Medical Industrial Complex

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  • apple
    apple Member Posts: 7,799
    edited July 2011

    let us not forget that body wants to and often does heal itself.  To me, alternative medicine is MORE profit seeking in that any old anybody (not board certified for instance) can claim to be an expert.  Of course there are all those who offer their services and products for free... altrustic I guess. 

    I really do like a holistic approach in that the practitioner really does seem to pay attention to the patient and his/her needs and questions.  Personally, I like the comfort of research, regulation and the protocol that professional medicine demands of it's practitioners.  Perhaps expensive, but those with insurance are protected and government provides payments in the form of medicaid and medicare.

    Have you ever walked down the Whole Foods 'medicine' aisle... talk about confusing, expensive, and expensive..  a half an ounce of ginseng root extract.  ... well I don't remember the price but it was into the hundreds.

    Any way I assure you there is plenty of profit in the alternative sections.. and who knows what you are getting? 30 bucks here, 40 bucks there. 

    There has always been a dislike of authority and education.... just the way it is I guess.  I hope my kids go to college tho.

    btw, my onc. at least is very supportive of holistic ways.  she has referred me to a naturalist (Which I can't afford)... but I can afford to read the literature she posts and is available in her office).

    Apple, on her to Whole Foods now. .. I admit, I mostly buy dried things like grains, nuts, snacks and veggies.

  • Yazmin
    Yazmin Member Posts: 840
    edited July 2011

    And Member, you wrote:

    "........This is not the same kind of oversight pharmaceutical drugs get where they have to show both safety and efficacy.  And, hey, don't you want to ensure that what you put in your body is safe? There have been actual deaths from supplements that were unsafe in the past......"

    Sorry if I look like I am constantly "in your tail", I just like to death the way that you can remain cool, informative, and above all, respectful, in what sometimes looks like somewhat of a "madhouse" (though I love that madhouse)Cool

    I could not agree more with you; and that's the case most of the time: we basically disagree on the WAY substances are being used.

    YES! Supplements should be supervised by the FDA, the same way medicines are, so that the supplements that SHOULD NOT be on the market can be identified and whisked away.

    That's what happened with this long list of *conventional* drugs, that have had to be pulled off after causing injury and death in the past 20 years or so:

    Fenfluramine, Pemoline,Ticrinafen, Zomepirac, Benoxaprofen, Nomifensine, Suprofen, Seldane (terfenadine), Etretinate, Encainide, Hismanal (astemizole), Permax (pergolide), Flosequinan, Temafloxacin, Propulsid (cisapride), Levomethadyl, Redux (dexfenfluramine), Duract (bromfenac), Raxar (grepafloxin), Posicor (mibefradil), Baycol (cerivastatin), Rezulin (troglitazone), Raplon (rapacuronium)
    (manufacturer only decision), Rofecoxib, Lotronex (alosetron), Phenylpropanolamine, Valdecoxib, Natalizumab,Technetium fanolesomab, Palladone (hydromorphone), Zelnorm (tegaserod maleate)

  • sweetbean
    sweetbean Member Posts: 1,931
    edited July 2011

    Hear, hear apple!  Right on the money!  While pharma is Big business, so is Big Alternative.  And I am a fan of alternative!  I'm doing mistletoe at $200/month for the next year!  Those supplements ain't cheap, either!  And my chiropractor?  Please!  He's awesome, but that dude charges me the student rate ('cause he is nice) of $45/adjustment.  And he wants me to come twice a week!  Alternative meds are costing me a bundle, which is fine because I really see the value.  But dont' go saying that these guys aren't making money.  Trust me.  Everyone is making money.

  • Beesie
    Beesie Member Posts: 12,240
    edited July 2011

    Interesting reading. 

    MOTC, lots of great posts!

    I think one of the most important points made here is the reminder to everyone that the alternative and holistic 'industry' is just as much "big business" as the pharmaceutical industry.  And they are just as interested in making a profit.  The main difference, at this point, is that the alternative industry is virtually unregulated.  

    Susan, interesting article about chemo brain. I found the comment that "25 percent of people who experience chemo brain symptoms do so because of chemotherapy treatment. The remaining percentage can be attributed to other conditions such as depression, anemia, aging, menopause, and side effects of other medications" to be fascinating.  That sure explains how it is that we see so much "cognitive deficit" being exhibited on this thread, especially from those who have shunned chemo. It's all because of non-chemo chemo brain!  Wink

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited July 2011

    I was actually taking Zelnorm for my gastroparesis when it was pulled, because of the link to deaths.  I had no problem with it, and I know there were many desperate people looking to get it from abroad after it was pulled. However, I agree that this kind of oversight is necessary.  It really becomes a difficult balancing act.  When black box warnings were put on SSRIs because of suicides (because for some people with severe depression, getting a bit better enables them to carry out plans they were previously too dysfunctional to pull off) a lot of people stopped taking them, which meant a lot of untreated depression, and possibly more suicides as a result.

  • Bren-2007
    Bren-2007 Member Posts: 6,241
    edited July 2011

    Darvocet was also pulled .. and there are many people that could only tolerate that pain medication.  What are they to do for pain meds?  My dear friend is Stage IV and she could only take Darvocet .. what will she do now to control her pain?

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    This is a great thread...the insults seemed to have stopped and people are posting interesting things- opposing, but not hateful.

    my son with autism talks better and has a better mood all day if he eats one big orange every morning. I do not know what it is, the folic acid? the vitamin C? or just his physiology- doc thinks I am nuts...but the empirical evidence is there for me. Does this mean everyone with autism will benefit in the same way? Nope. He is not lactose intolerant but if I give him milk after about three days of it he will start acting pyschotic. Stomach acid or lack of necessary proteins or something spurs the brain which is connected to our guts. Again no medical facts to back it up (although there is a lot of research along these lines). I guess my point is many things contribute or harm us as individuals. Some are safer than others to play with.

    I do indeed recoil when I read that living healthy will prevent cancer. I have met far too many women (see Apple's bio) that were poster girls for living right and were struck down far too hard by BC. Does that mean one should not eat right and take care of themselves? Of course not. Hell, it is a good thing to clean up one's health in any way we can. But it is shady to insinuate that it would have prevented BC or will forestall recurrence. We just do not know. Back to that whole pesky DNA thing.

    My brother contracted cancer of the thymus gland when he was 12. So stumped the medical community researchers flew in to study him. Had all the treatments available in 1964 which were brutal to be sure. He died 9 months after diagnosis. Professional suppositions abounded. The doctors were as devasted as we were. My mom said it was because he was kicked in the chest by a deer at a petting zoo the year before spurring something to *go wrong in there*. The kick was right above the thymus gland. I think her explanation is as valid as any.I learned a lot back then. Like white hot anger when my helpful aunt told my mom at his funeral that he would have lived if she would have only fed him more spinach. But of course the spinach did not save my aunt, a woman who I don't believe let much processed food ever pass through her lips, as my spinach-lacking mom tended her in the final months when my aunt was passing from the end stages of pancreatic cancer 30 years later.

    What is the point in all of this? There is none really beyond that there is a long way to go in treatment. Nobody's ideas are completely wrong but I am not thinking that any are completely right.

  • BarbaraA
    BarbaraA Member Posts: 7,378
    edited July 2011

    Hear hear Annette. You are spot on when you said

    Nobody's ideas are completely wrong but I am not thinking that any are completely right.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    I have always thought of the "medical industrial complex" as encompassing both conventional and alternative medicine. There is no daylight where economics are concerned - since the term "industrial complex" is usually designed to refer to economic power. A lot of medicine is not either/or. Complementary medicine has enjoyed growing acceptance in the West for decades now. In fact, it is all the rage. And what constitutes alternative medicine has changed over time and perspective. 

    I prefer the terms "evidence-based" versus "not evidence-based" when making a distinction between treatments to trust and treatments to be wary of - but some so-called conventional treatments for cancer warrant skepticism.

    As for the sellers, whether it is big pharma or herba, they are both huge economies with a mixture of good and bad apples. Doctors, meanwhile, are sometimes part of those complexes and sometimes caught between the seller (the manufacturing company) and the buyer (the patient).

    Medicine has a great deal to answer for, as do all of the supporting industries, including the "industry" of government lobbyists and pliant policymakers. This applies to BOTH pharma and herba. But every day, we thank God for modern medicine, if not to cure our cancer then at least to provide antibiotics, surgery and other medications.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Time to show the definitions again. So many people get alternative and complementary mixed eg Yasmin's post above.

    The term 'alternative medicine' is generally used to describe practices used independently or in place of conventional medicine.

    The term 'complementary medicine' is primarily used to describe practices used in conjunction with or to complement conventional medical treatments.

  • 1Athena1
    1Athena1 Member Posts: 6,696
    edited July 2011

    Good to point out Susie. I should have added that. Of course, in cancer we are often prescribed so many treatments that people end up doing all three. They will have surgery, Vitamin D3 And go for DIM instead of Tamoxifen. But the distinction needs to be remembered.

  • Yazmin
    Yazmin Member Posts: 840
    edited July 2011

    Dear Susie:

    Nope. I am not confused. I was, indeed, hinting to complementary (early stages); then, I was actually referring to *alternative* in the last part of my post (people facing Stage IV):

    ".....While I am mainly referring to early stage cancers here, I am also of the opinion that patients facing Stage IV might consider putting themselves in the goods hands of well-researched ***conventional, orthodox*** medicine, in conjunction with trustworthy, innovative ***alternative*** medicine......"

    And yes, looking in "all directions", keeping an open mind about innovative treatments might be the difference between staying alive or not. That's what I believe.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2011

    Priceless Susan !



    Let,s take the prunes and chamomile tea out ;)



  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    at risk of going rodney king on everyone (well actually that Denny guy)...can't we all get along despite our differences and not snark out like junior high schoolers? someone's feelings will get hurt and i just can't see how that is part of what BCO is about. i come here to learn, to talk, to connect with the only other people on the planet who have an inkling of my crazy mind following BC, but not to hurt or get hurt.

  • Member_of_the_Club
    Member_of_the_Club Member Posts: 3,646
    edited July 2011

    It was Rodney King who said this during the LA riots.  Denny was in a coma.  Wow, so long ago.

  • annettek
    annettek Member Posts: 1,640
    edited July 2011

    ah, that's right, I couldn't remember...hard to believe so long ago....as I hope all this will be one day...so long ago and hard to remember:)

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011
    Yasmin - if they are doing "alternative" and chemo then I would call that complementary. Alternative means no traditional medicine at all.
  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    ditto on what susieq said - and as other women have noted, "alternative" medicine definitely has an industrial complex of its own, even if it isn't sanctioned by the FDA. the most perfunctory research of "alternative" medicine shows there is very big money made there.

    loved my naturopath, but she was such a purist on supplements i would spend $60 on a bottle of multivitamins (only one example). I now pick and choose my brands, because I can't afford every one of her recommendations - some from the natural food store, but some from plain old CVS or Stop and Shop.

  • suzieq60
    suzieq60 Member Posts: 6,059
    edited July 2011

    Patzee - I still wish (for your sake and health) you would get that sorted. If the pathology says they weren't clean - they weren't. My cousin had a lumpectomy and they went back to get clean margins and she still had a recurrence in the same place some time later - probably because they still missed some. The only way to kill it is to remove it!!!

    (((((HUGS)))))

    Sue

  • pip57
    pip57 Member Posts: 12,401
    edited July 2011

    I don't think you can say "Other than that, only alternative all the way."  That really makes no sense.  Once you have had conventional tx what you do next would be 'complimentary' to the original tx.  Alternative to conventional tx can't also include convention tx.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    @patzee: - a pathologist knows for sure if your margins were dirty. so does the surgeon. this is not reading tea leaves, or dream interpretation. if you're refusing treatment, okay, it's your life. just own your decision instead of acting as if the clinicians who are doing their job don't know how.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    patzee, read your article - and if the authors are so sure they have the "cure" for cancer, why is there a legal disclaimer at the beginning of said article, noting it is NOT medical advice? they also note that some of these treatments can be mail ordered. i mean, really?

    i laugh reading some of this nonsense, until i remember that vulnerable women (and vulnerability comes in all forms) will read it and forego treatment.

  • pip57
    pip57 Member Posts: 12,401
    edited July 2011

    I jumped down to the part about curcumin in the article that you linked.  Even the author reports survival benefits with the use of chemo.

    "Curcumin acts as a free radical scavenger and antioxidant, inhibiting lipid peroxidation and oxidative DNA damage.  Its anticancer effects stem from its ability to induce apoptosis (cell death) in cancer cells without toxic effects on healthy cells. 

    Recent research  by  the M.D. Anderson Cancer Center in Houston showed that curcumin prevented  the spread of breast cancer to the lungs in mice inoculated with human breast cancer cells. The mice were divided into four groups: one received no treatment, one got curcumin alone, one was given the cancer drug Taxol and the fourth group was given curcumin plus Taxol. Cancer spread to the lungs among half the mice in the curcumin-only group and 22 percent of those that received that combination of both curcumin and Taxol.  The groups receiving no curcumin  fared far worse: among the mice that received Taxol alone 75 percent developed lung tumors; and the cancer spread to the lungs among 95 percent of the mice who were given no treatment. "  

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    @ patzee, i don't quite understand. you have strong opinions against chemotherapy, but then post a seemingly snarky comment about women  "who has the whole gambit of chemo, rads, drugs then suddenly oh I'm changing my whole diet and doing everything natural nothing but organic although I may have already destroyed my immune system. "

    i can tell you, i did the "whole gambit" - and i feel great, look better than i did for years, and never have even a cold. so your argument is really worth, well, crap.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    and one more time, with feeling: you had surgery. guess what? that is called "conventional". or "Western". you're entitled to your opinion, but no more charades.

    surgeon + scalpel = conventional.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    patzee, i don't give a hang if you do chemo. i really don't. i wish you good health, and think you are either terribly misguided, oppositional in an adolescent way, or both. but really, i do feel great. did i feel great on chemo or rads? no.

    and mentioning my 15 positive nodes is why? curious, your tactics. please don't make me feel sorry for you the way i do for other posters who stoop to that level.

  • pip57
    pip57 Member Posts: 12,401
    edited July 2011

    I have never been healthier since rebuilding my body after chemo.  I considered it my detoxifying agent.  It got all the crap out of me so I could start over...without cancer.  Hopefully, what I am doing to help my body now will keep the bc beast away.

  • kira1234
    kira1234 Member Posts: 3,091
    edited July 2011
    elmcity69  with 15 nodes involved  I can't even think you would elect to do anything other than what you did. Heavy treatment was definitely called for.
  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011

    definitely, kira - and i was grateful for it. God forbid the worst happens, I'll always know I did the best treatment I could. Two oncs concurred on the protocols.

    and patzee, watch yourself with your posts. i reported the one in which you noted my nodes, because it's lowbrow. i'll report every single one of yours directed at me if you keep it up.

  • elmcity69
    elmcity69 Member Posts: 998
    edited July 2011
    hillck: I just laughed out loud. thanks. Smile

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