MIDDLE-AGED WOMEN 40-60ish

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2011

    I'm doing very well, thank you.  Saw my BS a couple of weeks ago and he now does not want to see me for six months so that makes me very happy and it means that the Femara is working well for me too.

    Re your thinning hair, I also had that but I started taking Biotin and it did slow down and then stop so now it's just the normal hair fall that everyone gets.

    Next major thing for me is my trip to the USA in September so everthing else has to wait....lol.

    I'm hoping that you get good reports from you scan on Monday and I'm keeping my fingers crossed for you.

    Love n hugs.  Chrissy

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited July 2011

    Welcome Foxlairfrm. What a story you have! I hope and pray that you are able to get the pain taken care of and  that you get good reports on your scan. 

    chrissyb....where are you visiting in the USA, if I may ask? I hope you have a wonderful trip!

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2011

    Barb58 I will be visiting New Jersey, Nth Carolina, Florida, Missourri, Colorado and Southern Califoria.  I am really excited!  as you can imagine....lol

    Love n hugs.  Chrissy

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011

    Wow, you are coming to the States! Where are you planning on visiting? Ok, here's the deal...I want to sneak back in your suitcase! When are you coming? Sounds.so exciting.

    I do agree that a positive mind helps heal the body. My gosh, I do everything possible to avoid negative thoughts. They do sneak up on you and you may have a bad day but I try to "change the subject" in my head when they do. Yesterday was an up and down day. My daughter's baby shower. her first baby. So exciting and so...I don't know, am I going to be here very long to enjoy my grandchildren? I quickly busied myself and tried to think positive. It pretty much worked. I busied myself too much though and I'm worn out today. Slooowly getting things done. Hey, as long as dinner is ready around 7 who cares?!

    Deborah

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2011

    Deborah, I arrive on 2nd September and I will be there for about six weeks.

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011

    Chrissy, are you going to visit the outer banks in NC? We just got back from Hatteras island after a glorious week of fishing and relaxing in the most beautiful soundfront house! I don't know how or if I can,post pictures here, but they are awesome! Southern California, love San Diego! Hope you can get there. There is so much to do and see here. I hope you are staying for several weeks!

    Deborah

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2011

    Deborah I am definitely going to the Outer Banks....lol......that is my destination !!!   To post a pic here all you need to do is copy/paste from face book or uplaod to Picasso or Photobucket and then copy/paste here.  If you have hassles let me know and I PM you.

    Chrissy

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2011

    Here is a posting pictures tutorial made by TimTam:

    Posting Pictures

    If link does not work, cut and paste this:

    http://community.breastcancer.org/forum/93/topic/691885?page=1#idx_21

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011

    Chrissy, what a perfect time of year to visit. If you plan on VA at anytime, please let me know. Williamsburg is awesome and DC is really worth the trip. Both aren't that far from me.

    Deborah

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  • chrissyb
    chrissyb Member Posts: 16,818
    edited July 2011

    I'll keep it in mind, thanks.  I have a little bit of what I call wiggle room but I have to see how I hold up....lol   This trip is massive as I have time in Singapore and London before I even get there!  but I am so looking forward to it.

    Chrissy

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011
    I am going to see if this works.
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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011
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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited July 2011
    Wow chrissyb! You are visiting a lot of places and all over the country too! That sounds wonderful! The only one of those places I haven't visited is New Jersey and they're all beautiful but different from each other. It will be interesting to hear which places are your favorites. =)
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  • Sherryc
    Sherryc Member Posts: 5,938
    edited July 2011

    Chrissy sound like you will have a wonderful trip

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  • reesie
    reesie Member Posts: 2,078
    edited July 2011

    Welcome Deborah, glad to see you make your way over here Smile

    There's a fun group of women here, but we can get serious when we need to.

    Barb - what are you waiting for - come on over to Jersey - we let you in free (but you have to pay to leave lol).

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  • Paula66
    Paula66 Member Posts: 1,728
    edited July 2011

    Hi Deborah!  Wecome to see you here.  Wow you have been thru it thats for sure.

    Chrissyb   Have a good time!  Yes you are going to several places.  Have a blast and enjoy!

    I have a question for you gals who are taking Tamoxifen.  Heres the deal.  I have hotflashes like crazy and it can be a pain.  I get through them just like the zillions of women before me have.  I can really tolerate the heat.  Im not a cod weather person at all. So anyway Im flashing like I normally do, but the last week I get cold chills like crazy!  I dont get it.  Is there anyone else out there who has this going on and is it normal.  I do take a baby asprin everyday also.  I just dont understand what the heck is going on.  Any help is welcome.  

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  • Paula66
    Paula66 Member Posts: 1,728
    edited July 2011

    Hi Deborah!  Wecome to see you here.  Wow you have been thru it thats for sure.

    Chrissyb   Have a good time!  Yes you are going to several places.  Have a blast and enjoy!

    I have a question for you gals who are taking Tamoxifen.  Heres the deal.  I have hotflashes like crazy and it can be a pain.  I get through them just like the zillions of women before me have.  I can really tolerate the heat.  Im not a cod weather person at all. So anyway Im flashing like I normally do, but the last week I get cold chills like crazy!  I dont get it.  Is there anyone else out there who has this going on and is it normal.  I do take a baby asprin everyday also.  I just dont understand what the heck is going on.  Any help is welcome.  

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  • OG56
    OG56 Member Posts: 897
    edited July 2011
    Wow there is a lot of travelling going on here :), I have decided that I am becoming sooo lazy not working that I best find a new job real soon. I have traveled all over the state of NY for the last 15 years and it feels so good to sleep in my own bed every night that I want to stay in it way too long! I have been going to bed at 1 or 2 am and getting up at 10 or 11, do you think someone would pay me to sleep? My hot flashes are coming on strong all of a sudden and all the other AL symptoms too, is it the heat? Welcome to Foxlairfrm, I think we should nick name you Foxy!
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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011

    Paula, with tamoxifen back when I took it and now with Femara I do get hot and cold flashes. One minute I'm drenched in sweat then I have chill bumps all over. Sometimes the cold flash comes by itself. Hubby teases me "it was hot, it was cold. It was hot, it was cold". Lol. I think it's normal for these meds.

    Reesie, I didn't know you were a Jersey girl! How bout that Jersey pike. Good grief I couldn't stand it. Made my husband drive. Otherwise what a beautiful state! The Jersey shores used to be beautiful many years ago, I hope they still are.

    I don't know if there has been any place I've been that isn't beautiful in it's own way. Some I wouldn't want to visit again but glad I did. Very hot and humid here in VA and going to get worse by weeks end. Heat index to 117 by Thursday. Not normal here, Phoenix maybe.

    Deborah

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  • LovesChristmas-Barb
    LovesChristmas-Barb Member Posts: 706
    edited July 2011

    reesie...I may be coming to New Jersey next summer for a wedding. The future bride was just here to visit several weeks ago and she was teasing about how you have to pay for a toll road any way out of Jersey so I knew what you were talking about....hehe....

    Foxlairfrm...the first time my husband and I visited Virginia was back in 1980 and it was over 100 degrees every day we were there, but it was beautiful. We didn't have AC in our car back then and it was hot but we had a great time any way. We love Virginia...we brought our kids back around the year 2000 and they always talk about it being one of their favorite vacations. They loved Busch Gardens, Williamsburg, Jamestown, Monticello, and the beach. I would love to drive through in the fall some year...I hear the mountains are gorgeous then.

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  • Sherryc
    Sherryc Member Posts: 5,938
    edited July 2011

    Paula I also take tamox.  At first I had hot flashes like crazy, then it started having the chills then hot flashes, then it all stopped completely.

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  • Paula66
    Paula66 Member Posts: 1,728
    edited July 2011

    Thanks for the info.  I thought I was going crazy.  I go from being so flippn hot I cant stand it.  Then the next thing I know Im freezin my fanny off.  I was starting to think I was off my rocker. 

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  • jo1955
    jo1955 Member Posts: 8,543
    edited July 2011

    Paula - You are not off your rocker - the hot and cold sounds like me.  I only get this way in the evenings.  It can be so frustrating.  The rest of the day and when I sleep are fine.  How crazy this can be.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2011
    Paula66, I've had the chills a few times also (but not much compared to the hot flashes.)   It is totally normal.  I've read many comments about them.  You haven't been on Tamox. that long, so you might be one of the lucky ones that ends up having the flashes pretty much disappear.
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  • walker2222
    walker2222 Member Posts: 558
    edited July 2011

    Welcome Deborah - you have an incredible story.  I am on Femara and SE have been minimal, I take it a night which seems to help a lot.  Took a couple of weeks to see a significant change but the only SE's I seem to have are joint pains.

    Saw MO today and told him about my back pains and chest pains, so he is recommending bone scan.  He also said my liver count was up a bit from last time so if they are still up he is going to recommend CT scan as well.  I seem to be doing well with the binding still but can tell there is some seroma fluid there but not for sure how much.  See PS Wed. then off to see my Dad for a long weekend.  He is still in the hospital trying to gain strength.  Sister said he is 50% better than when he was first admitted.  Just slow going.

    Speaking of cooking, my DS has been cooing with chololete with his new baking book (he wants to be a pastry chef).  One of the three recipies he tried were eatable, brownies. He is going over to a friend's house from church Wed. to try sweet breads.  Gota give him A for effort.

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  • walker2222
    walker2222 Member Posts: 558
    edited July 2011

    I only seem to get flashes when I am stressed now.  They are the hot/cold almost clammy ones.

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  • janinnj
    janinnj Member Posts: 89
    edited July 2011

    Foxy- I agree keep living life.  I hope your scans come out good. Grandchildren are such a joy.

    Reese- I must stop on my way home from work tomorrow and get some Jersey Peaches.  I was just told my WBC is good enough I don't have to watch out on fresh vegetables and fruit any more.

    Had my first of 28 Rad Tx's today.

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  • elimar86861
    elimar86861 Member Posts: 7,416
    edited July 2011

    mjb, I had back/rib pain too, and my MO was all over it with a bone scan too.  They just don't want to take a chance of it being something, but mine was "nothing" (other than probably muscle and ribs still reacting to my rads months later.)

    Even now, almost two years later, I find myself stretching my arm and back as much as I can to try to offset the tightening from rads.  That poor radiated tissue is just not as elastic as it is on my untreated side.

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  • jo1955
    jo1955 Member Posts: 8,543
    edited July 2011

    janinnj - Rads will be over before you know it.  Be kind to yourself and use those creams everyday and don't fight the fatigue.  However, you may be one of the lucky ones and not have the fatigue.  Keep posting and let us know how you are doing.

    MJB - A DH for a pastry chef?  That is interesting -hope he does well - I can imagine all the goodies in your house. 

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  • Foxlairfrm
    Foxlairfrm Member Posts: 214
    edited July 2011

    As Reesie said, we can get serious here.  I just want to say to all you ladies, especially those with stage ll and lll.  Push for scans, no matter what your Dr. may say.  Push for it!  My bloodwork came back normal for 14 years.  It was showing only slightly elevated when they were looking at the scans and the cancer was eating my bones away!   After the 7 or 10 yr mark they seem to do less scans and rely on the bloodwork.  Lie if you have to, tell them you hurt somewhere!  Insurance companies don't want to pay after a period of time.  I am sure my recurrence has been festering for probably a few years and we didn't know.  Instead of looking at a grim prognosis, I could have caught it much sooner had I known to push for a scan. I am having three seperate blood tests done monthly to gauge what's happening now.  Scans nearly every three months because apparently the blood tests, at least in my case are not really reliable.  I am lucky to have found such a great group of women for support here, the least I can do is give a little advice.

    Deborah  aka "foxy"

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