July 2011 rads

I just had my second radiation session today. I am feeling very tired tonight but wondering if it is just because I have been so busy running around or its the radiation.  Did anyone else experience fatigue so early on? 

2nd RAD today. The techs are really nice & try to expose me minimally.

But paranoia is setting in. I have a pain in my hip & my mind is thinking bone met. I had a PET scan 3months ago so I'm going to ask the RO to review it, just in case something was missed. Just an annoying pain that hurts when I walk down stairs or run. The pain started 2 days ago. I see the RO on Thurs. Hopefully the pain will be gone by then.

Have I mentioned do not like mondays and tuesdays wednesdays and ill keep you posted on thursdays- /FRi.Sat?sun are much better.

Arm hurts from node op- red spots starting to ocur -am gaining back a little weight bummer

was the 20 lbs down was the only good side effe=ct I could find. Oncho type Friday to be blessed into my ears Monday

To Chemo or not to chemo? Since I am on 7/33 in Rads WTF? would you do I ask. Hang In sisters we will make it through and plan some out rageous coming out of rad age>> Any one else in for a little adventutre..

husband in for operation tommorow not sure im ready to play nurse - I still need some help my own self... Happy Wednesday Ladies..

Try the Emu oil 

I know I am joining in this conversation pretty late and you all already have a connection to eachother but I am feeling a little nervous about how I am feeling and wondering if anyone else is feeling tired already or its just in my head.  I am just going for my 3rd course of radiation today. Is it possible?

HI YORELH,

DID YOU GET ANY EFFECTS YESTERDAY? I GOT A MAYOR HEADACHE DON'T KNOW IF IT WAS BECAUSE OF THE RADIATION. I FEEL THE SAME ABOUT HOLDING MY BREATH IS NOT EASY...

WELCOME JESSICA, I JUST JOINED YESTERDAY ALSO, THIS LADIES ARE AMAZING AND TOGETHER ALL WILL GO SMOOTH. RADS NURSE TOLD ME CAN'T WEAR DEODORANT BUT GAVE ME THE NAME OF ONE THAT DOES NOT HAVE THE INGREDIENTS AS IN THE REGULAR DEODORANT SAYS I CAN USE IS CALLED "TOM'S OF MAINE" IS ANYONE OF YOU USING THIS?

I ALSO FEEL KING OF WEIRD EXPOSING MY BREASTS EVEN THOUGH YES THEY TRY COVERING THE OTHER BREAST SO YOU DON'T FEEL SO EXPOSED.  I WENT TO FLUSH  MY CATERER PAINFUL HAD FOUR CHEMOS AND DOCTOR INFORMED ME I HAVE TO TAKE FOUR MORE SO EVEN THOUGH I'M GOING THRU RADS I WILL ALSO BE TAKING CHEMO AGAIN, NOT HAPPY ABOUT IT BUT THINKING POSSITIVE THOUGH...

THANKS AGAIN,

DAMARIS

THANKS FOR THE ADVICE LADIES,

Popping in for a second before I run out to #16.  I also see the RO today.

I'm using the Tom's of Maine deodorant.  I actually started using it in February.  It's ok stuff, but you have to reapply throughout the day.  It certainly isn't as strong as the normal stuff. 

Welcome Jessica S, Damaris5127, and kittymama,

I wish we could have met under different circumstances, but here we are and we can all support each other.  My first week of rads was last week and I felt more tired then than I do this week.  My skin is still holding up all right thanks to miaderm, aloe vera, emu oil, and aquaphor.  I use Tom's of Maine unscented deoderant and like everyone else, I have to reapply it several times a day.  I wish they would make extra strength Tom's of Maine. 

I, too, have noticed that I no longer need deodorant under my rads arm.  I'm choosing to think of it as a perk. 

I saw the RO after my 16/33 today - he said my skin looks great.  I asked him if it was better than expected at this point.  He told me that during weeks 3-4 is when most women start to have some breakdown in the skin.  Well, we'll see what this week holds for me.  I'm just the tiniest bit pink - hard to even know for sure, really.  The rib pain I'm experiencing is lower than the treatment field and I noticed today that when some of the techs slide me around on the table, they pull on me right there.  So maybe it's from being dragged around on the treatment table.

The RO said to keep doing what I'm doing because it's working.    For anyone new to this thread, I'm using Omaz's skin care regime, eating 150-ish grams of protein per day, drinking tons of water and sleeping whenever I feel tired.

And who knows, this week could be rough and undo everything.  But I'm claiming victory for today!! 

Lena - When I post treatment numbers, I post treatments completed/total treatments.  I think that's what everyone else is doing, too.  I hope your appt this afternoon goes well!

Eggs/Egg Whites  (7g)
cottage cheese (13g)
Greek Yogurt (14-16g)
Low fat cheese (6-10g)
Smart Balance Milk (11g)
chicken breast (37g)
salmon (34g)
beans
whole wheat bread (10g in two slices)

I resort to using protein powder on days when I'm too low.  Myoplex original has 42 grams!  But it's expensive.

It's been really hard for me to get in 150 grams everyday.  I miss the mark by 25 grams or so more often than not.  My RO looks over my diet every week.  I keep a food and sleep journal to show him.  He's really encouraging me to strive for the 150 grams.  I suppose it makes sense - fule your body well so it can repair itself from the inside out.  But it's hard to get all the protein in!

Does Myoplex have soy or soy lechitin in it?

Hey girls,

Yes I fully feel fatigued and it's only my second week, so your not crazy - I agree that part of

it is just emotional strain from everything and still recovering from the surgerys- but I feel a dip

in my energy between 3-5 and It never really comes back in the evening- Im just going with it, I feel like my family is over it and wants me to be my old self -Im just not there yet so they are going to have to wait I am doing the best I can at the moment..Hubby had knee surgery this morning took him waited for him to get in recovery ran across town got my rad and went back to pick him up. Thank the lord it went really well and hopefully he won't be down for long.

Ladies no one has gone over nutrition or protien intake with me- I had sarted doing alot of research and eating broccoli like crazy also shitake and mitake mushrooms, are supposed to be super antioxidents in fact what they are using in the newest cancer drugs- (so I got a supplement as well) When I told the rad doc she said don't go crazy with the antioxidents now because they gather the free radicals and the radiation is supposed to be putting the free radicals in your body- so I have postponed the mushroom supplement util last day of rads and I am just trying to eat healty. But last two day Ive been really bad and Im mad at myself, I intend to start fresh tommorow so any advice that you've heard I am interested in.

Also avoiding all soy and estrogen products and food. 

In some ways I felt more tired the first week than this, my fourth week of hypofractionated treatments.  Just had #16.  But my tech today forewarned me that the REAL tired could begin soon.  So far, though, I've tended more towards insomnia than narcolepsy. 

My armpit--where my tumor was--is angry and red and swollen.  My arm is swollen.  But I'm sure my SEs are exacerbated by the comparatively unusual location of my excision/re-excision/SNB site--all the same place, where I used to shave.

Yesterday, my RO unexpectedly recommended that I might want to forego the 5 boosts and just stop with the 17 higher dosage WB treatments I will have had as of tomorrow.  I'm ambivalent--not exactly shouting from the rooftops since I am weighing mega-prevention of a local recurrence against prevention of LE in my dominant arm.  RO says that the boosts could be overkill.  Also, there's no time to recover before beginning an AI.  I was handed a Femara sample yesterday.  That was like another pin pricking my tiny helium balloon ascending at the mention of the end of rads.

Best wishes to all and I look forward to seeing you on the After Rads thread.

Its the soy Isolate in the supplements you need to stay away from.. My nutritionist said if you have a little soy milk or soy lecithin it won't hurt you but only once in a while.

Hi! I had ny second treatment today. The underside of my breast on one side is already pink. Is it unusual to be pink so soon? I am using the lotion they have given me. I too am feeling fatigue but I wonder if it is just having to keep up the pace.

Thank you for getting back to me so quickly Gma Foley. I am comforted to know that the pink might not have to get worse quickly. I will use the creams religiously. I can do this! My skin is darker too-olive, and i have rarely had a sunburn. Guess it really doesn't matter what your skin color is.