Complementary and integrative approaches

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  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Luan,

    Yes, people seem to recycle urban legends.

    Britchik,

    Please cite the sources for your theories about why no metabolic evidence of Tamoxifen or AIs can be measured in the body. Please provide documentation or evidence. Your explanation of how Tamox and AIs work in an invisible biochemical  world is too woo-woo for me to understand.

    Thanks so much in advance.

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Is anyone using curcumin?

    I have been taking Life Extension's brand curcumin capsules. But I would like to figure out a way to order it loose from a spice company and take a teaspoon a day with some black pepper for absorption.

    The problem is I can't figure out what food I could mix it in. Any ideas?

  • macygrace
    macygrace Member Posts: 205
    edited July 2011

    Those were the days Merilee!

    Mollyann,

    Try sprinkling the curcurim on vegetables. I use tumeric once in a while.

    Luan,

    Use nose plugs to make the fruit salad if smells bother you. I think fresh is better than using pills. I don't trust them to have what they say are in them.

    It's going to be 95 degrees by me today....going swimming after the basic chores are done. Laughing

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Molly, i add my curry mix (curcuma, black pepper and others) to everything i can, vege juices, omelettes, stir fries, soups, any recipe that will accommodate it, a healthy shot goes in. Now, i want to graduate to grinding my own mix of freshly bought spices, incomparable !



    Molly, it was a medical "resident" that told me this....

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Macygrace, thanks for the tip, i can just picture myself .. Lol ! Usually though, taste accompanies smell ??



    Have a wonderful day, hugzzz

  • macygrace
    macygrace Member Posts: 205
    edited July 2011

    Luan,

    Once it all marinades together, it tastes just like fruit punch!

    Just waiting for a load of laundry to finish and I'm off to the pool. And once again this dinbat forgot to ask something. I'm wondering if anyone believes that cancer feeds on inflamation? From things I've read such as high doses of Ibuprofen being found to combat metastisis. Not just trying to fight inflamation but keeping a strong immune system. Thats why I down the tea's and eat tons of garlic. I don't want to be an angel, I want to remain a little devil...LOL

    Hugs to all....Laughing

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2011

    Mollyann, I mix my curcumin and black pepper into my organic veggie juice and chug it down. Yum!

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Luan, Macygrace and Barbara,

    Thanks for the curcumin tips. I can manage putting it in juice and on vegetables. I had tried mixing it in yogurt and practically gagged. Barbara, do you juice your own veggies?

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    From Bernadine Healy, MD : "Blockbuster Therapy for Breast Cancer Survivors"

    "The study followed 4,164 breast cancer survivors over a period from 1976 to 2006, assessing in detail their use of aspirin. The women studied initially presented with tumors ranging from small early invasive cancers confined to the breast to more advanced ones that had spread into surrounding lymph nodes. Over more than three decades of follow-up, 400 women had a cancer recurrence with distant tumor spread, which had killed 341 of them by the time the study ended.

    The power to spread is the power to kill, and what aspirin seems to be doing is interfering with that process. It was by coincidence, not by design, that almost half of the medically smart women in the NHS were diligently taking aspirin. The surprise finding: Those who made aspirin a regular habit, consuming low doses two to five times a week (mostly to help their hearts), were

     71 PERCENT LESS LIKELY TO HAVE A DEADLY RECURRENCE of their breast cancer compared to those who were taking little or no aspirin."

    http://health.usnews.com/health-news/bernadine-healy/articles/2010/02/18/aspirin-a-blockbuster-therapy-for-breast-cancer-survivors

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    I  include a low dose asprin with my supplements everyday for this reason

    Mollyann your comment about not wanting to be an angel  and  remain being  a little devil cracked me up!

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2011

    Mollyann, yes, I do. Sometimes if I am in a hurry, I drink the Knudsen Organic veggie juice.

  • JoanDavies
    JoanDavies Member Posts: 160
    edited July 2011

    I read somewhere that if you take gingko biloba then you should not take aspirin, as both act as blood thinners. I wonder if one is more preferable over the other?

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    I thought Ginko was a no-no for er pr +????

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Britchick,

    We're still waiting for your evidence on Tamox/Arimidex not having any measurable metabolic action.

    I'm sure you have documentation for that theory you gave. We'd love to hear it.

    Thanks so much.

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    JoanDavies,

    I'm also wondering if it's the blood thinning properties OR the anti-inflammatory properties of aspirin that 's effective in preventing recurrence. They also studied Advil takers and the benefit didn't seem to be there.

    Is there a way you can measure Ginkgo + aspirin thinning in the blood? Would that same test that the Coumadin takers use work for aspirin +Ginkgo? How much Ginkgo do you take? Do you find it effective?

  • revkat
    revkat Member Posts: 763
    edited July 2011

    Britchic did not say anything about "no measurable metabolic action". What she said is that measuring levels of estrodiol and FSH would not be a good indicator of whether Tamoxifen or an AI is working. Two different things. Mollyann, why don't you review the package inserts for these drugs so you can better understand how they work.

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Revkat,

    You mean you don't have any sources of evidence either?

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Britchick,

    Please resist the urge to call names. Smile It reflects badly on you and the thread.

    You made the theoretical assertion about the action of Tamox and AIs. The burden of proof lies with you to support your claim. Simple as that. WHen you can find evidence for you claim I will review it with an open mind.

    Thanks so much for being kind.

  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    Wow Britchik, you summed up my personal position BRILLIANTLY:  "Contrary to what you might assume, I am open to evidence-based data from ALL sources if it can improve breast cancer survival and quality of life."

    As to the hormonal discussion, I'm triple negative so the AIs/Tamoxifen/etc don't apply to me.  However, I was in chemopause for about 2 years, both clinically and pathologically (blood hormone testing showed me to be absolutely-positively-no-doubt-about-it-menopausal).  My doctors made sure I understood that hormone testing is only a single "snapshot" of things at that moment in an extremely volatile endocrinological system that changes day to day.   Sure enough, it changed!

  • revkat
    revkat Member Posts: 763
    edited July 2011

    Mollyann,

    Could you clarify your theoretical assertion about the action of Tamoxifen and AIs so that I could understand what it is you are taking issue with? How is it that you think they work and why then would measuring Estrodiol be an accurate indicator of their effectiveness? When you clarify that perhaps we can discuss this further.

    Thank you for adding clarity to your comments.

    And I totally agree with those whose doctors are monitoring them for what is called "late ovarian recovery". I have a very good friend whose doctor put her on an AI and then seemingly ignored her reports that she had resumed menstruating (I say seemingly because I was not in the room for the conversation.) She has now progressed to stage IV and her doctor says hormonal treatments failed for her. No you idiot, you failed her by prescribing the incorrect treatments!

  • crazy4carrots
    crazy4carrots Member Posts: 5,324
    edited July 2011

    Britchick -- the only "proof" I can provide is in the negative -- my onc told me that testing estradiol will not show me if letrozole is doing its job.  I'm inclined to believe her!

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    t2 Thanks for posting those articles. the first one from JAMA is the one I think my Naturopath was referring to. You saved me searching, thanks again.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Re: the second study, I wonder what the outcome would be if they used equal doses. I see that they used 2.5 mg of Ferma and 1mg or Aremidex. Does anyone know what the difference of these two drugs are? They both do the same thing right?

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    I think we all want to know how to stay alive with the minimum damage to the rest of our body system, and  it is very overwhelming for a the ordinary person to muddle through all the scientific language. That is what I see all the questions reflecting, inquiring minds want to know. That is exactly why these forums exist, to learn about  and  discuss what is out there and what is credible.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    Geez I have to wonder where all the hostility is coming from. Please tell me it is not the Al's LOL. We are just having a discussion here, not on trial or anything like that. Let's agree to keep it friendly here. Hugs to all, we are all in this boat together.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Edited o add @ Britchick. Well, obviously they do ! Otherwise, we would not be having so many women on this thread whose levels are being monitered very closely. I seem to be the only exception. The more I read, the more i realize that my onco sure fits the "unconcerned" profile

  • mollyann
    mollyann Member Posts: 472
    edited July 2011

    Britchick,

    I don't see anyone attacking you or trashing the medical conventional world. You were only asked to back up your theory with some evidence. You said it was my job to back up your theory. Please think about this. It doesn't make sense.

    You were asked not to name-call. You persisted.

     2tzus very generously took the iniative and did the research. She refuted your position with documentation. Please read it carefully. I don't think you can accuse JAMA of having an agenda. I hope we are finished with this subject and this is a teachable moment. Thank you to Merilee for starting this thread. I hope we can honor its success by keeping it civil.

    Thank you all for help sorting out the fact-finding and evidence.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    As for me I plan to track mine diligently. I am not on Als yet but I want proof that the strong medicine I  will be taking is actually doing what it is designed to do. I will start radiation treatment in a week because I had a recurrance, and then I need to make a decision on which Al. I am now post menopause but, I had one very bad experience with Tamoxifen and learned the hard way that I need to insist on some things weather my onc likes it or not. It is my naturapath who will be doing the monitoring, as she is much more progressive and very familiar with hormones in general as this is an area of expertise for her.

  • sam52
    sam52 Member Posts: 950
    edited July 2011

    It looks like the reason why some people are having their estradiol levels tested is because their oncs are concerned that they are still menopausal.If their levels increased,(ie still pre-menopausal) it would of course be a reason to stop AI therapy and use tamoxifen instead.

    Not to see if their levels are ensuring that the AI is working.

    Completely different.

  • Merilee
    Merilee Member Posts: 3,047
    edited July 2011

    If I try an Al and my estrogen does not drop from the base line measure, I will try a different one.

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