Thinking Out Loud.....

1527528530532533977

Comments

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2011

    Sam is delicous and cold.

    Sandy congratulations.

    Diane are youuuuuuuuuuuuu OK? ♥

    Hey Linda.....are you having bad weather?

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    I hope your power stays on too!  Power grid overwhelmed?

    Congrats Sandy! 

    Glad you're enjoying Sam, Sheila.

    Yeah - where are our west coast friends?  Enjoying nice weather, I hope.

    Went for a run and then did a little elliptical.  Fat!  Fat!  FAT!   Yell

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2011

    I came to peace with my weight.

    If I'm not able to take care of myself then I will beSealed

    170pounds. Fat, chubby, DD size is too small etc etc...........

    I think i need to get another Sam.

    Oh i had some dessert when we went out last week. It was so good. I'm not sure of the name but rum, pineapple, cranberry juice with a coconut taste. Yummy.

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    Ooooh - that does sound good...

    Sorry about my kvetching.  It's just a lot of weight to put on all at once.  I'm still hoping half of it is water.  The other half is probably cake and ice cream.  And pink dessert. 

    Tomorrow I will have strawberries.

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2011

    Chris...I bought so much fruit today.

    I love to eat fruit but I'm also eating other things so I'm eating healthy and unhealthy.

    I have my GP in 2 weeks. We'll see how my cholesterol and everything else reacting to this. Probably he's gonna preach me LOL

    Good Night.

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2011
  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    HOT here and yes, I think the power grids are overwhelmed.  Too humid to do anything.  yucky.

    You went for a run????????????  I can barely walk outside with out dying.  Enjoy the added weight and pink desserts, they will come off in due time.

    Sam is good!

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Where are you Diane??  Are  you OK?  I hope you are not having more problems.  I'm thinking of you!

  • deborye
    deborye Member Posts: 7,002
    edited July 2011

    Sending out a search party for Diane.

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited July 2011

    I am here - my MRI results were basically ok, but they did call for another test called a ductogram.  They shoot dye into your nipple and then poke around your ducts with a needle and take pictures.  I am told that this is just an abundance of caution.  It has been freaking me out a bit.  But more than that, I am just having a terrible time with the Arimidex.  I did fine early on but geez, my bones hurt, my fingers, my wrists, my joints....it's not pretty and I don't think one should be living on large doses of Advil.  I am going in tomorrow to discuss a change because this quality of life is not working for me.  I think I am extra disappointed because for the first three months, I did pretty well and then it hit me like an elephant....

     Sorry you are all so hot but I do recall your wishes for just that during the ice and snow :)  We are sunny, but not too hot at all.

    I will write after I see the doc.  Thanks for the thoughtfulness and friendship ladies!

  • deborye
    deborye Member Posts: 7,002
    edited July 2011

    My tummy issues are better but lost 3 pounds which I wish was 30.

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    Ha ha - the only good thing about digestive issues - you get to lose a little weight.  Challenge is not to gain it right back -which is what I usually do.  Glad you're feeling better.

    I "ran" last night at 8:30 - after the sun went down.  The sun KILLS me. And I did not do it in good time - but I never do these days - sigh.  And only 2.5 miles - not the five that I would have been running a couple yrs ago.  I'm thinking I have never recovered from chemo.  I read on another thread that someone's dr told her it could take 1-3 years.  So I will hope that within another year maybe I'll get some energy back.  Every step is a struggle.  But I drag myself around, huffing and puffing, and sweating like a pig hoping for some improvement.

    Hope your AC is working, Linda.

    Sorry to hear the Arimidex is hurting you so much, Diane.  Some meds just don't agree with us. Hope the next one is kinder.  And that the ductogram gives good results. 

    I was down a few pounds this morning.  Hoping it keeps going.  This heat is probably making it worse.  Off to the grocery store and then to pick up the girls from the mall...  We're having sloppy Joe's tonight to use up the rolls leftover from one of DD's movie marathons.

    ♥   ((((((TOL)))))))

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Diane, I had a ductogram or whatever it is called when I was 23.  I thought I was going to pass out when the Dr. explained to me what they were going to do.  The good news is, it does not hurt!  Really.  The needle goes into your duct. I just did not want to watch.

    Good luck, gets some rest and I hope the dang side effects from the A go away.  It took me about a year to really get my body adjusted to the Tamox.

  • deborye
    deborye Member Posts: 7,002
    edited July 2011

    I did OK on the first 3 yrs of Arimidex but lately in the morning or after sitting for a while which I do a lot because I am at a desk, my joints and muscles have been aching.  I have 1 more year of this then I AM DONE!!!!!!

    Saturday I have BW to check TM again, then F/U with onc to see if the CA 27-29 is up or down.  I can't wait until I am done with all this $hit!

  • sheila888
    sheila888 Member Posts: 25,634
    edited July 2011

    I walked about a mile today. MH day. It's very hot but my body was actually felt good.

    Christine picked me up we did some shopping.

    Tonight we are having a gathering and goodbye party.

    She is leaving Thursday.

    (((♥DIANE♥)))  Did you try Femara before?

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Hope you enjoyed your time with Christine.  Before you know it, you will be in Hawaii!

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    Shopping counts as walking too!  Hope you have a nice party!

    Deb - I understood what you wrote!  Funny how we can figure out so many abbreviations and acronyms.  I almost missed bw, but figured it out.  Hope it's all perfect so you don't have to worry about it any more. (Also - before when I wrote ha ha - I was chuckling about the irony of how that's the only good thing about being sick - I didn't mean it to be a mean ha ha.  Saw my post and realized it could have been read in a mean way.  I really have to watch how I say things - it comes out wrong too often...)

  • deborye
    deborye Member Posts: 7,002
    edited July 2011

    I knew that, LOL

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Good night my friends! 

    And I knew that too Chris!

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited July 2011

    Sheila - I have not had Femara but am curious to see if he changes things tomorrow.....so glad you have had this time with Christine!!!

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    ((((((((Diane)))))))))

    Had first chemo 2 yrs ago today.  Remembering how not-so-D-H asked if my father could take me to my chemo appts.  Fortunately, I was able to drive myself and was fine going alone, but it would have been nice if he had wanted to provide some emotional support - at least for the first one.   Where I went, they give you your own room to be in for the first one before they put you in a common room for the others.  Having a room to myself had its advantages, but you can have allergic reactions to taxotere.  The nurse did stay with me for a little bit after the taxotere started to make sure I was okay, but after she left, my throat was the tiniest bit itchy.  I wondered how I would get anyone's attention if it got worse.  What would I do, yell, "Help?"  I'm not the yelling help kind of person.  I probably would have just hoped a nurse would walk by.   It didn't get worse, but that would have been a time when having someone with me would have been helpful.  Luckily, I didn't start having full blown allergic reactions until the 2nd txt and it happened immediately so the nurse was able to stop it right away.  And I was in the common room, so one of the other people could have called for help for me.  Unless they were all asleep...  Eh, whatever.

    Men suck.

    It's funny, when I see my onc and she verifies my drug allergies, she lists docetaxel.  I don't think to list docetaxel as a drug I'm allergic to - figuring no one is going to be giving it to me again - at least not without my prior knowledge so I can tell them I'm allergic.  Funny.

  • Meece
    Meece Member Posts: 19,483
    edited July 2011

    Congrats, Sandy.

    Enjoy your remaining time with Christine, Seyla.  I know all too well the pain of saying goodbye, but knowing that you will be seeing her again soon will make it easier.

    Diane, so sorry you are having issues.  That test does seem somewhat torturous!

    Deb, may you have great results from your TM BW!  I head to my onc tomorrow for my 6 mo. check-up.  I am pretty sure it will lead to more BW and possibly another mammo and/or mammo and possibly the bx they put off.  I feel better about them putting it off since if they were truly concerned, they would have done it in February.

    FDIL is going with me tomorrow as she enjoys going to the shopping district in LA and knows her way around.  She will be my guide since I have never been there.  We should have a few hours to have fun before my appointment.

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Have fun tomorrow and good luck at the appointment!

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Chris, so sorry you had to go to your chemo alone.  I wish someone was with you for emotional support.

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    It's ok that I was alone - I just wish my husband had wanted to provide emotional support. 

    Will be thinking of you at your appt tomorrow, Meece.  Have fun shopping! 

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    Wow - what a rainbow.  I can even see the violets.  Pretty.

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    Today was one of those - if you don't like the weather in New England, just wait a few minutes - kind of days.  Started off overcast, got a little hot and humid, the sun came out, then storms and rain came through, the breeze picked up, had a rainbow....Now it's cooling off, drying out, and there is some cool pinkish orangish coloration of the underside of some puffy cumulous clouds from the last rays of sunshine for the day. 

  • Makratz
    Makratz Member Posts: 12,678
    edited July 2011

    Same here!  We got about an inch of rain in a half hour!

  • raincitygirl
    raincitygirl Member Posts: 3,143
    edited July 2011

    Well, he agrees that I should take a short break and then switch and he wants to try aromisin because femara is so similar to arimidex.  I don't yet know enough about aromisin but will read later.  The arthritis pain has been overwhelming, up all night, moaning and groaning and that is with plenty of advil and ambien.I am hoping that this week off will be very helpful.  I have decided there is a missing link in cancer care.  For example, when I started having really dry skin and spontaneous skin bleeds, the female dermatologist wasn't familiar with the effects of an aromitase inhibitor.  When the wrist and finger pain increased, the orthopedic specialist stated the same.  So who is in charge of all that?  Me, and my medical degree from google....

    This was the first time since diagnosis that a tumor marker was done on me and I was fine.  My Vit D was at 76, also great.  I have to do the ductogram in a week or so.  This week is one year since diagnosis.  Just proves it really is never far from our minds or lives....

     Chris - I would have gone with you if I could.  DH may have been just afraid.

    Meece - good luck tomorrow!

    Blondie - how are you doing?

    Sheila - are you having some dessert?  I am!!!

    Deb - hope your tumor marker test is good as well.

    Linda - 23??? Tthat was so young!

     

  • chrisct
    chrisct Member Posts: 2,662
    edited July 2011

    I'm wincing just reading your description of the pain the arimidex caused you.  Hope the break takes away all the pain and that you have no se's from the aromasin. 

    It's true - they don't know anything about all the side effects.  The oncs deny it's from their treatment and the other doctors say it's not their problem either - leaving us to suffer. 

    (((((((TOL))))))))

Categories