MIDDLE-AGED WOMEN 40-60ish

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  • Raj20
    Raj20 Member Posts: 1,112
    edited August 2011

    Hi guys! wish you all  a very good evening from India. I went to see my doctor  on six month,s follow up check up. My mammogram report says NAD. My doctor  noted NAD.  It is  six years and 3 months  from the date of my operation, followed by radiotherapy (33 cycles) with booster and chemo ( six cycles). I took tamoxifan for 1 and 1/2 years  follwed by Arimidex  till Feb,2011. Instead of six months  check up I have been advised  to report in August,2012. I pray  to God everyday  to  get rid of cancer from my body but how long.. no idea... still  my mind got stuck  with  the same...life is  still confused...

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Re: oncotype testing...REMEMBER it is ASSUMING you are going to take Tamoxifen when they give you the result. If you aren't going to take Tamoxifen there is NO point in getting the testing!! The number you get is based on having Tamoxifen in the mix. Do not get fooled by a low number.

  • Raj20
    Raj20 Member Posts: 1,112
    edited August 2011

    Yeah Barbe! that is exactly what I am confusing. I keep on wondering  everytime why the doses given by my doctor  is very different  from your  doctors. I am still not sure myself. Moreover, I am not that much expert to tackle with my doctor, I just listen to what  the board says. Last time when I said I better complete the arimidex doses for  five years but they combine  five years duration  taking into account  of the period of   tamoxifan. I should better  change  the doctor to get second opinion.

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    raj, that is right though!! They would count the time of Tamoxifen AND the AI here up to five years as well. I think your doctors are doing the right thing. My comment was for a couple newbies that have joined our thread.

  • Raj20
    Raj20 Member Posts: 1,112
    edited August 2011

    If it is  right then  I feel better now Barbe.  By the way I was concerning only on my part but dont have the courtesy to ask you  about your health,   but  everytime  you are in my mind as  a very strong lady. I can feel  how you  manage  with BC.   thanx  a lot for sharing with me.  And thanx to  all the members  for sharing  valuable ideas, knowledge  through this thread.

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011
    Barbe1958,  Your information about Oncotype Dx is not correct.  The TransATAC study on Arimidex (as representative of the AI's) showed the recurrent score is similar to Tamox. users and distant recurrence percentage is even better than Tamox. users.  Also, I believe that now the docs can enter the Onco Dx into the Adjuvant Online equation, for a more personalized result on that as well.
  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    elimar, I didn't mean JUST Tamoxifen, but ANY AI. Sorry for the confusion. Is that the part I had wrong? Only mentioning Tamox and not the AI????

  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    Well.....my Oncotype DX results are in, but I can't see the oncologist until Monday.  I am not very patient when it comes to test results!  Oh well, what can I do!  Have a great day ladies!

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    Yeah.  I was responding to:

    "If you aren't going to take Tamoxifen there is NO point in getting the testing!!" 

    I did think you meant if an AI would be used instead.  But I think we were both commenting to SAB, who is ER+/PR+, so she's most likely going to be taking one or the other.

    You are right in the event that IF a woman has no plan to have hormonal therapy at all, having the Onco Dx score would not amount to much, because it does assume some kind of hormonal will be taken.

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2011

    I see no picture(s) in the header E.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    I don't see a picture either.

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011
  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    Crap, I will find another one to put up there and see if that works.  As an experiment, let me know if you can see the picture in this post.  It is the one no one can see but me.  Maybe I am special.

                                    

    NEVERMIND...it is not showing up here for me either. Getting a blank square in edit box now too.

  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    I see it on my cell phone but not on my computer at work. But I don't see a lot of pics at work.

    E I think I fell off this weekFrown

    Edited to add:  but I caught the rope and am climbing back up Smile

  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011
    reesie, you are seeing the replacement now at the top  The other was in my post above for a minute, but then it disappeared on me.
  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    Guess I checked my phone too late then.

    But this one sure fits how I've felt for the past two weeks.

  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    Elimar now I see the pic at the top

  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2011

    OK-I think we all have been engaging in the picture activity.  I know I have! 

  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Elimar - I see the picture at the top now.

  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Koalakid39 The waiting is always the hardest.  For me it seemed like no matter what I did to get my mind off the waiting it never helpped.  But in the end like you said, what can we do?

    Leisa Im so sorry for your loss.  

  • barbe1958
    barbe1958 Member Posts: 19,757
    edited August 2011

    Yep e, that's what I meant. No point in counting on an Oncotype score unless you are going to take a HORMONAL (not Tamoxifen specific).

  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    I didn't see the pic earlier today, but now I do. Is she wearing heels??  

  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    Leisa my condolences and prayers to your family.

  • SAB
    SAB Member Posts: 1,498
    edited August 2011

    Wow.  I just came home and checked the thread and want to tell all of you how much I appreciate the amazing response to my question.  I have already learned so much from this site, and from these discussion boards.  I feel much more ready to discuss my options.  Thank you all for being there.

  • SAB
    SAB Member Posts: 1,498
    edited August 2011

    @cmblastic: I had a lumpectomy on July 12th, or as one of the gals on this site called it a "slabectomy."  Surgeon removed 9 cm x 7.5 cm x (I think) 3 cm for a 1.6 cm tumor and I don't know how to feel about that.  Clear margins thought, so I guess I should drink champagne out of that big old dent that's going to be there when the swelling finally goes down.  Their plan for me is radiation and then Tamoxifen, since I am perimenopausal.  Oncotype dx came in at 15, so no chemo. I am very concerned about all of the side effects I have been reading about.  Also, trying to learn about absolute risk and the math involved in order to make better decisions.  Yes, it's overwhelming.  

  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    Leisa-I am so sorry about the loss of your dad. Big hugs((((((Leisa))))))!!!!!

  • NativeMainer
    NativeMainer Member Posts: 10,462
    edited August 2011

    Leisaparis--I am so sorry to hear about your dad.  So sad, so hard. 

  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    SAB- Well, hopefully with margins like that they got out all the extra nasties floating around. The rads side effects short term are very doable. Long term effects you have to weigh the good with the bad. Same with the hormonal treatment. Everyone is different. As someone here once said, some of us go guns blazing, get it out, and give me every weapon to make sure it doesn't come back. Others are more conservative and go for the less is more option. We all have made the best choice that fits our own unique challenge. Good luck on your finding your path. . .

  • SAB
    SAB Member Posts: 1,498
    edited August 2011

    Yes Elimar, I will be taking Tamoxifen.  My Onc did tell me that Tamoxifin was included in the Oncotype score (15 for me,) and he also said that AIs were considered more effective (and that some women request that menopause be induced in order to use them.)  But inducing menopause has other serious side effects including the short term overproduction of estrogen, which is counterproductive to the goal.  It's all so complicated...I feel like I'm in medical training.

  • SAB
    SAB Member Posts: 1,498
    edited August 2011

    Thank you cmblastic.  The funny thing is that even with a wire, and the generous slab they took out the deep margin was only 1mm.  The tumor board agreed on no chemo though.  I hate letting a "board" control my outcome!  That's the hardest part for me...feeling like I can never have enough information to choose my path with confidence. Wish I had gone to medical school instead of liberal arts!

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