Complementary and integrative approaches

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  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    SherriG, so the trials used 4 and 5 mgs. See it's things like this that leave me speechless. Why in the world would we be getting such strong dowses then. I know it's hard on our bones. It would seem to me if a lower dose worked in the trial our bones would be taking a much less beating.

    Your last paragraph is what my fear is too. Another thing I'm learning is we might get BC back but it will now be ER-.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    You are doing something right BinVa, I see you joined in 2007.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    Merilee .. My four year cancer-free date was in March of this year.  Yay!!  The only thing I would really like to cut back on is my coffee intake.  Working from home, I tend to drink coffee all day!  yikes!

    Bren

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Sherri

    I think I did respond to that. My Naturapath told me that she would recommend 1/4 of a tab twice a week. She is going to show me research that indicates a lessor dose does the job just as well. Someone posted the research but know I can't remember where. She works with Hormones alot and told me that she has a lot o men who take it because their testosterone is turning to estrogen and then they get man boobs. These great big guys take the 1/4 dose 2x a week and it drops estrogen for them. Hmmmmm....

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011

    Oh I misunderstood. I was thinking .4 or .5. Thanks for clearing that up.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    BinVa, given your post above, this study would not even concern you. However, it would help us all to understand, if you had your dx in your tag line, how you could discontinue both Tamox and AIs.

    Ok girls, the argument was whether our hormones should be measured in order to assess whether Tamox or AIs were working or not.  Some posters emphatically said that there was no need to do so for various obscure reasons.  This goes to show that we cannot even give credence to posts which appear to be coming from « authoritative » sources.  It also goes to show that nurses and doctors cannot stay on top of research and that it is therefore up to us to do so.

    What this study basically says is that

    Our baseline estrone (E1), estradiol (E2), E1-conjugate (E1-C), androstenedione (A), and testosterone (T) levels in those of us who are postmenopausal with resected early stage breast cancer are regulated by genes.

    This study revealed that our baseline levels of E2 and E1-C in those of us who are postmenopausal may be of importance for understanding our estrogen physiology and our response to aromatase inhibitor therapy.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Seems like common sense to me, but I did read the posts you are referring to.

  • Kymn
    Kymn Member Posts: 999
    edited July 2011

    Hi girls, I was just wondering if there was anyone out there who was taking something specific for TNBC.Kind of scary not having a targeted thearapy and now that I am done chemo...still have rads to go...I really want to know what I should avoid and what I should be consuming.

    thanks for any info provided

    Kymn

  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    "This goes to show that we cannot even give credence to posts which appear to be coming from « authoritative » sources. It also goes to show that nurses and doctors cannot stay on top of research and that it is therefore up to us to do so.   What this study basically says is that..."

    Oh. My. Gosh.  Luan, are you serious???   So we shouldn't "give credence" to information from authoritative sources like NIH, NCCAM, ACS, etc., but for some reason we should "give credence" to your  interpretation??  

    Wow.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    "authoritative" sources = some posters on BCO who convey "authority".  Easy to take out of context, hein ?  Why don't you read the thread first before hitting the ceiling, it might spare you a headache

    Can't stay away from the alt threads, can you ?  Much reading on your ex-thread.....

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    Luan .. I beg to differ with your response to me.  My estrogen levels are important to me.  I am Stage I BTW.  I had a total hysterectomy which significantly lowered my estrogen levels.

    Bren

  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    Hi Kymn,

    I'm TN too! For all my research and reading, it seems the best option for us is a low-fat healthy diet and regular exercise (as evidenced by clinical studies, as well as common sense), but that's sort of a no-brainer, I guess! There's a lot of great information on the triple negative forum here, as well.  I'd also recommend www.tnbcfoundation.org if you haven't been there.  Great info!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    BinVa, my point was that if you are not taking an AI nor Tamox, I can't see how this study concerns you....

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    The study is of importance to all who are ER+ whatever their treatment choice.

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Friday, February 5, 2010

    Curcumin May Be Non-Toxic TNBC FighterCurcumin, an ingredient in the Indian spice turmeric,  can slow the growth of triple-negative breast cancer cells, according to a study on cell cultures published in the journal Breast Cancer: Basic and Clinical Research (September, 2009).  In lab research, curcumin  killed TNBC cancer cells within 72 hours, without interfering with healthy cells and reduced the ability of TNBC cells to migrate to other parts of the body.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Well then Rosemary, how about thank you, hein ?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    I haven't posted on this thread, but I have THOROUGHLY ejoyed reading it.  I remember a time many years ago that we posted on the alternative thread and we all got along so well.  We posted about supplements, research, and how dumb I am...LOL  I really would hate to see this thread locked or deleted because a few people want to stir up trouble.  There is not one thing wrong with these women discussing measuring hormones.  If their oncs are doing it why question it?  We know that there's literature out there that we are NOT going to agree with.

    I'll be back later.  I'm really enjoying this thread and I have a couple of things I'd like to share....well, complain about.  My primary for one, and the NP at my onc's office for another.  They just don't know everything therefore we must keep on top of things and we can't believe EVERYTHING we read. 

    I sure wish Constantine (Edge) was still here.  I was our little researcher until some wise-guy woman decided to scare him off.  That's another subject...it was years ago.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011
    Kymm, I will find you a website that I think you may be interested in.  There are some good suggestions of what supplements to take.  I will PM it to you when I find it.  Wink
  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    Thank you Luan for posting that baseline hormone levels can be a valuable tool. Mine were tested before I began AI therapy but not again but I got that baseline so I'm good to go. Woo hoo

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Welcome ShirleyHughes,Smile

    Please post any websites or forums you think are helpful. We're trying to explore resources for supplements and strategies.

    Thanks!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011
  • mollyann
    mollyann Member Posts: 472
    edited July 2011
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011
    Welcome ShirleyHughes, glad you enjoy our conversation Smile
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    You're welcome Rosemary, shouldn't they be monitored though ?

  • calamtykel
    calamtykel Member Posts: 1,187
    edited July 2011

    Luan is right on.  Vaccines are disgusting - messing with genetic material and then injecting it directly into the bloodstream where the body cannot get rid of it as it does when something arrives in the stomach.  We stopped shots  and I will say my younger two children (7 and 9)  who never had any shots except for tentanus have never had an ear infection, strep or upper respiratory infection save for small colds.  My older two have been sick more with such diseases over the years and they were fully vaccinated until they were five.  My 12 year old son is being evaluated for asperger's next month.  :(  I wonder how much of his strange behavior is from his shots as a baby...... :( .

    I refused the flu shot and had an actual fight with my oncologlist about it.  "ALL my patients get it".  Well, this one ain't.  I assured her there was no way with all the horrible chemo entering my body that I was going to inject yet another thing in there that contained mercury, formaldehyde and foreign DNA.  Now I see in the UK they've stopped the pneumonia shot completely because it's so ineffective.

    And yeah, fermented stuff is great!  I love Tekka by Eden - its a very salty, dried Japanese fermented soy (different from regular soy) and it's really good on popcorn! :D

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2011

    Please understand that we will delete this thread immediately if it gets disrespectful and unproductive. This is a thread for the discussion of complementary and integrative approaches, as compared to standard treatment only and/or purely "alternative" approaches. Please exchange information and experiences kindly, or do not post. 

    Thank you.

    Your Mods 

    edited to clarify. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    You know what girls, I truly enjoy your company, but I'm gonna have to stop posting on this thread as my posts in response to provocation are being deleted but not the provocators' posts.  This is totally discouraging for me.

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Moderators,

    I'm not sure what is going on today. Could you address your deletion policy to the bullies rather than the bullied? We would really appreciate it.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2011

    We have deleted comments that we thought directly attack a person, not just disagree with their viewpoints. If I have made a mistake, or you read things differently, maybe we just start over?! Please let us know if it would be easier to begin the tread again. 

    I would like you all to continue to post, but please do not attack the PERSON, just agree to disagree with certain viewpoints and decisions. 

    Thank you. 

    again, edited for clarity. 

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    This is the second time I'm writing today. I have never written before today.

    I see you have left the Claire From Seattle post insulting me up [Complementary and Integrative approaches] but have chosen to delete the responses to the bullies.

    Also, you have chastized us for talking about alternative medicine. Nobody was talking about alternative medicine. Please clarify. This reflects very badly on BCO.

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