Uterine Fibroid question, pls.

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I am triple neg and just about 2 1/2 yrs. out from diagnose.  Until now - no problems (lots of worrying, but no real problems).  Saw my onc in June - tumor markers 10, complete blood work and liver all great.  Proceeded on to my gyno for my yearly.  I am now 64, but in my mid to late 40s developed fibroids of the uterus, of a pretty good size, but had no problems, no symptoms, etc.  I avoided a hysterectomy as all was well with them and ovaries, etc.  Told me they would decrease in size upon menopause.  During every yearly, I would have a transvaginal sonargram to keep check on the fibroids.  They have remained basically the same as when first discovered and still no problems to present date.  However, gyno decided since my last in hospital transvaginal sonargram was done back in 2009 right before my BC diagnose, she wanted me to go back there for another one instead of her doing it in office on her smaller machine.  Had it done days ago and  gyno called yesterday telling me that my one fibroid on right side of uterus has grown since 2009 but not much (?) and it's about 4 cms now.  While she feels it will be ok, and it's probably all fibroid, she said that fibroids do not grow larger, in fact should shrink in post menopausal women, so she wants an MRI with and without contrast to have it checked.  My LDH levels were totally normal last month (that's the test they use for uterine testing) and I have not a one symptom.  Said with my history of TN BC - she must do this just to be sure it isn't a uterine leiomsarcoma.  Of course, the proverbial - now try not to worry, we just have to cover any base, it's probably just the fibroid.  Duh - she just told me they don't grow as their is no estrogen to fuel them after menopause. 

 Has anyone had anything like this occur that might be able to peel me off the wall.  I just love 4:30 pm telephone calls from doctors on a Friday.  I can't even get her order faxed to me until Monday, at which time I will immediately call and schedule the MRI.

Trying to stay calm and eating ativan (thank God I have some left over - they are probably expired, but who cares!).

Linda

Comments

  • identtwins
    identtwins Member Posts: 67
    edited July 2011

    Dear Linda,

      I am sorry for your worries.  I am an RN and have years of experience in GYN.  I truly believe that your fibroids are not cancerous especially since this one that is concerning is not a new fibroid but has been there.  I know if does not help you much but I wanted to try to help in some small way.

  • jdeking
    jdeking Member Posts: 408
    edited July 2011

    Just wanted to say good luck to you and hugs!

    Luckily uterine sarcomas are extremely rare, so it is unlikely you will have one. My fibroids grew like gangbusters after I started Tamox (just had 12 removed in April and 3 were larger than tennis balls!). However, I am 36 and premenopausal, so that does make a difference.

     Try not to worry (yeah right- I can never follow that advice either!) - but do try to do something fun to take your mind off of it. Get out, see a movie, have a cocktail, or whatever it is that you enjoy most. I think I'd go shoe shopping! Retail therapy!  And best of luck. Smile

    ~Janine

  • LRM216
    LRM216 Member Posts: 2,115
    edited July 2011

    Identtwins and Janine:

    I want to thank each of you so very much for taking the time to console me, which both of you certainly did.  Yes, that is what was so surprising to me when she called to tell me the right sided fibroid appeared have grown less than 2 cms since Feb, 2009.  Never in all these years have they changed at all - and they were all large to begin with, just not problematic in the least, hence no need for a hysterectom throughout all these years.  I just hope that a uterine cancer hasn't piggy-backed onto the fibroid - if that's even possible.  I am nervous beyond what I would like to be, but will follow up as soon as I get to work on Monday, get her order which she faxed to me, and will call for an appt.

    Thank you both so very much for caring.  It is much appreciated and may I also wish the two of you nothing but the best - forever.

    Hugs,

    Linda

  • LRM216
    LRM216 Member Posts: 2,115
    edited July 2011

    Had my MRI on Tuesday and got results today.  It IS a fibroid and it is actually smaller than what the ultra sound showed, therefore is not growing at all.  I am soooooo relieved.  I hate these "bumps in the road" and dread when the next one comes up!  Thanks again, so very much, for being there for me.

    Hugs,

    Linda

  • jdeking
    jdeking Member Posts: 408
    edited July 2011

    Yay Linda! So happy to hear the good news.

    ~Janine

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