Complementary and integrative approaches
Comments
-
SherriG, You're a foster parent? Good for you. I did it for many years and found it very fulfilling.
-
Kira you were never a fool.Your Onc was.
-
Merilee You're right she was the fool, but I should have gotten up and walked out of her office that first visit. If nothing else I've learned we must be our own advocates in this process.
-
Exactly what Merille says, Kira. Funny, because a nurse in school who I had gone to see because of headaches (due to toothache...) had said that to me, it's likely a brain tumour. Those two would make quite a couple Lol Lol Never have I forgotten it and I'm 55 !
anticancer effect of EGCG treatment on a breast carcinoma cell line resistant to tamoxifen
http://www.phytomedicinejournal.com/article/S0944-7113(10)00017-6/abstract
-
Quality of life in breast cancer patients during chemotherapy and concurrent therapy with a mistletoe extract
http://www.phytomedicinejournal.com/article/S0944-7113(10)00217-5/abstract
-
Kira, we all grew a stronger back bone on this journey. I used to be a bit intimidated by mean people. Now there is not much that scares me. Once you have crawled through hell, mean people just look like ridiculous fools.
-
IF WE"RE GOING THROUGH HELL, LET'S KEEP GOING !!
-
My ILC was definitely grade 3
-
I didnt know cancer had 3 stages of a life cycle, I was given FEC to start followed by doxetaxol, I hope this covered all the stages, I am so scared of this coming back
-
Kymm .. where did you read that cancer had 3 stages of a life cycle? I've never heard of this before.
Thanks,
Bren
-
To go back to the question of sensitivity to aromatase inhibitors.........there is some research (sorry, no link at the moment) postulating that GIVING ESTROGEN for a limited time to women with stage 4 disease, will 'kick start' their tumors into being sensitive to an anti-estrogen again. This is when they have been using AI's for a while and ceased to have a response, presumably because their tumors became sensitised to the drug.
-
What sam52 says is true, but I have no idea how it works... much less whether it works for women who have early-stage BC and are wishing to avoid a recurrence. And, I haven't anything to cite as a source, either. It's just in a file in my memory bank.
otter
-
I've heard of that too. But only in reference to stage IV women.
-
Sherri, Luan,
I remember reading about Adriamycin and ER+ and it had to do with whether you had a particular TOP2A gene and if you did, then it worked better. I found this :
http://www.breastcancer.org/treatment/chemotherapy/new_research/20090429b.jsp
-
Merilee- You have a good idea to start a new thread to call attention to CAM. So much gets lost in the natural girls thread because it is so long. Sadly, whenever we stray off that thread controversies follow, so I do not usually do not even read other threads, but I thought I would list some of my protocol in case anyone is interested.
It has been a lot of trial and error, but finding what works for me has brought me vitality that I never thought possible. We all must peel our onion, and get to the roots of our health issues. Cancer is not a crap shoot. It has causes. We must all figure out what caused our cancers and then do all we can to change the environment inside and outside to keep our bodies from being suseptible again. Here are some of the things I have learned that have helped me:
1. Detox- I have used all kinds of ways to get the toxins out of my body, and the toxic people out of my life. For those people who still upset me, but I love anyway, I have learned to take long walks and bike rides to help me deal with it. I no longer let others problems become my own. I have used many things to detoxify. I have done some cleanses with specific supplements, and I sit in a far infrared sauna regularly. I also take a supplement to keep my liver detoxified.
2. Digestion-It all starts with the gut. If our food is not digesting, our bodies are not getting the nutrients, no matter how well we eat. The stomach is the first line of defense against disease.So getting my gut in order by eliminating all kinds of things that caused me gut issues has made it possible for me to no longer have cramps, indegestion, bowel issues, etc. If the plumbing is working, the body stays cleaner and our cells absorb nutrients.
3. Nutrition-I found a plant based diet was good for me to start out with. It is the best way to cleanse, but it did not sustain me very well. It did help me to lose weight, but now I follow a mediterranean diet. I have small amounts of meat, very very little starches, lots of herbs, garlic, olive oil, etc. I do not eat much fish because of he mercury issues, but I love it so I do have it every couple of weeks.
4. Supplementation-After testing for a couple of years, I saw my blood tests fluctuate constantly with different brands. I finally switched to a pharmaceutical grade brand (Usana) and my numbers are staying up. I especially try to keep my vit D level in the 80's or above. I do not believe we can get enough nutrition from food only. I just cannot chew that much food in the course of one day. I do have an organic garden, but that is not available year round, even though I can some for the winter. Since Usana has great combos, I have been able to limit my intake of pills to about 8, two times a day. I take chelated minerals, mega antioxidants, a liver support combo, a grape seed/vit C combo, extra vit D, Biomega fish oil, and a supplement that has really helped my lousy vision. I no longer bother with I3C as my hormone levels are pretty stable now that I have gotten rid of all the midriff that was storing all that extra estrogen.
5. Exercise- I try to do a good hour everyday. I prefer biking and walking the most, but when I cannot get out, I do rebounding and free wts.
6. De Stress-We underestimate how much stress suppresses our immune system. It is impossible to get stress out of our lives, but we can control how we react to it. Getting upset with others who do not agree with us is counterproductive. I have learned to walk away from aggravators and for those I cannot get away from, as I said, I go for a walk. Nothing releases stress for me like enjoying nature. I even love the winter!
7. Toxic Teeth-After a lot of research, I am convinced that the constant stress on my immune system from a festering root canal and a mouth full of mercury was a major cause of my bc. I have pulled the root canal, and sure enough it was all infected, even though I had no pain, and my dentist was not concerned. I found my way to a biological dentist who is taking out my mercury as I can afford it. It really pisses me off that I had to pay to put this poison in, now I have to pay to get it out, but I do believe this is a lifesaving neccesity. I am halfway there, and in the meantime, hoping that keeping my immune system strong, is countering the toxins still in my mouth until I can afford to complete the mission to be mercury free. I hope that someday the ADA will be brought to its knees for lying to us about the safety of mercury.
8. Iodine-I have come to learn that I was hypothyroid for decades, but it never was tested because I thought it was normal to be tired. Aren't all moms tired? But after I learned about the iodine protocol, I finally tried it and it has made a huge difference in the way I feel. Iodine is helping to detoxify my breasts of all the built up chlorine from my years of swimming of using cleaning agents without realizing how toxic they were. I have so much energy know, and my breast tissue is so much healthier, I often wish I had known about iodine before. I think this would have prevented bc entirely.
9. Thermography-I get them regularly as they give me a great picture of what is going on inside and they are totally safe. I will never have a mammo again. Therms give me such peace of mind, and I am helping to educate women about them so that we can get back the insurance code that was taken away by the powerful lobbies of the mammo industry. I believe that if young women were routinely screened with therms, we would have very little late stage breast cancer.
10. Follow my passions. For too many years, I took care of everyone else and put my own dreams aside because I did not have the time. Now I am doing what I love and if I don't feel like making dinner, DH knows how to make a sandwich. lol I have always wanted to write and so I am working on a book and blogging on my website. I am also using my teaching skills to organize seminars to encourage younger women to be more proactive. When we do something we love, we are happier. Happy people do not get cancer.
All these things have given me a peace I never thought possible, and taken away any fear of a recurrance. Yeah, it could happen, but I am not going to worry about it for one minute.
-
Vivre~~~ I have a problem with your number 4 and your number 10. Number 4 says that we cannot get enough nutrition from food only? That's the whole reason for food. It is to nourish our bodies. I understand that some may have allergies and therefor cannot partake of certain nutritious foods and may need to supplement, but mankind has been on earth for a very long time without the aid of supplements and has sustained from the food that they grew themselves, the livestock they raised, the meat they hunted for, and the fish they caught.
Number10..... How can you say that happy people don't get cancer? And who are you to judge someone elses happiness? I considered myself to be happy and I got cancer anyway. Small children who are young, playful, and full of life, just beginning to explore the big world around them.... Their happiness is so exuberant and contagious. Their laughter is so pure and uninhibited. Those sweet babies get cancer anyway. Cancer can attack anyone regardless of social position, finances, race, sex, cancer doesn't go around looking for all the unhappy folks. Your post is very judgemental.
-
Thank you Vivre for a great post
Alamik. nothing written on these boards should be taken literally and to the letter.
If supplementation is not required according to you, why is it that a multivitamin is recommended by every known medical body because of the depletion of soils. Are you saying you don,t even take a multi, you must be the only one on BCO then.
As far as happiness is concerned, we all get Vivre,s point. No need for condemnation.
As far as stress, well, we hope you got the point -
Luan~~~ Yes, I am very well aware of the role stress plays on our bodies, minds, and spirits. It was a major lesson while I attended nursing school. Nopers!! I do not take a vitamin or supplement. I have nothing against them but don't feel like I need them at this time in my life. As for reading her words to literally.... that's pretty much why she wrote them. They were meant to be read. If she is posting her feelings, then yes... I am going to take them to the letter just the way she wrote them.
-
Vivre
Always good to hear from you. Thanks for adding ideas for folks to consider.
Glad to hear you are still doing well also, you go girl!
-
I posted my list for what it is worth. If anyone does not agree, that is fine with me. I am entitled to my opinion and so is everyone else. I do not come here to argue nor insist that I have all the answers, I just share my experience, for what it is worth. Take it or leave.
-
Vivre,
Thank you for taking the time to write out your anti-cancer/pro-health strategy.
I've watched as you have pieced it together your program with so much detailed research. It's the real deal. I hope people realize how much time you and the veterans have spent to create a detailed approach. Integrative medicine is highly specific in mechanisms of action. It isn't a philosophy so much as a research program.
As to anyone who thinks you can get nutrients through food alone, the test of that is when you take supplements and feel better. Also, our soils are so depleted that the food contains much fewer vitamins, minerals and phytochemicals than our ancestors had.
Anyway, big thanks, Vivre, for sharing your learning. I hope you will come back often.
-
Vivre I really enjoyed your post and took alot of info out of it, I have been lookiing into iodine myself and was wondering which supplement you were taking. I have a friend who sells isogenics (sp?) and he was telling me about the importance of iodine and breast health, he recommended a certain brand and of course I cant remember the name right now but he said the absorbtion is so much better so I will find out and post. I too agree that not reacting to the negative in my life is going to be a big difference in how I go on from here. Wishing you all the best
Kymn
-
Vivre wrote: Here are some of the things I have learned that have helped me:
I think that explains that this is what works for her, if we want to take any of the information she has found works for her than that is great that is why she posted it.
I work for the Agriculture extension office in our county. I can tell you our soils are depleated and our food does not have the nutrients it had years ago. If you grow your own or buy at a farmers market you will get better produce with more nutrients in it than what you get at the grocery store that is picked so very early. We have people all the time that send in soil samples so that they can get recommendations on what they need to add back into their soil for the nutrients that are lost.
-
How to Choose a Quality Multi-Vitamin Supplement
The typical American diet produces multiple vitamin and mineral deficiencies. A lot of people find it helpful to include a multi-vitamin supplement to their daily diet and exercise regiment. But are you taking the right multi-vitamin? You'll know after you read this.
FORGET THE BRAND, FORGET THE HYPE!
Like all other consumer goods, supplement companies market their products with a lot of flash and hype. When shopping for a quality multi-vitamin, shop around, do your homework and read the labels. 'Retail' brands of multi-vitamins are often the cheapest, and you get what you pay for. Many of the cheap forms of minerals in these brands (zinc oxide and magnesium oxide) are often not absorbed by the body, which means they're useless.
COUNT THE VITAMINS
The 13 basic vitamins that should be present in a quality multi-vitamin supplement are:
-Vitamin C
-Fat-soluble Vitamins A, D, E and K
-The B-Vitamins:
B1 - Thiamine
B2 - Riboflavin
B3 - Niacin/Niacinamide
B5 - Pantothenic Acid
B6 - Pyridoxine
B12 - Cobalamin (cyano-, methyl- or hydroxyl-)
Folate (folic acid)
BiotinDO THE TEST!
What follows is a list of 11 'tests' that should be applied to any multi-vitamin supplement you are considering purchasing. A quality multi-vitamin will pass ALL 11 TESTS!
1) The bottle has an expiration date printed on it.
2) The bottle is opaque in color. Light can damage some vitamins.
3) All 'B-Vitamins' meet or exceed the RDA (Recommended Daily Allowances) levels. Vitamin C should be at least 2-5 times the RDA.
4) All vitamins and minerals should be listed in their exact chemical form. For example: 'd-alpha-tocopherol,' not just 'vitamin E' and calcium citrate, not just 'calcium'.
5) The supplements are in capsule form, not tablets. (Exception: some premium brands still use tablets. This test should only be the final determining factor.)
6) Multi-vitamins do not contain sugars, preservatives, coloring agents, wheat products, lactose, etc.
7) Vitamin E is present in its natural form, 'd-alpha-tocopherol,' not its sythetic form, 'dl-alpha-tocopherol'. Look for the little "l", which means 'leave on the shelf!'
8) Vitamin D is present as 'Cholecalciferol,' not 'Ergocalciferol'.
9) Calcium is chelated (see Resources) as calcium citrate, calcium lactate or other chelated forms, but NOT calcium carbonate, eggshell calcium, oyster shell calcium, etc.
10) Magnesium, Zinc and other minerals are chelated (magnesium citrate, glycinate, gluconate, etc.) and NOT in an unabsorbable oxide form (magnesium oxide, zinc oxide, etc.).
11) The supplement is complete with all 13 vitamins (See Step 2), these macrominerals (calcium, magnesium and potassium), these microminerals (zinc, copper, selenium, chromium, manganese and molybdenum) and these ultra-trace minerals (boron and vanadium).
EAT WELL, BE WELL!
Finally, taking a multi-vitamin supplement is not intended to replace a healthy diet - only SUPPLEMENT it.
Be sure your diet is rich in nutrients by eating 5 to 9 servings of fresh fruits and vegetables, and 3 to 5 servings of whole grains every day. Fresh nuts, legumes and plant oils/fish oils also help to prevent chronic diseases.
-
My DH bought something called Green Vibrance from Vibrant Health. Has anyone heard of this stuff, and is it any good?
-
Wow - thanks for the information, Luan. I have been trying to determine how I know if I am buying a good product for ages. I think I do well, and my blood tests show that my vitamin D3 supplementation is meeting its goals.
There is one other thing people can do. Unlike prescription drugs, vitamins are not regulated by the government with respect to their purity. BUT some vitamin makers voluntarily submit their products for review by US Pharmacopeia, which is the body that certifies the purity of medications. To find out which ones are listed, go to:
www.usp.org
(caution - NOT "uspharmacopeia.org" - that is another site which has nothing to do with USP).
-
Kira, I take it and itis great! I get so much energy from it it is amazing. Tastes terrible though. I mix it in veggie juice along with turmeric and gag it down in three gulps.
-
He has found putting pineapple into it has helped. I can't imagine drinking it with my veggie juice. I think I will begin using it as well then. Extra energy would be nice.
-
My Vitamin 3D was in the 30s at dx - I avoid the sun like the plague. The trouble is that it is seen as normal, so doctors say nothing and you often have to do your own research. I had to take 15,000 IUs per day (yes, fifteen thousand) to prop my levels over 45, above which they refused to go even when I was taking 6,000 IUs/day.
I am now on a maintenance dose of 10,000/day and tested at a reassuring 89 one month ago. It took about nine months to get those levels up, though - not an easy feat.
-
Athena, the site you linked in is great as it is very comprehensive emcompassing traditional and natural remedies. However, disappointing, as there is a fee subscription of $197. per year !
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team