radiation after bilateral mastectomy?

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  • bettereveryday
    bettereveryday Member Posts: 17
    edited July 2011
    I had advanced stage iv with all three levels of nodes involved on the right side with stage iii and level 1 node involvement on the left.  Did the 8 chemo cocktails prior to surgery and 12 after with 52 herceptin and 84 radiation treatments (including anterior/posterior).  After all of the chemo, during radiation another lump showed in the ancillary nodes on my back.  Radiation has brought the cancer to the cellular level and I am currently in remission.  BUT the chemo before didn't slow or shrink any of the existing tumors nor did it stop the spread to the lymph nodes on the left. 
    So please understand that despite the difficulties of making a decision, for some types of breast cancers, radiation is much more effective than the chemos. 
  • KSteve
    KSteve Member Posts: 486
    edited July 2011

    jashauer:  I am also triple negative.  Even I had a "complete response" to the chemo, there was never a question between my doctors as to whether radiation was necessary for me.  I did it, and other than the inconvenience of going daily, it was easy in comparison to everything we've been through.  I had no issues with my TE's or my skin in the exchange surgery.  My exchange surgery was 6 weeks after I finished radiation.  I realize that everyone is different, but don't be nervous about the radiation.  The way I looked at it is, I wanted to throw everything in my power at this disease.  That way I won't question myself if I have a reoccurence down the road.  But remember, all of my docs were in agreement.  I understand your conflict with the different opinions between your docs.  In the end, the decision is always yours.

    Take care,

    Kathy

  • KSteve
    KSteve Member Posts: 486
    edited July 2011

    Sorry, meant to say "even though I had a complete response . . .".

    That's what I get for typing so fast!

  • hrf
    hrf Member Posts: 3,225
    edited July 2011

    I also had bmx. 4 lymph nodes. RO told me that much better result when do rads. It wasn't too bad. Certainly nothing compared to chemo. A friend had mx with 1 node. Rads was not offered. Unfortunately, 8 years later, the cancer returned. I think rads is the extra insurance

  • Nicoleb
    Nicoleb Member Posts: 10
    edited July 2011

    Hi ladies~

    Just an update: I decided to go ahead with the rads, just couldn't get comfortable with the idea of NOT doing it.  Afraid of regrets, I suppose.  So, far I've had five treatments and am doing fine.  Hoping for minimal impact on my replacement surgery, whenever that happens.  I've got a very conservative PS who usually waits a year after rads...we'll see.  Thanks for all the input - it was helpful.  Best wishes! 

  • Pegs
    Pegs Member Posts: 198
    edited August 2011

    i too was in the gray area, mine was 5.8cm no nodes involved.  i went to 3 different rad docs. to try and get someone to say no you don't need radiation, but that didn't happen, so i had 28 treatments of rads with every other one bolis.  long story short, my reconstruction because of the rads didn't go so well.  my only option is tram flap which i will have done in nov.  but also know that not everyone has a problem with reconstruction after radiation, i took the chance and it didn't work or, but i wanted to do everything possible to make sure there was no chance the cancer could come back ,I wouldn't want to have any regrets just to insure good reconstruction, if you know what i mean.  good luck

  • shortlady
    shortlady Member Posts: 78
    edited August 2011

    I had no positive nodes, but was told from the very beginning that I should do radiation.  I did chemo surgery, more chemo and rads.  I had TEs put in at bi-MX then had implants put in 11 months after radiation.  I really did not want to do radiation.  After talking to my RO he confinced me that I should have it done.  After researching everything I found that you should do everything you can when you get the cancer the first time.  If it comes back again it will be a lot harder to treat.  My PS had me wait 11 months after radiation inorder to let my skin and muscles heal before my exchange.  I also drank 1 protein shake (made from powder shake mix) a day to help with the healing.  I am now 7 weeks from exchange and so far so good.  

  • serenitywisdom
    serenitywisdom Member Posts: 191
    edited August 2011

    All the posts are really helpful but I still am having trouble deciding about rads. I completed 6 sessions of chemo about 5 weeks ago and I need to decide about rads now. I saw 2 radiation oncologists and they both recommended radiation although admitted I was in the grey area.  Factors to  consider are suspicious lympho vascular invasion area (but not conclusive) ; 2 out of 25 lymph nodes positive;grade 2 tumor; 1 extra capsular extension on lymph node; margins  are only 1 mm-  too close to skin (had a skin sparing mastectomy;.  tumor was only  2 cm.;. my "young" age So I don't meet the classic criteria for getting radiation but 2 RO's said cumulative risk factors made them decide to recommend radiation.   My Plastic surgeon I can tell is not excited about the prospect of rads and what that it  will potentially do to skin and silicon implant  which is planned.  I am more worried about lymphadema risk.  How do you all decide to do rads when it is unclear if risks outweigh the benefits?

  • Beeb75
    Beeb75 Member Posts: 325
    edited August 2011

    Hi Serenitywisdom,

    A few months ago, another study came out that showed that doing more radiation (chest wall, axillary area, and supraclavicular area) led to fewer women having a recurrence of BC. You can read about it here.

    http://www.medscape.com/viewarticle/743992 

    These are "interim" results (meaning the study is not fully complete) but it surprised many clinicians. I went to see my RO for a follow-up and asked about it, they told me they weren't changing their reccs yet, but dealing with people on a case-by-case basis.

    It's a very hard decision and one you have to make. If I were in your shoes, I would do it (after all, I did it, and I had a very similar pathology.) One thing I would say is: don't let your plastic surgeon's concern about the cosmetic outcome be a major influencing factor. Do what you think you need to do to protect your health and your life.

    Good luck! 

  • B123
    B123 Member Posts: 730
    edited September 2011

    I have read people stating that they have been treated with Heprecon and Tamoxofin only with Stage 1 and/or micromet.  Less side effects then the full blown chemo and may keep you in the safe zone.  Not sure how true this is but I will be checking it out as well.  I think its smart to have Rads after a BMX especially if a micromet is seen, I agree they are too small to even be considered positive and without the tumor/tissues there anymore and taking Tamoxofin, the radiaition would take care of anything that may have filtered out?  NOt sure if that makes any sense...

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