Anyone with Mucinous Carcinoma & DCIS

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SaraAust
SaraAust Member Posts: 41
edited June 2014 in IDC (Invasive Ductal Carcinoma)

Hi ladies, I was hoping to get some advise from others that have been diagnosed with what I have been told is a rare breast cancer Mucinous Carcinoma and DCIS. I had a NSM on my left breast on the 28/4/11 due to results from a core biopsy showing ADH. I am ER+ PR+ HER2- the DCIS was 11cmx6x45cm and the Invasive Mucinous Carcinoma was 1.2cm. I have been told that it was slow growing and that this type of cancer rarely becomes met. The DCIS did grow quite rapidly as I had an operation last year on the same breast for a papilloma and the DCIS reached that size in 11 months. I had the sentenal node removed and it was clear. I have been advised by my BS & Onc that I do not need to go onto tamoxifen but that it is my choice whether I do or not. My question is to those of you out there that have had this same diagnosis as to whether you decided to do the wait and see treatment or try the tamoxifen for reassurance? I will be having an MRI on both for my peace of mind next month (my asking) but I'm not sure how much this will reveal as the mammogram and ultrasound did not show any of this at the start. I know that many of you are taking tamoxifen for DCIS so I'm not sure that I would be making the right decision if I don't take it with the added IMC. All advise will be most appreciated. Thanks...

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    Unsure123....I'm going to bump up an active thread about Mucinous Breast Cancer...Please look for it and read it.....

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  • SaraAust
    SaraAust Member Posts: 41
    edited July 2011

    Thanks for your reply but I'm not sure what bumping up an active thread means and how to look for it...any help would be great...sorry although I regularly look through this site I've only posted a few comments and I am not familiar with everything yet...

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    unsure123...Go to the top right corner of this page and look for the word "search."  Click "search" and then a box will come up to do a search that says "key words"   .....Then put in the words mucinous carcinoma breast and press "enter"...and you will see the other active thread with lots of information regarding mucinous carcinoma.

    I am also "bumping" up the active thread.  That means that if you click on "active threads"  ( again you will see that option across the top of this board... I will try to have your thread and the mucinous carcinoma thread near each other....so... try to look for the other one.

    I will keep "bumping" it up today...until you find it and reply on it.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    you can also click on the "just diagnosed" forum and find the mucinous breast cancer thread!

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    bump

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  • SaraAust
    SaraAust Member Posts: 41
    edited July 2011

    Thank you so much for giving me so much info on this type of cancer. I know that the doctors seem very relaxed about it and don't feel that I need to go onto tamoxifen but reading about others and what they did with the same diagnosis will really help me to decide what course I should take. My other concern is the DCIS though so hopefully reading these posts will confirm whether or not it is common to have both types of cancer together and whether that made a difference in their choices of taking tamoxifen. My BS and Onc are both confident that because I had the NSM and the sentinal node was clear that I am not high risk but that I should weigh the benefits of tamoxifen with the potential side effects. The statistics given to me were that 4% of women in my situation will not survive the 10 year mark and by taking tamoxifen that was reduced by 50% to 2%. It's difficult to decide as to whether those statistics are worth the risks involved with tamoxifen. Thanks again for taking the time to get me onto these threads. I'm taking everything one day at time but I know that I need to start making a decision soon. I'm so glad that this site is available and that there are so many experiences that everyone is so willing to share to help those of us that feel lost and confused at times.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    unsure....I'm glad you found the other thread.  I hope you will continue to post on the other thread.

    Keep us posted and good luck with your decisions.

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  • voraciousreader
    voraciousreader Member Posts: 7,496
    edited July 2011

    Not sure if the link works for the other thread....just testing....

    http://community.breastcancer.org/forum/5/topic/733018?page=11#post_2528409

     

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