SHINGLES!!!!!!!!!

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My "rash" across my radiated chest has exploded into shingles, putting my treatment off for a week.  the stress of the radiation has just blown this excruciating side effect up!  This SE has without a doubt, been the WORST THING I HAVE EVER FELT. GIve me 8 more weeks of chemo rather than a chest full of burned skin WITH shingles.  Good Lord in Heaven, have mercy!

If you're feeling itchy, blistered and just plaing miserable during your rads, it could be shingles.

See a dermo...ASAP

Comments

  • sweetcorn
    sweetcorn Member Posts: 188
    edited July 2011

    I'm sorry to hear of your shingles outbreak.  I know so many people who have had bad shingles illnesses.  I asked my PCP about the shingles vaccine, and so she prescribed it last week.  Went by the pharmacy and it is not covered by my insurance.  It costs $206, and it's just not in the budget right now, but maybe I will rethink before I start rads.

    Good luck to you,viviraselena!

  • Blinx
    Blinx Member Posts: 280
    edited July 2011

    That's just not right -- you shouldn't have to endure shingles on top of everything else!!! I'm so sorry that you are going through this. It must be extra miserable with the heat wave that's in most of the country now.

    This serves as a good reminder to me -- I've had chickenpox twice, so I'm sure I'm a candidate for getting shingles. Since they finally lowered the approved age from 60 to 50, and I just turned 50 (yikes!), I'm going to have to look into getting the vaccine.

    Hang in there.

  • vivirasselena
    vivirasselena Member Posts: 278
    edited July 2011

    GET THE VACCINE LADIES!  no joke....I've been miserable before, but this beast takes the cake.

    SHINGLES are no joke...plus they can get infected and that's a real hazard.

    love you all...

    michele

  • beacon800
    beacon800 Member Posts: 922
    edited July 2011

    I am sooo sorry you have the damned shingles! I had them years ago and know how awful it is. Yours would be worse cause of radiation. I am very sorry. The only solace is that the medications do work and they work pretty fast so hopefully you will get relief soon. Hang in there (((hugs))))

  • gale1525
    gale1525 Member Posts: 232
    edited July 2011

    Blinx, I just went to the CDC website and the recommend age is 60. If you know where else is says is has been lowered please let me know and I will fight my insurance on it. Thanks Lynda

  • Kasi
    Kasi Member Posts: 216
    edited July 2011

    If 60 is the "technical" administration age, can you still ask your doctor to prescribe it? Even if it's not covered by insurance, I want it! I start chemo next week (and I'm 31).

  • vivirasselena
    vivirasselena Member Posts: 278
    edited July 2011

    They've officially lowered the recommended age to 50 for the vaccine....however, Kasi, I would talk to your doctor about a preventative prescription for VALTREX.  My dermo who is close contact with my oncologist and radiation oncologist says it SHOULD BE MANDITORY!  a 1 Gram tablet 3x daily would have prevented this beastly, horrific, excruciating outbreak.

    It doesn't hurt to ask about the vaccine OR the Valtrex....but at least get the Valtrex.

    Let's TAKE CARE OF OURSELVES, ladies......

    I love you all with all my heart.  You're my heroes!

    michele

  • Kasi
    Kasi Member Posts: 216
    edited July 2011

    Thanks Michele! I will ask about the Valtrex too, I really appreciate it your response. Have a wonderful day! <3

  • Maybe484
    Maybe484 Member Posts: 170
    edited July 2011

    V, I hope you're feeling better.  Shingles are awful without rads too.  Take care.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited July 2011

    I got shingles about 6 months after finishing rads, I had just turned 60, my primary care doc recommened it but I waited about a month til my onco visit.....bingo got em

    but since I had seen what they were about from others, and a pal diagnosed them......we caught it early so my case was handled quickly once I got to the doc and got the script

    In retrospect, the $250 for the vaccine earlier, it would have been worth it!

    yeap, I heard it is now covered for those 50 and up,  and yes, when cleared by onco, I got the vaccine to help to prevent the reoccurance

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited July 2011

    Not wishing to be the voice of gloom but while the vaccine lowers the chance of an outbreak, it doesn't eliminate it. Also it only lasts for a certain number of years.  My mother--83 and not dealing with any cancer issues--is getting over her first case of shingles.  She did get the vaccine.  Her doctor is thinking it was lowered resistance from other meds and stress.

    If you have had the vaccine, check to make sure you don't need to have it re-done.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited July 2011
    If you have had shingles(and i dont wish it on anyone) and you get the shot my DR told me i would never ever get them again.BUT if you are doing the rads.you have to wait till you are finished with the rads 2 months.before you can get the shot.No matter how much it costs its worth it.I had them many yrs ago and was in the hospital for 7 days in isolation.they are catching....please everyone you are in a weakend condition while you are in tx.be careful.this is no joke and very very painful.
  • RiverSong
    RiverSong Member Posts: 2
    edited July 2011

    I finished rads on 7-15-11 and saw the first indications of shingles rash on 7-23, a week later.  For several days before I had a really bad backache, including burning along my spine.  I couldn't figure out what it was until I saw that damned rash.  I'm on Valtrex now, but I am miserable with burning pain.  Does anyone have topical suggestions?  I've tried dabbing red wine vinegar, Aveeno Calamine & Pramoxine, and this morning Aquafor.  My problem is burning pain, not itching.  I welcome suggestions.  Tryiing to stay strong, but this is tough.  Enough already!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited July 2011

    there is another thread for shingles that was started awhile back.There is lots of very good info on it...do check it out....i feel your pain....hugggggggs K

  • Maybe484
    Maybe484 Member Posts: 170
    edited July 2011

    I'm wondering if shingles can be a pre-cancer flag as well?  I had shingles four years ago, running across my back and breast--the area that coincides with my rad fields.  I think the rads, in fact, have reactivated those damaged nerves, as I now feel the same kind of tingling in my back that I felt after the shingles blisters had gone away.  Disturbing.  I think I'm going to get the shingles vaccination in two months.  I do think there's evidence that shingles can recur.  (I know that doctors tell you poison oak/ivy can't recur, but for years after I had a bad poison oak breakout on my ankle, I'd break out each year at the same place and during the same month as my original breakout.)

    If you'd not had shingles, you certainly don't want it.  Vivi, hope you're feeling better soon.

  • vivirasselena
    vivirasselena Member Posts: 278
    edited August 2011

    The Valtrex helped clear them up....but I'm still BURNED horribly, so I've been off rads for almost two weeks.  I actually had SHINGLES ON TOP OF THE BURN!!!!!!

    What the What?  Anyway, I my oncologist got me to a dermo who prescribed a wonderful steroid cream and it helps so much.  If you have a rash or shingles....get to a dermo and have them talk to your onco.  But you just gotta tough it through.

    Scheduled to resume rads tomorrow...but we'll see. Still pretty raw and painful.

    Love you all

    michele

  • Kasi
    Kasi Member Posts: 216
    edited August 2011

    Ugh, Michele I'm so sorry you have had to go through it. I am so paranoid about getting them now. I start chemo tomorrow. I called last week and asked about getting the vaccine and they said that wasn't usually a standard part of their protocol and that they "rarely" see people in my age group come down with it (I'm 31). If it comes on, they will give me stuff to get it under control. But come on, "rarely" means nothing to me anymore. All I can do at this point is hope like hell I don't get them. Grrr.

  • Letlet
    Letlet Member Posts: 1,053
    edited August 2011

    Hey Kasi, I just turned 32 last month and I finished chemo Feb 3 (i was 31), 5 days later I developed shingles, so it does happen to us esp since we are immunocompromised. I don't think they will give you the vaccine while you are on chemo because i think its a live  vaccine. However as soon as you notice the round little red rashes, let you onc know asap because the Valtrex is only effective if you take it within 3 days (I think) of when the shingles start.

  • 3monstmama
    3monstmama Member Posts: 1,447
    edited August 2011

    What letlet said about tell your doctor fast if you suspect shingles.

    I thought shingles was reactivated chicken pox virus so not something you can "catch." and what sets it off is STRESS. . . .like we need more of that right?

    But cheer up! my cousin--a guy--had one outbreak of shingles and nothing since.  He told me it was when he was very very stressed.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2011
    Shingles has many faces and all of them are ugly and painful...You get them when your immune system is down yes that is true.well when you are in tx.it is down...If you had the chickenpox the virus stays dorment and when your immune system is down it pops its ugly head and it is ugly.AND you can get them over and over again unless you get the shot.I had them many yrs ago and was hospitalized.had them in my eyes.and it is catching too.the nurses would not come in my private room.This is no joke.they were talking about a cornea transplant.so needless to say I had to wait 2 months after tx.to get the shot.PLEASE TAKE THIS SERIOUS.
  • proudtospin
    proudtospin Member Posts: 5,972
    edited August 2011

    shingles attacks when you have a lowered immune system...yeap, rads will do it!

    I figure lowering my risk of the reoccurance, is worth it

    also, I used cortizone 10 cream on mine, as i was on vacation when I noticed it first, when I got to my doc, she said that was a good idea as for bad cases, they at times give cortizone shots

    not sure of the last but cort 10 cream, I loaded myself up on it!

  • FireKracker
    FireKracker Member Posts: 8,046
    edited August 2011

    My heart goes out to all of you suffering from shingles.....Ill be prayin for each and every one of you that you all have a quick recovery....God bless.hugggggggs K

  • Kasi
    Kasi Member Posts: 216
    edited August 2011

    Thank you Letlet! I had read that you got them after you were done your chemo and we're pretty much the same age. I was annoyed when the nurse told me that people in our age group rarely get them, because I know it happens. I will definitely be on a diligent lookout for those buggers.

  • CML0310
    CML0310 Member Posts: 75
    edited August 2011

    Shingles are nasty.  My mom had a major bout with them when she was battling lung cancer...unknowingly  I will add.  Fortunately I didt need chemo or rads,  but the thought of shingles makes me cringe.  I thought they only gave the vaccine if you were 50+ in which case I can't get it.  Any ideas? Also I know of a few people 30-40s whi have gotten mild bouts of shingles who are completely healthy.  Severe stress alone can bring them on as well!   

  • Maybe484
    Maybe484 Member Posts: 170
    edited August 2011

    Wishing you healing!

  • vivirasselena
    vivirasselena Member Posts: 278
    edited August 2011

    YES! get VALTREX..and take it prophylacticly (as a preventative)

    My dermo says it should be standard procedure before we start chemo and radiation.

  • gale1525
    gale1525 Member Posts: 232
    edited October 2011

    I have learned from my insurance that the shingles shot is covered through the medical part of my insurance and not the prescription part,(they cannot just give you a prescription it has to be done at the doctors office) I was about to get it at Costcos for $188.00, I decided to call HealthNet (HMO)  to check to see if it was covered. After some hassle from the doctor (I had Healthnet call the doctor to explain how to get the approval and how to bill for it) I was able to get it without a co-pay. HealthNet has lowered the age from 60 to 50 and the IPA group had to approve it. But to save $376.00 it was worth it (me and my husband).

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