April 2011 chemo
Comments
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This is a new one.... has anyone had any lumps show up on their head or anything? without hitting your head (as far as I can remember, the memory isn't too good)..
I had a bump that was sore on my head above my temple near my farhead last night, so I iced it, and it went down, but seems like although its not out, its spreading out towards my eyebrow and temple... I may have banged it, but I would think to have it be this sore, I would have remembered banging it. I just am clueless on this... anyone?????
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@Artiecat, I'm eating everything! Can't seem to stop!
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Bad case of the never ending munchies here as well
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Eating whatever is in my path here...can't stop.
This morning it's apple sauce crumb cake......
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Merilee - I'm doing much better today emotinally and physically. I'm starting to realize he is not the man i Need if he can up and walk away from me without a word in the middle of my theraphy. I'm starting to get it....I wouldn't have done that to him while he was recovering from his surgery. I would have tried to discuss whatever was at issue. I don't want someone in my life who doesn't want to be with me and be here for me. So thanks for asking. I do feel so much better. I took the weekend off and just rested the whole weekend. It was heaven.
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Ginger - no lumps on my head. That doesn't sound right, have you called your onc yet? Of course you would remember a big ouch like that. Or at least would think we would. Even if you did it in the night, like on the headboard it should have woke you up. Please keep us posted.
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Spent the day in the ER apparently a infection in my skin, could of been a bite, or a scratch, calling it cellulitis. On antibiotics now hope they clear it up, my whole eye, temple check is swollen. I have number 4 on Thursday, just hoping its all a go.... Thanks RangerMom
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Ginger
Sending healing thoughts your way.
Pain in the shoulder blade has gone down today. Yesterday I felt Like I was tripping on acid or something, just unbelievable how buzzed up my head felt. It was down right frightening.
I also had two incidences where i broke out in a profuse sweat that smelled like chemicals. I guess it was the chemo coming out. It was weird and even my cats noticed both times.
I took a Epsom salt bath and the water was gray, very weird!
Hopefully today will not be the same.I need to feel normal in the worst way.
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WOW Merilee, and this was your last one... I guess its never cut and dry right until the end there are things you never had before. Hope you get stronger every day, I look forward to the day its my last one! I hope this infection gets cleared up before Thurs. I don't want anything pushing my time back. Altough today my whole eye is swollen shut, I hope these antibiotics do their work real quick. Have a feel good day today!
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I am sending good thoughts to all! Hang tight, warrior women!!!
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Hi Ladies,
Had taxol #4 yesterday.....AC memories are starting to fade, and now I'm left with the realization that I still have 8 more chemos to go. It's going to be LOOOOONG summer. I do want to keep trying to remember that I feel so much more human on taxol, and that I am living a better quality of life now than when I was on AC....but still., it's 8 more dressing/picc changes, 8 more blood draws, and 8 more weeks of feeling like this.
Tuesday is usually my best day, although I am tired, since I don't sleep well on the Monday night due to the steroids. Last night I had the neuropathy in my lower legs, to my toes. Very strange sensation. I've read other posts in other forums of women who are still battling neuropathy 2-10 years since chemo. UGH! I don't want that to happen.
So I drank my blueberry shake with l-glutamine and took a b6 last night, and this morning it's gone. So far, so good. Hopefully it really helps. But, these drugs are powerful and do strange things to our bodies.
Hang in there Sisters!!!
ginger-mea- I understand not wanting things to get pushed back. In august my treatment day changes to tuesday because the cancer agency is closed on the holiday Monday....I was pissed, because it changes my final chemo day one more extra day.!!! ugh! and it's only 1 day! hahahaha.
Merilee- I hope you feel normal soon too!! I know the desperation in your words.
geocach, suzd, merileee....I've gained all the weight i lost on AC, while on Taxol. I'm hungry all the time too. ugh!!
Rangermom....your last post is so strong. You are amazing. Glad to hear you had a nice rest.
For anyone doing weekly taxol: here's a breakdown of how I feel day-to-day.
- Monday- chemo day...nervous a bit, it's a long day at the agency, bloodwork/picc dressing change around 10am....then go for lunch, then come back and it's about 2 hours in the chair. 45 min for the pre-meds and 1 hour for the taxol. Get home about 5-6pm. Go upstairs, watch tv.eat, veg out. Rough sleep night.
- Tuesday, wake up, feel normal. Meet friends for lunch, coffee...can get dressed, dishes, laundry, gardening..... Feel human. Usually do too much. Sleep well.
- Wednesday, the aches begin, but not bad enough to take anything for it. Still do some puttering around, can run errands. Feel human still, but move more like a 60 year old.(I'm 37)
- Thursday, aches get worse, still get up, get dressed, do normal things, but at a slow rate. Will usually nap. More tired today. Take tylenol for the pain.
- Friday, my worst day. Aches are bad- take tylenol 3's.. Hard to walk around...feel like a 90 year old .watch lots of tv, videos, nap, eat, eat, eat.......rough sleep because of the aches.
- Saturday, I am back to feeling like thursday. take regular tylenol,do normal things. Will usually nap.
- Sunday, back to feeling like tuesday, but not tired because of steroids. Strange day, since I know I am back in the chair for a long day on Monday, but I try not to think of it, and make the most of feeling great. Usually do too much!! Sleep well.
Hope this helps someone!! K. Ladies...off to enjoy one of my best week days.
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Wow, you are really active! I have #5 TAC next week...I feel like I have accomplished a lot if I get the cats fed, litter box cleaned and me dressed and fed before I need to sit and rest! This is the best week I have had so far in this whole process and I have two lunch dates! Woo hoo!
The good news is that I was approved for short term disability!
Here in North San Diego County I have discovered a group called North County Cancer Fitness (they have a website). They have an exercise group twice a week and the group is very supportive. Very gentle, lots of chair work, you do what you can (and I was shocked at my quickly I tired!) I went last week for the first time and it was great. The point for me is to build up my strength for surgery in August.
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Hey Artiecat- yes active! But, please remember this is how I feel on Taxol.
I literally spend 12 days in bed drooling like a vegetable with AC with each 14 day cycle. By the time day 13 came around, I was back at the clinic, bloodwork and day 14 was chemo again. I slept, cried, felt like like I was dying and hardly ever got out of the house or dressed. Some days I would manage getting downstairs for a change of scenery.
I literally crawled across the AC finish line.
Getting through 8 more taxols is like a marathon, but my quality of life is much better! I just wanted to pass out some hope to those starting taxol now.
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Thanks for the Taxol update KG. I'm done with AC and start weekly Taxol in 2 weeks.
Can you tell me a bit more about what supplements you are taking. Is the L-Glut, vit B6 drink for neuropathy or recovery? Any other tips / recipes will be gratefully received.
Ginger - sorry you feel like crap. It's never ending isn't it!
Rangermom - you are copng with so much more than BC. Sending you healing thoughts from all the way across the world in New Zealand. You are doing amazing. -
Determined - any news on your port?
KiwiMum - thanks for the kind words. I do feel stronger each day.
Merilee - have you told your onc yet about those symptoms. i sometimes have a funny smell, I hate it and use lots of deodrant and it smells like stew or pot roast to me. Crazy huh?
Artiecat - I'd like to hear more about your surgery. I am havingt bil mx with lymph nodes in Sept. some time, stlll need a date. Sometimes I get scared. I try not to think about it too much, its just toomuch for me right now. But please keep me posted as it gets nearer.
KG - Thanks for the taxol rundown. I had my first last Thurs and by Sat. I felt like I'd been hit and run. Today I'm much better. And agree with you that this is far more tolreable than AC.
Ginger - please give us an update tomorrow. I pray the antibiotics take hold tonight and reduce that swelling. You gave us all something else to be aware of.
I love coming on here and hearing from you all. You really help me get through everything. So big thank you from me.
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Merilee and Ranger mom, I am so glad you mentioned something about the funky smell. I've been showering twice a day latley- I was thinking with my chemo brain I must have missed parts, but still couldn't get rid of the funny smell..lol
Ginger- Hope you feel better soon
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Merilee-
Thanks for your kind words. I have finally made an appointment with a lawyer so i can move foward. The final straw for me was catching him online cheating on me. I discovered he has several profiles on online dating and hook-up sites. I also caught him the other night telling some woman online that the "only reason I am with her is because she has cancer". Ugh That is not the support I need.
Like you said, it amazes me how this diagnosis changes the way you look at and approach things.
How are you feeling?
p.s. #5 on Friday..yay almost done
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Teckler, sometimes we find our power in painful ways. So sorry that you have to deal with a fool on top of all of this.
This morning so far not bad. Still a bit of pain in the shoulder blade. I did not take anything yesterday but an aspirin. I am so sick of feeling drudged up, dizzy, fuzzy, and tired.
I drank a cup of green tea for the first time in 12 weeks. I swear I could feel it coursing through my veins singing Halalua! LOL Time to do a little detox before rads start in 3 weeks.
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Holy shit I just realized something. I have had 6 CMF witch is 3 chemos x6 =18. and 4 TC which is 2 chemo drugs each time =8. that is 24 F-N doses of chemo drugs. Plus 6 neulasta all together. No wonder I feel like I have been dragged down a mountain by a tractor.
Most of us on the April schedule are done or nearly done. I want to propose a new thread where we can start to post how we are rebuilding our bodies and our lives, and continue to support one another, anyone else game?
I will start it and call it "April chemo warriors on the mend." Here is the link
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I will join merilee , am having #4 as I write and this my last and I need to recover fast too for mx surgery in august- merilee looking at your diagnosis tagline and all that chemo you have had is making me nervous....why so much?
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Well the swelling is a little better today but the antibiotics are causing the big D
No chemo for me tomorrow, now I'm pushed back a week.. oh well I guess it is what it is
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Sounds good Merilee. Wow you are having a lot to chemo and you are only Stage 1 with no nodes? I guess your doc is aggressive. You won't be able to have any regrets that you zapped it with everything.
I had my 4th and final T/C so I'm pretty happy. I just have to get through the next 2 weeks now. I was loving my last week. Food tasted good again, I could sleep without Ambien and that pit in my stomach was gone. I can't wait to feel like that all the time. Radiation starts in August. I have to focus on that now. No deodorant, shaving, lotions or bras???
Ginger - sorry for the set back but I'm glad that the antiboitics are working.
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Awesome you are done Katfinn. Not an easy journey but you made it.
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Merilee I would love to stay with this group when we're through chemo. I've got 3 more Taxols to go then this first phase is done, then a month off to get ready for my bil mx with nodes, then off to radiation. So this chemo for me is just the first phase of this 3 phase attack on the cancer. I would love to hear from anyone out there your opinions on reconstruction simultaneous with the mx, what kind of reconstruction did you have, would you recommend it to anyone or chose something different; if you are having radiation, how did you make your decision about reconstruction etc. I'm on a fact finding mission right now as my surgical date is soon to be determined and I want to know as much as I can about the reconstruction part of this. I pretty much have decided that I do want to have some kind of boobs again in my life, just not sure when or how?
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Teckler2 - If you haven't seen my post about the SOB who walked out on me, know that I am feeling your pain as we all are. when you love someone and they say they love you it brings you to your knees when you find out that love is gone and they weren't the man you thought they were. I did a lot of praying and soul searching after he left, and a lot of just resting and sleeping. The rest and sleep was what I needed. I got stronger with each day as you will too. Do you have a close friend or sister nearby to help you through this? You know we all are here for you.
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One more thing Teckler2, I started to actually feel a burden was lifted off my chest because i was so worried about him and why he was so unhappy. Now with that gone out of my life I can focus more on my healing and bring back my joy. I hope you will feel that way too and see how much this was zapping your energy and strength to concentrate on just you. Sending you healing prayers to see you through this.
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Love you gals, but you're kinda freaking me out! I started on Taxol and Lapatinib...16 weeks. I'm 12 in. Then, I'll have surgery, THEN start my 4 rounds of AC. So, I've got a long chemo way to go yet! I'm with RangerMom though for part--I should be having my surgery at the end of August. I'm still deciding between lumpectomy and mastectomy. It's such a HUGE decision!!!!! I'm meeting my plastic surgeon tomorrow though, so I hope that will help me make my decision.
Look at how much we've already been through together!
PROUD of us!!
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RangerMom, I finish my TAC x6 the last week of July. Then surgery, then radiation. I meet with my surgeon next week, so will have a bit more information. Originally I was told a lumpectomy would not work for me because of the location of the tumor but it has shrunk significantly so dont know. I am not planning to do reconstruction even though my dtr is nagging me about it.
Sounds like we are on the same schedule - and Profbee too!
I agree - - Proud of us!!!!!!
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I'm feeling like the odd man out - I won't be done with chemo until October 2012.
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Windlass, I won't be done until September 22nd, assuming no delays. I start the first week of my 12 weeks of Taxol on July 7. I'll be here with you for what's ahead of us.
But how encouraging is it to see some of our new friends walking over to the other side of this chemo business?? Just keep showing us the way.
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