Motivation

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  • dianenv
    dianenv Member Posts: 241
    edited July 2011

    Good evening ladies!!!

    Just checking in.  I have been working out soo much! Zumba, bodypump and auqafit (at 52 I am the youngest, and get yelled at the most). 

    To comment, this is the only thread I check on.  Everyone here is so positive and supportive.  Once you get to this point, throw away the bad stuff and concentrate on the good!!! We should be happy and thankful to be here. On that note I had a colonoscopy last week and started crying as I walked in (the poor nurse) but made it through.  I am thankful for all I have.  Not what I would have thought but "It is all good" Stay positive and supportive. I do not comment much these days but I do read.  Keep me motivated!!! diane

  • Ainm
    Ainm Member Posts: 781
    edited July 2011

    I joined BC.org two years ago today and very quickly found this thread which was such a support to me.  I dip in and out of a few threads and frequent one or two others which I find friendly and supportive.  Sometimes I feel that visiting BC.org is keeping 'it' all too close to the surface for me and I tell myself I should limit my visits but then another side of me can't stay away because it's one place I feel understood when it comes to how I feel about my cancer experience and I never feel I am being judged.  This thread helped me make a major change in my life by supporting me and encouraging me to lose 100lbs - for that I will always be thankful and I know that I will rely on this thread when I'm finding it difficult to maintain the weight loss.  And it is difficult - I am having great difficulty since my recon surgery almost three months ago.  But thank you and Kmmd if you are reading this I want you to know that it was your '10 minute rule' suggestion that got me going and I still adhere to that every day and I have encouraged quite a few people to use it as a starting point.  As for those other 'controversal' threads - there's an Irish saying for them it's "feck the begrudgers!!" ahem - now please excuse me but I just wanted to get the message across!. You are a great group of women.

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited July 2011

    Ainm - I feel the same way you do. I come to this thread b/c I get tremendous amount of support here. I marked this thread and only a few others as my favorites. When I check in, I go straight to my favorites.

    Harley-- Do you still see your psychologist? Maybe s/he could help you with your resurfacing fears. I am "shopping " for a new one myself. I (we all) do know what you are going through. From time to time I think we all have those fears, but you can't think about them all the time. In order to ease my fear I often use the tapping method (EFT therapy) and some essential oils like Valor( for courage) or Great Relief by Young Living.  

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited July 2011

    I forgot to tell you all that I had another 90 minute yoga class yesterday. Lots of sweating and stretching and soreness afterward. But it was worth it. And I loved it. I was well stretched for my bike ride afterward.

  • Harley44
    Harley44 Member Posts: 5,446
    edited July 2011

    'Spring,


    I must confess that my vitamin D levels are better in the Summer, and I think it is because I am getting LOTS of SUN!!  Living at the beach has it's perks!  lol

    Deanna,

    I did see my primary dr., and he made me feel better (some) about the pain.  He said that since it does start feeling better, and the Ibuprofen helps, it probably isn't anything, but he did order xrays.

    Seems like there is always something to worry about.


    Survivormom,

    I don't see a psych.     I figure I have enough doctors!  and I don't think they would be able to help me.  Some people can talk to a stranger about their deep feelings, I can't...

    Harley

  • Springtime
    Springtime Member Posts: 5,355
    edited July 2011

    Deanna, how about weight bearing exercises? They're supposed to increase bone density. In my two years, I didn't loose any, and had gained a little - though I was still considered osteopenic. BUT I also am having Zometa infustions 2x yearly. So I can't say how much due to Yoga/weights/bike riding and how much to due to the med....

    Tomorrow is an early morning bike ride. It was 105 here today. just INSANE. I hate to wish time away, but the extreme heat has me wishing for Fall already.... ugh. 

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited July 2011
    Harley- I used to have the same standpoint like you. Nevertheless, one of my best friend kept urging me to keep seeing my therapist. So I went and went and went and never told the truth to either my psychologist or my psychiatrist about what really was going on in my head. As a result they were unable to help me either. Then one day I had a breakthrough with the psychiatrist. I cried a lot and got very depressed for a short time, which lasted for about two-three weeks. But the truth was out and now years of anger and frustration that I bottled up was let go. I am now looking forward to changing things in my life that I hope will ease my fear in regards to this awful illness. The reason I am "shopping" for a new psycholgist is because the one I see keeps reminding me of cancer. After all, she was there when I flipped out on the day I was diangosed.
  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited July 2011

    Finally checking in again...

    kmmd - don't leave us!!  I don't know what's going on with some of the other threads, but witnessed some of what you're talking about last year and then I limited what threads I went on, wasn't worth it to me, although it did make me sad.  Motivation is under My Favorites also so I try and just check in here.  Trying to keep positive people in my life.  Some other gals from another thread started a group on facebook last year, so its nice to keep in touch with them also.  They didn't want to come to bco any longer.  Please check in with us as often as you can.  I feel like we have a nice group here, and other positive people are always welcome!!

    Harley, Hope you get your xrays done and get the good news soon. I got a letter from my clinical trials team, I need ANOTHER mammogram (just had one in May) and more blood work for my August 10th onc appt.  Both my DH and I said ("Mammogram, why bother?  Didn't help me before"...but then I think "well gotta keep trying")

    Spring, thanks for the info on the Curcumin supplements!  I asked my onc to add Vitamin D to my standing blood work order.  Last check mine was 32.  GEEZ, I cannot get this level up!  She told me to add another 1,000 to my daily D dose, but I need MORE!  I'm only getting 2,000/day.

    Oh....kmmd, I always think and follow your 10 minute rule!!

    I did Yoga Monday night, Piloga (pilates/yoga) Wednesday night and then attended a Power Yoga last night (OMG, that power yoga is NOT for me, I couldn't do 1/2 of the stuff and felt sick afterward, Like I WAY overdid it)...getting ready to take the train (4 hour ride) to the Bay Area (which is a 2 hour car ride) to spend the night with my DH.  He worked all week/and this weekend, we will drive home together tomorrow.  Then we are off work Monday, he is having a follow-up eyelid surgery.  He is home all next week.  So I'm not sure how much exercise I will get next week.  AND my month membership is up next week at the gym...I will miss those yoga classes (not power yoga though) LOL

    Keep moving cuties!!  HI to ALL

  • Springtime
    Springtime Member Posts: 5,355
    edited July 2011

    Kari, 2K D will take you decades to get it up. I was at 5K and got to mid 50's and now on 5K 2x daily. 

    BIKE RIDE this am!!! (and tomorrow is the plan) We were out very early. It was 86 before 9AM here! over 100 again today. NUTZ!!! 

  • ktym
    ktym Member Posts: 2,637
    edited July 2011

    Hi guys, checking in quick.  Don't get me wrong, I'm still checking in, just not as often for awhile.  I try to stick to a few threads and take a turn once in a while offering encouragement to a newbie.  Most of the time any infighting I can avoid that way, it just got too intrusive over the last few days even trying to stay within those limits.  I'm sure it will go back to normal, until then I'm just not checking in as often.  I'll still be here, couldn't get by without the wonderful encouragement. 

    AINM, always good to see you here.  You are an inspiration. 

    Survivorwoman, boy had to take my own advice the last couple of weeks when I can see a difference in some muscles but didn't like what the scale was saying!Undecided

    For everyone else I didn't get a shout out too.  Thinkig of all of you and keep moving! (even if its only 10 min!)

  • Harley44
    Harley44 Member Posts: 5,446
    edited July 2011

    Hey everyone,

    It is raining here, and we really need it!  

    Hope everyone is having a wonderful weekend!

    Harley

  • Springtime
    Springtime Member Posts: 5,355
    edited July 2011

    We biked again this morning, up and att'em early (I really miss sleeping in on the weekends!) But too hot to bike later typically....

    We missed the thunderstorms because we went so early and I will say at first it was actually feeling a bit COOL!!! It has been so wonderful to be in 70's today with all the cooling rain, vs. 100's!!!! 

    Back to work tomorrow. blahghr.  

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited August 2011

    Hi Ladies--- hope all is well. Spring and Harley, please send those rainclouds up North, New York is steaming again. Nevertheless, I did biking yesterday (4miles) in the evening and I did yoga today.

    Have a great week everyone!

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited August 2011

    Deanna-- how are you doing? I woke up this morning thinking about you.

    You know.... your issue with the lack of estrogen and its consequence really hit me hard. I am 43 and most likely will remain menopausal  for the rest of my life due to chemo's long-lasting side-effects. My estrogen levels are very low and it is unlikely they ever go up again. So, essentially I am going to have to look into talking to my doctors about bone loss. I am sorry you are dealing with all that. Let us know what the doctors suggest for you to do. I am very interested.

  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2011

    I'm doing great, survivor.  I'm already wondering if my primary doctor will want to RX something for the bone loss (seeing her Thursday), but I'm extremely leery of pharmaceuticals, so will also see a naturopathic doctor about it.  I don't think weight bearing exercise alone (Spring's excellent suggestion) is going to give me the bump in bone density I need at this point, so I'm definitely open to more help.  I just much prefer to it naturally, if at all possible.  I'll keep you posted, and it's good that you're thinking about it now and can hopefully prevent a future problem.    

    10 minute rule going into play...  It was miserably hot & sticky here this weekend, but hopefully I can get in a short walk if I leave right now...    Deanna  

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2011

    Deanna, If you find another solution to building your bones outside of weight bearing exercies, LET ME KNOW. I know what you mean about being leery of phara. Very conflicted also. Though, I have had 5 infusions of Zometa... Can't take it forever in any case. !!!

  • Harley44
    Harley44 Member Posts: 5,446
    edited August 2011

    Deanna,

    I like your 10 minute rule.  I think I am going to go out for 10 minutes.... that is about all I can do today.  It's been a long day.  My cat, Thor has been sick.  He has had a urinary blockage.  Our vet cleared it out, but...  he re blocked overnight and we had to take him to a specialty vet for surgery today...  it is in Mount Pleasant, and it was over 2 hours away!

    Harley

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2011

    Oh Harley, sorry about your Thor!! Is he okay now? I had the same thing happen to a cat and he ended up having a "sex change" operation!!! (TMI, I know).

    Yesterday was a day of rest after 2 days bike riding. Today the jig is up! 45 on the elliptical... It's in the plan for the evening!! 

  • Survivorwoman
    Survivorwoman Member Posts: 620
    edited August 2011

    Harley-- how is Thor? Great name by the way. Hope he had surgery and he is OK now.

    I had a nice and long bike ride yesterday, but I am taking a day off form things b/c I have nasty side-effects from the meds I am taking.  

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2011

    44 min elliptical like I planned last night. (could not do the last minute, HA@!!!)

    Tonight shoudl be Yoga, but I have to pack for the Pink Ribbon Yoga retreat at the beach, so will do 2 Yoga's next week. Maybe I will do more on the elliptical at home tonight. I am saying 30 minutes because that way I am more likely to climb up on that beast and do it! :)

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited August 2011

    Hope Thor is doing ok Harley!

    Deanna, I am very interested in what you find out tomorrow regarding bone strengthening SANS the pharmaceuticals...I see my onc next week to discuss this very same issue.  I believe she wants to RX Fosamax, but my coworker had 2 femur breaks from taking this medicine!!  I researched online and it doesn't look good...

    I had my blood work done Monday, and they were supposed to check my Vit. D, but guess they didn't...bummer!  All my other blood work looks terrific!  YAY!

    I exercised Sunday and THAT'S IT!  UGH  DH had some surgery Monday so he's home for the week, and I've been working/nursing him.  I have got to fit in some exercise...I did do Kate's 10 minute rule this a.m. but I need More and very soon!! 

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited August 2011
  • Ellie1959
    Ellie1959 Member Posts: 316
    edited August 2011
    I'm busting in on your thread - hope you don't mind - I need motivation too! I had foot surgery 11 weeks ago and just got the go ahead last week to start exercising - and I've only missed 2 days! Those two days I did gardening but it is not quite the same. 3 years ago I lost about 30 pounds and have put back on most of it GRRRRYellNo excuses though - just sloppy eating and not working out enough. I have had 15 surgeries of all varieties since I got DXed but still need to get it in. I feel so much better when I do something - even if it hurts and makes me hobble, I sleep better and feel less stressed. Thanks in advance for letting me in - Take care everyone - Ellie
  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited August 2011

    Hi Ellie, welcome!!  Girl, you have had quite the surgeries, UGH!!  Are you allowed to exercise now - is your waiting period over from the foot surgery?  Just wondering what kind of pressure you can put on it...

    I walked at lunch FINALLY!!  yay 

  • Springtime
    Springtime Member Posts: 5,355
    edited August 2011

    Welcome Ellie! Sometimes when I garden it's worse than exercising. Digging with a spade in this NC clay stuff they call dirt, it's horrible!! Sweat pouring off my body, etc. I have some digging to do, but am waiting for the 100 temps to abate. I'll get an LE flair for sure if I don't watch it! 

    Well, all I did was pack and didn't do the elliptical. I am not very motivational!!! However, I will be doing Yoga 2x a day on Friday and Saturday, and walking on the beach, so hopefully I will make up for it.

    All packed! Yoga and beach, here I come! I'll see Joy there! Yippee!

    Kariiiiiiiiiiiiii, you need to get the Vit D checked!!!!  Don't you hate it when tests fall off or don't get done after the stick, ugh.

  • Ellie1959
    Ellie1959 Member Posts: 316
    edited August 2011

    Hey - I got the o.k. to walk but it does swell. My problem is my legs, knees and ankles just ache when I'm done - I made it an hour last night walking. I take cymbalta and hydro for pain but it is not cutting it. I know my weight is putting too much pressure on my joints - kind of a vicious cycle isn't it? I really need to watch my diet - August 1st was my do or die date - and so far o.k. It seems like someone is always wanting us to eat out and I don't want to be antisocial but it makes it so hard. And today at work - free pizza. Just normal challenges I know but I don't have much willpower!Yell

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited August 2011

    Joy report back to us, we miss you!!

    Spring, say hi to Joy!  Enjoy your yoga retreat, how fun!!  Post pics on FB :)  And beach walking is the best, so good for your legs.  I wrote to my onc and she reported back that they did test my Vit. D level, but the test isn't done yet...phew!  I will report back what my number is.  She also said my estrogen level is very low, which is good.

    Ellie, OH...I see you have ILC also and are a fellow Stage 3'er like me.  What are you on now?  Tamox or an AI?  I see you were DX'd in '05 so you may be off of everything now?   I'm on Arimidex and I ache like crazy, especially after I do any form of exercise.  Trying to get used to that still.  With the food thing, you may want to allow yourself a small portion (if you can't resist) of the free pizza or the eating out food and supplement it with a salad or something healthy.  I've really tried to clean up my diet, and done pretty well, but still allow a once a week splurge.  I've put on 5 pounds since being on Arimidex that just won't budge, so I'm trying to tone up and work on my weak muscles and balance.  You walked an hour! WOW, now if I walk anything over 30 min. I really ache, so maybe you want to cut that time down or do 3 20 minute walks throughout the day or something like that, see if that helps the achiness and swelling.  Not sure what part of the country you're in, but its sweltering in most states and that makes it hard to exercise.  So glad you joined us! 

  • Ellie1959
    Ellie1959 Member Posts: 316
    edited August 2011
    Hi Kari - I'm supposed to be on Tamoxifen for about 6 more months but I just can't make myself do it - terrible I know - but I feel horrible when I'm on it for any length of time, moody, more achy and just generally yucky. I'll kick myself if my cancer comes back because I haven't been taking it - I went on it initially in Oct 2006 and my onc wanted me on it till 10-2011. He doesn't know I haven't been taking it. I was on it about 2 years and got a 15 cm cyst on my ovary (attributed to tamoxifen) and had to have a total hyst. - which was tough because of my tram flap recon. - the cyst was wrapped up in the mesh - and I had to have a onc surgeon do the surgery- that put me into even more menopause than chemo and tamoxifen. I did try aromasin - hated it - made my hands ache so much - then femara. I am 51 so I probably would be starting menopause anyway I guess but before my hx I hadn't even started. We are having Pizza Slut za - which s not my fave so one piece should do me!Tongue out
  • dlb823
    dlb823 Member Posts: 9,430
    edited August 2011

    Welcome, Ellie!   And I second Kari's WOW on walking an hour, especially in the heat.  Good for you!  Hopefully knowing we're rooting for you and your health will help you eat just one small piece of pizza today!  :)  

    I just returned from a 45 min. walk.  Thank goodness the oppressive humidity we've had all this week seems to have passed, and I got in 45 mins. while we still had some long shadows and a slight breeze.

    My PCP appt. was kind of disappointing.  I only saw her PA, and, as sweet and lovely as she is, she really didn't give me any substantial information -- be sure I'm using calcium citrate (I am); take more Vitamin D (although they neglected to test my D level this time); the suggestion that having rads could actually be playing a part in my bone loss (which I didn't know); and some at home weight bearing exercises, like wall push ups.  I'm hoping for a lot more from the naturopath I plan to see soon, and even my DH was quick to point out that's what I need at this point.

    Can't believe it's Thursday already.  This week seems to be flying by ~   Deanna

  • kfinnigan
    kfinnigan Member Posts: 1,729
    edited August 2011

    Ellie- so after the total hysterectomy (which is awful), they tried AI's and when that didn't work for you because of SE's, they put you back on Tamox?  I have another sista who is taking a Tamoxivacation because of her SE's, but then she's deciding whether or not to keep taking it.  When do you see your onc again?  51...you're still WAY young girl!  I'm 49, right behind you.  I wouldn't think a few months would make that much difference, but what do I know...I'm learning new things everyday from all my sista's. :)  We are totally cheering you on in moving forward with your health as Deanna said!!

    Deanna, what a bummer regarding your PCP appt.  I'll be anxious to hear what your naturopath says.  I'd love to find a naturopath, I wish Kaiser had them.  Do you know what your number results are from your dexa scan?  It's my spine that has the most bone loss -2.1 (-2.5 is considered osteoporosis).   

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