IBC Awareness

I have posted before about The IBC Project that features Dr Cristofanilli and Dr. Wendy Woodard to educate and outline treatment for this cancer. The video is featured on many respected cancer sites, http://www.cancerschmancer.org/articles/diagnosis-and-treatment/video-ibc-project-take-two
the video is a little silly at first, tried to do a slow hook in, as the topic is so heavy.

I have put together a map as a visual aide, and it has been received well in the medical community.

The response to the video has led to a map of women with ibc.    www.terrysmap.org
and have used facebook as a way to share the video and map
(https://www.facebook.com/?ref=home#!/event.php?eid=157239470971564 and
https://www.facebook.com/permalink.php?story_fbid=2084460913820&id=1314042844&ref=notif&notif_t=like#!/event.php?eid=147402326727)

On May 4th, 20011 I was in Austin, Texas because after a year of requests I was able to get the State of Texas to write a resolution on IBC and they read it in the house and senate a resolution to declare Oct 2011 IBC awareness month.

After the resolution made all the major newspapers in Texas as well as many cancer related media sources, (http://www2.mdanderson.org/cancerwise/2011/05/one-ibc-survivors-fight-to-raise-awareness-in-her-home-state.html) I started The IBC Network, https://www.facebook.com/pages/The-IBC-Network-Inflammatory-Breast-Cancer-Network/144850145588330?ref=ts on facebook as a way to get IBC news out into the general community and past just "us talking to to us."

 I hope you will view the sites I have listed.   I think there are alot more ibc suvivors in the US that used to be quoted and I really want to spread the word.