC again.  Again, I was exposed to second hand smoke growing up, as did millions.  And we're not all dead. 

    Digger, I know nothing I write will ever change your mind. You just have Thomas Sowell's "Unconstrained Vision." 

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    @ Leia: well, it's nice to agree on something.

    But I've been reflecting on our earlier exchange, and there were some clarifications I failed to make. My health insurance is paid through premiums from my weekly paycheck, and I paid copays for everything except radiation. Arimidex? copay. Chemo? copay. Surgery? copay. Naturopath? copay.

    You describe healthcare for cancer patients in strokes so broad it nears falsehood. No one has ever said that all breast cancer patients require the exact protocol; read other threads and you'll see enormous differences. Does a woman with Stage1, grade 1, node negative cancer need my protocol? Absolutely not, and any onc worth his/her salt will say that. But a woman with my clinical profile does need the kitchen sink, and that's how that goes. Trust me when I say I would rather NOT need the kitchen sink.

     And really, do you expect women like me to say, "no worries, +Dr. A, I'm going to forego the Herceptin. Yeah, 15 positive nodes, grade 3, HER2+ - but I'm just going to take the chance, because Herceptin is so expensive and  I don't want to be a freeloader."

    As far as the "millions" of Chinese women: I've not seen any statistic anywhere that discusses "millions" of breast cancer cases in China.

    I don't expect medical care to be entirely free for someone like me, who has a good job, a spouse with a good job, and the ability to pay copays. But for the unemployed, the poor, the disabled, and elderly? You bet.

    We could likely have a good discussion about how healthcare dollars are better spent on prevention, which is something that the U.S. consistently fails at.

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    Leia, I'm just baffled by your insistence that second hand smoke isn't harmful, or that it's a conspiracy by the "medical industrial complex". It nears delusion. I'm not sure you're just trying to get a rise out of people.

  • Leia
    Leia Member Posts: 265
    edited August 2011

    "Leia, I'm just baffled by your insistence that second hand smoke isn't harmful, or that it's a conspiracy by the "medical industrial complex". It nears delusion. I'm not sure you're just trying to get a rise out of people."

    Elmcity, YOU are delusional. I just explained my entire history of smoking.

    The real issue, currently is is the Obesity issue. NOT smoking. 2/3 of our country is either fat or obese. And THAT is what s causing the current "health crisis." I am thin.

  • Leia
    Leia Member Posts: 265
    edited August 2011

    Leia, I'm just baffled by your insistence that second hand smoke isn't harmful, or that it's a conspiracy by the "medical industrial complex". It nears delusion. I'm not sure you're just trying to get a rise out of people.

  • elmcity69
    elmcity69 Member Posts: 998
    edited August 2011

    this is beginning to sound like a comedy routine...."a fat nonsmoker and a thin smoker walk into a bar"....

    smoking for 38 years does not a thriver make. undermines all of your other arguments about health and medical treatment. and i say that as a former smoker.

  • Leia
    Leia Member Posts: 265
    edited August 2011

    OK elmcity, cheap shots. 

    Bottom line, what is going to happen. I'm going to live because I reject all of these MIC treatments. And treat myself. And have a happy life. Smoking.  

    And you will embrace the MIC and do that. Have all of your "treatments" paid for by someone else. Because you are so "special." And probably die from them they are more toxic than smoke. 

    I don't get it.  

    Well, just today S&P downgraded the US Debt. So,I don't think your treatments will be paid by others. for very long.  

    And that is MY deal.

    I'm doing whatever I can, to live. I smoke, so I make other adjustments. Again, and again, the D3 and the FOCC. And lately the Green Smoothies. I blend greens and drink them. They're yummy.

    Life is complex. You say things like, "Second hand smoke CAUSES cancer." Which is just ... ridiculous. It does NOT.  

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2011

    Hmmmm -- I didn't vomit during chemo.  My muscles didn't waste away; my eyes didn't look hollow.  In fact, if my hair hadn't fallen out, no one would even know I'd had chemo.

    I've read a few postings on the natural news site.  Not a site I would put much faith in, sorry to say.

    BTW, I'm just stating facts as I know them (about my experience) and my opinion (about that website). 

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited August 2011
    Susan, my mother died of BC in 1970 (no chemo).  My sister died of leukemia in 1986 (a particurlay vicious form, acute monocytic -- chemo didn't work).  My two other sisters have survived ovarian cancer because of chemo (dx'ed in 1995 and 2005 respectively).  I'm still here after chemo in 2008.
    We don't have a cure, but we have come a long way since 1970.   Not far enough, obviously.  I know about cancer, and I know about cancer treatments.  I personally know many scientists who have devoted their lives to finding effective treatments.  Fact, not opinion.
  • digger
    digger Member Posts: 590
    edited August 2011

    Susan, I'm sorry to say that the paranoia is really rampant with you lately...a lot of black and white statements...but hey, if that's how you want to live your life, just seems a little scary for you thinking that everyone is out to get you.

Categories