INSOMNIACS place to talk in the wee hours

Yes I think I need to start listening to my book on tape, last night I actually slept through midnight to 7am and didn't have to get up to pee once, I was shocked when I realized that this morning, that my friends is a once in a blue moon happening these days, and we'd stopped and ate late at Dennys where I had a glass of water, a glass of milk and then a cup of tea when we got home, on a normal night I'd have been up 2 or 3 times.  Nite all.

If I don't 'go' every three hours during the night, I dream about trying to find a user friendly toilet.  Usually the first one I find is full of water and paper, the next one has a locked door, then there is the one where there is a que a mile long outside.  Then I am out in the bush looking for a big tree to hide behind and when I get behind it, a crowd comes walking by. 

If my dream lets me actually sit on a toilet..........I am in big trouble!  This all started the first night of my first chemo in '95, when I hurled myself out of the bed just in time.......mind you, I had a puddle to clean up once I stood upright............no carpet then thank goodness.  

Now I have that same dream every time I need to go while asleep............have tried to train myself to wake up when I recognise the scenes, but it hasn't worked so far.  I usually have to get up at least 2-3 times each night and, on the very rare ocassions when I don't, my first reaction on waking is to feel the bed under me.

Sheila.

I remember those times well Chrissy, I had about 7 yrs of it!  My D-i-law is still going through it 10-11months later, says she won't be having another one after this. 

Keeping my fingers crossed for tomorrow when I should hear the result of the MRI last week.  Got a feeling it won't be good, but worried that DH is going to take it badly.  He thinks his Dr Red (Resveratrol) is going to cure me..............!  When I tried to clue him in to the problems he poo-poohed me, said I was inagining things.

Leaves a bad taste in one's mind.

Sheila.

Thanks Chrissy, you are so good at bolstering us up when we aren't feeling positive.

Hugs back at ya,

Sheila.

Oooh, it's 1 am here.

ok this has been a long weekend, the old malabar ulcers are back on my reconstructed foot, at least the swelling and huge blister are gone. It burns but the worst is the itching plus I was dealing with side effects from the ALS - nausea and vertigo...hmm wall paper moving is not a good sign. I had to go get kitty litter- I was checking to see if my population had increased or they had a party. I treated myself to a milkshake that just gave me a headache so I took otc antivert and slept.

It is in the mid 80's but heat index is 95! I am up late doing laundry and baking chicken in the middle of the nite.

I dont dream or I have no memory...I stayed up most of sat dealing with the ulcers to keep them open to air and rinse and coated them every 2 hrs...there is no cure. I may go to the doctor mon or tues but I have kept the inflammation localized, steroids, antifungals and antibiotics make it worse. just another thing to deal with...it is the worst I have seen it since 86 si I do think my ALS is contributing.

Chicken is baking with parmesan italian dressing, stuffing and dessert some fruit. My sis cannot believe I am cooking - told her I have to eat. I notice I do better with my home made stuff than fast food. Taco bell is the only thing open late - it is an older one and they really load up whatever you order, plus if I cant tolerate something they are good about not putting it in my food.

ok I am off to check laundry, switch loads and get some chicken!

Just popping in to say hi, I've been doing well in the sleep department, running around visitors has kept me on my toes so I'm completely exhaused at the end of the day.

Hi Haunie, I'm here!

Hi gals. Was keeping myself entertained playing Zuma Blitz on facebook.

Surgery date for PMX is only 2 weeks away. I've been thinking a lot about it, just to make sure this is what I really want to do. Basically it's a "which look do I dislike least" decision. I've actually been able to get a pretty good idea of what my chest will look like post surgery. Believe it or not, I've found myselt standing topless in front of a mirror and pushing my remaining breast to the side to get an idea of what having no breasts will look like. I even have an appropriately placed scar due to reduction on that breast from an unsucessful reconstruction attempt. Then I let my breast fall back into place and I'm doing "which is better - this or this?" like I'm in an optomotrist office getting my eyes checked. After 17+ years with one breast, this is going to be a real change. I think I'm ready for it.

Almost won a game of mah jong. Think it's time to try and get some sleep.

hey chrissy, just stopping by to ck the threads. i think my bodys adj to the new meds.. ive spent the day in the Bath rm.. but, if its working, it has to "redirect" alittle. im sure. Im hoping its' a sign my GI is doing a better job!!!later.........hi hauntie......3jays

Hauntie,

Can I steal your photo avatar, I love it.  Just started a New England Breast Cancer Sister in Hope facebook Group, trying to figure out how to  post links so I can get out there.

Hauntie, I remember you said you were having your thumb reconstructed but I had forgotten that it was so close....end August is just four weeks away!  I sure hope you are feeling okay from the PMX before that is done!

Chrissy - I had the right one done in June. The surgery was a piece of cake - local anestesia and sedation - took about an hour. About 4 hours post surgery was a whole different story - pain wise, but that subsided quickly. I'll have a cast on for a couple weeks. I am so looking forward to not having to struggle to hook a bra during that healing process.

Liz - I just checked it out and sent you a request to join. Who is that cutie in your profile picture? - Lynda