I say yes, you say no, OR People are Strange

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    Hey Enjoyful .. I washed my granola bar down with fruit punch gatorade!

    Bren

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Some history about my onc, a really nice guy who I have known for 25 years(our kids went to school together) On my first visit we discussed treatment optons and he gave me copies of studies to back up his treatment plan. ACT/H and 5 years of AIs which was the standard when I was diagnosed. He knew me well enough to know I would read and understand the studies. I do understand what each piece of the plan added to my statistical chances of surviving ten years and I was on board. But now the idea of spending any more of those ten years in constant pain is unacceptable, especially because the ten year survival rate for heart failure is abysmal.I do understand that heart failure caused by a chemical is generally resolved once the chemical is removed(herceptin, alcohol for example adriamycin is an exception ) but I had adriamycin, I had a virus right before I went into the hospital (another possible cause of the heart failure) so nobody know what my prognosis is especially since heart problems from adriamycin can show up years later and my heart function was very low. I am not spending even one more year with muscle joint and bone pain and dizziness. Can not do it.

    I do not share this much. I was going to explain why but I think you all know. Anyway heart failure is only one of the 4 life threatening illnesses I have had since I was diagnosed. I must be too mean to die.

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  • 208sandy
    208sandy Member Posts: 2,610
    edited July 2011

    Enjoyful:

    What is with the Snickers and Gatorade for dinner???? 

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Frozen pizza, red wine and ghirardelli darrk and caramel bar. Mmm...

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  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited July 2011

    Jeez, rosemary, you're one of the nicest people here!  I understand your unwillingness to continue with an AI.  Quality, baby.  You need a good quality of life.

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  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited July 2011

    I'm so thirsty lately and Gatorade works.  Must be the heat.

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  • Wabbit
    Wabbit Member Posts: 1,592
    edited July 2011

    Riley ... just a suggestion but don't you work for a different part of the same organization?  If so you might be able to ask your supervisor about the situation on an informal basis.  He/she might be able to tell you if that is in fact a rule ... and if so if there is any way around it.   The other option is to contact HR and tell them what you are trying to do - find out if what you have been told is correct etc.  

    Happy Anniversary to Barbara! 

    Yeah for good news for Rosemary ... now go celebrate that the stupid appointment and the stress those things cause is over!  We were all good in there weren't we :)  I kind of wish you had told your doctor you had a lion, an otter, a rabbit, a flower person and some other humans in your purse.  Of course, you probably would not have been able to check back in here for a few days if you did.  

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    E

    Red wine works better.I am home alone eating chocolate and drinking red wine. Health food!!!!!!!!!

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011
    Rosemary - TOOOOOOOOO GOOOOOOD TO GO - we'd miss your "quacks" too much, and who else could have the vapors with the finesse you do Embarassed
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  • 3monstmama
    3monstmama Member Posts: 1,447
    edited July 2011

    Rosemary for what its worth in spring of 2009 my mother was diagnosised with mega heart failure due to unknown causes.  Her suspicion has always been that it was related to one of the many meds she was on.   She was down to something wacky like 15% function.  She was still having issues at the time of my diagnosis.

    Today she is better showing no signs of the same issues. The heart specialist declared her healed/recovered from the heart failure.  They gave her meds, they stuck in a pacemaker and defeb-thingee and she pushed forward. It wasn't fun but she kept a positive attitude and next month we are all going off to France together. 

    So here's to you being off the wacky med and back to being healthy!!!!!

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Oh dear, oh dear an attack of the vapors coming on. You all are sweet Do ducks blush? The answer is yes.

    I hold my sanity together with twine, duct tape and good friends like you.

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  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    ((( Rosemary )))  I think it's time to go for quality of life. 

    Sending you hugs,

    Bren

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Momma

    Had the 15%. Have the defib/pacemaker. Had 3 granddaughters in the last year. Am not going anywhere. Maybe not too mean but surely too stubborn to die.

    The nurse at the onc's office told me at least you can swim when I said the shoulder pain wouldn't let me do the breast stroke. Grrr. I told her I had no plans to curl up in a ball somewhere.

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  • apple
    apple Member Posts: 7,799
    edited July 2011

    best of luck Rosemary.. perhaps redesigning your treatment plan. 

    BLT's and 'french' potato salad with herbs, vinegar and olive oil.. should have boiled an egg or two to go with it.

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011
    Rosemary: You beat me. I've only had three life threatening illnesses (one still a threat and the other still present). And I agree with you. As the James Bond movie says "there is no point in living if you can't be alive." That is why, after 18 months, I quit Tamoxifen. And it's why it galls me so much when some people on BCO try to impose their treatment choices on others based on the false premise that all of us want vital signs functioning for as long as possible. Wrong. I want vitality. Without that, I don't care to breathe. 
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  • lassie11
    lassie11 Member Posts: 1,500
    edited July 2011

    We had noisy potatoes for supper here - so named by my 22 month old granddaughter because I mash them with an electric mixer. She squeals with glee as she sits on a stool at the counter while I mash them and then is delighted to lick the beater as if it were candy.

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Well there was heart failure, a blood clot after surgery (that freaked me out more than it should have because that's what killed my mom) breast cancer, asthma symptoms that went uncontrolled for a year because everybody assumed they were from heart failure until I figured it out oh and lets not forget the pnuemonia I wouldn't let them put me in the hospital for. I take a licking and keep on ticking. I must have things to do yet.The asthma is under control now but flares more easily after a year of symptoms, the breast cancer is what it is the blood clot is gone and my heart is okay.Life is good.

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  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited July 2011

    (((Rosemary)))

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  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited July 2011

    We're tough old broads Rosemary!

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  • JoanDavies
    JoanDavies Member Posts: 160
    edited July 2011

    {Rosemary} If it's not one thing, it's another...

    Sunflowers: I have to wait until August 16 for the implant activation. Augh! That's about 6 weeks of hearing absolutely nothing out of one ear. Man, even with hearing aids, stereophonic hearing is so critical! And I don't think they sewed my scalp back together properly because I look like I have a Dumbo ear on the right side of my head. (I'm sure it's just the swelling, please let it just be the swelling.) If all goes well though, I will get the left side done too. After paying so much out of pocket for the breast cancer treatment at the beginning of the year, I'm getting everything else done possible the rest of the year so I don't have to pay a dime. After all these years of paying into the health insurance program and being enviably healthy, I'm totally getting my money's worth now!  

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  • RetiredLibby
    RetiredLibby Member Posts: 1,992
    edited July 2011

    (((((Rosemary))))) friend standing by right here with duct tape and wine and chocolate and love. I will even share my inhaler and my nebulizer!



    Hamburger with havarti on an onion bun, a 16-oz glass of 1% milk (DH will not allow skim in the house since he is from Wisconsin) snd now a bowl (cereal bowl, not ladylike dessert bowl) of Turkey Hill lite vanilla ice cream.



    L

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  • Ang7
    Ang7 Member Posts: 1,261
    edited July 2011

    mmmmm...garlic chicken in the crock-pot.  The whole house smells like garlic.Smile

    Had to take the dogs to the vet for their shots so dinner is a bit late tonight...

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    Trader Joe's.

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Alright, now I'm embarrassed. My life is good and I don't want it to sound otherwise. I know so many people have it worse than I do. No more b*tching. More chocolate.

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    (((( Rosemary))))  it's all going to start FEEELING so much better - no SE's.  Yeah.

    Noisy Potatoes - I'm in love.  Aren't the comments kids come up with THE BESTTongue out

    Joan - we'll all be waiting with you to "hear" the good news on 8/16.  And I'm sure it's just swelling - even the tiniest little cut on the head bleeds so much, and swells, I can't imagine what the surgery you've had must take to recover.  But it's going to be SO exciting for you when it's activated. (That's the word I couldn't think of: activated)

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Joan

    You will be hearing out of that ear on my birthday. A very special day!

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  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    There is almost too much suffering associated with illness sometimes. That is how one appreciates how wonderful it is to laugh. And celebrate. And love life, so long as one can truly live it.

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  • Enjoyful
    Enjoyful Member Posts: 3,591
    edited July 2011

    Good words, Athena.

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  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Athena, so true. I appreciate the good things in life so much more now.

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  • sewingnut
    sewingnut Member Posts: 1,129
    edited July 2011

    If you guys want to laugh, go over to The Crust to my Bread thread.  Giggles all over.....

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