Susan G Komen
Comments
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Thank you Athena and especially thank you MarieKelly for a beautifully worded, respectful and informative reply that doesn't put anyone down (and I completely agree with your summary). I'm hopeful that we can make a new start here as BC sisters who support each other despite our different approaches.
Here's to friendship. (Raising an imaginary glass.)
And now to bed. It's been a long day.
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My MIL, a smoker, died from heart disease in her early 60s. Maybe it wasn't lung cancer but she died from smoking. There are other examples. Jerry Garcia, whom everyone was shocked died so young from heart disease, was a smoker.
Not to mention the other cancers caused by smoking. Oh yeah, and lung cancer, which has an extremely high mortality rate.
Smoke if you want. Its your business. But you should probably temper your rationalizations.
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Leia, you wrote this:
"........But to read the Main Stream Media, Smoking=Lung Cancer. What nonsense. ....."
I can't believe I just read this this.
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And it's these studies about breast cancer and inflammation that gave rise to the use of Celebrex, and other COX 2 inhibitors, to help treat cancer by reducing said inflammation. I'm using Celebrex right now for that very reason. There is even a blood test for inflammation so anyone can see how much of it they have ... it's called C Reactive Protein (CRP) and is also an even better indicator for heart attack/stroke risk than is monitoring cholesteral.
xxoo
Melissa
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For anyone with inflammation, blood pressure, cholesterol problems etc., I would definitively try (and be really serious about) the 'modify the diet, lose weight, exercise' route before resorting to medications (which can have unwanted SEs of their own). Unless, of course, your problem is at a life threatening level or can not be controlled even with real life style changes.
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Ruth very sensible. I need to talk to my Dr' about the meds I'm on for cholesterol. First I need to see if the Femara is effecting my cholesterol, but then ask him if I really need the stuff just in case which is why I am on the stuff.
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MarieKelly, thanks so much for your response. And you wrote:
"I wish you the best, Leia - I really do. Just don't let yourself get too far out there. I agree with a lot of the things you say, but everything isn't just black or white, conventional vs alternative. There are many shades of gray, so don't just put on the blinders, latch yourself onto one view and completely discount another."
But then, I'll just repeat what I wrote:
"And I look on starting the FOCC as the start of my new life. My life of calm and equanimity. It literally changed everything about my life. I just started feeling great. For me, it was that I didn't know how bad I had been feeling before the FOCC until I was on it. When I started feeling great. As I do to this day. And negative mammos ever since."
At this point, I don't care if the FOCC cures breast cancer or my Leio cancer or any cancer. Maybe it doesn't. Maybe I'm just some deluded idiot. Although, right now, I have neither cancer recurrence. After 7 and 5 years.
What I do know is that I feel ... GREAT. And that is how I am going forward with my life. Doing what makes me feel great.
Women who have BC and other cancer treatments and feel like hell and then are complaining about all of the symptoms of the treatments ... why do the "treatments?" I remember Farrah Fawcet on Larry King LIve and Farrah was telling Larry about the horrible side effects of the chemo for her anal cancer. And Larry just asked her, "Well, then, why do you do the chemo?"
Why indeed. Farrah died, within months of that interview. And whatever your view, the chemo certainly made Farrah's last days a living hell.
And MarieKelly, you are right. In both of my cancers the surgery was curative. Yet I credit that bogus January 2009 BIRAD5 diagnosis that turned into BIRAD0 with changing my life. Because it put me on the FOCC.
You have had equal success without changing your lifestyle. Your cancer has not come back, either. Great.
But I'm just saying what happened to me. The FOCC changed my life. And I went to the doc after 1 year and my cholesteral had dropped 20%. It hadn't been high, before, but it had dropped. It's the Omega3s in the Flaxseed oil.
My basic belief; our diet controls our health. That is it in a nutshell.
Oh, and the D3. Which may even be more important than the Omega3s.But then, I do both, so I will never know. Which is benefitting me the most.
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As I recall, Farrah had refused conventional treatment (including a colostomy that may have saved her life) in the U.S., and was doing experimental treatments in Germany instead (injecting chemo right into the tumor). At that point it was a last ditch effort and really had little chance of success.
Omega 3 is also in oily fish. Two servings a week should give you what you need. Vitamin D is definitely a big deal!
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Have any of you ladies tried Cod Liver Oil? I know, sounds similar to Fish Oil, but from what I hear from my mother and have read, it's high in Vitamin A & D. I've started to incorporate 1tsp per week, just to ensure I am getting enough Vitamin D & A. Mind you, this is on top of taking 1000 IU Vit D3 every other day.
I managed to get my levels up to 70 using daily doses of Vitamin D, and I've basically ratcheted down my dosage on Vitamin D, as I get a lot of sunshine daily. I am going to request another Vitamin D test in October, and it will be interesting to see if my levels have stayed around 70 or if they have dropped a bit since I reduced my supplementation.
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Yes, I am stage IV and just 3 months ago was almost admitted into hospice. So I would say that's life-threatening. I have tried food/supplements, etc. ... see the Budwig thread which I did before the supplements and inflammation/cancer still marching along. I'm also having to do chemo at this point, but I have my life back and that's more important to me than the "what ifs" as a stage IV gal. I'll leave all that to you non-mets ladies.
xxoo
Melissa
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@melizzard: discussing the economics of national budgets isn't actually quite the digression you make it out to be, considering there is only so much money in the proverbial pot. federal budgets impact all of us, and patients of any stripe have a special interest in healthcare dollars.
and guess what? thousands of Americans "serve" this country without joining the military (read: social workers, community organizers, nurses, doctors, etc etc).i oppose war for many reasons, which include believing our young men and women deserve better. so drop the "aren't you an ungrateful little commie" crap.
@ leia: um, the Budwig protocol was just an example. an exaggerated example. the crux of my argument addressed the idea of cancer "cures" and supposed suppression of same. trust me, I have never considered that protocol a "cure".
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Hi Ruth,
That's an interesting point you made about Farrah Fawcett. I was under the impression that her doctors had given her everything available in the U.S.(conventional) and everything had failed and she had to go to Germany for treatments that were not available in the U.S. I will start researching what happened. I adored Farrah Fawcett!
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i thought that as well about Farrah - it seemed it was spun that way in the mainstream media. she suffered so much. i loved her too - "charlie's angels" was such a fun show. i was starstruck by these glamorous but tough gals! lol
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Elmcity wrote:
".i oppose war for many reasons, which include believing our young men and women deserve better. so drop the "aren't you an ungrateful little commie" crap."Well put. Thanks! -
thanks Orange.
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from a news article at the time:
Farrah Fawcett has revealed she underwent painful experimental cancer treatment in Germany after declining conventional surgery.
The former Charlie's Angels star said she was assured the gruelling therapy had been a success and that she was 'tumour-free'.
But during filming of a long-awaited documentary about her two-and-a-half-year battle with the disease, doctors told her that despite six trips to private clinics, the cancer had spread to her liver.
Miss Fawcett was originally diagnosed with bowel cancer at a Los Angeles hospital in September 2006. After chemotherapy failed, doctors told her that the only available treatment was major surgery, which would have required her to wear a permanent colostomy bag. Instead, she opted to put herself under the care of two German specialists, Professor Thomas Vogl and Dr Ursula Jacob.
Mrs Stewart said: 'She believed it would be less drastic.'
Professor Vogl, 50, who practises in Frankfurt, offers cancer patients a treatment called chemoembolisation, during which chemicals are injected directly into organs at a cost of £3,500 a session.
She also underwent a surgical procedure called laser ablation, which heats up the tumour to around 38C (100F) to destroy cancer cells.
Professor Vogl later assured Miss Fawcett that all the 'active tumours' had been removed, while Dr Jacob, who uses vitamins to boost the immune system at her Alpenpark Clinic in the Bavarian Alps, claimed it was a 'miracle'.
However, just a few weeks later, Miss Fawcett underwent a scan that showed the original tumour was larger than ever and that the cancer had spread to her liver. -
What happened to Farrah Fawcett was so sad. I understand why she was desperate to avoid surgery. A colostomy bag? Made me get down on my knees and thank the Lord for my TE's! But she definitely rejected conventional treatment. No guarantee that it would have worked, though, I guess.
The C Reactive Protein is a great indicator of inflammation. Dr. Block uses that test in his clinic. I wholeheartedly believe the link between inflammation and cancer. And I wholeheartedly believe that diet and lifestyle can do a ton to prevent recurrence and slow cancer (if you have it). That being said, I have done the whole nine yards, conventionally.
And Leia, I find your embrace of smoking weird. It's SUPER toxic. Even if you never get cancer from it. Just doesn't jive with the rest of your philosophy.
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Thanks Ruth,
So she did have chemo which failed her. I recall her wearing a little beanie cap to cover her balding head from chemo. So she declined the major surgery part of treatment. So sad.
Thanks.
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Thanks Ruth,
So she declined major surgery ! So sad. But I see from the article that she had chemo which failed her.
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yes, i think for carcinomas, surgery is very important. people can skip everything else, but if you wait too long for surgery, your prognosis stinks.
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Colon cancer is extremely hard to beat no matter what treatments you do. On a interesting semi-related note, I have started eating a serving of prunes a day for bone health & when I told this to my GP, he commented that if you eats prunes on a daily basis, you also really reduce the risk of ever getting colon cancer.
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I started the prune thing several months ago. It's made me noisier
, and I'm hoping it's helping strengthen my bones and lower my cholesterol. Along with a handful of cashews every afternoon, and the occasional corn on the cob and 12-grain bread etc., plus lots of fruit and veg I doubt I'll need a "cleanse" any time soon!
But speaking of Farrah and her wish NOT to have a colostomy: a very dear friend had the same surgery a couple of years after she married. It took a LONG time for her to get used to it, and her husband never did -- their lovelife became non-existent. OTOH, my DH's cousin had a colostomy at the age of 26. He married the nurse who took care of him while in hospital, and they went on to have 3 children and are still happily married.
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This thread has made many good points. Informative for me. Thanks
Yet, I think we have lost the point of the thread. Which are the six figure salaries earned by the employees at Komen. And that Hala Moddelmog the former CEO of Komen previously worked for fast food chains. I think that we can all agree that the food served at fast food chains is not conducive, to health. Hala was just going for the $$$. Provided in this case, by the "Pink Ribbons."
What I am saying is do you want to "race for the cure" to provide Hala her six figure salary? Or all of those other people listed on that Form 990? And all of the people since, because Hala has now left, probably to some other fast food chain.
I just think this is wrong. I think this is preying, on vulnerable people. First diagnosed. I remember back in 2006, when I was first diagnosed with my 2cm IDC I asked my breast surgeon what would happen if I did nothing? And she said the cancer would suppurate and come to the surface and then, I would die. Wow, that frightened me.
But what nonsense. As it turned out.
Why I started this thread, we have to question "Susan G Komen." And why we are all "racing for the cure" when there is no "cure" espoused by the Susan G. Komen Foundation. They espouse more mammograms and biopsies. And then, treatments of even Non-cancers, the DCIS. But never, a cure.
And Susan G. Komen, herself, was a woman in her thirties that died of breast cancer.
Breast cancer, of women in their thirties, is very rare. Susan G. Komen died of it. And so now, every woman NEEDS all of these MIC "treatments."
Nonsense.
I'm a CPA, bottom line we just can't afford all of these nonsense "treatments." It doesn't make any sense. And when the USofA finally DOES run out of $$$, this will all end.
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Leia says:
And then, treatments of even Non-cancers, the DCIS.
Dear dear Leia, how do you ever expect to be taken seriously on these boards when you make such inflammatory comments such as these? I'm assuming you're enjoying posting garbage like that? Just so you can keep your little thread going, I guess it stokes your self-esteem.
Well, keep on smoking, is all I can say.
Oh, I also wanted to add that I'm wondering if, as a CPA, you've calculated what your smoking is costing the rest of the individuals around you. Obviously you're fine doing whatever you want with your own body, but I assume you've quantitatively figured out the health care costs of other people you pollute with cigarette smoke?
I thought these board were really coming along nicely these days, and then I read more crap.
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I hardly think the bankruptcy of the United States will hinge on breast cancer treatment. I agree with you, Leia, that the corporate nature of Komen is to be examined closely, and I personally can't stand their approach. But let's not veer into an alternate universe.
Cancer treatment is not the bugaboo here. It is costly because of the myriad of components: staff salary -nurses, docs, secretaries, phlebotomists, etc--; facility costs (heating/cooling, maintenance, etc); medications (shipping costs, manufacturing, etc). Could the system improve? Definitely. But again, the United States wasn't in threat of default because too many women took the A/C protocol or Herceptin.
And at some level, I really don't give a shit how much my treatment cost. My onc recommended standard of care, and I'm worth it.
Want to discuss costs? Let's try and review how much poor Farrah paid for her "treatment" in Germany. Bet no one but a movie star could afford it.
Digger, good points all around. And I sadly agree, the nonsense is taking over some threads.
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@sweetbean: i don't know why someone can do surgery "and skip everything else". from a philosophical point of view, surgery is no less, and possibly more, Western than other modalities. from a medical perspective, "everything else" is to kill stray cencer cells, since, unfortunately, they don't implode independently. I'm sure all of us wish they did, but they don't.
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I do think that Hala's salary seems large, however, in defense of Komen, I do see them funding a lot of research for a cure. I was just reading on the Triple Negative Breast Cancer Foundation website about a study they funded, of several million dollars, for a new treatment for TN.
Leia, you said it was rare for women in their thirties to get breast cancer. I am not sure what the point was, but I don't think it is that rare. I personally know several women who got breast cancer in their thirties.
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Komen funds 25% to research which isn't a hell of a lot considering the money they rake in. I will look for the breakdown. They sent the breakdown to my golf club when they were asking if our club was going to do the cure campagin.
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