wig advice

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  • Carrol2
    Carrol2 Member Posts: 2,903
    edited February 2011

    I got three synthetic wigs and i rarely ever wear them. The first one I got from AMC. They had a very limited selection and nothing like my hair so i took one that was totally different and thought it might be fun. I did not really feel comfy in it. It itched and it looked like someone else in the mirror to me. Then I found out i qualified for a free wig at the hospital so I went there and picked one as close as I could find to my hair and it is just really wrong and got worse when i had it cut.

    Then I found this website that had some great wigs that they donate. My avatar I am wearing it. http://crickettsanswerforcancer.org/

    Got a great wig closer to my hair color but much longer. They sent me a gel band to wear under it that makes it way more comfy. It has a kind of mesh front that makes it look more real. I wore it a few times but mostly i just wore hats as its been cold. 

    I am at about 10 weeks PFC and my hair is slowly growing back but I still can't go topless. 

  • Pegs
    Pegs Member Posts: 198
    edited April 2011

    Dont most insurances cover wigs, i know mine did but the prescription had to say something other than "wig" if forget now....

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited April 2011

    yes Pegs but I have medicaid and they would not cover it. But you need a prescription with most insurance for a cranial prosthesis and then i think normal insurance would cover it. I am 18 weeks PFC now and my head is covered albeit super short, i can go wihthout anything now but i look very butch. I am going to try to find some kind of cute cloth headband or something.

  • pejkug3
    pejkug3 Member Posts: 902
    edited April 2011

    My insurance didn't cover the wig at all.  I have Cigna.  I asked about a "Cranial Prosthesis" and the only thing they would cover was a helmet.  A HELMET!  LOL

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited April 2011

    pejkug3 well if you can't afford it try these people http://crickettsanswerforcancer.org/

    They were very nice and got me a good quality wig. You get a choice of wig on wig.com i think it was. They let me pick any wig i wanted no price limit. 

  • Pegs
    Pegs Member Posts: 198
    edited April 2011

    I thought i heard somewhere that if insurance doesn't cover for wigs, that the american cancer society helps people out.  its work some investigation.... 

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited April 2011

    Yes I got a wig from the American Cancer Society but it was a used wig and they did not have many to chose from I ended up with something totally different than my hair. When this is all over I will donate all my wigs back to them.

  • determined3
    determined3 Member Posts: 128
    edited April 2011

    okay, i will post this in april chemo and IL too, but i just got my wig today and it does not fit/feel right. i got it from ACS.  do i need to wear something under it? also, someone once mentioned about body glue. i live in the chicago area and it was windy as hell yesterday. i could barely keep my cap on and i still have hair. i will start chemo tomorrow. so,.................trying not to panic......trying to breathe, but HELP. OMG what the hell am i going to do! thought i was proactive by getting started now, but man. okay, help please...seriously.

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited April 2011

    determined3 you can exchange your wig at the ACS if it does not fit. You will have about 2 weeks before your hair begins to fall out so that gives you some time to explore other options. Personally i got 3 wigs and almost never wore them. I wore hats 24/7. I would suggest if your worried about the wind wearing a scarf that you can tie. There are lots of pretty options for scarves and when chemo is over you can still use them. I put a hat on over my wig on windy days. ALso i got this gel band from wigs.com that really helped my wig stay in place and made it more comfortable. Keep in mind it will fit different without hair.

    Take a deep breath you will be ok. Losing hair is a heartbreaking expereince but it is only hair, it is still you inside. 

  • determined3
    determined3 Member Posts: 128
    edited April 2011

    hi carrol2, thanks for responding. yes, i will look for the gel band or something like that. i am mortified about my wig coming off.  i know that hair is a small thing in the grand scheme of things, but i am trying to look as normal/healthy as possible. i am not comfty w/ scarves and maybe it is b/c i teach middle school and i am not ready for the ?s. PLUS i have been out a month and will return next week. i don't feel like answering all the questions.

    anyone use the wig hugger from tlc?---just asking b/c someone just sent me a link.

  • kathylyon
    kathylyon Member Posts: 84
    edited May 2011

    hello - can anyone tell me where is a good place on-line to order wigs?.  Is the recommendation for a real hair wig or synthetic?  I will be starting Chemo soon and losing of the hair is bothering me the most.  I am sure most of you understand that. 

    Thanks 

  • AtaLoss
    AtaLoss Member Posts: 1
    edited May 2011

    Thank you for these ideas. Just had my mastectomy and am heading toward chemo..

  • epgnyc
    epgnyc Member Posts: 101
    edited May 2011

    My wig caps are so uncomfortabe and I'd love to know what it is you have that is so comfy, Cat123.  Thanks for any help you can give me.

  • Leah_S
    Leah_S Member Posts: 8,458
    edited May 2011

    epgnyc, I sometimes cut the foot from a pair of pantyhose instead of a cap. Some wig caps are small & tight.

    My husband said the cap I have now looks like the type football players wear under their helmets. I guess you could call a sports uniform store & get info on those - don't know where else.

    Best of luck.

    Leah

  • GuyGirl
    GuyGirl Member Posts: 182
    edited May 2011

    You can contact Crickett's Answer for Cancer at crickettsanswerforcancer.org.  They are a wonderful organization that provides services to women with breast cancer.  I was fortunate to have them pay for a massage for me.  They can get you a wig free of charge.  

  • Fearless_One
    Fearless_One Member Posts: 3,300
    edited May 2011

    I just want to add that it's not necessary to spend big bucks on a wig.  You can find a pretty one for under $50.00 on many sites.   They will be synthetic, but that can be a good thing - easier to care for. 

    www.beautytrends.com

    www.paulayoung.com

    www.twcwigs.com

    I didn't have much money to spend on a wig and was schocked when I went on wigs.com and some other sites.   And not all insurances reimburse you, even with a RX.   Mine didn't.

  • Flautalee
    Flautalee Member Posts: 118
    edited August 2011

    Hello, since this is my second time through treatment (the first was in 2000), I went ahead and cut my hair into a pixie cut like I had in 8th grade.  Has anyone seen a really short pixie cut wig?  My thought is that I (and friends) get used to the short hair before I need the wig and that my hair will regrow to the short length sooner than  the bob style that I've worn since 9th grade (LOL).

  • Amos
    Amos Member Posts: 5
    edited August 2011

    Wigs are fun! If you're going to lose, or have lost, your hair, have fun with it! I have 8 wildly different wigs and love them. My hair now is long enough to go without but still wear them some. And I just bought a new one today:-)

  • ellenquilt
    ellenquilt Member Posts: 172
    edited August 2011

    lorenar: My free Gaila hat just came today! Grey velvet. It' really pretty!

  • Denise2730
    Denise2730 Member Posts: 648
    edited August 2011

    I live in Cape Coral and was told Fleamasters had great wigs there also. I may have to check them out.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2011

    Leah,

    I just found this thread today. Although I am Jewish, I am not Orthodox, however I have told friends that soon, I will be wearing a sheitel. You have done a great mitzvah by giving so many women practical tips on wearing wigs. Hope you had a good New Year.

    Caryn

  • Leah_S
    Leah_S Member Posts: 8,458
    edited October 2011

    Caryn, thank you!

    May you be inscribed for a good, sweet, HEALTHY year.

    Leah

  • maryk4
    maryk4 Member Posts: 4
    edited October 2011

    So far, I haven't seen anyone with my particular problem.  My natural hair is short and very thin/fine.  healthy looking, but fine nevertheless.  My first experience with the wigs was awful, as  the amount of hair on them was three times what  I have on my own head!  Even the lightest ones had such thick hair, my face more or less disappeared under it.  Also, my head is on the small side.  Even the petite size was large.  Help!  Anyone with this particular situation out there?  I mean not everyone has movie star hair to begin with.  Don't these wig makers take that into consideration?

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited October 2011
    maryk4 I took my wigs to my hairdresser and he was able to thin them out to suit my face better. They looked very good in the end, but really I wore hats all the time and only wore my wigs a handful of times.
  • maryk4
    maryk4 Member Posts: 4
    edited October 2011

    Thanks, Carrol2.  I found the courage to try again on Saturday.  This time my daughter came with me and we went to a real salon.  I couldn't believe how wonderful and patient the stylist was, and I actually found one.  The color and style were perfect, so once I committed, she thinned it and styled it right then.  My daughter thought it looked so good, she encouraged me to wear it home.  Guess what?  My husband was talking to me about different things and he didn't even notice the wig!!! When I asked him what he thought, he said "About what?"  And I pointed to my head and he said "Did you go today?  Did you get anything?"  I guess that said it all.  One load off my mind. A small thing in the grand scheme of things, but important to me nevertheless. I will have my first chemo treatment tomorrow.  I am still nervous but I guess I'll get through it.

  • Carrol2
    Carrol2 Member Posts: 2,903
    edited October 2011

    maryk4 I wish you an easy treatment. I am glad you found a wig you like. Keep your head up, think positive. Remember the chemo is temporary it will end. And never be afraid to call your oncology office with questions about any side affects no matter how small.

  • Mardibra
    Mardibra Member Posts: 1,111
    edited October 2011

    So, I went for my first wig appointment today.  Pleasantly surprised. The salon has a private room in the back where the do the wig consultations.  They clearly do a big business in wigs at this place.  They have synthetic wigs, real hair wigs, and synthetic/real combo.  I opted for the 100% real hair.  It looked and felt the best.  But, expensive!  The cost includes the color and cut they will do to exactly match my current hair.  I was surprised how good they looked!  If im going to be bald, im going to rock a great wig!  I will pay anything to not look like a cancer patient.

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited October 2011

    Congrats on your wig purchase. I got mine a few days ago but opted for synthetic as I know I will not be motivated to care for human hair, or pay for it. It still looks pretty darn good and most people would be hard put to tell it is a wig. Also got a halo (fall) to wear with hats and scarves. Not looking forward to being bald but I hope to have a bit of fun with it! Caryn

  • Mardibra
    Mardibra Member Posts: 1,111
    edited October 2011

    ya, the cost was a bit shocking but we all end up with what we are comfortable with.  Im thinking i should buy a pink or blue or green synthetic for fun.  Why not?  I will cross that bridge once hairless.  Never in a million years thought i would end up buying a wig.  BC sucks.

  • RachelsLife
    RachelsLife Member Posts: 16
    edited December 2011

    I went wig shopping for the first time this weekend - decided to take my 3 older kids (aged 8, 7, and 5) to make the wig wearing seem more "normal" and to get their opinions - my 5 yr old picked out a wig that looks just like my natural color, but my 8 and 7 yr old daughters begged me to get the bright blue one they had displayed :) I did try it on - and while I opted not to pay hundreds for a bright blue wig, I went on-line and found a colorful wig for $9.99.... I will wear it for special occassions! I agree that if we have to deal with baldness, we might as well do it with humor :)

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