MIDDLE-AGED WOMEN 40-60ish

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Joni - You crack me up!!!

                                             

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    Eph I agree with you Annettes was the best!!!!!!!!!

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  • reesie
    reesie Member Posts: 2,078
    edited August 2011

    I think Annette seems to be making her way around -with pics of her big toe and her A$$ showing up lol. I'm just wondering when she's gonna visit me :)

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  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Yea she really has been showing her money maker!

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited August 2011

    The bathroom floor! Dang! Good one.

    Foxy

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  • annettek
    annettek Member Posts: 1,640
    edited August 2011

    HA! You guys have NO idea...I blame it on BC...actually used to be fairly modest, since having to whack off the boobs and grow me some new ones I let almost everyone see em ahahaha..I take pics for the pic forum on my phone and it dawned on me the other day it is time to start deleting....if anyone found the phone if lost...well, I can't imagine what they would think-it has pics from a few weeks right after the mastectomy to last Saturday!

    Eph- I gotta come to Oregon- one state I have never been in and it looks so beautiful...if I do, I will stay clothed, perhaps....

    Sherry- you I might actually see this week-hubby took kiddo to camp yesterday but I am supposed to go up Thursday afternoon (have to pick kiddoup in Comfort at 9am Friday) and am thinking maybe we can have a cuppa joe....

    Reesie...look out-I go to NYC every spring for work so YOU are on my target list for '12-jersey ain't that far:)

    Paula- you are most definitely in the right place:))))

    how cool it is to wake up and be silly    it is a good thing    thanks:)

    NO WORK TODAY - THIS WEEK (well, except of course on Thursday morning-damn boss asked if I could come in and give a presentation- so FINE, I will, then I hit the road for San Anton...got ticked since I usually go a couple of days before and roam around Kerrville, Fredericksburg....but, it is my yob so I will...answer me this...why why why did I wake up at 430 this morning?

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Annette - Why did you wake up at 4:30 this morning? Bet you woke up the chickens.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    annettek, You woke up at 4:30 because you forgot to shower last night and remembered that your a$$ still had some dirt and gold paint on it (and notice, no one even asked you how that got there!  It was the weekend...don't ask, don't tell.)

    Going for a groping today, but this is the GYN.  My big qestion this time is if I can get TVUS instead of endometrial biopsy on my next visit when it will be time for that.  Want to ask him if I am at more risk for ovarian cancer since I have had B/C? Do any of you know?  (Not likely that I am BRCA+, untested because it is not that probable.)

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    elimar - I had a TVUS at my last GYN appt - wanted to have a baseline established.  Sure glad I  insisted on it.  Mine showed a 1.5 cm fibroid tumor and very thick uterine lining.  I asked if this was because of the Tamoxifen and of course you never get a straight answer.  I ended up having a hysteroscopy D & C.  The TVUS will show a lot of things.  I had mine done right in the doctor's office.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    Elimar I asked the same question about ovarian cancer and was told that if I was BRCA neg then I had no more risk.  so I got test and am neg.

    Annette would love to meet up with you.  I have to go to a 4-H Banquet Thursday evening since I am the secretary for our Extension Office.  I have to be there about 6pm.  Let me know what your schedule is and I will PM you with my phone number.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011
    jo,  My docs plan is to follow me with a yearly endometrial biopsy.  While that is o.k., I was hoping that I could rotate between that and the TVUS (because that shows the ovaries as well.)  I guess what I need to find out is if they are both equally good at monitoring what's happening in the uterus.  If they are comparable, then my preference would be to alternate with them.  I'll be back later with his opinion on that.
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  • cmbear
    cmbear Member Posts: 1,086
    edited August 2011

    Annette--you lucky girl, on vaca this week?? You can wake up any time in the a.m. cuz you can take a nap later if you want! Not such a bad deal!! 

    I've had a TVUS 4 times in the last year to mark the progress of a growth that would not go away. Its not grown so the Gyn onc said come back in 6 months this time and for me not to worry any more. At least I know I am being checked every 6 months for pieces and parts down there. Not happy with the thought that if you don't have symptoms they won't give you a scan. I go tomorrow to my PCP to see if my thyroid has balanced out. Hopefully enough time and chemo has passed that my thyroid is going to start acting normal. I wonder how much the rads had to do with that. . .

    Eli, I'm with you a yearly biopsy seems invasive. A definite for sure answer but I agree that a TVUS every other year might be as good. Have you had previous problems down there before? 

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  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    HI! Mind if I join you? I have hunted through topics trying to find info...I'm Kim...had a mastectomey 5 weeks ago and got a port put in 1 week ago.  Has anyone had problems with chest pain after the port was put in? It seems to happen only in the mornings and if I take ibuprophen i feel better, but i don't like taking it everyday....thanks

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    koalakid - Welcome to the club no one wants to be a member of but glad you found us.  The Middies are a great bunch of gals that are super supportive and fun loving.  I can't help you with your question as I did not have chemo.  I do know someone will come along and be able to help you.

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  • lynniea
    lynniea Member Posts: 611
    edited August 2011

    Hi Ladies Hi Koalakid I did have chemo and a port I did not have that problem but I can see it happening with the the surgery you went through.  I had a problem because mine flips over and I have to flip it back the right way.  What kind of chemo are you having.  I have one suggesting take it one day at a time. If you have more questions you can pm me.  I will be glad to help in any way,

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  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    jo and lynniea...thank you...yes, not a club anyone wants to be a part of but so glad it's here! Never in a million years did i think i would get breast cancer at 45...no family history, and now i will be worried about my teenage girls (13&17).  I don't know yet about what kind of chemo, waiting on the ONCOtype DX results (plus i still have a drain). I should get a call from the oncologist later this week.  I did call  the back-up dr office, they said that if i was having bad chest pain to go to the ER, but i feel better after taking the ibuprophen so i will wait and see what happens tomorrow morning......I'm so glad to have some support other than home, i want to kill my husband half the time! I think he just doesn't know how to handle this whole thing.  Lynniea, I love the koala pic!  thanks again!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011
    Hi, koalakid30, and welcome!  Glad your B/C was detected early and hope you have a low Onco score.  I am not understanding why chemo is recommended for you and you have your port in already, even before getting the Onco results back?  If you have a low score, couldn't you skip chemo?  You put that your nodes were clear, did they find vascular invasion, or something?
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  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    Hi Elimar and thank you! The reason that chemo was recommended was because my tumor was kind of in between the size of doing chemo and not doing it. It was 1.5 cm. My Onc told be that there are 2 type of people, those that do the absolute minumum as far as treatment, and those that do the absolute maximum for treatment. I am the later....I am afraid that if I don't do everything possible right now that something might happen after the tamoxifin and then I'd be in more trouble.  He went ahead and ordered the Onco to get a better picture of things.  From everyone I have talked to, they say it's a good decision to go with the chemo. He said that the only risk factor I had was my age (i personally think my weight had something to do with it, i'm on the large side and have read a lot about obesity and BC...). I would rather play it safe.  I will still be worried about getting it in the left side and right now i wish i would have talked my dr into doing a bilateral mastectomy, it sure would make my life easier (i still can't wear a bra because i have a drain).  I hope this made sense! 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    jo,  I have had two PAPs with abnormal cells, and one that was good after that.  Hopefully today was my second good one.  I have to go every six mos. til next summer because of that, so two years out from the last abnormal one. Fun.

                                                          --------------------------------------------

    My GYN docs comments on the TVUS were: "It's not as accurate as the endometrial biopsy."  "It gives an estimate of thickening."  "The images are shadowy."  (I really had to supress my thoughts of a puppet theater in there.)

    I was asking about TVUS because I think getting endometrial biopsy every year seems like too much, so I asked him if I could get it every other year?  By now, some of you know me as one who likes to get out of this kind of stuff.  He said endometrial cancer can be aggressive, and his aim would be to catch it early.  When he told me that, all together, he had a total of THREE women get endometrial cancer while on Tamox., I realized the numbers are vastly in my favor, because he is older with a long career and thousands of patients.  So, I told him I felt comfortable getting a biopsy every other year, but that I would come right in if I had symptoms.  Like most B/C things, I guess it comes down to personal comfort level when making choices.

    I asked if the biopsy was "hit or miss" on the cells it removed.  He said it was to a degree, but that he is collecting from more than just one spot (which he emphasized with hand gestures similar to stirring a pot of porridge, only horizontal.)

    He said I am not more likely to get ovarian cancer, that is mainly a concern with the BRCA positive women (like Sherryc mentioned.) So, I don't really need the TVUS to look at them either.

    My doc is "old school" conservative, and I'm just sharing his responses, not challenging anything you all have worked out with your own doctors.  My doc hugs patients.  I like that now that I am used to it.  At first I thought, "Hey!  What are you doing?  Keep those hands on my boobs and crotch where they belong!" 

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011
    koalakid35,  Oh yes, the age factor.  That might be tipping the scales on the decision.  I didn't catch your age at first.
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  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    I asked this on another page, but maybe someone here had this experience.  Has anyone here had a drain for more than a couple of weeks? This thing is about to drive me nuts!  My dr has me advancing it about 1cm every 3 days (he is gone this week), the drainage has finally slowed and now I am tempted to just remove it.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited August 2011

    Koalakid39-welcome to the thread.  I was 48 at diag and my tumor was 1.6 cm.  I did not have chemo so I can't help you with your questions about the port, but this is a great place to come for support and answers.

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  • IHadCancer
    IHadCancer Member Posts: 6
    edited August 2011

    Find those who have been in your shoes and support those who have been touched by cancer at www.ihadcancer.com, a new social support network for fighters, survivors and supporters. You can search for people by age, gender, location and type of cancer on this site created by a breast cancer survivor!

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited August 2011

    I've reported the above as spam.  Or is it phishing?  Or is it just low to try and wrangle us over to their online support by using this actual site.  Not right!

    Maybe "IHadCancer" had his/her ethics removed along with the cancer.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited August 2011

    Elimar - I do have a very long history of fibroids and thick uterus.  I was on hormones of various kinds up until my dx last year.  My GYN wanted to put be back on some hormones for this problem and I told him he needed to go take the time and read all the documents the surgeon sent him (GYN was the referring physician) and he would find out that I was hormone receptor positive and hormones are a no-no for me now.  That is one reason why I am going to insist on tht TVUS every year and if he wants to do another biopsy so be it.  I will do what I have to to prevent endometrial CA as a result of being on Tamoxifen.

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  • justjudie
    justjudie Member Posts: 3,397
    edited August 2011

    I agree. Don't like it either.



    Judie

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited August 2011

    Welcome koalakid! Got to see the ultra sound of my gran baby today. My first grandchild from my Kids. I was so overwhelmed, I cried! I hope I'll be around to watch him/her grow up. They don't want to know the sex but I hope it's a girl and it's just lime my daughter. Pay back is a bi£€#. Lol

    DH has some job leads. Keep fingers crossed. Thanks again Annette!

    Foxy

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  • koalakid39
    koalakid39 Member Posts: 42
    edited August 2011

    Elimar and jo1955--you both are talking about TVUS....I had to have one because I will be on Tamox for 5 yrs after chemo.  I thought I was going to jump off the table because it was so painful when she was looking for my right ovary. Did you experience a lot of pain? Now I'm worried because she asked if I had a follow up appt with the GYN and said the report would be ready in 2 days. I'm probably just being paranoid! Thanks, Kim

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  • Paula66
    Paula66 Member Posts: 1,728
    edited August 2011

    Ok I have had 2 box biopsies in the last 2 months.  Sometimes enough is enough.  I am so tired of doctos.  If I have one more body parts poked pulled cut removed scrapped Im gonna scream pretty dang loud!  Ok got that outa my system.

    Welcome loalakid good luck with all your doing.  You have come to the right place.  The gals here I great.  Very helpful, so dont be afraid to ask questions, they will help you through it.

    Well all Im off to flip some breasts, chicken that is, lol Have a good one.

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  • Eph3_12
    Eph3_12 Member Posts: 4,781
    edited August 2011

    "At first I thought, "Hey!  What are you doing?  Keep those hands on my boobs and crotch where they belong!"  Elimar, Aug 1, 2011

    Is there anyone here that doesn't think our thread founder isn't one of the funniest women alive?

    Edited at E's insistence!

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