Another new warrior...
Hi everyone, I just found this support forum today, THANK GOODNESS! I thought i'd introduce myself as I'm the "newbie".
My name is Jenn, I'm 35 years old and the mother of 2 (1 is biological and 1 is from marriage). I was diagnosed with breast cancer on April 29, 2011. Originally I was told my diagnosis was DCIS in my left breast but my 2 opinion revealed more invasive than DCIS. Due to the size of my tumor and location (right behind my nipple) I was advised a mastectomy was my best course of action. I chose and underwent a bilateral mastectomy with immediate reconstruction via TE on June 14th. I'm still recovering but getting better day by day. I went back this past Tuesday to have my drains removed and was told at that time my originally negative nodes (flash freeze test on the operating table said 3 nodes, all negative).now came back 1/3 positive with macromets. I am now being told I need chemo, TAC regime starting end of July. It turns out my original tumor was 2.5cm and was classified DCIS in my path report BUT a second mass measuring 1cm, grade 2 IDC is the culprit.
I have no family history of any cancer and tested negative for the BRCA1 and 2. This has just been a complete whirlwind and I still feel as if I'm in a bad dream or something?? Every time I feel good with what I'm facing I seem to get thrown another curve ball......
Who knew this disease was affecting so many of us like it is??? I guess it's something you never think of until you're smack dab in the middle.
Anyways, glad to find this place....just from what I've read so far I can tell it's an awesome source of information and support!!!!!
Jenn
Comments
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I just wanted to say HI - I'm also 35, four kiddos. It's a scary and wild ride in the beginning.
This board is a wealth of info and a great help along the twisting BC road.
I'm sorry you're joining us on that twisty road. But you will find all sorts of strength within yourself that you never knew you had.
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Hi there...I am new to this group today too. I am 43 and have had a whirlwind of a journey too and learning that this is how it goes unfortunately. I found my own lump by seeing it in the mirror. It just seemed to appear one day and bam..there it was. I got a mammo immediately and it did not show anything! I have very dense tissue. 3 days later I had an ultra sound and was shockingly diagnosed on the spot. My world changed that day. My MRI showed all kinds of nasty things. I had 7 more biopsies on both breasts to rule out more tumors, and then underwent a bone scan for a mystery lesion in my sternum. Then a biopsy of the sternum that came back inconclusive, then a PET/CT scan to finally rule out cancer but we still don't know what it is.
Then the surgery began with the lumpectomy and SN biopsy. Turned out I had 2 tumors at 1.7cm and 1.4cm, pos margins and 1/1 pos nodes. Returned to the table to get clean margins and got them...barely. some DCIS showing near the rim but not much more to be able to cut out being close to the skin. Now I am on the road to chemo/rads. Low oncotypedx, low grade tumors, but the pos node is creepy.
I too am sorry you have joined our path, but there is comfort in knowing you are not alone and so many wonderful women entered into my life because of this journey. We are all strong women and full of support.
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Madismommy719 - Welcome, and sorry you had to join the 'club no one wants to join'. These boards are very helpful. As you go through the treaments you choose to have be sure to check out the different forums, especially the chemo threads since it seems like you will be going down that path. They are all so helpful in dealing with the treatment and side effects and provide great advise using both conventional and complementary methods of dealing with them. At least that is what I found.
Hi again lovetorun, yes we are all strong women and we will all get through this.
I am now 46, two teenagers, scratch that one is heading to college in the fall, and also had a 'surprise, you have positive lymph nodes' moment. Not fun. In fact I think this information threw me more than - 'Yes it is cancer'. I am actually coming to the end of the 'invasive' treatments now and will be starting Tamoxifen in about a week, then it will be monitoring for me. These boards have been so helpful to me. The advise and support of others, including the men on here, has been invaluable. This is a great safe place to go when you need to vent.
Best of luck and remember we are all here for each other.
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madismommy- There is also a thread called Illinois ladies facing bc. It's a great group and we get together sporadically. I had TAC so if you have questions feel free to PM me. Take good care all.
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Thank you everyone!!! Honestly, for me when I was diagnosed, the absolute worst emotion was the "why me?? I'm only 35?" and as I carry on this path, I realized it's so far from "why me". There are unfortunately SO many of us... It's refreshing to me to be able to come here and see I'm not alone in this unfortunate hand I've been dealt. And from what I've read, the strength of everyone is so inspiring!! I'm so glad I found this place.
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Jenn
Sorry for your recent diagnosis, yes it is the worst rollercoaster ride you can be stuck on. I found the beginning seem to be the worst most emotional time. You have to make so many decisions, hard decisions. But once you have a good team around you, and you feel at peace with your treatment decision things will go easier as you plow ahead. You will be amazed at how strong you are and proud of all you endured by the end of your journey..and we will be here for you every step of the way. Come here anytime you need to vent, scream or cry...need a hug ..advice or just someone to talk to. You can do this!!
Hang in there!
Diane
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Madismommy - Sorry you are hear but you have found a great resource. I was diagnoised at 36 with two kids. First was told just DCIS, later found a microinvasion with biopsy of mastectomy, told just .7 mm. 2nd opinion said 4mm. Two doctors said no chemo, one said chemo. Decided for me, I needed to do everything I could. Did the chemo (also wanted the hecreptin). Doable with kids and good support system. Early time is the hardest, once you make your decisions on treatment, the rest is easier. I found great support when I decided to do chemo with the August 2009 chemo thread. So nice to have a whole group (although also sad) of ladies who know EXACTLY what you are going through. Nice to be able to bounce side effect questions and stuff like that off each other. If you do the chemo, look for a group at your start time frame. It was so helpful for me. If you need anything, feel free to PM me. You will get through all of this and soon it will be in your past.

Michelle
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Jenn, I am sorry you have to be here but glad we can support you. Hugs!
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Hi Jenn,
We were diagnosed on the same day. 4/29/11. I think I will never forget that date - maybe we will someday - or maybe we'll celebrate on the number of years we've been cancer free from now on! I had my bilateral mastectomy with lattissimus dorsi flap reconstruction and tissue expanders on 6/1/11. I'm walking 4 miles at a time now, so you will just keep getting stronger. Still most days I find something new I can do that I couldn't do before. Feel free to private message me if I can help you in any way. Good luck anniversary sister
Pam -
Pam - It's funny how a date will be permanently embedded in our minds....I don't think I'll ever forget that date. PLUS, I was in Disney world on vacation with my family so that made it interesting....putting on a non worried, HAPPY face so my kids didn't know what was going on.....I swear sometimes they should have a special Oscar award just for parents!!!
We are darn near the same diagnosis too.... I *almost* cleared with clean lymph nodes but I had a false negative on surgery date, BOO!! And than I'm grade 2.... Double BOO!!!
Glad to hear there's hope in getting stronger and stronger every day in recovery, I've been SO uncomfortable....lately it's shortness of breath and armpit pain...I can feel my TE's under them, weird!
Happy 4th of July!!!!!! :0) -
Jenn, I had shortness of breath and armpit pain too too and even went to the ER a day or two after getting home from hospital for the shortness of breath. After a CT that showed no problem, we realized I was trying to wean myself off the pain meds and the shortness of breath seemed to come from the tissue expanders when I was past due. But still, don't ignore shortness of breath if it continues. My surgery was 15 hours, so the risk of pulmonary issues was there. Of all the incisions, the armpit pain was the most uncomfortable. I slept sitting up for a couple of weeks with pillows under each arm.
Wow - you do absolutely deserve an Oscar. You win the prize! I could not have fought the fear at disney like you did. So, you are a terrific mom. I would have been crying all through "it's a small world"
. I felt so much better after surgery. I'll private message you my info in case you need anything. If you're new to the site, just look at the top once you're logged in and there's a private message tab. Best wishes. Pam
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We are warned about false negatives with the quick frozen section done at surgery but I've been wondering how many cases actually occur. For me, if the micromets had been visible in the sentinel node, DIEP reconstruction would have been postponed. Went back under the knife 2 weeks later for an axillary dissection in order to rule out any other spread, those were all OK.
I also had two tumors: originally found ILC via routine mammogram, then MRI showed a smaller ductal lesion in another quadrant making a lumpectomy impossible.
Recovery from the two operations wasn't too bad, now I'm half done with chemo!
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Pam, 15 hours of surgery??? Oh my goodness.....that's a LONG time! Was most of it the reconstruction?? My surgery was just about 4 hrs total.....
It's funny when my husband and I look at our Disney pictures we laugh because you wouldn't have a clue I had 2 swollen black and blue boobies from biopsies and that I was just told (over the phone) that I had cancer and most likely would need my left breast removed....I did cry in bed at night after our "magical" days at the parks were done....my 7 year old daughter still doesn't know I have the big C word....we originally didn't think id need chemo, so why scare her....now that I'm going to lose my hair we are waiting til her birthday (July 19) and than telling her in the most positive way we can!!!
Vlnrph- did u have a false negative too??? I've actually seen and heard of a lot of women having that happen....no one warned me.
. I was completely blind sided the day I went to get my drains out. -
I just talked to someone else today whose sister just had false negative nodes. What a shock - and scary! My PS said the same thing - if nodes are positive, no reconstruction. I was happy to wake up and see boobs! What a bummer to have them rip the carpet out on a follow up appt.
15 hours because it was bilateral with lattissimus dorsi flaps. They had to turn me 4 times. I guess it takes 45 minutes just to turn you once. Plus they did one side robotically through my front. So as crazy as it sounds, they did the mastectomy, then harvested the muscles from my back through my front, and created breasts with them. The other side they had to cut my back to get the muscle/tissue because they saw a blood vessel that looked too big with the robot to get around it. So I'm the perfect experiment for them as I can tell them which side is better (the robotic side for sure!). It's really very amazing what they can do!
Jenn - I wonder if you guys will ever do Disney again. Maybe Sea World next time!

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Pam - OUCH, OUCH and OUCH!!! I was cringing while reading that!!! How are you feeling?? Can you lay on your back?? If I couldnt lie on my back id be in trouble!!!! I was a side sleeper before this so I'm really struggling at night. If I even attempt to lean to one side i end up in pain within a minute!! So frustrating.....and now w/ chemo it's gonna be awhile with these dang TE's.
Disney is mine and my husband absolute favorite place on earth, weird I know!!! LOL. So, I know we will go back....but next time it's going to be a celebration.....maybe my NED celebration?? My daughter will be 8 in two weeks and we've taken her to Disney 3 times.....mostly because we love it so much. It's like you check your worries at the door.... It's probably best I was there when I was told but that last day and plane ride home was so emotional and so scary!!!! Like the "dooms day plane ride to hell"!!! LMAO!! Luckily I picked myself up and dusted off quick!! It is what it is and I'll fight my fight....and I keep saying "things could be worse, right?". One day at a time.... -
Hi. I'm Chadney. I'm 43, a stay at home mom, a writer and a newbie as well. I was diagnosed with breast cancer on June 16th. My right breast. Tumor as well as a cluster of suspicious cells (presummed to be cancerous). Having mastectomhy on July 21st, then reconstruction, with belly fat from my stomach. Great, now at least I can use that stuff, instead of it just sitting there & making me look gaggy.
Scared & nervous. Getting a SLN & worried it will hurt. 4 day hospital stay. Have a great support team. . . my husband is awesome. My son thinks it's neat that mommy is getting a new bobbie.
I look forward to speaking with all of you, my fellow cancer sisters.
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Hi Chadneyann - Did you meant that you are getting an SNB - a Sentinel Node Biopsy? If so, I just wanted to let you know that I had an SNB and found that it was quite painless. The gave me little local anaesthetic in the breast, then injected the dye. There were 3 other ladies having it done at the same time (it was a large hospital with several surgeons operating during the same time period) and none of them seemed to be bothered by the SNB either.
This is the toughest time you are going through now - with the shock of the diagnosis and not knowing what to expect - but as you move on through the process and get into treatment, you will feel much calmer and life will eventually get back to living your life without focusing on bc.
All the best to you. Stage 1b has a good prognosis.
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I was told I'm getting an SLN- sentinel lymph node (biopsy)- I have to get it the day before surgery-
scared to death it will hurt- regular biopsy numbing hurt like hell- the rest of the procedure was fine-but that burning sensation was horrible
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Chadney, I had my sentinel node biopsy at the same time as my BMX so I'm not much help with that BUT I can say the dye injection they gave me before it wasn't pleasant....but it wasn't horrible either. Good luck with everything!!!! :0)
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so many questions for docs. . . will write them down, but I feel like I need a scroll to keep track
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Hello, ladies. I am also a new warrior. Diagnosed on June 30th on my 46th birthday. That night I went out to dinner with my husband, three kids (ages 9, 11 and 15), and parents and smiled throughout because we have always made a big deal over birthdays. June 30th will definitely take on a new meaning from now on. I started a topic on "interval breast cancer" because I hadn't seen any mention of it. I had a clear mammo and US Dec. 2010 but less than 6 months later I had a lump in left breast which turned out to be a cancerous mass. Microinvasive DC. Doctor said it's interval breast cancer. Was really struggling with my doctor's recommendation of mastectomy given that the mass area is large (4.6 cm) and involves two quadrants. MRI also shows a suspicious area at the 9 o'clock position. After reading so many posts, I am starting to feel so much more reassured that mastectomy is the way to go. No issues with right breast so only unilateral mastectomy of left breast. I do want to have immediate reconstruction and was considering implants but the more I think about it the less convinced I am of having foreign objects placed inside of me. The posts on DIEP were so positive. Anyways, I am SOOO happy to have found these boards and to be able to communicate with others who know exactly what I am going through. My prayers and many blessings to all of you.
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Hi Faith,
So sorry you have to join us here but very glad you found us!!! When I was first diagnosed the thought of removing my breasts was devastating to me, I had these horrible images in my mind of looking mutilated,etc.... And now, I'm 1 month post bilateral mastectomy and can honestly say I've made peace with the surgery and am even happy with my results! No mutilation at all, and looking at them make me realize that the cancer isn't there anymore!!! :0) I did do immediate reconstruction with the expanders and I do still have some discomfort everyday but from what I've read it will get better with more time and fills.....
And these boards have really been a huge support for me every day as questions arise or I just need to vent to someone who truly knows where I'm coming from..... It's a scary journey but knowing I'm not actually the only one in the world going through this.....although, I wish none of us were!!!
Welcome....
Jenn
PS...I was at disneyworld on a family vacation when I got my diagnosis....I had to put on a happy face for my kids too....it was very hard.....but I promise it gets easier as you get answers and plans laid out!!! :0) -
Hi Faithstrong,
I was diagnosed in Dec. 2010 and chose to have a bilateral mastectomy even though the cancer was only in the right breast. I also chose no reconstruction. I was never that attached to my breasts anyway, and I figured that they did their job of feeding my two daughters
I'm very happy with my decision and have gone on to have 3D nipple tattoos! I'll get older, but I'll always have the chest of a 12 year old LOL! Stay strong and make the decisions you have to make, yours. You'll be so much happier that way 
Vikki
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