Just Diagnosed with a Recurrence or Metastasis- Please help

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pavanvemu
pavanvemu Member Posts: 2
edited June 2014 in Just Diagnosed With a Recurrence or Metastasis

had been operated after diagnosed with stage III cancer more than 5 cms but did not spread to other areas. After that completed 6 cycles of chemotheraphy every 3 weeks and 25 cycles of Radiotheraphy this Dec. Now it reoccured stating metastasis to Thorax bone and Adrenal. Please help me out for the best possible care.

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  • waves
    waves Member Posts: 66
    edited January 2011

    My prayers go out to you.  I am currently at MD Anderson getting a second opinion on my reoccurrence.  So far they have told me everything my doctor has been doing in Honolulu Hawaii is just what they would of recommended.  In fact the doctor I spoke to said I could of just had my doctor call in and they would have given him advice.  Oncology doctors are very connected.  Ask your doctor if they would confirm with MD Anderson your treatment plan or you in fact can call yourself.  You know it is a scary time when you do not yet have a plan in place. 

    Peace upon you  

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  • pavanvemu
    pavanvemu Member Posts: 2
    edited January 2011

    This is for my Mother Please help with what are the options available. We are in India. Also let me know what diet you are having to prevent cancer?

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  • susan_02143
    susan_02143 Member Posts: 7,209
    edited January 2011

    pavan,

    For triple negative breast cancer, your mother will be advised to do some chemos. Which ones? I don't know. Come over to the Stage IV board... lots of help there. Also, there is a triple negative board. Since triple negative has different treatment options, try to connect with women who have the same breast cancer variety.

    All the best, *susan* 

    Stage IV: http://community.breastcancer.org/forum/8 

    Triple Negative: http://community.breastcancer.org/forum/72 

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  • anaami
    anaami Member Posts: 1
    edited February 2011

    Any idea how to find a support group in Montreal, quebec.

     My sister (45 years old) was diagnosed with stage 4 bone cancer and undergoing chemotherapy.  she has anxiety attacks and not eating very well.

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  • jloon
    jloon Member Posts: 30
    edited March 2011
    I had a double mastectomy in October and  6 weeks later all CT scans showed no spreading - a week later (at a friend's urging) I paid to have a private PET scan done (as my dr would not do it) The PET showed extensive spreading to bones, liver and locally. My oncologist wanted to put me on supportive (palliative) care. I switched to a much more aggressive, think outside the box, dr who immediately started me on Gemcitibine, Cisplatin, and Avastin. It's now three months later and I just had another PET scan which showed all the spreading to liver and bones is gone and there is only one very small (less than 1cm) in my auxilla which they believe could be post treatment inflammatory changes. I hope this gives you hope. I can be emailed at jloon@shaw.ca if you have any other questions.
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  • motherofpatient
    motherofpatient Member Posts: 240
    edited March 2011

    For anyone with a recurrence - I wish you only the best healing. If I may ask, what and when was your original diagnosis and what treatmetn did you have?

    My daughter is triple positive one tumor and ER,PR+ but HER2- on second and has micro whatevers. After chemo with TCH, she is to see the surgeon about a mastectomy - no rads.

    Is that similar to your intitial treatment when you were first diagnosed?

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  • tibet
    tibet Member Posts: 545
    edited April 2011

    Wave

    I noticed your signature is ER + at original dx. Was your recurrence triple negative as your another signature indicates. I would say the triple negative is not a recurrence from the original ER + tumor but a new primary? Usually recurrence has the same receptor. What did your dr say?

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  • brazos58
    brazos58 Member Posts: 261
    edited May 2011

    BUMP

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  • dlb823
    dlb823 Member Posts: 9,430
    edited May 2011

    pavan, I don't know if travelling to the US would be a benefit for your mother, but if you think it would, here's a list of our top cancer centers:

     http://cancercenters.cancer.gov/cancer_centers/map-cancer-centers.html

    If she can't travel, perhaps you, she or her oncologist can get in touch with one of them for a long-distance consultation with an expert in triple negative bc. 

    anaami ~ You will get more response to your question if you post it as a separate, new topic.  Unfortunately, it will probably get lost in this thread, which is not related to Montreal or support groups.

    Good luck to you both ~  Deanna

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  • MsBliss
    MsBliss Member Posts: 536
    edited July 2011

    Pavanemu,

    For triple negative, the following foods are supportive:

    Blueberries

    Curcumin, or turmeric

    Broccoli, cabbage, cruciferous veggies.



    Please check the Edge CAM because he addresses what we can do to help support during chemo and post chemo. Some supplements will help chemo work better, others help recover after chemo is done.

    http://www.nosurrenderbreastcancersurvivorforum.org/post?id=4807927



    My oncologist has read this report and gave it her full support as well.

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  • sharalou
    sharalou Member Posts: 223
    edited July 2011

    Need your thoughts and opinions. Had Lmasstectomy in 2005 -er+ at 49%, treated with tac and rads and arimidex. 2010 Rmastectomy er+ at 3% no node involvement,but onco type 27, so onc. suggested tc-4 rounds, off arimidex, and on to Tamoxifen. Okay, went with that plan. Finished in Dec. 2010, all okay, until end of March, 2011, when I find a lump (rt supraclavicular area + for breast ca), and path report er+ at 2%. Off Tamoxifen, 30 rads to area, and faslodex injections.  I am so torn with this weakly positive er???? Went to another Doc in Ann Arbor Mi, and she also agreed.  But I don't know. I know some feel positive is positive, but then just a low % is almost negative. Any thoughts? Can't travel around the country, but...... Would love to hear from my friends!

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  • brazos58
    brazos58 Member Posts: 261
    edited July 2011

    Bump

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  • thenewme
    thenewme Member Posts: 1,611
    edited July 2011

    Hi Brazos - I saw you bumped this thread - any chance you know or have heard from the original poster from India?   I hope his/her mother is doing well!

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  • twinsmom96
    twinsmom96 Member Posts: 55
    edited July 2011

    I was diagnosed in april of 2009 with a large mass underwent 6 rounds of chemo lumpectomy and 32 radiation treatment was declared cancer free just found new lump in June was told positive for cancer and pet scan shows now in my liver.

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  • bak94
    bak94 Member Posts: 1,846
    edited July 2011

    sharalou, I think your post got a bit lost in this thread, have you posted your questions anywhere else? I am also weakly positive, they are treating me like I am negative, only 3% er positive.

    twinsmom, so sorry to hear this. Sending hugs to you.

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  • TruthNLove
    TruthNLove Member Posts: 3
    edited July 2011

    Hi - To twinsmom (I myself am a twin, so bless your heart!!!)  are they jumping on top of this with more chemo?  I have TN, went through all you did in 2009/10=  chemo, lumpectomy, radiation.  Dec. 2010 had a clear mammogram, by Feb. felt something hard, same breast.  I waited, they said it must be scar tissue or fluid pocket, but no.... multiple tumors reoccured largest 6 cm.  Had a double mast. June 29 and am starting chemo this Thurs, but different kinds:  Carboplatin and Gemcitabine.  I don't know much about either, been trying to research on line.  Sure hope the side affects aren't like TAC, ugh!   About you though, I read some other posts and they definetly can help you with your live reoccurance I'm thinking!   I hope you let us know how you are doing and what is the plan...

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  • reesie
    reesie Member Posts: 2,078
    edited July 2011

    Welcome twinsmom. I had mets from the start so I can't imagine what you're going through with a recurrence. But I do have experience with liver mets (and bone and lung and skin lol). Come on over to the Stage IV forum. There are many women, men, and caregivers there that can help you with questions you might have, hold your hand or listen to you vent.



    Feel free to PM me if you have any questions.



    Oh I have experience with twins too!

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  • BobbieK
    BobbieK Member Posts: 2
    edited August 2011
    I was just diagnosed with a reoccurance of BC that spread to my lymph nodes above my colar bone in my neck. I have ER,PR positive cancer. I had 27 lymph nodes removed that were positive at the time I had a lumpecomy. I'm only taking Amimidex. I would like to hear from anyone eles that has had this happen.

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  • brazos58
    brazos58 Member Posts: 261
    edited August 2011

    hi thenewme, sorry I don't know of the original poster from India..

    Blessings to All

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  • Debke33
    Debke33 Member Posts: 26
    edited December 2011

    I fell down my steps halloween weekend. My buttocks was hurting really bad and I gave it a few weeks to heal. Pain got worse on right side and I went to have a MRI and my primary dr stated I have a tumor about 3cm and I have to see my oncologist this week. I was diagnosed with BC 2009 and have not missed any check-up visits. Please help me with what I can expect next.

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  • brazos58
    brazos58 Member Posts: 261
    edited December 2011

    Bumping for Debke33 

    I am reading your post Debke33 and I am sure someone will be able to answer or redirect you to get more answers. Sending you Hope/ Strength and Blessings

    Brazos

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  • Naniam
    Naniam Member Posts: 1,766
    edited December 2011

    Deb, If your doctor doesn't have access to your MRI film,if you don't have them, be sure to take them with you.  I would think he would like to review or have perhaps have another radiologist review them.

    If he feels this is a tumor, he may suggest a bone biopsy.  I had one recently and I was given drugs and never felt pain.  Also, if he is concerned he may want different scans to check out other areas in the body.  I didn't have a bone lesion in a single area but this was the progression of how things went in the diagnosis of my bone mets. 

    I am wishing you all the best.  Let us know what the oncologist suggest.

    Hugs,  Brenda

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