Why Even Try
Why even try?
Of course, I know better.
But sometimes I feel like -- OK, I am at such high risk of recurrence / metastases, what the HELL am I going through all of this (chemo/surgery/rads/hormone therapy) for?
I look at the numbers online. I shouldn't.
My doctor said my risk of recurrence, he'd estimate to be 25-30%. God.
So what is all of this for if I'm just going to get cancer again and then die from it? How long do I have? Will I see Christmas? Will I see age 40? Will I die first, before my 7 year old dog dies? Will she miss me?
My good, strong, positive attitude I carried and held tightly to through chemo, surgery, and reconstruction is having a tantrum lately.
So, then I worry - by not having a positive attitude, am I making my cancer come back?
Can someone please please make sense of this to me?
Comments
-
whisperingwolf... If your doctor is correct, that means 70-75% of women dx'd with similar stats to yours will NOT have a recurrence, and there's no reason you won't be one of them! And what we also need to keep in mind is that today's stats are based on tx protocols that were used 5 or 10 or more years ago. Newer, more targeted drugs, newer RT equipment, etc., should all add up to better odds going forward.
You're also not even a year out from your dx. And although the fear never totally goes away, it honestly does get better. All the thoughts you're having at the moment are totally normal and ones we all have and need to work through. Hopefully, as more time passes, you'll begin to feel more hopeful about the future! (((Hugs))) Deanna
-
hi whisperingwolf -
listen, ignore the stats! my onc said they are usually outdated. they don't take into account YOU. seriously. i know it's hard to stay away from Dr. Google sometimes, but maybe turn the focus on how you've come so far.
the fear never leaves, but it improves. the new normal is very nice, and recurrence is always in the back of one's mind, but still.
just take it a day at a time. and you're doing all this treatment to stay alive - and it's working!
thinking of you
hugs
j
-
Whispering Wolf,
I'm sorry you are having a tough time right now. I just wanted to share a quote with you from Molly Ivins that I found comforting when people were telling me to have a positive attitude even when I was scared out of my mind:
"I suspect that cancer doesn't give a rat's ass whether you have a positive mental attitude. It just sits in there multiplying away, whether you are admirably stoic or weeping and wailing. The only reason to have a positive mental attitude is that it makes life better. It doesn't cure cancer." Molly Ivins
Karen -
Oh, I am so sorry Whispering Wolf.
I want to add that it's not unusual to become unravelled after completing all treatment. My clinical study nurse mentioned as much. I escaped most of this because I set myself fitness goals, and then had to train for them.
The truth is we never know. I have a banged up ankle from a cycling crash a month ago. I was riding out to see the Solstice Parade, and it was raining. I hit a know nasty gap in one of the streets, and went down. Fortunately, no one was immediately behind me, and someone stopped to make sure I was OK. But what if a large dump truck, and the driver didn't see me??? I would have been history.
Anyway, I am just fine (other than still limping) and you will be too.
It's also beastly hot in the East which was always enough to send me over the edge when I lived there.
You might want to get some help if this mood doesn't lift. We all have things that can bring on a meltdown. Right now, I either need some consulting work to break or land something in my job search. So always something fun going on.
Hang in there. Give your dog a big hug. Get outside if you can.....and away from the stats.
Things will get better. Promise. - Claire
-
You are doing it because it means 75% chance of NO recurrance. I am the same way and tend to look at it negatively. It id starting to change the further out I get. Hope the same for you too. This is the toughest part....hang strong.
-
Dear Whispering Wolf,
I ditto Amoccia, my husband had 80 percent survival rate with colon cancer, he's a 20+ year survivor. Therefore, you can apply that right to what you had. In addition, recurrence doesn't mean it's all over, it just means more dreaded chemo, to me, or rads if I'm lucky. What I decided is that I am giving myself a hall pass to enjoy my life, so happy to be alive. I'm sure for you that cancer let you SEE how wonderous the world is around us. Because it was this way for me and others, cancer opened my eyes, I realized how I had not really appreciated how beautiful life is.
But now, I do think your sadness at the moment is actually a good thing, it's a way for the body to just let go of some tension from pretty tough issues cancer people deal with, and I hope, darling girl, you hear the morning bird songs, look at the twinkling starlight, hug on that dog's soft furry neck, and feel the hum of the universe, falling into place, piece by piece, heart by heart, until you cry and cry, and cry some more, releasing a world of sadness and fear, so you can clear your silly head and go on through life, floating like a good dream you don't want to wake from.
You are our cancer sister, WWolf, so we love you true, and I, along with all your other sisters, will be holding your hand through this little rough patch, until you're ready to keep going down the rose petal-covered path, lit by the glow of the morning sun, all of us hoping you on.
GG
-
20 to 30% is good! ,,, and it seems the oncs are so negative sometimes. What wonderfully supportive responses on this thread.
good luck whispering wolf.. love your name.
-
I once read that statistics are just numbers and the only number that is important is YOU.
Karyn
-
This disease puts us on a rollercoaster for the rest of our lives, and I oftentimes wonder if that is not more insidious than this freaking disease itself. I think what you are feeling is something each and every one of us can relate to no matter what our stats, or grade.
All I can offer you is to tell you that when you are going down the rollercoaster - HOLD ON TIGHTER - as you will also go back up. It's a very difficult way to have to live, but it does get a bit easier with some time under our belts. Somedays I am on the edge with fear, feelings of ultimate doom, etc., and I push myself back from this edge remembering all those I have known that did not have cancer, yet are no longer with us due to tragic accidents, or sometimes totally unexplainable reasons for their early demise.
Hang in there dear sister, it's a rough ride we are on, but still one worth taking.
Wishing you all the best,
Linda
-
Hey there Wolf, my sister, my "stats" are similar to yours and I'm a bit more than two years out. Do I worry about reoccurrence? Certainly, the #!*#onc's "you are at high risk etc etc" will always be in a corner of my mind. And I do mean , a corner.
I eat better, exercise more and put things more in perspective. I feel great and treasure that feeling knowing that it could go tomorrow, next week, next year, whenever and for reasons that might not be cancer related. Live, girl! Do whatever makes you feel stronger,both mentally and physically. It will put you in a better position if anything does occur, and make you feel better now.
I think the goal to "trying" is to be able live life to its fullest now, with no regrets and not necessarily be engaged in a fight to delay the inevitable, which may be, again, from something completely unrelated. What are stats? A conglomeration of a bunch of numbers that show trends which are open to interpretation - you might be in the 30%, but statistically, you have a better chance of being in the 70%....right?
:>)
-
I was only stage I, and we still have a 20% recurrence rate for 10 years. But that doesn't mean it will be me! In fact, it probably won't be.
But it takes a while to believe this. We lost this lottery once, and we now know that we are mortal.
After treatment was so much harder for me than treatment. While I was doing what I needed to do, I got up and did what I needed to do, "pulled up my big girl panties," and kept on keeping on. When I was done, I was like - HOW did I do that? And I fell apart. And beat myself up for falling apart,
Be kind to yourself. You have a lot to process, and it's hard to do that work for some of us.
But, welcome to the rest of your life. Try to enjoy as many minutes as you can. I suspect you have millions of them to come.
Sue
-
well, i am 9 years out; did the whole tamale: surgery, clinical trial chemo, rads and arimidex. there was a point early on when i was diagnosed that i made a cognitive decision to do everything i could to "save" my life. i think the first couple of years post treatment are the hardest because you are struggling with the trauma of the diagnosis....AND still reeling from the side effects of chemo, rads...and if you are getting hormone treatment...everything is crazy in your body. i think how you are feeling is also part of the process of accepting that you are a "cancer patient" for the rest of your life. my experience was once i really totally accepted that i was a cancer patient.....that every 6 months i would have an appt with my onc....i started to figure out how to integrate this new experience in my life. it is a rollar coaster...BUT...it does get better. there are set backs...and there are joys....i think being grateful for what you have is the beginning of the "fight" for me, i am grateful for my life.
try to not get obsessed with statistics. either your are NED or you are not. i figure i will deal with a relapse if and when it occurs. until then, not to worry. you are you...
positive attitude is not all that it is cracked up to be. however, being realistic about your life...your disease....the peeps who love you and whom you love...the animal friends we have....is the reason why you do the treatment and do what you can do. the rest is up to what happens...and God. (or your higher power if you have one)
having a bad day...or a bad month...or even a bad year...( i had a very back year 2008...4 broken ribs from rads) is part of this i think. find that part of you who doesn't want to give up...and keep on* hang in there*
-
You are being a human being - we really don't handle uncertainty well. It's why even the lamest among us (I'm talking about me, here) search for statitstics - we want to know what will happen to us.
Well, it's just a crapshoot and you'll never know the future. You are doing this to enjoy every single day you have left. Whether it comes back in two years or ten years or tomorrow doesn't matter. All you have is today.
There are no guarantees. You might be high risk who will never see cancer again. I might be low risk with mets. You just can't know so let as much of it go as you can, and live like you have a long life.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team