What should I expect

Hello,

I am supposed to start rads 7/18/11. I plan on working and am concerned about the fatigue. I am fair skinned and big chested so any pointers will be helpful. I really don't want to have blisters....I am concerned about not using an underwire bra for support.

Comments

  • ebann
    ebann Member Posts: 3,026
    edited July 2011

    Trinity, I would recommend Jean's Cream to put on 2 hours before treatment. My Dr was impressed with this stuff. I did turn red and was very tender. I hope you can let your breast be free and naked while you are home. Make sure you wear cotton so that it can breath. Bra's will  be hard to wear as the rads continue. You may want to wear a cotton tank top under a shirt if you can. Fatigue is a good one. as it goes on the more tired you get. So hang in there. I am sure you will sleep very well when you get home from work. It is not easy and you will want to sleep a lot. It totally drains you. Though you maybe different and it will not affect you at all. That would be a good thing. I wish you the best with your rads. It is a process and it gets old after awhile. But remember to count down cause it will end.

  • Moderators
    Moderators Member Posts: 25,912
    edited July 2011

    Trinity, there will be members of the community along to give you more information and personal experiences, but a good place to start reading about what to expect from your treatment is in this section about radiation from the main Breastcancer.org site.

    Judith and the BCO team

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2011

    I am fair and big busted and I used emu oil. I did not burn at all. I wore a sports bra and it was fine for me.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    Trinity .. I am fair as well and used Aquafor and pure Aloe Vera.  I still burned and had little white blisters.  I was lucky that I work from home.  I didn't get the fatigue until the last two weeks .. and then it was pretty tough.  I would have had a hard time going out to a job everyday.  The fatigue lasted a good two weeks after rads ended.  It didn't take long for my breast to heal .. and today you can't tell the difference from the other one.

    I wore tank shelf shirts with a blouse over that.  But because I was working from home, I was able to just wear old t-shirts most of the time.

    Wishing you the best,

    Bren

  • edwards750
    edwards750 Member Posts: 3,761
    edited July 2011

    Trinity, I was fortunate I could take leave from work. I started experiencing fatigue about halfway through my 33 treatments. My breast burned and now itches but I used aloe vera and a silver cream and aquafor too. The silver cream worked great. I had more pain from the incision under my arm from the node biopsy than anywhere else. My breast still hurts and burns a little and the RO said it will be weeks - maybe longer before it eases up. I knew several people who continued to work which got really tough toward the end of their treatments. Fortunately one of them was a teacher so she was home by 3 and immediately took a nap. I was told to listen to your body - dont overdo and if you are tired take a nap..if you can. All in all it wasnt too bad. The time goes by fast because you are going every day. Once it is over you still have to watch your time in the sun. When I went for my treatments I wore a zip up hoodie so I didnt have to undress every time. Not the most comfortable thing but it beat undressing every time. Around the house I wear big oversized tshirts all cotton. Cant stand anything to touch the affected areas. Wear a sports bra when I have to go out but otherwise around the house dont wear a bra. Good luck...keep us posted. Diane

  • desdemona222b
    desdemona222b Member Posts: 776
    edited July 2011

    Trinity, I would recommend following your radiologist's recommendations about what to use and what not to use on your breast to the letter.  It's not a good idea to use certain types of creams and oils because they can possibly hold the heat in and cause the burns to be worse.  You can't "prevent" burning with creams, etc.

    I worked all but one week during rads - it wasn't too bad until about the last two weeks.  Wearing a bra becomes an impossibility - I wore very large, long athletic bras or camis instead.  One thing you'll want to do is keep the area underneath your breast powdered with cornstarch because skin-on-skin can cause problems unless there is plenty of powder.  I ignored the powder recommendations and ended up with a keloid scar on the underside of my breast.

    I did not use any cream or oils while getting rads based on my doctor's advice, although I understand Aquafor is recommended by doctors.  I was given a tube of lidocaine gel to use for the pain from the burns.  But I did not burn very badly. 

  • Trinity789
    Trinity789 Member Posts: 55
    edited July 2011

    I appreciate everyones information. I will check back in with the doctor to see what they recommend as well. It's nice to hear that while the fatigue is tough I can make it through it.

    Take care!

  • Trinity789
    Trinity789 Member Posts: 55
    edited July 2011

    Thank you! Great information.

  • peggy_j
    peggy_j Member Posts: 1,700
    edited July 2011

    Creams are good but I learned the hard way that it's better to have perfectly clean skin at treatment (no lotions/creams).  I had been putting cream on 2 hrs before treatment; when I stopped put cream on before treatment, my skin improved dramatically. You can put cream on immediately after and 2x/day.

    For fatigue, plan to sleep extra the last few weeks, like 8-9 hours a night, more if you can. (take a powernap midweek if you can). Walk 1/2 hr a day to keep up your energy. (yes, even if you're tired, the walk will help. I walked first thing in the morning when my energy was best and then felt better throughout the day). Pamper yourself! :)

  • pejkug3
    pejkug3 Member Posts: 902
    edited July 2011

    I'm doing rads right now.  I'm not particularly fair skinned, but I am large busted - DDD.

    The cornstarch thing really works?  I've tried using cornstarch powders before and I always get boils from them.  But maybe plain cooking cornstarch is different somehow?

    I'm not wearing a bra for the most part but I wear men's A shirts at night...one to wear, another shaped into a "W" and tucked under the breasts and in between.  I'm a side sleeper and I'm trying to avoid skin-to-skin in my cleavage.

    My rad techs talk like I'm doomed because my breasts are so large.  I swear, my breasts have not been smaler than a D since my freshman year in HS.  Even when I was a runner 10 years ago, I wore a DD. 

    I have 8/33 done - no major reactions yet.  I'm following Omaz's skin care regimen...except for aloe.  Aloe never does a thing for me with sunburns and I hate the way it feels

  • Knicastro2
    Knicastro2 Member Posts: 10
    edited July 2011

    I am so happy to have found this discussion site. I am still awaiting my onca dx score to find out if I will have chemotherapy first. I have had the lumpectomy and will start radiation shortly if they decide no chemotherapy. I really appreciate all the helpful information as I too will hopefully be able to work. I run a small restaurant with my daughter. I now realize that I will need to pay attention when I feel tired. Again, thanks to you all and I will surely try to help support others going through this with this forum.

  • Blinx
    Blinx Member Posts: 280
    edited July 2011

    I think I looked shocked when my RO said I couldn't wear bras. I said "Not wear a bra to work, are you crazy???" But I found some things that worked for me. You can try using your current underwires, just take the wire out, and also use a bra extender (for bras that hook in the back) - they sell them everywhere now. I also went out and bought a few larger cotton bras, and cotton tank-type bras.

    I used Aquaphore and aloe, but I don't think they made any difference. I stopped using talcum powder years ago and now just use the baby powder that is cornstarch with aloe.

    I worked all through rads and wished I didn't. I had to cut my hours the last few weeks. You'll have to see what works for you. Some people walk or exercise throughout and it helps them cut the fatigue.

Categories