Medical Industrial Complex

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  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    They certainly do. If you want to preserve that gossip thread of yours...

  • apple
    apple Member Posts: 7,799
    edited July 2011

    ...... I remember my onc. coming into the room, bursting into tears and hugging me.. "we can't cure your cancer she said'  I told her to MAN UP.. that I had probably known it all along.  She looked at me quizzically  and got back to work.. looking at her charts and explaining her next level of treatment. 

    I wouldn't trade her for the world.  she's the one with all the complimentary med info in her office.supplements. diets, critics on different approaches.. She is 1/2 Chinese, which probably means not a thing.  I just like her.

    so no.. i don't like being vehementally disagreed with.  there is a forum protocol which calls for respect and politeness all the across the interwebs... or at least there should be. 

    or as MOTC would say

    I think we can agree that people with different opinions should not be ostracized.  Arbitration is not free in the real world but why pay for it here? Sock puppets can easily be identified by address.. so ganging up will not be so easy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    You just said it !!

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    I love my Onc too - he is DH's onc too - we both love him. I keep meeting other people (a couple of different people at work) who idolise him. One woman's husband had that nasty testicular cancer like Lance Armstrong and my onc saved him - he is now 11 years out!! He also lied to the government to get me Zometa infusions for free. He's wonderful!!!

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    ummmmm Susan, gotta give this round to Athena...it is a nonsense statement. Many drugs have saved many lives. That is a fact. Not all drugs are good, conversely not all drugs are bad. C'mon, you gotta do better than that. I was once at a conference and wandered outside to talk to the protesters who were screaming we were all killing puppies and babies for big bad pharma...I clearly stated I had never personally killed neither a baby nor a puppy. I then asked if this particular person had ever taken any drug at all, even an asipirin? I was told that was not the point. The protest against big pharma was the point. I asked if that included blowing up researchers in Europe and he responded that while he had nothing to do with it he fully supported it. By the way the name of the group I as talking to- there were several- was "The Anarchists" and they were dressed like grade B ninjas. I asked if they knew what an anarchist was and they said it is what we are. Ok. They were all paid $100 each for the day. Local students and some were bussed in. It was a joke. Oh, there were a few true believers but they also reserved the right to pick and choose which drugs were not to be included in the "drugs are bad" rant. Important cautions get overlooked by clamoring crowds like that.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Hummm, presently watching Whale wars...

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    I report on the industry I do not work for it.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Now, that explains a whole lot doesn,t ?? Somebody else earlier on this thread said they had worked for years with research onc, another poster works at MIT. Britchick, all the nurses, roll call !

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    I am not sure what it explains. I joined BCO because I was diagnosed with breast cancer and was scared out of my wits. I do not understand why someone like me, who sees both sides (in that I chose a bmx and then declined arimdex) and understands nothing is black and white is somehow now on the side of big pharma? If that was the case I would lie about my choices and bang the drums for AIs. I would not publically post that one pill about killed me and the SEs took almost three weeks to leave my body. That I did not want to find myself gobbling a host of new pills to counteract SEs as they popped up. But I had to try it. Just my nature to consider all of my options. I wish I had not but I did. I invite you to read any and all posts I have made regarding AIs and my opinions.

    I do take care not to criticize those who take them. It is not my place. If they ask my thoughts, I offer them as MY opinion. Same drill with my supplement regimen. Which costs a hell of a lot more than my $10 copay for the AI. In fact Luan, you and I had civil supportive conversations on this very matter a couple of months back. Oh well. I have nothing to defend. I am just a woman who was DX with a bitch of a disease and am looking for answers and when I come here, to give and receive support and swap ideas. T 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Annette, I respect you because you respect me and I told you so. I remember very clearly the event.



    Unfortunately, a lot of water has gone under the bridge since. Don,t know if you are aware.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    People need not disclose their employment or anything else to debate and share ideas on this board. We are all coming from various worldviews.

    I'm fine with noting that I work at a hospital; I'm a clinical social worker who does the psychiatric evaluations in the emergency department.

    Most of the doctors I've met, both professionally and personally, take their work very seriously - and one either believes it, or doesn't.

    It must feel horrible to have such feelings towards doctors while one is a patient - I mean, it's awful enough we wound up as patients anyway! I love my doctors dearly because they are wonderful, but I know I wouldn't stand one second for a doc I don't. The experience sucks enough.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    i think, Susan, Luan, you two should tour Africa or anyother place where women die in childbirth regularly. Or children die of AIDS because there aren't affordable retrovirals (and yes, I know corporate medicine is at the root of that). Or go to Haiti, where there aren't enough doctors to help folks injured and maimed in the earthquake.

    i seriously mean this. wake up and see how the poor live and die without proper medical care. enough navel gazing about how you've been wronged by the "medical industrial complex" - because you haven't, darlings. the only thing that's wronged you ---if you're truly a patient/survivor-- is cancer.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    annette - great post. moving, honest. kudos to you.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Glad you had a great weekend and you are right about this Rainbowpony. My tumour had been growimg for at least 10 years, yet, when it was found, I had to undergo surgery within two weeks. (BTW, absolutely adore my BS, did not get so lucky with the onco who lost his wife to ovarian cancer right at my second treatment, had absolutely no time for me) Our system here just does not work like the one in the US. You do what your doctor tells you to do or you find yourself without a doctor. They don,t have time to waist explaining, bla, bla. You get 15 minutes, that,s it. I cannot even get a second opinion on my radiation pneumonitis. Was told that both pneumologists would have to confer. One does not step on another,s turf.

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited July 2011

    My aunt knows how to remove the "evil eye".  Does that make her alternative or a witch doctor?

  • orange1
    orange1 Member Posts: 930
    edited July 2011

    Why is it unbelievable that I post here?  The title of the thread is medical industrial complex, of which I am a proud member.  So who is more qualified to post on this topic then me?  At least I'm honest about who I am, and post data to support what I say.  I don't go around making a bunch of sh*t up, which is more than I can say about some of the sock puppets on this thread. 

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    I thank God every day for the Medical Industrial Complex. Without it my son-in-law would be raising my granddaughter and her brother and sister alone. My daughter hemmoraged in labor and was saved by a c-section and blood transfusions . My daughter only wanted natural deliveries but did what she had to do to save her life, a trait she has in common with those of us who have chosen what we all will admit are drastic treatments to save their lives when they were faced with a cancer diagnosis. I am sure many of us thought a natural lifestyle is better but when faced with a cancer diagnosis thought it was time to bring out the big guns..

  • pip57
    pip57 Member Posts: 12,401
    edited July 2011

    Luan, you really need to change doctors.  There really are some wonderful ones out there who will treat you like a person rather than a statistic or an experiment.  

    Edited to ask if you have had your scan yet.  I hope you get good news from it. 

  • bluedahlia
    bluedahlia Member Posts: 6,944
    edited July 2011

    All my doctors are excellent.....and I have quite a few.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    I fire doctors who are not excellent. I think that is something every patient should do. Your life is in their hands.

  • apple
    apple Member Posts: 7,799
    edited July 2011

    I'm an organist btw... nothing to do with anytype of medicine..

    I play for weddings, don't charge for funerals of fallen soldiers,  and  play for Sunday  and Saturday services.  I had to quit everything for a bit, thanks to a seizure or two... but am rather quickly falling back into it.

    I work for places that pray for me rather than replace me.    that's nice.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Pip, i cannot change onco just like that. One, you have to be referred and a new onco will not take me as his patient if i,m under the care of one of his colleagues. Just had the experience with the pneumologists. My cousin went from the english institutions to the french and is crying now for doing so.

    Went for the scan on Friday and seeing the onco on Tuesday, thanks for asking :)

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    rainbowpony

    Have you ever had a blood transfusion? Every blood cell from another person is a foreign body that your body tries to fight. My daughter has been weak since my granddaughter was born 11 months ago She can not have surgery or live virus vaccines (neirther can any of her kids) because of what transfusions do to the immune system.  It is a seriuos assualt on the body.

    Perhaps it is not as bad as chemo bu tI felt better much sooner after chemo than she did after her transfusions. We think of transfusions as benign or mild but they are not. But my point is she did what she had to to save her life as did I.

  • pip57
    pip57 Member Posts: 12,401
    edited July 2011

    Luan, are you from a smaller community then?  I am fortunate enough to have several oncologists available within 1/2 from my home.  I know my gp would gladly give me a referral to another one if I asked.  Actually, she has asked if I like mine as she was fairly new and my gp did not know much about her.  

    I will keep my fingers crossed for Tuesday.  Please let me know. 

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    My oncologist has been my friend for 25 years and my doctor for 4 1/2. Why would I not trust him?

  • petjunkie
    petjunkie Member Posts: 317
    edited July 2011

    I am a young woman that wishes I had been "over-treated." At 33, I had a 9cm DCIS with one microinvasion, zero nodes. Had a mastectomy (tumor was too large for lumpectomy). No one on my medical team thought chemo was a good idea. DCIS, clear margins, no nodes? Mastectomy seemed like more than enough. I did take Tamoxifen, but my oncologist gave it as an option, she didn't think it would decrease my risk of recurrence by that much, but thought we'd try it and if it didn't have side effects I could take it a few years.

    Two years later and I was diagnosed with extensive mets in bones and liver. Chemo has been keeping me alive with a good quality of life since then. I can't help but wonder: if I had done chemo back at the beginning, would it have stopped the mets from forming? Or at least bought me some more time?

    I'm 36 years old now and have Stage IV, terminal cancer. My oncologist is a world-famous doctor and researcher and I feel lucky to have her. We do conventional treatments but try to balance things so that I am able to enjoy my life. She has a naturopath that comes to the cancer center every Wednesday to follow her and sit in on patient visits. I see this naturopath and get complimentary care-- supplements, etc. to help mitigate the side effects from chemo.

    I don't believe chemo is the best choice for everyone. And I support every woman who choses not to have it. But Stage IV really opened my eyes to the value of chemotherapy in extending life in those who choose that path. I have lunch with friends, have taken trips to Hawaii, and get out and do things every day. Right now I'm getting ready for my book club to come over where will will eat, drink wine, and laugh. I'm grateful for every day that chemo is "buying" for me. I think the Stage IV gals are living proof that chemo has a place in cancer treatment. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Pip, the way it works here (am in large city), there are 2 networks, one french, the other english, all hospitals belong to either one or the other and are thus associated, under an umbrella, if you will. so cannot change onco within the english network i,m in. Will do :)

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    I report all white lies.

    I also reported two threatening posts.

    Everyone, don't let rainbow/susan put you on the defensive. She went to the hospital and had surgery and lived to tell the tale of "don't go to the hospital, treat yourself" (paraphrasing).

    I don't care who anyone works for, as long as they say what is really on their mind -which I have not one iota of doubt annettek is doing. 

    People who lie should not be posting and should be banned from BCO. I am sick of this. It is detrimental to BCO's mission.

    Anyone is entitled to their opinion on treatment, including the contention that chemo is not a desirable treatment. I welcome all views myself. I am a big skeptic too. But no one is entitled to lie. You are entitled to manipulate, but you are also entitled to get called out on it.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Thankyou for sharing your story again PetJunkie (((((((((((HUGS))))))))))) What upsets me the most is that there are so many women who didn't even get the chance to have treatment ie those who are Stage IV right from diagnosis and those who, like you, where chemo wasn't recommended. Yes, chemo was nasty, yes I got through it but I will never ever regret doing it, even if it turns out to not have worked. Better than getting to that place and regretting the refusal.

  • rosemary-b
    rosemary-b Member Posts: 2,006
    edited July 2011

    I do not want to die regretting the things I did not do because I thought it would bring the cancer back. I KNOW I will not die saying I did not have enough wheat grass or high colonics and I do not want to die saying I did not have enough fun or chocolate and I will try really hard to make sure that does not  happen.

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