Women under 45 stage II w/node involvement?

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  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Hi crystal, have a Happy Birthday!!!! Its so nice to hear from women that are out there living life normal again after going through surgery, treatment, etc..... It gives me SO much hope that I'm going to get there too and my life won't always revolve around cancer!!! Thats how it feels now....



    Tammy, my daughters 8 and I know the first thing that's going to come out of her mouth is "are you going to die". I think that's why I've struggled with telling her the whole story yet..... Soon though. I'd like her to help me pick out my hair....and I need to get on that fairly soon.



    I meet with my oncology team this Tuesday to determine my final treatment path now that I have my pathology report back from the AND.



    I drove myself to Target today to buy a few things.....it was wonderful until I opened the back gate of my Escape without thinking..... It took so creativity and some pain on my part to get it back down. BOO!!!

  • Suz39
    Suz39 Member Posts: 125
    edited July 2011

    Hi All,

    I think coming to this thread is going to be a daily ritual for me through my journey.  It just feels so good to hear other's stories, and be able to relate!  You are all so strong, and we are in it together.

    Taylor, I was also terrified of the surgery.  I did two things.  One is that I spent a lot of time on the internet looking at pictures of women with mastectomies.  You can see them on websites for plastic surgeons.  It really is not as bad as you imagine.  I decided on having DIEP reconstruction, which went well for me, but it is a big decision, and you don't have to do it until later if you don't want to put yourself through that much trauma all at once.

    The other thing that really worked for me was something that my therapist taught me.  I couldn't believe how well it worked, and I don't know if I can describe it well enough, but here goes.  It has to do with breathing and simply using your thumb and index finger of one hand to rub the sides of your thumb and fingers on the other hand.  The spot that you rub is the fleshy part beside the fingernail, just gently, but strong enough that you feel it.  You do each finger and thumb for 2 deep breaths, and then move to the next.  I had never heard of this before, but it really really calmed me down.  I did it every day, and any time I felt anxious.  I went from having moments where I didn't think I could breath, because I was so anxious to feeling very calm and relaxed about the whole thing.  It was weird, but it worked, and I still do it.

    Good luck.  I'm off to make a dream catcher with my 4 year old :-) 

  • sundermom
    sundermom Member Posts: 463
    edited July 2011

    Yesterday I had my post rads follow-up appt with my MO. I got my prescription for Tamoxifen and we talked about survellience. I will have a PET scan in October (just about 1 yr. post dx) and a CT every 12 weeks after that for 2 years. I will see the MO every 3 months for two years. My MO said the first big hurdle is ...two years. I happily took my Tami last night and inquired about joining the local YMCA today. I'm trying to use this as an opportunity to break some old habits and form some new ones.



    DH and I have to go to a wedding tonight. I'm thinking to going "topless". I'm 12 weeks PFC and have really nice boy/military hair right now. It's time to ditch the scarves and begin living life post BC. (I'm trying to talk myself up here girls!).



    I'll just say again that I love this thread!!! We are a unique group of YOUNG women here and I'm looking forward to getting to know each of you better. I'm finished with tx (BMX, SNB, AND, chemo and rads) now so if I can help any of you on your journey please don't hesitate to ask. :)



    Tammy

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    Still can't beleive that their our so many of us dealing with BC and having small children...just doesnt seem fair...but were going to beat this!!! We will win this battle!! I am so grateful for coming across this site, I feel so much better...:) Thanks

  • LNCollins
    LNCollins Member Posts: 4
    edited July 2011

    So, I'm not alone out there!

    This BC journey has been incredible to say the least. I was DX at 37, had BXM w/TE last November. Started chemo in Dec., finished in April, 4 AC and 4 Taxol. My MO had me start tamoxifen after chemo. I just finished 30 rounds of radiation, the burn is nearly unbearable :/

    I can see the light at the end of the tunnel though, just have to complete recontruction and have a hysterectomy/oophorectomy.

    I'm thankful for everyday that is given to me!

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    Thanks Suz39 I'm going to try those breathing exercises!! I come on here daily as I love reading everyone's stories!! So many strong, courageous women on here!!

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    Welcome LNCollins..you are not alone thats forsure. You've come across an amzing site!

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Hi LNCollins....you're definitely not alone....although I wish we were all in a different kind of club!!!



    It must feel great to be on top of the treatment hill and able to SEE a finish line! :) YAY!!!

    I think I'm headed towards AC and T....

  • ToriGirl
    ToriGirl Member Posts: 1,188
    edited July 2011

    Welcome back Michelle67, and congrats on being done with all active treatment...it's such a relief, isn't it?

    Welcome to you too LNCollins!  

    You've both come to a wonderful thread with the most caring and compassionate women who just "get it"...it's such a comfort when we need it the most! 

    Blessings to us all,

    Tori 

  • rachel5738
    rachel5738 Member Posts: 920
    edited July 2011

    Thanks Suz for the breathing/relaxation idea. I will use that this week at my checkup!

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Today was my daughter's "kid" birthday party....nothing like a dozen squealing, screaming, crazy 8 year olds running around to wear you out! :0) I'm exhausted....although I think even if I hadn't had an AND 10 days ago I'd still be exhausted! LOL. If I could channel just half those little girl's energy I'd be a super hero! Party was a success and it's bedtime for me!

  • dizzyakira
    dizzyakira Member Posts: 56
    edited July 2011

    Hi everyone,

    I was diagnosed @ 32 on 1/6/11.   I had BMX 2/9/11 and started chemo 3/18/10 and finished 6/24/11.  My cancer was multifocal - I had 1.8cm tumor and two satellites of .3 cm.  I also had one node positive - 4mm and lymph vascular invasion. I have my exchanged scheduled for Aug 20 and radiation two weeks after that. I have two children - a 7 year old girl and a two year old boy.  It has been tough - I find myself going through the same fears and doubts as you ladies and have come on here to read posts for inspiration, hope and to get out of my periodic funks. So thank you ladies :)

    I found the lump myself ~6 months after I had my son and was told by my gyno that it was breast milk since I was breastfeeding. Approximately 8 months later it was still there but then I found out I was pregnant.  I was stressed throughout the pregnancy because I was working full time and running around dropping my kids off at school and sitter, rushing to pick them both up, getting them fed, (you know usual mom things) and basically being the main caretaker (my husband travels a lot for work).  I was literally running everyday becausse I am in NYC and have to take public transportation.  Then I had the baby early at 23 weeks and lost him 9 days later.  So in May 2010 I went for my postpartum check up and again brought up the lump and was told it was breast milk.  By November I noticed that it got noticebly bigger and asked for a ultrasound and then was told by co-workers to get seen at Sloan.  I went to Sloan the week after xmas and was told cancer a week later. I was expecting it but I was still shocked.  I had to admit I didn't believe it, I thought they got my results mixed up with someone's else's. I sort of believe it after my BMX and partway through chemo :/  So here I am, doing much better than I expected and only thinking of cancer every two weeks or so and getting better :)  Nice to meet everyone.

    Kim 

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Hi Kim, welcome. I'm so sorry about your son! {{{{hugs}}}} to you!

    I wish you weren't going through BC on top of that, I'm so sorry!



    It's interesting, my local news is doing a piece right now on mammograms and how the age for your first one should be 40, but insurance & government feel the age should be 50, Really??? If I wouldn't have FOUND my own lump at 35 I wouldnt even have the chance to see 50. :-/

    That's why I pretty much stalk every female I know to go self exam!!!! It makes me so angry that so many of us have to deal with this! I know two other women in my *real* life diagnosed since may 1st.....one is 30 the other 38!

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    Hi Kim ...So sorry about your son and your BC...

    Hi Madismommy sounds like your party was a success!!!Smile 

    I think mammos should be given when your 30 or earlier. I think its crazy to start at 50 some you can only see on a mammo. This is so not fair that their our so many of us with this shit!! We are too damn young!!! They thought what I had was nothing because I didn't "fit" into the stats!! No family history, too young, had my first child before 30 , breast fed both of my children, healthy lifestyle...so how did I get this???? I know many who have BC and there in ther 30's , it just makes me angry!!! It is what it is and I somehow have to deal with this , was supposed to go back to school this sept...but that will have to be put on hold!!

    I hope you all enjoyed your weekend...:)

  • LNCollins
    LNCollins Member Posts: 4
    edited July 2011

    I too, found my lump and the first gyn I went to said I just had "fibrous breasts", I didn't think anything of it until the lump felt bigger... I went to see my family Doc and as soon as he felt it, he said I needed a mammo yesterday! So like Madismommy said, if I had to wait until 50 for a mammo, I wouldn't have made it either. Undecided

  • wendy72
    wendy72 Member Posts: 22
    edited July 2011

    Taylor777

    I had a mastectomy of my left breast and it was not near as painful as when I had my port inserted.  We decided to do my surgery after I received my graduate degree so I had 3 weeks to dwell on it.  It was not as bad as I thought it would be!  I also agree with you.  Women should be receiving mammograms starting at 30 and more attention should be paid to microcalcifications.  I felt a lump but everyone told me that there was no lump there and I had sparse microclcifications.  The only reason they did a biopsy is because I started having a discharge.  Funny thing is the discharge was from a completely benign condition.

    I have four children ages 19, 16,12, and 10.  My husband and I discussed what I would be going through with them after we had the biopsy results back.  My 19 and 10 yo were the ones that seemed to have the most problem with it and my 10 yo asked lots of questions which I answered for her.  I am still going through chemo but she seems to be doing much better with it.

  • Pinkprincess
    Pinkprincess Member Posts: 280
    edited July 2011

    Anyone having babies after 5 years of hormone therapy or are you all done?

  • profbee
    profbee Member Posts: 858
    edited July 2011

    KC--I'm all done, but I know the YOung Survivors Coalition talks a lot about young women who have babies after cacer treatment.  I have a friend who is quite involved with it--she's planning on trying next year. 

    We should have T-shirts made saying something like "I wouldn't have made it to 50 without a mammogram!"  Funny thing is though that we all seem to have found our own lumps.  It just reminds me how important self exams are.  I too tell every woman who talks to me about it to feel their boobs!!!

  • Suz39
    Suz39 Member Posts: 125
    edited July 2011

    Hi All,

    I just had my PICC line inserted today in anticipation of starting chemo tomorrow.  I went to see my oncologist for my pre chemo appointment, and she just received my oncotype test result that was 10.  She said she was very surprised because I had a Grade 3 tumor.  Anyway, now chemo is off pending more research.  I can't believe this roller coaster.  I never would have thought it could get more insane than it already has been, but I am very happy to receive this news. 

  • profbee
    profbee Member Posts: 858
    edited July 2011

    Yay for great news!!!  Congrats!

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    I agree yay to the good news!!!

    I had my mascetomy on my left breast today and was at home by 4:30 .I had a great day today the pain was manageable, went for a walk and my kids were at my sisters for a sleep over so they didnt see that I was missing my breast..lol..soon I will have to tell them soo not looking forward to that!! Anyways I noticed that I had bright red blood coming thur my bandaid on my incision. I called the hospital to talk to a nurse and the operator was so rude to me saying there was no one available to talk to me, it was 10pm. She made feel like an idiot and that there was no one there and I should go to the emergency...She was very annoyed, rude had absolutely no compassion about my situation!!! I got off the phone and I  was hysterical ! How dare this women treat me like an idiot!!! I called her back and asked if she was the woman I spoke to and she was like "yeah I'm the only one answering the phone" I went crazy and said that she has no compassion, was rude and she shouldnt be answeing the phone but sweeping the floor!!!!! I couldnt stop crying and I cant sleep!!! How dare she talk to me that way!! I had a great positive day and that Bi ruined it!! I'm sorry needed to talk to all of you.....:(

    Hope your all doing well :)

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    I dont know if there's a post for this but I was wondering where do you buy your wigs? I want to look natural I dont want people to kno w that I'm wearing a wig. Sorry if I posted this in the wrong spot.

  • pavlina
    pavlina Member Posts: 2
    edited July 2011

    Hi,

    I have been diagnosed with breast cancer on 18.7.2011. the tumour is behind my left nipple and my lymph nodeis involve...doc desided on chemotheraphy first and i am having CT scan on8.8.2011...mixed emotionts in my head...the waiting is unbearable and the fear of cancer speading is ..... I am 42 yeasr old , single mum with wonderful children (son 18, daughter 15)...I am very possitive person and tough cookie, but today I am a little tearfull .

  • Taylor777
    Taylor777 Member Posts: 141
    edited July 2011

    Hi Pavina....Sorry to hear of your diagnosis. I was diagnosed on Jun.16/11 and the waiting was the hardest!! I promise it does get easier the more you find out about the treatment and plan. I'm 41 and have an  son who is 8 and daughter who is 11. I was going crazy when I was first diagnosed and thinking that every pain in my body was cancer . I had 2 tumors in my left breat and one of the lymph nodes was positive. I had a masectomy done yesterday and then soon will be chemo and I still really dont know everyhting but as the days go bye it has gotten easier for me. I also am taking meds for my anxiety that has helped alot. You came across a great site these women are amazing people who have helped me so so much. Your going to get thru this and as each day goes by you will get stronger I promise..

    Sending a hug your way!!

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Taylor...I'm going to a local boutique that specializes in chemo patients for my wig....but I'm in the Chicagoland area?? I think I'm also going to purchase a "fun one" and some scarves from headcovers.com so far I like their selection the most???



    Hi Pavina....welcome but so sorry you have to join this club!! Taylor is right, it does get so much easier as you receive more information. Hang in there!!!!



    Taylor, you had your mastectomy yesterday?? You go girl....you seem great!!!! :)

  • profbee
    profbee Member Posts: 858
    edited July 2011

    Taylor, I'm so sorry.  And you were holding it all together so well!  I hope you got her name and you tell your doc when you go back for your post-op appt.  And good for you for letting her know she hurt you.  That's just WRONG.  As for the wig, my insurance covered most of the cost, but I had to go to one of their approved places--the one I chose was at a hospital in Boston, so they do this a lot.  I'd call insurance first.

    Welcome, Pavina.  We all have our tearful days.  Try to stay positive, and we're here for you.  

  • Madismommy719
    Madismommy719 Member Posts: 781
    edited July 2011

    Ok, now I just saw the earlier post from Taylor about the rude lady and the blood, etc. They sent you HOME the sameday?? Oh my goodness..... No wonder you went through that. I hope it's all better?!? I would absolutely report her for being a "B" My tolerance for rude people is gone thru all this, if people don't like their job, it's not MY fault....if people are having a bad day, guess what? I've had a nightmare 3 months!!! UGH....



    I hope you are resting....you definitely don't want to bust open that incision!!!!

  • Sachi
    Sachi Member Posts: 351
    edited July 2011

    Hi everyone,

     I'm going to jump in here - I hope I'm not too off topic. I was diagnosed at age 43 with multifocal (one area was a lymoh node), IDC, stage 2B. I had chemo first, mastectomy, more chemo and radiation. 

    That was over 8 years ago, ladies!! I am doing great. We've had 2 weddings and a graduation this summer. I'm taking the science courses necessary to get into a nursing program. 

    Its not fun... but you will get through this and get back to your lives. I don't even think about cancer much these days. Take care,

    Barb

  • Ralsper
    Ralsper Member Posts: 352
    edited July 2011

    Taylor, I was the most positive person after my mastectomy. My wonderful doc, nurses and staff were the most professional, compassionate and caring peolple I have known. Nevertheless, two days later one of the residents decided to literally "rip off the gaze" that had glued on my chest with Dermabond, yes exactly like if she were "waxing my boob". The pain was awful and I did not realize that I started building a lot of anxiety and anger after that, so 3 days later I called the nurse to tell her that I was concern because I thought my drain was plugged and my chest was getting bigger because of the liquid and I felt that I "needed to be milked" right away or my chest will explode.  Because I called 2 minutes before 5, she told me to paged the resident on call (by then I did not want to see more residents), well I ended at the ER room with an anxiety attack, yelling and crying that residents where not doctors but "ego-building semi-doctors". At the end I found out that my drain was not plugged and everything I felt was part of my recovery, but I let my brain to convince me that something has gone terribly wrong. When I finally talked to my doctor and I complained about everything, she begged me to focus on the positive out comings of my surgery and not in the "bumps in the road". At the moment I felt that she did not have any empathy for me, but now, 3 months later I can tell you that she was totally right. I let one incident to take me out of my "happy place" and I was sabotaging my own recovery. My best suggestion is to forget and forgive, be positive and find your "happy place" to move on as fast as you can from "nasty situations". Good Luck!

  • LNCollins
    LNCollins Member Posts: 4
    edited July 2011

    Taylor, I'm so sorry you had to endure that garbage from someone that should be helping instead of hurting, I hope you heal quickly!

    Welcome Pavina, this is the scary part.. the not knowing, but Taylor is right, it does get easier. I wish you the absolute best and remember you are not alone!

    Side note~ I had to see my RO yesterday, my rad burn was getting worse.. so they gave me burn gel patches, seems to be working so far! Keeping fingers crossed that it continues. Smile

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