Alternatives to Surgery

Namaste!

Rainbowpony:  You have had a traumatic experience and are still enmeshed within it.  Most but not all of our health care providers are caring and knowledgeable and want to provide the best for each individual.  I am sorry that you had such a horrible experience.  Your postings reflect that you are still in the trauma stage of response.  Please consider that your response to this subject makes you come off as argumentative instead of informative and caring for the individuals who are newly diagnosed with DCIS.

http://www.law.cornell.edu/uscode/17/107.shtml 

Patzee's quotations do not violate copyright enforcement law. Please see the Fair Use Doctrine

§ 107. Limitations on exclusive rights: Fair use

Notwithstanding the provisions of sections 106 and 106A, the fair use of a copyrighted work, including such use by reproduction in copies or phonorecords or by any other means specified by that section, for purposes such as criticism, comment, news reporting, teaching (including multiple copies for classroom use), scholarship, or research, is not an infringement of copyright. In determining whether the use made of a work in any particular case is a fair use the factors to be considered shall include-(1)the purpose and character of the use, including whether such use is of a commercial nature or is for nonprofit educational purposes;(2)the nature of the copyrighted work;(3)the amount and substantiality of the portion used in relation to the copyrighted work as a whole; and(4)the effect of the use upon the potential market for or value of the copyrighted work.The fact that a work is unpublished shall not itself bar a finding of fair use if such finding is made upon consideration of all the above factors.

Athena, the law is the law. It overides any Terms of Service or contract.

We should be helping the original poster, not getting into the weeds about policing the rules.  If you have a concern about with Patzee's post, I urge you to PM her and share your thoughts. It is unkind to continuously stalk her, trying to find fault. That would be considered internet bullying. I'm sure you wouldn't want to do that.

Do you have any other thoughts for Beejay? I'm sure she would benefit from your experience and thinking as a breast cancer patient.

Namaste!

We have not done it for nothing.  We have done it for life.  We have each done what we felt was best for our situation and then moved on. Cancer did not promise us a rose garden but the treatment of our choice for DCIS did.  Yes there are thorns but what part of life doesn't. 

I have concerns about Patzee/Pony's unkind attitude towards anyone who disagrees with her - "foolish" and "clueless" are two adjectives she's used just in the last 20 minutes.  So, Patzee/Pony, I publicly urge you to treat others, particularly those with different views, with respect.  I also recommend that you humbly offer your opinion and not couch it in absolute terms.  Even a bonafide DCIS expert would be more respectful of others' concerns and fears than you have been.

E

Excuse me?

OK - I wasn't going to say anything, was going to refuse to respond. There is no stalking or bullying here.   If a person repeatedly recites factual errors, then others will step in to correct those errors.
To repeatedly say that DCIS is not cancer is a factual error, a disservice to those of us who have had it and to those who are new to this site. It is not useful to respond by calling people names ("guinea pig") or to pretend to be the only adult in the room ("Now, let's all return to our corners").

Time to change the channel.

I don't think I was being disrespectful to anyone.  I gave my advice which is to do as her physicians recommend.

Good night.

Beejay:

Good luck with your information gathering and your decision.  Best of luck to you.

Carol

I want to take the opportunity to thank the moderator(s) for deleting posts that were truly wrong and hurtful (and I have a thick skin).

I hope the original poster gets the information she needs from her doctors, but also does understand that no matter how sure she or anyone else is that "it's just dcis, I can't die of that," you absolutely do not know until the final pathology report from the lumpectomy or mastectomy. A biopsy is just a sampling, it isn't definitive (I know), an mri isn't definitive (I know), nor is a mammogram or ultrasound (I know). When the final pathology report from my lumpectomy to remove some grade 2 (not even 3) dcis came back revealing a trace amount of invasive bc, then I definitive knew. Every day I live with the fear of what could have been and what might still be, but I also thank my lucky stars every day that I didn't watch and wait. 

I'd previously posted about how my lumpectomy(a.k.a. partial mastectomy) and even rads. weren't bad cosmetically, but this second post is not about the cosmetics. It's about the honest reality that no one should be lulled into a false sense that their dcis diagnosis can be anything more than a guesstimate until they have either a lumpectomy or a mastectomy. That's the awful reality of it.

Thank you, susieq, and it stinks that you, too, had a little idc surprise. Hope all is well.

I had DCIS five years ago and I only have a wide excision lumpectomy (took out more tissue to get good clean margis)--and I did not do ANYTHING else. (after discussion with my surgeon)--- It was my decision to not have radiation or chemotherapy after researching the rate of return of DCIS with and without radiation and/or chemotherapy.  I was going for bi-yearly diagnostic mammograms but have now moved up to one a year.  So far so good and I am grateful to the Lord for that.  I am satisfied that at the time my decision was the right one--and if the cancer comes back--I will then do the "full monty".

Blessings to you all,

Bobbi

Or the OP could have been completely frightened off by the responses.  Or it very well could have been as you stated, someone trying to create a situation.  Only the mods know the truth on that score.

 I think the OP has asked some good questions.  The way my doctor would treat  a less then 1 cm of DCIS, that was not multi-focal and was grade 1 is different then what he suggests for for someone who has over 10cm and is multifocal and grade 3.  You are looking at the same cancer but it is behaving in two different ways.  I look at my children. They are both from me and my husband, but they both behave in vastly different ways.  There is no reason to treat them both the same and expect the same results. 

 I wish the OP the best.