August 2011 rads
I had a BMX and immediate TEs placed on May 24th after my diagnosis of DCIS. I thought after that I could go happily on my way and life back to normal but BC had other surprises for me. Narrow margins left me with a dilema of whether to have radation or not. I REALLY WANTED OR NOT....but after seeing three different radiation oncolgists, I had to accept that it was best for my long term health to go ahead with radiation.
After discussing options with my RO we decided that starting radiation in August would work best with getting my TEs filled. I go in for my initial set up visit (or whatever you call it) on August 2nd and then begin my actual radiation treatment on August 8th. I feel fortunate that I found a great RO that also has a True Beam radiation machine...hopefully causing the least damage to my healthy cells and other side effects.
Are there any others that are starting their radiation in August out there? I've spent some time on the June and July threads and there is great information but thought it would be nice if we started our own for August. Also, are there any other women like me with DCIS who had a BMX or MX that still have to have radiation too?
Comments
-
Surely I'm not the only one???
-
Anyone?
-
I think I will be on there. Just finished with chemo on Tuesday and had Neulesta shot today.
-
Cyborg - I hope you are feeling well as you can be after chemo. I don't know much, if anything, about chemo or Neulesta but hope that you are feeling stronger every day.
As I said above, I saw three different ROs trying to get out of radiation and they all recommended it. Feel like I'm being pulled kicking and screaming all the way but....I'm not going to let it get me down.
Take care and lets kick BC's butt out the door!
-
I just finished chemo last thursday, and only had to have 3 Leukine shots rather than 5. What a godsend that was!! Not feeling so good today but each day is better.
Cyborg, I hope you are feeling ok today and not having any bad SE. A nice warm bath has saved me from the bone pain.
I see the radiation oc on July 18 to get situated also, I guess. My mom says they may have to make a special pillow, and I know they will do the tatoos. I have to have whole breast rads. No mamosite, it was up against the chest wall. I will have to have 35-37 treatments takes about 15min per. I think they will wait till August to start. I am just too tired and it has taken too long after each treatment to recoop. I need a rest!!!!
Looks like I will be in good company ladies!
-
Hi klg49 - Welcome! I'll be having whole breast rads too but luckily will be avoiding the lymph nodes. What is Leukine?
-
August and rads is getting closer and closer and I still feel like I'm digging in my heals, kicking and screaming all the way. One day I feel acceptance and the next I'm still searching for some way to get around it. Just breathe....I can do this.
-
Julianna - thanks for starting this. I thought I'd have to do it. I finished chemo last Thursday, met with the RO today, will have my mapping appointment next week. I will start rads first week of August (I still need to recover from chemo) and will have 36 treatments. I am all to familiar with roller coaster of emotions with all of the BC BS! Hang in there and vent any time you need it. I will be here along the way with all who come along - because there will be many more unfortunately.
Hello again Cyborg and klg!
Vicky
-
I was just reading in another thread about how BC gives you all these detours....that is exactly the way I feel. DCIS was supposed to be simple, the "easy" one. Figured I get the BMX and the reconstruction and on with my life I would go....NOT to be! First, I have this little detour called radiation. Here's to hoping it is my last detour on this journey!
Cyborg, klg49 and MamaV - I hope you each are feeling better and recovering from your chemo, and are ready to take hopefully this last detour for you!
-
It's good to find another home thread
-
Hi guys,
Some of us meet again, glad to find this thread. I will have my last Chemo on Aug 1st and could be starting radiation by the end of Aug.
Hope everyone is feeling good and just remember we are getting closer to getting our life back, yaaaaa.
Many hugs to all
Pam
-
I'll be there. I meet with the RO first week in Aug.
So I don't know what the plan is as far as length etc, but I'll be doing it. I had a lumpectomy 1 week ago.
-
Hi,
I can relate to the idea of going into radiation with some reluctance, not kicking and screaming yet. I too may be getting radiation this August. I just finished round six of chemo (Yay!) and had a pretty rough week. I guess the effects of chemo are cumulative and this last one hit me a lot with neuropathy, fatigue and low grade nausea. Now the radiation oncologist says we should start in August with 5 weeks of daily radiation as an extra insurance policy. I had a Rt mastectomy, had a tissue expander put in which is almost filled.Also had an axilary node disection and they found 2 out of 25 nodes that were positve. I am concerned about the impact of radiation on the skin/ breast reconstruction but mainly the issue of lymphadema. I understand the risk gets worse with the combination of axilary node removal and then radiation to that area as well. I keep wondering if the risks of havig skin problems, and lymphadema outweigh the risks of getting local reoccurence of cancer back. I saw another radiation oncologist and she said I was in the "grey" area. since the margin was very small and next to skin and their were only 2 nodes involved. I am curious if the radiation oncologists have mentioned the risk of lymphadema, or skin breakdown and what they have said to people on this list. .
-
Good to see so many familiar names on this board. I have my last chemo on July 26, haven't scheduled with the RO yet, but figure I'll be starting rads towards the end of August.
I am not excited about the rads. Mostly because of the scheduling. I am a little distressed about trying to juggle daily rads and full time work.
See you all soon!
-
Julianna51,
Thanks for starting this thread, you will find that these women on here are so much support and we are all here for each other and will get each other through this.
Sorry you have to be here, hang in there it will be over before you know it.
Lots of hugs
Neecee, nice to see you here, you bring a lot to all of us. Hang in there my last Chemo was scheduled for the 28th of July, but I have a girls weekend scheduled for that weekend and my Dr. said I needed to go and feel good so she re-scheduled it for Aug 1st. Yaaaa. I just can not wait to be done with this part of my life.
Hope you are able to work everything out with work and RO, it is hard everyday.
See you Pam
-
Hi Neece and Pam. When I met with my RO this week, he said he'd give me the last appt of the day. (4pm) I work 7:30am - 4pm so will just have to leave work 30 minutes early every day. I might adjust my hours to start at 7am and make up the time or I might just say screw it and dock my pay! I've heard of some ladies who work full time go to rads first thing in the am and then go to work. My RO said he'd rather me go at the end of the day so I can go home and rest after (especially towards the end).
Good luck all! I think I'll be the first to start so will give you the daily report
Vicky
-
Mamav - I'll be looking forward to your posts, especially with how it works out with your job. I'll start the daily rads right when school's back in session, and it's a 45 min trip from work to rads. I'm hoping for a late appt, since I can't imagine getting a substitute for that long right at the start of school.
-
I've mostly been reading posts. Had my last TC round Friday and can't sleep. Have my 1st aapt with the RO on Aug 1st. I just want to say I gather so much knowledge and inspiration from everyone. Hopes for everyone's speedy recovery and may everyone only get a partial suntan.
-
I'll be joining too...had my last TC Jul 12. Beginning to see some light at the end of the tunnel.
-
MamaV - My work schedule is not fixed. I work days, nights, weekends, you name it. I think what will be best for me is to get an eary appointment and asked to be scheduled for mid shift or closing shift. There is no way they are going to give me opening shift every weekday for five weeks. There should be no problem with giving me mid shift or closing shift for five weeks. I just don't want to have to close every day for five weeks. Oh well, it is what it is, and it is only for a few weeks.
-
I will be starting July 25th and going through August.
-
Hi ladies,
Do you mind if I join you. I start my dry run this Friday and start 7/25. I was in the July 2011 rads but everyone is underway. I like the support from everyone on the site. My friends and sisters don't understand the anxieties, etc. with breast cancer. My husband on the other hand is very supportive. I got him the Breast Cancer Husband book and he is reading it! I found the idea from another forum.
-
Welcome to everyone!
Neece hope you won't be too tired to close every night! We will get through this together! Another part of this journey -
I start the 25th too but that is a week from Monday. Looks like we will be on the same trek
-
Merilee I will be thinking of you Monday 7/25 as I start treatment. May I ask how many treatmments are in your future?
I really hate that this is coming...but glad to start the journey and get it over with.
-
I will do 30. For me this seems like it will be easy compared to chemo which I finished 3 weeks and 4 days ago. I am just going to imagine little healing light beams helping me to get anything that may be left microscopically.
I will send a little light your way while I am at it.
Are those snousers (sp?) I see there?
-
Yeap. They are my schnauzers. Thanks for the thought about healing beams.I like it. I am very glad that your chemo is done.
I am also working full time through the rads. I am hoping the fatigue is managable. I have a very physical job and on my feet all day. The good thing is my RO has gotten me the last appt of the day so I can go home and rest.
I packed a rad bag today. You might ask what is in it.
The 1st thing is my iPod. I asked during the sim if I could bring it and they said the suite has a iPod docket. I need to select something that will calm my nerves.
Lotion is next. I have been lotioning for 3 weeks now because I was peeling near the incision site when I first saw my RO. She gave me the lotion and said to start using it.
Next I have an big cheap T shirt from Walmart . I have been reading that there is a possibility that they might mark you during some treatments and I don't want that on my everyday clothes. I have 5 small tattoos also, plus some line drawn covered with a clear dressing (tegaderm) near the nipple. They told me 1.5 weeks ago that I needed to keep that mark on.
I also have a bottle of water and a bag of almonds for after treatment.
Finally I have a zipper hoodie to cover the big t shirt if I don't where the bra.
Be strong and never forget we are here to help.
-
I hope we can keep this thread positive and supportive. I know that is what I need and I wanted to mention that from the start in hopes of setting a mood.
I for one am happy to be standing, and alive to do the treatments. Could easily have gone another way. Let's celebrate life, not let this next 6 weeks or so rob our joy. Yes things may come up, we may get sunburned or dry and itchy, but relatively speaking we are the lucky ones.
BB thanks for sharing your list,looks like a good one.
-
I would like to join you all too. Had my frist appt. today with the RO - go for mapping August 3, rads to start August 8. They said I might be a candidate for 4 weeks of radiation instead of 6 - I was feeling very nervous when I first got to this appt., like I was going to cry, but they made me feel comfortable and at ease.
-
I would like to pose a question....
What are you going to do at the end of rads for celebration? I have been giving that a lot of thought and would like any input. I have gotten so many wonderful ideas from here.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team